Guest guest Posted December 21, 2006 Report Share Posted December 21, 2006 <http://rs6.net/on.jsp?t=1101491758778.0.1011367688197.1 & ts=S0222 & o=http://u i.constantcontact.com/images/p1x1.gif> <http://www.nationalautismassociation.org/images/hollylogo.gif> <http://www.nationalautismassociation.org/images/happyholidays.gif> Dear NAA Members, Families and Friends; All of us at The National Autism Association would like to take this opportunity to thank our members, our community, our supporters, and friends for your help in making 2006 a successful year in the fight against autism. In December 2005, we lost founding board member, dear friend and fearless autism advocate, Liz Birt. Her spirit continues to inspire us everyday. We're 100% certain she has been standing alongside us throughout this past year. This time of year is often referred to as the Season of Giving. It's become true for our community through a new fund established by a special friend to not only our organization, but to all families dealing with the autism diagnosis of a loved one. The generous benefactor, who wishes to remain anonymous, has created the Liz Birt Hope for the Holidays Fund to provide $1,000 each December for the next five years to families that are in dire need of financial assistance. We think this is a beautiful tribute to Liz, and one that she would enthusiastically embrace. We hold in our hearts endless gratitude and admiration for Liz and the creator of this fund in her honor. In 2006, we were able to contribute nearly $30,000 to needy families affected by autism through our Helping Hand Fund. With your generous donations, many autistic children were helped with biomedical interventions and therapies. Also with your phone calls and letters, the first-ever autism research legislation, the Combating Autism Bill was passed. With it, the environmental component to the autism epidemic was acknowledged and directives into critical areas of biomedical and toxicological research were outlined. We will continue to need your advocacy assistance in 2007 as the bill reaches the Appropriations Committee. It is our goal to have as much money allocated to environmental research as possible. NAA, along with your help, has paid $33,500 of our $145,000 commitment to researcher Burbacher at the University of Washington for studies into the effects of mercury exposure upon the brain of infant primates. The results of these studies, due in the Fall of 2007, will help us better understand mercury poisoning in children and we hope will lead to successful treatments and a cure. We are extremely grateful for the three grants awarded to NAA during these last few weeks of 2006. The American Legion Child Welfare Foundation has granted nearly $15,000 to distribute our conference DVD collection to autism-related organizations around the country. Two groups in each state will be given these DVD sets so they can share this valuable information with local families affected by autism. Additionally, NAA received two generous grants to assist us in our continued funding of research into mercury's effects on the brain: $10,000 was granted from Speedway Children's Charities and $20,000 from the Doug Flutie, Jr. Foundation. In August of 2006, we added an important position to our staff, Chapter Development Director, which was filled by Maddy of our home office in Nixa, Missouri. has worked to form two new chapters in Cleveland and Boston, and is in the process of adding chapters in several locations including Chicago, Atlanta, central California, and Minnesota. Also in 2006: * Our " All Access " Program allowed us to distribute 17 computers and three month's Internet access to needy families so they can learn how to help their autistic child through research, biomedical interventions and advice from other parents. * An Environmental Autism Research Roadmap and Suggestions for NIH's Autism Research Matrix were completed by SafeMinds and NAA as a result of our Environmental Factors in Neurodevelopmental Disorders Symposium held in August 2005. The papers were distributed to Congress and prominent scientists, and presented to the National Institutes of Health at the November 2006 Interagency Autism Coordinating Committee (IACC). Presenting the research regarding the link of environmental factors (including mercury) in the development of autism was a groundbreaking achievement for the autism community! NIH is finally acknowledging environmental triggers in the causation of the autism epidemic. Our presentation was well received by researchers and policy makers in attendance and we hope will lead to better-targeted studies at NIH to directly help our children. * We held our first " One in 166 " Autism Walk in Boston, thanks to the hard work and enthusiasm of Whelan, founder and president of