Re: Chelation/EEG/Depakote? Help!

[Guest guest]

talk to your doctor about Lamictal.

Amy

prayingforspeech <babystephen1@...> wrote:

Hi All! My son had an EEG done in October. The neurologist called

this week and said that it was highly irregular and showed problems in

the temporal and parietal lobes of the brain. He said that there was

a lot of " seizure activity " during sleep. I had talked to the nurse a

few days earlier and she described countless episodes of " static "

during the EEG. The neurologist wants to put him on Depakote. We

have never actually seen any seizures, but he does blank out at

times. We also just had a porphryn test done and it showed markers of

very high mercury toxicity. We have been doing biomed since July, and

he has been on a custom program since October. We started the

transdermal glut. We are planning on retesting his stool for yeast

and also doing another urine test in January. If all was well with

those tests, we were going to try chelation in February. Now I'm not

so sure what to do. I'm anxious to get the metals out, but I am very

worried about how abnormal his EEG results were. If anyone can give

me any advice on any of this I would appreciate it very much. Thanks

in advance and a Happy New Year to all!

__________________________________________________

[Guest guest]

Thanks Amy! I posted this on another group and so far you are the

third person to recommend Lamictal. I will DEFINITELY ask his

neurologist about this. Do you know if it is possible to chelate

and take this type of medication? I don't want it to be too much on

him. He just turned three, but weighs over 40 pounds. Thanks for

your time and have a very Happy New Year!

> Hi All! My son had an EEG done in October. The

neurologist called

> this week and said that it was highly irregular and showed

problems in

> the temporal and parietal lobes of the brain. He said that there

was

> a lot of " seizure activity " during sleep. I had talked to the

nurse a

> few days earlier and she described countless episodes of " static "

> during the EEG. The neurologist wants to put him on Depakote. We

> have never actually seen any seizures, but he does blank out at

> times. We also just had a porphryn test done and it showed markers

of

> very high mercury toxicity. We have been doing biomed since July,

and

> he has been on a custom program since October. We started the

> transdermal glut. We are planning on retesting his stool for yeast

> and also doing another urine test in January. If all was well with

> those tests, we were going to try chelation in February. Now I'm

not

> so sure what to do. I'm anxious to get the metals out, but I am

very

> worried about how abnormal his EEG results were. If anyone can

give

> me any advice on any of this I would appreciate it very much.

Thanks

> in advance and a Happy New Year to all!

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Lamictal has proven to be a wonder drug for epileptics and bipolars. I

do believe they have pediatric indication on this med. Not sure about any

problems with concomittant dosing but your doctor will give you the best advice.

For kids/adults with tough seizure activity, Lamictal and Carbatrol are often

prescribed together. Carbatrol (carbamazepine - tegretol) will also help with

mood and aggression that often affects these patients. Do your best to find a

good pediatric neurologist who has a high population of epileptic patients.

They will be your best guide.

Lamictal undoubtedly is a fine drug.

amy

prayingforspeech <babystephen1@...> wrote:

Thanks Amy! I posted this on another group and so far you are the

third person to recommend Lamictal. I will DEFINITELY ask his

neurologist about this. Do you know if it is possible to chelate

and take this type of medication? I don't want it to be too much on

him. He just turned three, but weighs over 40 pounds. Thanks for

your time and have a very Happy New Year!

> Hi All! My son had an EEG done in October. The

neurologist called

> this week and said that it was highly irregular and showed

problems in

> the temporal and parietal lobes of the brain. He said that there

was

> a lot of " seizure activity " during sleep. I had talked to the

nurse a

> few days earlier and she described countless episodes of " static "

> during the EEG. The neurologist wants to put him on Depakote. We

> have never actually seen any seizures, but he does blank out at

> times. We also just had a porphryn test done and it showed markers

of

> very high mercury toxicity. We have been doing biomed since July,

and

> he has been on a custom program since October. We started the

> transdermal glut. We are planning on retesting his stool for yeast

> and also doing another urine test in January. If all was well with

> those tests, we were going to try chelation in February. Now I'm

not

> so sure what to do. I'm anxious to get the metals out, but I am

very

> worried about how abnormal his EEG results were. If anyone can

give

> me any advice on any of this I would appreciate it very much.

Thanks

> in advance and a Happy New Year to all!

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

>

> Thanks Amy! I posted this on another group and so far you are the

> third person to recommend Lamictal. I will DEFINITELY ask his

> neurologist about this.

