Re: Andy-Six year old with jra/uveitis

[Guest guest]

I wanted to clarify that when we took her off everything after the

zinc episode, she was still taking her pred forte and atropine drops

once a day.

[Guest guest]

>

> I wanted to clarify that when we took her off everything after the

> zinc episode, she was still taking her pred forte and atropine drops

> once a day.

Excuse me please for being repetitive, bombastic, almost monomanaiacal, but

there is no

magic difference between supplements and medications, where it is just fine to

start and

stop all supplements cold turkey but it is not OK to do that with medications.

Each agent has to be individually evaluated as to whether this is OK or not.

Even alternative MD's and other non MD/DO doctors are pretty clueless on this

point. It is

a major dogmatic point of the state medical religion we have in America today.

Medicine

is special and different from all other chemicals. The belief that you have to

treat

medicine differently than everything else and do exactly what the doctor says

with it is

false.

>

>

>

[Guest guest]

Most important is the question of heavy metal problems and chelation. The hair

test

counds very normal, but then she has a brother who is responding to chelation,

and she

has autoimmunity which is usually mercury related.

On this basis I'd suggest a 5 cycle (weekend) trial of chelation. Use either

ALA only, or

DMPS on cycle 1 and then DMPS and ALA on 2-5. Propper adminstration criteria are

given

elsewhere.

If there is no apparent response to this, consider it not to be a chelation

responsive

problem and we'll talk about what else to do in more detail.

Did anything significant or memorable happen in 4-5-6/2005 OTHER than the SCD

and

the beginning of the foot and toe pain?

Many other thoughts as follows:

1. 250-500 mg naicinamide (NOT NIACIN!) 3-4 times a day for at least several

months.

This will sometimes interrupt autoimmunity and is otherwise fairly benign.

2. Most drugs do have appropriate uses, do not reject the use of

immunosuppresants out

of hand. Given the potential for vision loss, being a bit heavy handed with

drugs seems

appropriate.

3. TRY ACUPUNCTURE. It can be done with herbs or acupressure if she won't

tolerate

needles.

4. Go to the different rheumatologist. Go collect lots of opinions. LOTS and

LOTS of them.

Let the doctors educate you. Talking to a lot of doc's doesn't hurt anything.

The only risk

comes when you start doing things (or not doing things) based on their advice.

5. You might consider whether the high vitamin content eye drops from life

extension

foundation are a good idea or not. Most likely " Viva drops " which contain a lot

of vitamin

A ARE a good idea. These are OTC.

6. Vitamin C has to be several times a day to be effective.

7. The selenium is probably sodium selenite. This is specifically toxic to the

eye. The

correct form of selenium to use is selenomethonine or the less common S

selenocysteine.

8. Get her back on some sort of fish or flax oil. Flax in tbsp, not tsp.

9. Enzymes are not weekly, they are with every meal.

10. I think your chiropractor is opining well beyond the scope of his

competence,.

11. There are no reliable tests for sensitivity other than elimination. Get rid

of the cheese

and goat's milk. Cheese has tons of casein in it.

12. Discuss the allergy therapy on list BEFORE trying it. But go get the

opinion. I think you

would also likely do quite well to get an Rx for Accolate, 20 mg (adult size)

twice a day on

an empty stomach. This is well known to reduce allergic reactivity and MIGHT

reduce

autoimmunity.

13. There are lots of angiotensin converting enzyme blockers readily avaialbe by

Rx, e. g.

Lysinopril. They are used to reduce blood pressure. She might do well on 5 mg

twice a

day of lysinopril. The doc needs to (and this IS important) check her bun and

creatine by

blood test 2 weeks after starting it. It can be given with food.

14. The most horribly dangerous thing you can do is a " more aggressive form of

chelation. " My form is the most aggressive out there, the others are psychotic,

harmful,

inappropriate, insane, but not aggressive. See the appendix of Amalgam Illness

for a

discussion of how much extra mercury is cleared by each different protocol and

you will

understand what I am saying.

15. The worst possible choice you could make would be IV chelation, and

detoxamin

would not be a good choice. See www.dmpsbackfire.com and think hard about how

you

would feel when she ends up with her uevitis and JRA far worse AND the kinds of

problems

described there in addition. Then don't do it.

16. You can chelate while on immunosuppressants. I would avoid DMSA unless both

DMPS

and ALA do some good but are also not tolerated.

