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Hey, I might as well throw on sunglasses at night, too. What's one

more oddity in my life? =)

If it works, it works!

Blessings,

> i always have sunglasses with me...even at night when i am in

stores with

> flourescent lights. works well for me. pj

>

>

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  • 2 weeks later...
Guest guest

<<Was someone on this list talking about their child being sensitive/lack of

sensitivity to the sun or light??? Kathy>>

Hi, Everyone.....Kathy....Gareth is VERY sensitive to light. I read this

article and will follow-up tomorrow. I am always looking for ways to make

his life easier. Gareth will scream for his sunglasses in the car and will

tell me the 'lights burn his nose'....even the lights in the house. He, too,

has to blast the music in the car. I don't know where you and Irma come up

with all the web sites you share, but I sure do appreciate them.

Take care, Everyone.

Margaret

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  • 4 years later...

I am still having severe light sensitivity. The ARNP that I work with

has ordered a saliva lab test Hormone Profile II which tests for E2,

Pg, T, DHEA-S, & am/pm Cortisol. Due to symptoms we are focusing on

adrenal issues. I went to the optomestrist and I do not have an

infection but both eyes are REALLY inflamed. I was given a script for

Tobra Dex to take 4 times a day. Tobra Dex has an anti-inflammatory and

antibiotic in it. I have been using this for over two weeks. The

redness is gone but the inflammation is not going away very fast. I am

still having to double up on sunglasses on sunny days. Any ideas?

Thanks, Melinda

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Mercury can cause photosensitivity. Remind us if you have amalgams, if you had

some removed (properly or otherwise), if you're chelating, whether you met

counting rules. Beware of eye drops, some still contain thimerosal, I think. Do

your eyes dilate properly? Sometimes that's at least part of the issue with

light sensitivity, as much the treansition from dark to light, as the light

itself.

S S

<p>I am still having severe light sensitivity. The ARNP that I work

with <br>

has ordered a saliva lab test Hormone Profile II which tests for E2, <br>

Pg, T, DHEA-S, & am/pm Cortisol. Due to symptoms we are focusing on <br>

adrenal issues. I went to the optomestrist and I do not have an <br>

infection but both eyes are REALLY inflamed. I was given a script for <br>

Tobra Dex to take 4 times a day. Tobra Dex has an anti-inflammatory and <br>

antibiotic in it. I have been using this for over two weeks. The <br>

redness is gone but the inflammation is not going away very fast. I am <br>

still having to double up on sunglasses on sunny days. Any ideas?<br>

Thanks, Melinda<br>

_______________________________________________

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, I have three amalgams and two kids with mercury derangement

and high arsenic per ddl hair analysis. I can not afford to get my

amalgams removed at this point. When the optometrist put drops in my

eyes she said that they are still glowing. I am not sure what this

means. I will start asking more questions.

Here is the results of my ddl hair analysis and other

> tests ran.

> Result Reference Range

> Aluminum 1.7 <7.0 Green

> Antimony <0.01 < 0.050

> Arsenic 0.053 < 0.060 Green

> Beryllium <0.01 < 0.020

> Bismuth 0.11 <0.10 Yellow

> Cadmium 0.062 <0.10 Green

> Lead 0.05 <1.0 Green

> Mercury 0.23 <1.1 Green

> Platinum <0.003 <0.005

> Thallium <0.001 <0.010

> Thorium <0.001 <0.005

> Uranium 0.006 <0.060 Green

> Nickel 0.06 <0.40 Green

> Silver 0.30 <0.15 Yellow

> Tin 0.06 <0.30 Green

> Titanium 0.39 <1.0 Green

>

>

> Result Referance Range

> Calcium 761 300-1200 white

> Magnesium 83 35-120 Green to right

> Sodium 59 12-90 Green to right

> Potassium 7 8-38 Yellow to left

> Copper 11 12-35 Yellow to left

> Zinc 200 140-220 Green to right

> Manganese 0.20 0.15-0.65 Green to left

> Chromium 0.29 0.20-0.40 White

> Vanadium 0.022 0.018-0.065 Green to left

> Molybdenum 0.035 0.028-0.056 Green to left

> Boron 0.66 0.30-2.0 White

> Iodine 0.49 0.25-1.3 Green to left

> Lithium 0.013 0.007-0.023 Green to right

> Phosphorus 158 160-250 Yellow/Green online to left

> Selenium 0.96 0.95-1.7 Green to left

> Strontium 0.96 0.50-7.6 Green to left

> Sulfur 44400 44500-52000 Green to left

> Barium 1.3 0.26-3.0 Green to right

> Cobalt 0.015 0.013-0.050 Green to left

> Iron 10 5.4-14 Green to right

> Germanium 0.036 0.045-0.065 Yellow to left

> Rubidium 0.010 0.007-0.096 Green to left

> Zirconium .13 0.020-0.42 Green to right

>

> Other tests ran: CBC diff, CMP, uric acid, homocysteine, B12,

> ferritin, lipid panel, h pylori- everything seemed ok according to

> ARNP. I do have copies of these but don't know enough for it to mean

> anything to me.

