: Re: Lack of progress, ANDY your comments please?

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> Anita,

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> Feeling guilty as when you first came here I did not know of this

phenomena and filled your head with all kinds of unrealistic

expectations as I had really thought given your boy's age your

journey would be a cake walk, for that I am deeply sorry.

, you have nothing to apologize for. You've been a true

friend and amazing resource to me and my son. Most people do believe

that if you start your child so young that results will be faster and

better. In fact, that does seem to be an actual trend, given my

reading on the boards, but as with all things related to ASD, nothing

is 100%. I will admit it is difficult to not blame myself for my

son's lack of progress especially because we had such great luck at

the beginning. It is easy to believe that somehow my bad

decisions/lack of judgement ruined that progress. But that is only

on bad days.

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> Does he appear better on the chelators or during a round than off?

We no longer see any difference. At the beginning he was better on a

round and we could see a definite dip the day after a round,

particularly if that round was short (less than 4 days). We also

never see any improvements, as we likely should by now, with each

round, even very long rounds.

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> It's also interesting, not in any good way that antivirals bring

out seizure activity and I would think that is associated with

mercury being moved and I know antivirals don't have any properties

which would make that happen.

I realize it could be coincidental, but the virus/seizure connection

does seem fairly plausible here. In going back over videos, etc, I

can see things that indicate to me that my son's regression actually

started after his MMR. It wasn't noticeable to me at the time, even

though he's my third child, as he was still affectionate, chatty,

healthy. But there are oddities. Then, with the antibiotics and

thimerosal, everything came crashing down. I think we are dealing

with the metals well enough, but his problems are more complex.

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> I don't have the answers you're looking for, hoping Andy does, just

wanted to say I don't know anybody who has worked any harder than you

have and you've crossed a lot of things off your list. Just wanted to

say we are thinking of you here and hoping the New Year brings you

some well deserved answers.

I am grateful for all of your kind thoughts and help .

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> And, btw, can you give me a clue as to what sod means, never quite

heard that one....but I live a sheltered life?

Oh, you are sheltered. :-) Think sodomy. And think about how we

feel about those people who say we're abusing our kids by trying to

help them. Then you'll understand my message for them :-)

I'm sending you my warmest wishes for 2007 as well--the year to have

more time to enjoy the amazing fruits of your hard work and

dedication :-)

Anita

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