17. If she was my kid I'd use aspirin, not naproxen, would very likely have her

on

immunosuppresants already, and would definitely NOT try psychotically

inappropriate and

harmful chelation protocols masquerading as " aggressive. " Otherwise as above.

Andy

>

> Hello Andy,

>

> Our oldest child is doing fantastic and has been chelating since Feb of 2006

for his

aspergers and used the invaluable support of you and the group.

>

> I would like your opinions on our youngest child. She is six years old. I

will include her

hair test and other test results. She has arthralgia in several joints, toes,

ankles, knees,

wrists. The rheumatologist says it is possible most probable the start of

Juvenille

rheumatoid arthritis. She has uveitis (chronic anterior bilateral uveitis-in

both eyes), just

diagnosed this past September. She has had two flares of uveitis since

September, she

came in with a flare, then had another flare after she we weaned her off of pred

forte for a

month. Her pediatric opthamologist is talking about using immunosuppressants

like

methotrexate on her to control her uveitis when there is another flare.

>

> The most recent development is yesterday afternoon, and eighty year old very

experienced uveitis specialist we took her to, said she may have already had her

uveitis for

a very long time-around eighteen months or so since the beginning of her

footpain/toe

swelling which was 6/2005. It is common for uveitis to last two years in this

situation,

and there is a chance she could be heading twards remission or on the tail end

of the

uveitis in his opinion. He thinks we could try naprosin (like Aleve-only in a

liquid for

children, a NSAID) to control the inflammation until she is fully in remission

without

methotrexate. He wants to send us to a different rheumatologist.

>

> She has significant scarring in her left eye, and if she would get any more

damage in

her eye from inflammation, there will be vision loss. We don't have a lot of

time or a lot of

wiggle room for mistakes like when we are doing supplements on our son, there

was more

room for trial and error. We have been fortunate with our son to have done his

treatment

with the minimum amount of testing, hair testing only. Our daughter though, is a

tougher

case I think.

>

> What she's been on:

>

> pred forte 1% and atropine eye drops (Was 6 drops weaned down to now one drop

of

each in each eye per evening)

>

> livon laboratory lypo-spheric vit C 1000mg w/ 4,000 mg of

phosphatidylhcholine once

a day

>

> Jarrow curcumin 95 with curcumin 380mg, demethoxycurcumin 90mg,

bisdemehtoxycurcumin 15 mg, other turmeric substances, 15mg once a day

>

> Blue bonnet super quercetin 1000mg w/bromelian 140 mg, citrus bioflavnoids

100mg,

rose hips 25 mg, acerola 25mg, rutin 20 mg, and hesperidin 15mg once a day

>

> custom probiotics d-lactate free formula (1/2 scoop-one to three times a day

away from

food)

>

> New beginnings calcium/magnesium chewables calcium citrate 333mg/magnesium

glycinate 50 mg (two to four tablets a day)

>

> New beginnings selinium drops (sodium selenite) 5 drops/250mcg once a day

>

> On and now off CLO-She was taking Nortic Naturals 1 tsp 3x a day until it was

suggested by a chiropractor through kineseology that she is possibly allergic to

vit D, so

we've discontinued

>

> organic Flaxseed oil-1/2 tsp once a day

>

> various kefir shakes and raw goat milk diets-which we went off of because the

chiropractor said dairy and gluten was her problem and the inflammation was

caused from

the gut, the large intestine.

>

> weston price diet-which we are attempting to do gf/cf currently

>

> gluten free diet off and on (for most of the past 2 years on gf/cf-cheating

with

houston's enzymes once a week) now there is no cheating. The chiropractor said

no

cheating with enzymes because the gluten and casein still cause damage.

>

> We were on the SCD when she was first diagnosed in september, we had been on

that

diet 3 months, and went off of it when she was diagnosed.

>

> Currently we are trying to decide whether she could be cf if she has goat milk

and

cheese only or if goat milk and cheese is a problem. Maybe there is a test you

could

recommend that would give us direction on this.

>

> We gave her lifeline ionic liquid zinc one day and it gave her a terrible

headache just

above and to the outside of her already damaged eye. We consulted this group,

and

discontinued it immeadiately for possible stimulating the immune system.