>

> Recommended treatment plan

> B complex, Vit C 3 X daily

> Cytozyme AD 2 in the am. and 2 @ noon

> Probiotics - 60 billion organisms/day

> Fish Oil/Emulsified Cod liver oil/ 2 tsp/day

> Multi-Vitamin c Fe - one with each meal

>

> Again thanks for the replies. I will start Vit C today.

took a look at the results of my hair analysis (see below)

in Sept and responded to my post. This is a copy of what she posted

including the ddl results.

The test does not meet the counting rules, however 7 to the right

is unusual according to Andy's book. As I'm sure you know, a trial

of chelation may give information that is not showing up here. Of

course, you must have your amalgams removed first.

The K/Ca ratio suggests a thyroid problem. Did the ARNP do

thyroid testing? You don't have the classic adrenal sign,

but if the thyroid is compromised, then your adrenals are

likely struggling too.

The Na/Mg ratio says you feel lousy - poor mood and energy

due to low adrenaline production. According to Andy, taking

any of the following may be helpful: tyrosine, TMG, folic acid,

vit B6 and B12.

The supp recommendations from your practitioner look pretty

reasonable as a start, but adding the other ones I suggested

in my previous message is important at some point. Cytozyme-AD

is adrenal glandular. I'm not sure if this product is whole

adrenal or adrenal cortex only, but since you have low adrenaline,

it may not matter. I would question the multi-vitamin with iron -

Andy doesn't recommend iron in mercury toxic people. If your

ferritin is low, then perhaps a short course of iron will help

you feel better - if not, I would skip it. You may want to read

about this in Amalgam Illness.

Starting supplementation may help you feel noticeably better

pretty quickly.

--

>

> <p>I am still having severe light sensitivity. The ARNP

that I work with <br>

> has ordered a saliva lab test Hormone Profile II which tests for

E2, <br>

> Pg, T, DHEA-S, & am/pm Cortisol. Due to symptoms we are focusing on

<br>

> adrenal issues. I went to the optomestrist and I do not have an <br>

> infection but both eyes are REALLY inflamed. I was given a script

for <br>

> Tobra Dex to take 4 times a day. Tobra Dex has an anti-inflammatory

and <br>

> antibiotic in it. I have been using this for over two weeks. The

<br>

> redness is gone but the inflammation is not going away very fast. I

am <br>

> still having to double up on sunglasses on sunny days. Any ideas?

<br>

> Thanks, Melinda<br>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

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In addition the fillings causing light sensitivity, adrenal fatigue

can do this too. Adrenal fatigue would be the result of mercury

fillings anyway..sort of a catch 22. I noticed a great improvement

in my eyes following filling removal, and finally the light

sensitivity is gone with adrenal treatment.

> >

> > <p>I am still having severe light sensitivity. The

ARNP

> that I work with <br>

> > has ordered a saliva lab test Hormone Profile II which tests for

> E2, <br>

> > Pg, T, DHEA-S, & am/pm Cortisol. Due to symptoms we are focusing

on

> <br>

> > adrenal issues. I went to the optomestrist and I do not have an

<br>

> > infection but both eyes are REALLY inflamed. I was given a

script

> for <br>

> > Tobra Dex to take 4 times a day. Tobra Dex has an anti-

inflammatory

> and <br>

> > antibiotic in it. I have been using this for over two weeks. The

> <br>

> > redness is gone but the inflammation is not going away very

fast. I

> am <br>

> > still having to double up on sunglasses on sunny days. Any ideas?

> <br>

> > Thanks, Melinda<br>

> >

> >

> > _______________________________________________

> > Join Excite! - http://www.excite.com

> > The most personalized portal on the Web!

> >

>

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Hello,

I was interested in your discussion of light sensitivity because about

six months ago my son was getting some liver detoxification treatments

using a cold laser and I was recommended by the doctor to have the same

treatments to treat allergic sinusitis. I had just one treatment and

had a very strong response with some major visual changes. I normally

am nearsighted with a glasses prescription of 3.75 (right) and 4.75

(left). My vision improved to 3.00/4.00. In addition, I developed

photosensitivity which has improved from the original treatment however

it is still bothersome. I have read some of the notes that it can be

due to adrenal fatigue or possibly vitamin A depletion or even loss of

vitamin B2. I have had my eyes checked by two opthalmologists and both

indicated that they look perfectly normal. In fact I had the retinas

scanned on two occasions and it was indicated that for a 51 year old

the vessels look very healthy almost like that of a younger individual.