It works well for certain people, but there are some potential serious

side effects that you would want to watch for. Be sure to read about

it before making your decision

http://www.danasview.net/parent3.htm#medications

Dana

[Guest guest]

Lamictal can cause a very rare but dangerous rash. Important to talk to your

doctor always about any risks, signs or symptoms you should be watching for.

Rash is rare, happens on a very low percentage of patients.

Amy

danasview <danasview@...> wrote:

>

> Thanks Amy! I posted this on another group and so far you are the

> third person to recommend Lamictal. I will DEFINITELY ask his

> neurologist about this.

It works well for certain people, but there are some potential serious

side effects that you would want to watch for. Be sure to read about

it before making your decision

http://www.danasview.net/parent3.htm#medications

Dana

__________________________________________________

[Guest guest]

,

fwiw, Lamictil has lactose. It caused problems for our daughter who

has seizures triggered by milk products. Lamotrigine, the children's

chewables, are lactose free.

> > Hi All! My son had an EEG done in October. The

> neurologist called

> > this week and said that it was highly irregular and showed

> problems in

> > the temporal and parietal lobes of the brain. He said that there

> was

> > a lot of " seizure activity " during sleep. I had talked to the

> nurse a

> > few days earlier and she described countless episodes

of " static "

> > during the EEG. The neurologist wants to put him on Depakote. We

> > have never actually seen any seizures, but he does blank out at

> > times. We also just had a porphryn test done and it showed

markers

> of

> > very high mercury toxicity. We have been doing biomed since

July,

> and

> > he has been on a custom program since October. We started the

> > transdermal glut. We are planning on retesting his stool for

yeast

> > and also doing another urine test in January. If all was well

with

> > those tests, we were going to try chelation in February. Now I'm

> not

> > so sure what to do. I'm anxious to get the metals out, but I am

> very

> > worried about how abnormal his EEG results were. If anyone can

> give

> > me any advice on any of this I would appreciate it very much.

> Thanks

> > in advance and a Happy New Year to all!

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Unfortunatey the rash is not particularly rare.

Also TD DMPS can cause serious skin rash problems, again not particularly rare,

so I

suggest if you are using Lamictal you not use DMPS TD. Use it by mouth if you

want to

use it.

Andy

> Lamictal can cause a very rare but dangerous rash. Important to talk to your

doctor

always about any risks, signs or symptoms you should be watching for. Rash is

rare,

happens on a very low percentage of patients.

>

> Amy

[Guest guest]

>

> Hi All! My son had an EEG done in October. The neurologist called

> this week and said that it was highly irregular and showed problems in

> the temporal and parietal lobes of the brain.

Which can cause lack of speech.

> He said that there was

> a lot of " seizure activity " during sleep. I had talked to the nurse a

> few days earlier and she described countless episodes of " static "

> during the EEG.

If you see it on the EEG it is real, the usual problem is they don't catch it on

the EEG but it

really is going on.

> The neurologist wants to put him on Depakote.

Lamictal is the current new trendy thing to use instead. Depakote has been

around a very

long time, at least its plusses and minuses are well understood. It takes a lot

longer to get

someone ONTO Lamictal than Depakote. Zarontin is an older antiabsence drug, the

most

effective for absence seizures but useless for any other type. Depakote is hard

on the

liver, Zarontin and Lamictal aren't. Lamictal has this skin rash problem and

probably a lot

of other nasty stuff that will become well known in a few more years.

> We

> have never actually seen any seizures, but he does blank out at

> times.

You may well have seen seizures - find descriptions of " absence " seizures on the

web. Not

all seizures involve flopping like a fish out of water.

> We also just had a porphryn test done and it showed markers of

> very high mercury toxicity.

Which can induce seizures.

> We have been doing biomed since July, and

> he has been on a custom program since October. We started the

> transdermal glut. We are planning on retesting his stool for yeast

> and also doing another urine test in January. If all was well with

> those tests, we were going to try chelation in February. Now I'm not

> so sure what to do.

Get him on antiseizure medications and then chelate him so that in a few years

he may not

need them.

> I'm anxious to get the metals out, but I am very

> worried about how abnormal his EEG results were. If anyone can give

> me any advice on any of this I would appreciate it very much. Thanks

> in advance and a Happy New Year to all!

Lots more you need to do.

Which meds to use or avoid depend on the seizure TYPE.

Get the neuro to tell you:

Is it partial or generalized onset?

Are they simple or complex seizures?