>

> After the zinc episode, I worried about the things we are giving. I took her

off

everything but the probiotics for a week, and she had serious vision

disturbances. For six

hours, she said she couldn't see white when she looked at her white coloring

page. I put

her back on the Vit c, sel, cal/mag, curcumin, and querciten, after that and her

vision has

been without further disturbances.

>

> The diet was something we were doing as a family. Her only bowel symptom is

frequent

constipation. We are taking her to an allergist for possible LDA (low dose

allergen

therapy). Family history of severe allergies and chemical sensitivity make us

think

allergies could be an underlying cause. She has no obvious allergies to us, but

the

allergist found that her nasal passages were inflamed and her nostrils made an

allergic

whistle sound.

>

> Rheumatology report:

>

> Somewhat enlarged sausage like digits on toes, come and go. ANA slightly

elevated 1:

320 in a homogenous pattern;CBC normal;sedicmentation rate normal; elecrolytes

and

liver funtion normal; an angiotensin converting enzyme slightly elevated at 58

with a

normal range being 7-46; P-anca and C-anca negative; HLAB-27 negative; lyme

antibodies negative; toxocara and toxoplasma negative.

>

> Since this is kind of an emergency, would we do a more agressive form of

chelation than

your method? Would now be a time to do iv or detoxomin chelation? I was

thinking

because we don't have a lot of time with the eyes before they will want her on

immunosuppressors. Can we chelate while on immunosuppressors? The other

specialist

saying she is on the tail end really makes me feel more relieved that there is a

chance she

might not need immunosuppressors. I would like what we are doing to keep her

eyes

quiet and keep her from needing immunosuppressors. Should we supplement?

because if

her immune system is attacking itself which is what they have told me...it

complicates

things.

>

> I would appreciate any imput you could give. If it was your child, what tests

and

treatments would you be doing? Just picking your brain, what are your thoughts?

>

>

>

>

> Hair test from last February

> Age 5 Female, no vax, no mercury fillings. The most NT of all of our

> five children.

>

> Potentially toxic elements

>

> Aluminum 15 range <8.0 yellow

> Antimony 0.078 range <0.066 yellow

> Arsenic 0.031 range <0.080 green

> Beryllium undetected

> Bismuth 0.34 range <0.13 yellow

> Cadmium 0.099 range <0.10 green

> Lead 0.67 range <1.0 green

> Mercury 0.20 range <0.40 green

> Platinum 0.003 range <0.005 green

> Thallium indetected

> Thorium 0.004 range <0.005 green

> Uranium 0.022 range <0.060 green

> Nickel 0.18 range <0.40 green

> Silver 0.05 range <0.20 green

> Tin 0.33 range <0.30 yellow

> Titanium 1.3 range <1.0 yellow

>

> Total toxic yellow

>

> Essential and other elements

>

> Calcium 697 range 140-500 yellow right

> Magnesium 76 range 15-45 yellow right

> Sodium 22 range 12-90 green left

> Potassium 18 range 9-60 green left

> Copper 15 range 10-22 green right

> Zinc 170 range 100-190 green right

> Manganese 0.30 range 0.20-0.55 white

> Chromium 0.42 range 0.26-0.50 green right

> Vanadium 0.032 range 0.030-0.10 green left

> Molybdenum 0.069 range 0.048-0.13 green left

> Boron 2.0 range 0.35-3.0 green right

> Iodine 0.68 range 0.25-1.3 green right

> Lithium 0.008 range 0.007-0.023 green left

> Phosphorus 196 range 160-250 white

> Selenium 0.91 range 0.95-1.7 yellow left

> Strontium 2.0 range 0.19-2.0 green right

> Sulfer 51700 range 45500-53000 green right

> Barium 1.6 range 0.16-1.2 yellow right

> Cobalt 0.027 range 0.013-0.035 yellow right

> Iron 19 range 8.0-19 green

> Germanium 0.033 range 0.045-0.065 yellow left

> Rubidium 0.021 range 0.012-0.16 green left

> Zirconium 0.50 range 0.030-1.0 green right

>

> Ratios

> ca/mg 9.17 range 4-30

> ca/p 3.56 range 1-12

> na/k 1.22 range 0.5-10

> zn/cu 11.3 range 4-20

> zn/cd >999 range >800

>

> Thank You for looking at our children's hair tests.

>

>

>

>

>

[Guest guest]

<Did anything significant or memorable happen in 4-5-6/2005 OTHER than

<the SCD

<and

<the beginning of the foot and toe pain?