By the way I have a 15 year old son with autism who we have been

detoxing for some time. Both he and my wife have high DHEA, low DHEA-S

and he has high testosterone and low FSH. I have never been tested for

these. I thought it might be of help to write this story and to ask for

some thoughts. Also, I had all of my amalgams removed about three years

ago. The lights which bother me the most are head and taillights of

cars, signal lights, and direct sunlight. I just never remember these

bothering me so much before. Generally the lighting indoors or when the

sun is at my back is not a problem. I generally do not wear sunglasses

unless the sun becomes intolerably bright.

Thanks for any ideas you might have.

Ken Sokolski

RE: [ ] Light Sensitivity

Mercury can cause photosensitivity. Remind us if you have amalgams,

if you had

some removed (properly or otherwise), if you're chelating, whether you

met

counting rules. Beware of eye drops, some still contain thimerosal, I

think. Do

your eyes dilate properly? Sometimes that's at least part of the issue

with

light sensitivity, as much the treansition from dark to light, as the

light

itself.

S S

<p>I am still having severe light sensitivity. The ARNP

that I work

with <br>

has ordered a saliva lab test Hormone Profile II which tests for E2,

<br>

Pg, T, DHEA-S, & am/pm Cortisol. Due to symptoms we are focusing on <br>

adrenal issues. I went to the optomestrist and I do not have an <br>

infection but both eyes are REALLY inflamed. I was given a script for

<br>

Tobra Dex to take 4 times a day. Tobra Dex has an anti-inflammatory and

<br>

antibiotic in it. I have been using this for over two weeks. The <br>

redness is gone but the inflammation is not going away very fast. I am

<br>

still having to double up on sunglasses on sunny days. Any ideas?<br>

Thanks, Melinda<br>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

=======================================================

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I didn't notice a huge improvement in my photosensitivity during the

year that I was on cortisol before amalgams were removed, nor during

the year I didn't chelate. I have noticed a huge improvement with

chelation. I don't need sunglasses to drive anymore. Used to need

them outside all the time.

J

>

> <p>I am still having severe light sensitivity. The ARNP

> that I work

> with <br>

> has ordered a saliva lab test Hormone Profile II which tests for E2,

> <br>

> Pg, T, DHEA-S, & am/pm Cortisol. Due to symptoms we are focusing on <br>

> adrenal issues. I went to the optomestrist and I do not have an <br>

> infection but both eyes are REALLY inflamed. I was given a script for

> <br>

> Tobra Dex to take 4 times a day. Tobra Dex has an anti-inflammatory and

> <br>

> antibiotic in it. I have been using this for over two weeks. The <br>

> redness is gone but the inflammation is not going away very fast. I am

> <br>

> still having to double up on sunglasses on sunny days. Any ideas?<br>

> Thanks, Melinda<br>

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  • 7 months later...

There was an episode of mystery diagnosis where a child had extreme light

sensitivity (also craved salt and a few other oddities). I think it ultimately

led to a diagnosis of a very serious kidney disorder. I would make sure a

doctor is ruling out any serious conditions. If your child has more light

sensitivity after IVIG, I would be concerned.

-

<iamlaurasmith@...> wrote:

Hello,

I figured I would ask the " experts " this one. My son has selective

IgG def. with no other complications. (that we know of!) We started

with IVIG, but after a few months we had problems with vein access.

We have done SubQ for 5 weeks and love it!

Here is my question. has always had problems with bright lights

hurting his eyes, but it has gotten worse in the last month. He had

his treatment yesterday, and we went to the pool today. After 30

minutes we had to leave because his eyes were hurting. We tried

sunglasses and a hat, nothing worked. Is this a problem other kids

with PIDDs experience? Could it be a side effect? If so, how do you

deal with it?

Also, has anyone else had a problem with thier children's teeth?

's teeth have gotten " dingy " and stained. His dentist said his

teeth are more porous and stain easier now. He buffed his teeth and

got the stains off, and drinks from a straw.

One more thing. 's immuno thinks is the first kid in Alabama

to do SubQ. Is there any way to find out? I would love to be a

support person helping other parents with newly diagnosed children.

O.K. That's all for now. Thanks,

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Answers - Check it out.

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My two homegrown children are both very light sensitive.? Both are also very

pale skinned and have red hair.? Cody, has always had an issue with the sun

since birth.? Now that he has some words, he screams " HOT " and " EYES " whenever

we go out in the bright sun.? He will cover his eyes and rub them constantly

while the sun is shining directly on him.? In addition, if he wakes up outside,

he screams non stop for hours that his " eyes hot " .? We've learned NOT to wake

him outside or to let him fall asleep if we can't get him home before he would

wake up.?

I did find the post about the " needing extra salt and other oddities " very

interesting because Cody CRAVES dog food!? I know it's very salty so maybe

that's why.? I have to watch him constantly to be sure he's not eating the dog

food whenever he's alone.? In addition, he will readily sit out back and eat

fists full of potting soil or entire giant chunks of sidewalk chaulk.? What do

you think that's all about??

Take Care and God Bless,

www.caringbridge.com/ny/my2angels

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