Lack of progress, ANDY your comments please?

[Guest guest]

Listmates,

My son, who will be four in February, has been chelated 50 rounds, had

one viral protocol, 80 HBOT dives, numerous supplements, different

diets.

We have seen great progress. But, sadly, we have lost almost all of

the gains we've made. This was painfully obvious during the Christmas

holidays. As difficult as it is to admit, ds is nowhere near the place

he was about 6 weeks after our first intervention almost two years ago,

going GFCF (as with all things, almost all the gains disappeared)

although he is still better than right after his regression--that,

however, isn't saying much.

I am hoping to get some feedback on particular issues so I can make

some decisions. Forgive my very long post.

Chelation: we have chelated AC protocol DMSA/ALA for 50 rounds. We

have not seen any gains from chelation since the initial 10 rounds. Is

it possible that we are still in the plateau period? Testing shows

that ds is excreting (lead, mercury, antimony, aluminum, all the

usuals). There is a great deal of talk about kids who don't tolerate

the sulfur chelators. Is is possible that someone could build up an

intolerance that would manifest as lack of progress? Am I just being

impatient?

Viral issues: our viral protocol gave us some good gains, most of

which slowly disappeared after 3 months. I am unwilling to do another

viral protocol without taking some steps to try to ensure that hard-

earned gains won't be lost. Instead, I decided to try NCD based on

some parent reports that it is doing something virally. I used it for

only 9 days and had built up to 4 drops/day on the 9th day. At that

dosage, my son started having absence seizures (as he had done during

our last viral protocol) and also very large blisters appeared on the

palms of his hands. I had thought we had let him burn himself somehow

and he hadn't felt pain and consequently hadn't cried--but in

retrospect these were not burn blisters. The palms of his hands were

about 1/5 covered in these blisters. His entire palms peeled as did

his toes a few days later.

HBOT: 80 dives at 1.5 ATA 100% oxygen. Again, almost all gains

completely lost.

GUT ISSUES: ds still struggles with constipation. Testing shows that

in spite of supplementation, many nutrient levels are still very very

low. GFCF worked briefly and spectacularly and then didn't. A second

trial of it showed nothing except a lot more yeast to deal with. Low

protein, low glutamic acid diet showed now improvements. LOD gave huge

constipation but no improvements (it was a short trial, but ds has no

markers of a good candidate). We use houston enzymes. Finally, I will

be going SCD in a few weeks but with little optimism.

SUPPLEMENTS TRIED:

Calcium, magnesium, zinc, Vitamins C, D, E, K, B (all of them), CLO,

fish oil, colostrum, houstons enzymes, epicor, adrenal support, tons of

probiotics, candex, GSE, OoO, phosphatidylcholine, evening primrose

oil, taurine, custom amino blend, s. boulardii, selenium, moly, CoQ10,

milk thistle, vanadium, chromium picolinate, transfer factor, heme

supps for iron, biotin, AKA, virastop, laurcidin, elderberry,

inflammation control, melatonin, l-carnitine, and probably some others

I've forgotten.

We sometimes see gains but they rarely last. Journals and ATEC prove

this.

DS is still very much in his own world, non-verbal, non-engaged with

his family. He is affectionate with me, sleeps better than before, and

has a few splinter skills. I do know this is a long haul for most of

us, and I'm not expecting overnight miracles. I would truly appreciate

any comments or suggestions people might have on the information I've

provided here.

Most gratefully,

Anita

A special message for any anti-biomedical trolls who might be reading

this with sanctimonious pleasure: sod off.