The previous year we refinished the basement ourselves so there was

lots of dust in the house. Around the same time she would have been

having her inflammation problems in her foot, her dad was having

inflammation problems of another kind, an anal fissure which

eventually required surgery. The previous year before the footpain

she was involved in various ballet, tap, then gymnastic classes.

The SCD diet was 6/2006, the footpain had gone on a year by then. In 7-

8/2006 the basement flooded. Our six year old child's room was

flooded and most of her and her sister's toys had to be thrown away

because of mold. We did manage to recover some. I did clean up the

mold, there was no structural damage, just property damage. The floors

were concrete, no carpet. I cleaned the basement floors with seventh

generation soap and whole bottles of GSE in the mop bucket.

In 9/2006 our daughter had chicken pox, with an unusually high fever

of 105, she screamed out " my eyes my eyes " during the fever and I knew

something was wrong. We noticed the band keratonomy or cloudy spot on

her eye a week later after the chicken pox that we hadn't noticed

before. She only got two small chicken pox. The doctors all agree

that while the uveitis might have been effected by the chicken pox, in

order to get this type of scarring she would have had to have the

uveitis months if not longer prior to chicken pox to get the kind of

scarring she had at the time. In Sept 2006 at the opthomologist, she

was diagnosed as having an active flare of uveitis. It was then that

they did the testing for arthritis. Previous doctors we had taken her

to all year for the footpain had just misdiagnosed her foot pain and

swelling as turf toe, or accused her of manipulating us to be carried

when we returned and the swelling was gone.

[Guest guest]

,

Are you SURE there is no mold in the basement at all ? Not in the walls,

especially the ones with insulation ?

Mold can be a very nasty thing and affect your immune system, maybe there is

a way to have that checked ?

I wish I had some other words of wisdom, sorry.

Good Luck !

Neil

_____

From: [mailto: ]

On Behalf Of bestbirths2006

Sent: Friday, December 29, 2006 8:16 PM

Subject: [ ] Re: Andy-Six year old with jra/uveitis

<Did anything significant or memorable happen in 4-5-6/2005 OTHER than

<the SCD

<and

<the beginning of the foot and toe pain?

The previous year we refinished the basement ourselves so there was

lots of dust in the house. Around the same time she would have been

having her inflammation problems in her foot, her dad was having

inflammation problems of another kind, an anal fissure which

eventually required surgery. The previous year before the footpain

she was involved in various ballet, tap, then gymnastic classes.

The SCD diet was 6/2006, the footpain had gone on a year by then. In 7-

8/2006 the basement flooded. Our six year old child's room was

flooded and most of her and her sister's toys had to be thrown away

because of mold. We did manage to recover some. I did clean up the

mold, there was no structural damage, just property damage. The floors

were concrete, no carpet. I cleaned the basement floors with seventh

generation soap and whole bottles of GSE in the mop bucket.

In 9/2006 our daughter had chicken pox, with an unusually high fever

of 105, she screamed out " my eyes my eyes " during the fever and I knew

something was wrong. We noticed the band keratonomy or cloudy spot on

her eye a week later after the chicken pox that we hadn't noticed

before. She only got two small chicken pox. The doctors all agree

that while the uveitis might have been effected by the chicken pox, in

order to get this type of scarring she would have had to have the

uveitis months if not longer prior to chicken pox to get the kind of

scarring she had at the time. In Sept 2006 at the opthomologist, she

was diagnosed as having an active flare of uveitis. It was then that

they did the testing for arthritis. Previous doctors we had taken her

to all year for the footpain had just misdiagnosed her foot pain and

swelling as turf toe, or accused her of manipulating us to be carried

when we returned and the swelling was gone.

[Guest guest]

> In 9/2006 our daughter had chicken pox, with an unusually high fever

> of 105, she screamed out " my eyes my eyes " during the fever and I knew

> something was wrong.

This makes me think it is somehow viral.

Dana

[Guest guest]

Dana-yeah, me too on the viral. All the docs I talk to insist that once the

virus is over, it's gone. But we know that's not true. I was thinking of

maybe doing natural antivirals on her. Right now I have one bottle of virastop

and I wanted to start her on it but it doesn't taste good. We have had success

taking the capsule, putting it in her mouth, then she drinks water kefir after

(water kefir tastes so strong it blocks the aftertaste of CLO and icky tasting

stuff). When she had the chicken pox I gave her the virastop too, in a shake.