NAA's Boston chapter. * A Golf Tournament for autism research was held at Summit Chase Country Club in Snellville, GA on October 30th under the direction of NAA Secretary Adrienne Rousseau. * We held our first Poker Tournament in Atlantic City, NJ on November 2nd, thanks to event organizer Amy Becker . Proceeds from this exciting event went to our research and Helping Hand funds. * We once again received an overwhelming response to our photo contest. Each and every photo submitted was wonderful, once again confirming that our children are truly beautiful. It was extremely difficult to select the finalists who light up the pages of our 2007 " Faces of Autism " calendar that is now available in our online store. We thank all the families who shared their precious photos with us. * NAA presented our views on the Vaccine Safety Datalink CDC " Verstraeten " Study at Public Comment at a meeting at the National Institutes of Environmental Health Sciences (NIEHS) in May. In November, NIEHS released their paper regarding the viability of using the VSD in future research. * NAA represented our members during public comment at two meetings of the Advisory Council of Immunization Practices at the CDC. We are requesting mercury be immediately removed from all vaccines and that the effects of Thimerosal be addressed formally in upcoming ACIP agendas. * NAA was represented at the Neurotoxicology Conference in Little Rock, AR in September. By representing the autism community there, we hope that more toxicologists and other researchers will chose to study autism to better target treatments for our children. Coming up in 2007: * NAA will work to make sure the money needed to fund the Combating Autism Act is appropriated, specifically the money we need designated to NIEHS. * We will introduce our newest program, Family First, designed to offer marital support to couples in the autism community. * NAA hopes to expand its Helping Hand Program so that more children in need can receive assistance. * Our second National Autism Conference that is shaping up to be even bigger and better than our first will be held November 9 - 11 in Atlanta, Georgia. * Whelan is planning the 2nd " One in 166 " Walk to be held in May, again in the Boston area. * NAA's Third Annual Golf Tournament. * NAA's Second Annual Poker Tournament. * NAA feels very strongly that autistic children's biomedical and therapy interventions should be covered by insurance. So far, this has been an uphill battle fought mainly by overworked families and on a case-by-case basis. But there is strength in numbers! NAA wants to unify the community behind an effort to include this vital help to families in a new Federal Autism Services Bill that we will be working on. We have already had several meetings with Capitol Hill staff regarding this much-needed legislation and will provide updates as we have them on our advocacy efforts. * An Autism Omnibus Hearing is scheduled in Washington, DC in June regarding the thousands of cases in the Vaccine Injury Compensation Program. Families of suffering children have waited years for this hearing. NAA will be present providing you with news as it occurs on this very important event. * More state chapters will be added with your help. Your continued support will help us reach our 2007 goals. Many donations are being made in honor of individuals with autism, which is a nice idea for family members and friends on behalf of your child. If you or your loved ones wish to make a contribution before 12/31/06 to receive a tax deduction this coming April, please click here. <http://rs6.net/tn.jsp?t=9vzma8bab.0.4avnmzaab.faomd6n6.1 & ts=S0222 & p=http%3A %2F%2Fwww.nationalautismassociation.org%2Fproddetail.php%3Fprod%3DDonation> (http://www.nationalautismassociation.org/proddetail.php?prod=Donation <http://rs6.net/tn.jsp?t=9vzma8bab.0.4avnmzaab.faomd6n6.1 & ts=S0222 & p=http%3A %2F%2Fwww.nationalautismassociation.org%2Fproddetail.php%3Fprod%3DDonation> ) Again, thank you for such a wonderful year. You have certainly proven that when we work together, anything's possible. As we look to 2007, let us vow to make it an even better year of successful advocacy, on-going research to help our children and giving to families in need. Sincerely, The Officers and Board Members of NAA: Rita Shreffler, Executive Director Fournier, President Ann Brasher, Vice President Adrienne Rousseau, Secretary Bothwell, Board Chair Bono Bono son Roe Dubrowsky Sheila Ealey Lori McIlwain Jim Moody Lyn Redwood Think Autism. Think Cure. TM <http://rs6.net/tn.jsp?t=9vzma8bab.0.cnfjh6n6.faomd6n6.1 & ts=S0222 & p=http%3A% 2F%2Fwww.nationalautismassociation.org%2F> Click here to visit our website Quote Link to comment Share on other sites More sharing options...
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