OT: experience with Lamictal

[Guest guest]

Hi listmates,

I am going to start my 5 yo son on Lamictal because of seizures

(absence seizures per one neuro, partial and secondary generalization

seizures per another neuro, who should I believe? a third one?). I

believe his seizures are not classic. They look very much like

absence ones (staring, eyes blinking, eyes rolling up) but he can

continue eating or drinking or pedaling his bike during a seizure...

He does not loose muscle tone. He can sometimes hear me if I yell

really loud during the seizure.

Anyway I am very scared of starting the Lamictal but I am also not

confortable anymore of not treating him. I have been trying natural

supplements for 6 months but seizures are still there, hundreds per

day. I am especially scared of the possible rash (stevens-johnson

syndrome). We are still on Valtrex and he gets occasional rashes with

it. How am I going to tell if he has a rash?

Does anyone has experience (good or bad) with Lamictal?

Thanks for anything you could share,

[Guest guest]

After two grand mals we are titrating up to therapeutic dosing right now. Will

see the neuro tomorrow. I will tie a string around by head to remind myself to

post after the visit.

[ ] OT: experience with Lamictal

Hi listmates,

I am going to start my 5 yo son on Lamictal because of seizures

(absence seizures per one neuro, partial and secondary generalization

seizures per another neuro, who should I believe? a third one?). I

believe his seizures are not classic. They look very much like

absence ones (staring, eyes blinking, eyes rolling up) but he can

continue eating or drinking or pedaling his bike during a seizure...

He does not loose muscle tone. He can sometimes hear me if I yell

really loud during the seizure.

Anyway I am very scared of starting the Lamictal but I am also not

confortable anymore of not treating him. I have been trying natural

supplements for 6 months but seizures are still there, hundreds per

day. I am especially scared of the possible rash (stevens-johnson

syndrome). We are still on Valtrex and he gets occasional rashes with

it. How am I going to tell if he has a rash?

Does anyone has experience (good or bad) with Lamictal?

Thanks for anything you could share,

[Guest guest]

I am on Lamictal for myoclonics and absence seizures.

I have only been on it for three weeks and have

another three weeks to get up to the dosage they want

me on. As I'm sure you know, you have to take it very

slow. Try to make sure they are timed exactly 12

hours apart if he is taking it twice a day to help

avoid side effects.

I did have blurred vision the other day, which is a

side effect, but it went away within 24 hours.

Otherwise, it has really cut down on my seizures.

However, I would rather not be on the meds and am

researching other alternative methods and trying to

decide the best therapy so that I can go off the meds.

All allopathic meds have side effects and they are

only palliative, not curative. Further, with AEDs,

the body gets used to the drugs so you have to keep

upping the dosage or adding on different drugs.

I think the first avenue I want to look at for myself

and my daughter (who is on Keppra) is nutrition.

Apparently epileptics can be deficient in several

vitamins, so I need to figure out which ones and then

find a diet that is rich in those vitamins. (sorry I

don't have any concrete info for you..I'm just

starting out on this journey myself.)

I also have studied homeopathics somewhat and want to

try homeopathic remedies. My other daughter has

absence and has had febrile seizures and she is on a

homeopathic remedy right now - with no allopathic

meds.

-tina

__________________________________________________

[Guest guest]

One of the kids I worked with had absenc seizures and Keppra proved helpful. It

was fairly new at that time.

S S

<p>After two grand mals we are titrating up to therapeutic dosing

right now. Will see the neuro tomorrow. I will tie a string around by head to

remind myself to post after the visit.<br>

<br>

[ ] OT: experience with Lamictal<br>

<br>

Hi listmates,<br>

<br>

I am going to start my 5 yo son on Lamictal because of seizures <br>

(absence seizures per one neuro, partial and secondary generalization <br>

seizures per another neuro, who should I believe? a third one?). I <br>

believe his seizures are not classic. They look very much like <br>

absence ones (staring, eyes blinking, eyes rolling up) but he can <br>

continue eating or drinking or pedaling his bike during a seizure... <br>

He does not loose muscle tone. He can sometimes hear me if I yell <br>

really loud during the seizure.<br>

<br>

Anyway I am very scared of starting the Lamictal but I am also not <br>

confortable anymore of not treating him. I have been trying natural <br>

supplements for 6 months but seizures are still there, hundreds per <br>

day. I am especially scared of the possible rash (stevens-johnson <br>

syndrome). We are still on Valtrex and he gets occasional rashes with <br>

it. How am I going to tell if he has a rash?<br>

<br>

Does anyone has experience (good or bad) with Lamictal?<br>

<br>

Thanks for anything you could share,<br>

<br>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

Thanks I'll pass this along.

[ ] OT: experience with Lamictal<br>

<br>

Hi listmates,<br>

<br>

I am going to start my 5 yo son on Lamictal because of seizures <br>

(absence seizures per one neuro, partial and secondary generalization <br>

seizures per another neuro, who should I believe? a third one?). I <br>

believe his seizures are not classic. They look very much like <br>

absence ones (staring, eyes blinking, eyes rolling up) but he can <br>

continue eating or drinking or pedaling his bike during a seizure... <br>

He does not loose muscle tone. He can sometimes hear me if I yell <br>

really loud during the seizure.<br>

<br>

Anyway I am very scared of starting the Lamictal but I am also not <br>

confortable anymore of not treating him. I have been trying natural <br>

supplements for 6 months but seizures are still there, hundreds per <br>

day. I am especially scared of the possible rash (stevens-johnson <br>

syndrome). We are still on Valtrex and he gets occasional rashes with <br>

it. How am I going to tell if he has a rash?<br>

<br>

Does anyone has experience (good or bad) with Lamictal?<br>

<br>

Thanks for anything you could share,<br>

<br>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

> >

> > I am on Lamictal for myoclonics and absence seizures.

> > I have only been on it for three weeks and have

> > another three weeks to get up to the dosage they want

> > me on. As I'm sure you know, you have to take it very

> > slow. Try to make sure they are timed exactly 12

> > hours apart if he is taking it twice a day to help

> > avoid side effects.

>

> thanks for the tip.

>

> >

> > I did have blurred vision the other day, which is a

> > side effect, but it went away within 24 hours.

> > Otherwise, it has really cut down on my seizures.

>

> May I ask how you feel after an absence? Can you tell you had one?

My

> son just turned 5 yo and he does not seem to notice. Even when we

> read a story if I go on during the absence, he won't notice he

> missed " a piece " of it.

>

> >

> > However, I would rather not be on the meds and am

> > researching other alternative methods and trying to

> > decide the best therapy so that I can go off the meds.

>

> I tried that and it definetely does something to the seizures but

it

> is inconsistent and some supplements help versus others don't or

even

> worsen the seizures.

>

> > I think the first avenue I want to look at for myself

> > and my daughter (who is on Keppra) is nutrition.

> > Apparently epileptics can be deficient in several

> > vitamins, so I need to figure out which ones and then

> > find a diet that is rich in those vitamins. (sorry I

> > don't have any concrete info for you..I'm just

> > starting out on this journey myself.)

>

> There are some info here:

>

> http://www.worldwidehealthcenter.net/articles-115.html

>

> http://www.healthsentinel.com/org_news.php?

> id=058 & title=Stopping+epileptic+seizures+using+omega-3%2C+vitamin+E%

> 2C+diet%2C+and+more & event=org_news_print_list_item

>

> I am pretty sure that my son's seizures are related to mercury and

> viruses in his brain, plus some genetic susceptibility...

>

>

>