I am hoping to teach her to swallow pills though.

I read this fascinating thing on serrapeptase is the same thing as

serrapepdidase, and it has been researched to help fight inflammation in people

with arthritis....but....I believe that this is the same ingredient as in

virastop. I almost fell out of my chair when I read this " Serrapeptase-Insect

derived Enzyme Fights Inflammation "

http://www.enerex.ca/articles/serrapeptase.htm then I did a google on

serrapepdidase and serrapeptase, and it says they are the same.

[Guest guest]

Another one of those confusing real life cases.

I'm not at all sure what I think but the chicken pox and maybe other things

might have

stirred up her immune system. You might try some appropriate immunomodulatory

herbals and supplements, and some antiviral ones (e. g. elderberry extract,

which is a tasty

syrup) and put a hepa air filter in her room. Also get rid of anything moldy,

musty or

suspect.

Andy

> <Did anything significant or memorable happen in 4-5-6/2005 OTHER than

> <the SCD

> <and

> <the beginning of the foot and toe pain?

>

> The previous year we refinished the basement ourselves so there was

> lots of dust in the house. Around the same time she would have been

> having her inflammation problems in her foot, her dad was having

> inflammation problems of another kind, an anal fissure which

> eventually required surgery. The previous year before the footpain

> she was involved in various ballet, tap, then gymnastic classes.

>

> The SCD diet was 6/2006, the footpain had gone on a year by then. In 7-

> 8/2006 the basement flooded. Our six year old child's room was

> flooded and most of her and her sister's toys had to be thrown away

> because of mold. We did manage to recover some. I did clean up the

> mold, there was no structural damage, just property damage. The floors

> were concrete, no carpet. I cleaned the basement floors with seventh

> generation soap and whole bottles of GSE in the mop bucket.

>

> In 9/2006 our daughter had chicken pox, with an unusually high fever

> of 105, she screamed out " my eyes my eyes " during the fever and I knew

> something was wrong. We noticed the band keratonomy or cloudy spot on

> her eye a week later after the chicken pox that we hadn't noticed

> before. She only got two small chicken pox. The doctors all agree

> that while the uveitis might have been effected by the chicken pox, in

> order to get this type of scarring she would have had to have the

> uveitis months if not longer prior to chicken pox to get the kind of

> scarring she had at the time. In Sept 2006 at the opthomologist, she

> was diagnosed as having an active flare of uveitis. It was then that

> they did the testing for arthritis. Previous doctors we had taken her

> to all year for the footpain had just misdiagnosed her foot pain and

> swelling as turf toe, or accused her of manipulating us to be carried

> when we returned and the swelling was gone.

>

>

>

[Guest guest]

Neil-Re mold. I do need to do go over the basement again looking for missed

mold. I have wondered if we missed some myself.

[Guest guest]

,

The problem with mold is that moisture gets behind the sheetrock and inside

walls and the mold grows where you can't see it.

This sounds drastic, but choose a place where you think this is most likely

to happen and pull that part of the wall off and look.

If you find mold, you will need to remove all the sheetrock in that area

until you get at all of it. You can then use mold killing stuff on it.

Another thing that kills mold is Ozone, contact a place that does cleanup

after house fires and see if you can rent one of their industrial Ozone

generators for a day or weekend. Plan to be GONE while this runs for a day

or so and then ventilate the house well before you move back in again.

Good Luck !

Neil

_____

From: [mailto: ]

On Behalf Of Axe

Sent: Sunday, December 31, 2006 9:37 AM

Subject: [ ] Re: Andy-Six year old with jra/uveitis

Neil-Re mold. I do need to do go over the basement again looking for missed

mold. I have wondered if we missed some myself.

[Guest guest]

> I read this fascinating thing on serrapeptase is the same thing as

serrapepdidase, and it has been researched to help fight inflammation

in people with arthritis....but....I believe that this is the same

ingredient as in virastop.

It sounds like it yes.

Are you noticing any effects of the Virastop?

Here are ideas to teach her to swallow capsules

http://www.danasview.net/capsules.htm

Dana

[Guest guest]

Hi Dana/anyone else,

I've been taking enteric coated (flat rounded shaped) caplets

for ages from my medical doctors for inflammed/sore throats.

It really helps with the throat inflammation.

It's 5mg per caplet & ingredient indicated is Serratiopeptidase.

Is this the same thing as Serrapeptase?

Reason is this tiny enteric coated caplets tastes a bit sweet & is

easier for my son to swallow (teaching him to swallow capsules

is a challenge).

Can I substitute this for Virastop?? I can't claim for buying

Virastop from my employer but if I present a medical receipt/bill

to my employer, I could claim under medical benefits.

Only thing is I don't know what the enteric coating is made of &

whether there's any other ingredients beside Serratiopeptidase

in that caplet.

The pharmaceutical company is Seoul Pharma - definitely a

country that doesn't speak my language/English.

Thanks for any feedback.

G

On 1/1/07, danasview <danasview@...> wrote:

>

>

> > I read this fascinating thing on serrapeptase is the same thing as

> serrapepdidase, and it has been researched to help fight inflammation

> in people with arthritis....but....I believe that this is the same

> ingredient as in virastop.

>

> It sounds like it yes.

>

> Are you noticing any effects of the Virastop?

>

> Here are ideas to teach her to swallow capsules

>

> http://www.danasview.net/capsules.htm

>

> Dana

>

>

>

[Guest guest]

> It's 5mg per caplet & ingredient indicated is Serratiopeptidase.

> Is this the same thing as Serrapeptase?

I don't know. I sent an email to my Enzymedica contact. I will post

results when I receive a reply.

Dana

[Guest guest]

I don't know that 5mg of serrapepdidase or serrapeptase would

replace a virastop because I don't know the difference between a

milligram, HUT, Baker, SPU, and FU. This is an excellent question

though and I would like to know incase the 5 mg serratiopeptidase

supplement would be a replacement.

Here is what is in a virastop.

Protease Thera blend 150,000 HUT

Seaprose blend 4 mg

Catalse 50 Baker

Serratiopeptidase 25,000 SPU

Nattokinase NSK-SD Blend 400 FU

mineral blend 32 mg

Enzymedica has products with varied doses of Nattokinase and

Serratiopepidase. I plan to call the company because maybe they

will know if one of their other blends is more preferred for eye

inflammation. Their serraplus has 100,000 SPU of serratiopeptidase.

That reminded me of the high dose VS protocol and if the reason

higher doses of virastop worked was because of the higher doses of

serratiopeptidase. Serraplus has a higher dose than virastop, and

it is cheaper.

http://www.enzymedica.com/products/SerraPlus?

PHPSESSID=224fbf8e198bfec73b0cfbe9969699c6

I read a book by a dr. hunninghake where he was using the enzyme

Nattokinase for arthritis and low and behold it is in virastop as

well. Enzymedica sells a separate enzyme Natto-K which was created

for blood clots, with a higher dose of Nattokinase than what is in

virastop.

Here's the virastop story:

I had a forboding feeling not to go to the chicken pox party when

we were on the way to it, but I talked myself into how she needed to

go so she wouldn't get cp in her older years since she's

unvaccinated. A few days after she was supposed to get a low fever.

She didn't, she got a high fever. This isn't normal for CP, from

what I later looked up. During the unusually high 105 fever she had

a high pitched scream, and the screaming of her eyes hurting. I

gathering up to take her to the ER at the time, but then, she just

suddenly went to sleep and her fever broke, so we didn't. Now I

wonder if people with our family history of MCS, aspergers, mercury

poisoning etc. should not partake in the trying to get of any

illness on purpose.

I bought the virastop and kept it, waiting for her to break out in

pox, incase the pox would be very severe since the fever had been. I

was envisioning those severe cases of CP that you see where the

child's entire body become covered. I started giving her virastop

in her shake, just before or during breaking out with the pox. She

never got more than two pox. A week later when she was diagnosed

with uveitis, the first things we did was ramp up to 2 VS a

day,thinking that maybe uveitis was caused by the CP virus. We now

know that for the amount of eye scarring she had, she would have had

to have uveitis unknowingly for a long time prior to the CP. Maybe

even eighteen months ago if it corresponds with the footpain.

However, there is no doubt in my mind that the CP virus did effect

her uveitis or the eyes in some way. We added curcumin, then

quercetin, then vitamin C, and the uveitis flare cleared. She was

taking the steroid eye drops too.

We ran out of VS, 2x day the bottle only lasted a just over three

weeks. Her uveitis was cleared and I thought that the crisis was

over. During those first weeks, I didn't really grasp all about

uveitis and jra and how it works, we hadn't gotten the test results

and the JRA diagnoses yet. Money was really tight so I didn't

replace the VS. It was only when I found the article on

serrapepdisase and inflammation that I remembered about virastop.

I have over the past month asked several doctors If they would put

her on a round of valtrex or antivirals and they say no, the virus

is over, there is no sign of infection now so it would do no good.

My only option if I feel that there is a viral connection, is

natural antivirals.

Her rheumatologist said that with only two pox, we would want to

take her to another cp party if we really wanted her to gain

immunity. I don't know about that. I've since had another

opprotunity to take her to a CP party and didn't go.

I know now that we made a big mistake by stopping supplements cold

turkey the times we did. I am going to be more careful with taking

things out or stopping things from now on, and do it in a more

organized manner, weaning off. I am going to pay closer attention.

Maybe the toe swelling or foot pain will give me clues to when her

eyes flare. She has only been back on Virastop for a few days.

My days would be so much easier if I could just teach her to swallow

pills. Thank you for the directions on pill swallowing, Dana.

I purchased sambucol a couple weeks ago. It is black elderberry

syrup, sugar free. It has rasberry extract in it and she doesn't

like rasberries. Maybe there is one without rasberry. This is a girl

who swigs CLO, and balks but will take flax oil, both straight from

a spoon, followed by a strong tasting drink. After one dose of

Sambucol, she covered her mouth and ran when I got the Sambucol out

again. I didn't push it any further.

I worry about yeast because the only way I can get her to take

curcumin and quercetin is by adding a tbsp of maple syrup and this

could contribute to yeast over time. So I worry about if I start

adding more things, like if I were to try flavoring sambucol with

maple syrup I could get into trouble.

Lately, her personality is changing. She is going from sweet natured

and cooperative to more and more balking and stalling to drink

shakes, and take supplements. And she's super grouchy. I don't

know if prolonged one drop a day of pred forte, sometimes three or

six drops a day of pred forte, from september to january could be

what's causing the personality change. Does curcumin or quercetin

cause personality change? Or, we started giving her a TON of

attention and giving her her way...bribing her to take the

supplements by giving her anything she wanted and now....she's

acting whiney and irritating.

She's doing that thing allergic kids do...repeating the same words

over and over.

She will say " I want to go shopping " over and over, in a chanty,

crying, moning, whining tone. When she's hungry, she will chant I'm

hungry for the duration of time until you get the food on the plate

in front of her. Two days ago she said " I want beef turkey " for

HOURS. She mean's beef jerky-hardly healthy unless I buy a

dehydrator and make it from scratch. My husband went out and

searched the stores for gluten free beef sticks just so she would

quit saying it over and over. I have noticed that she sometimes does

this chanting to cope with her foot pain. A lot of times they both

correspond, chanting and she's holding her feet. Rubbing her feet at

these times helps. But Dana, or anyone, maybe you have some ideas on

what causes the chanting, yeast or viral wise.

[Guest guest]

> > It's 5mg per caplet & ingredient indicated is Serratiopeptidase.

> > Is this the same thing as Serrapeptase?

>

>

> I don't know. I sent an email to my Enzymedica contact. I will post

> results when I receive a reply.

Here is the reply:

" The serrapeptase is not the same as serratiopeptidase. Serrapeptase

is cut in half (diluted) where as the serratiopeptidase is not cut it

is a pure enzyme. "

Dana

[Guest guest]

> Enzymedica has products with varied doses of Nattokinase and

> Serratiopepidase. I plan to call the company because maybe they

> will know if one of their other blends is more preferred for eye

> inflammation. Their serraplus has 100,000 SPU of serratiopeptidase.

> That reminded me of the high dose VS protocol and if the reason

> higher doses of virastop worked was because of the higher doses of

> serratiopeptidase. Serraplus has a higher dose than virastop, and

> it is cheaper.

I had a long phone discussion with my rep yesterday [i have an account

with several suppliers, because I run a buying group], after which she

sent me an email [previously posted] and will send me more info and

several samples, including Serratio 120K [from the professional line].

If you send me a private email with your mailing address, I will

forward the info and samples to you.

Dana