Are they absence seizures? Which do NOT make spikes on the EEG (they make

waves).

Is more than one kind of seizure going on?

What are all the choices of medications and why?

What exact diagnoses or ICD 9 codes is the neuro using?

Will the neuro show you what seizures (absence and not absence) look like on

EEG's, and

what your kid's EEG looks like? Also, can you have a copy of the written EEG

interpretive

report?

Talk on the list about all this when you know it. Insist the neuro tell you the

straight

technical stuff and get him to write it down if you need to, but don't go

leating off with " so

you can put it on internet lists and talk with people about what it means " or

he'll try not to

tell you anything.

Andy

[Guest guest]

> Do you know if it is possible to chelate

> and take this type of medication?

Yes. Be cautious, if you chelate too aggressively it may induce seizures.

Start at a low

dose and work up.

Andy

[Guest guest]

Hi ,

I would stick with what your neuro wants to prescribe. My son was

placed on depakene when he was 2 years old for severe seizures. My

son has severe Lennox Gastaut seizures with an abnormal EEG. My

advice to you is listen to your childs neuro in regards to medication.

When a child is on Valproic Acid(Depakene,Depakote) The doctor will

do blood draws to check for elevated ammonia. Im sure your neuro will

have your child on a very low dose.

Im on a list for Lennox Gastaut, Lamictal in my opinion, it should

never have been approved. It is the most dangerous of all seizure

medications(besides Felbatol) IMHO. The only time any child should be

placed on Lamictal is if NO other drug has controlled seizures. The

rash is NOT just a rash, Its syndrome. This is the

worst thing I have ever seen in my life.

" Lamotrigine has been associated with a particularly high rate of

serious skin reactions. Over a 2-year period, 57 cases of SJS and TEN

were reported. "

" Lamictal is known as a drug that is effective in people who were not

helped by other, more traditional medications, when used as an

anticonvulsant or as a mood stabilizer.

Lamictal is not a cure for epilepsy, but this medication can help to

control epileptic seizures, and it is often used along with other

medications for this same purpose. Prescribing information for

children as young as 2 years old is available. "

" Warnings and Precautions

Children: Lamictal is used in children primarily for Lennox-Gastaut

syndrome. The risk of the side effect of a skin rash is higher in

children under 16 than in adults. Sometimes the rashes caused by

Lamictal could be very serious or even fatal. This risk must be

weighed against the benefits of Lamictal and any rashes should be

discussed with a pediatrician. The risk of rash is usually only

significant during the first six months of beginning Lamictal

therapy. "

I doubt your childs neuro would prescribe it.

Donna

>

> Hi All! My son had an EEG done in October. The neurologist called

> this week and said that it was highly irregular and showed problems

in

> the temporal and parietal lobes of the brain. He said that there

was

> a lot of " seizure activity " during sleep. I had talked to the

nurse a

> few days earlier and she described countless episodes of " static "

> during the EEG. The neurologist wants to put him on Depakote. We

> have never actually seen any seizures, but he does blank out at

> times. We also just had a porphryn test done and it showed markers

of

> very high mercury toxicity. We have been doing biomed since July,

and

> he has been on a custom program since October. We started the

> transdermal glut. We are planning on retesting his stool for yeast

> and also doing another urine test in January. If all was well with

> those tests, we were going to try chelation in February. Now I'm

not

> so sure what to do. I'm anxious to get the metals out, but I am

very

> worried about how abnormal his EEG results were. If anyone can

give

> me any advice on any of this I would appreciate it very much.

Thanks

> in advance and a Happy New Year to all!

>

[Guest guest]

Lamotrigine = Lamictal

that's the chemical/generic name

Amy

mbrookh <mbrookh@...> wrote:

,

fwiw, Lamictil has lactose. It caused problems for our daughter who

has seizures triggered by milk products. Lamotrigine, the children's

chewables, are lactose free.

> > Hi All! My son had an EEG done in October. The

> neurologist called

> > this week and said that it was highly irregular and showed

> problems in

> > the temporal and parietal lobes of the brain. He said that there

> was

> > a lot of " seizure activity " during sleep. I had talked to the

> nurse a

> > few days earlier and she described countless episodes

of " static "

> > during the EEG. The neurologist wants to put him on Depakote. We

> > have never actually seen any seizures, but he does blank out at

> > times. We also just had a porphryn test done and it showed

markers

> of

> > very high mercury toxicity. We have been doing biomed since

July,

> and

> > he has been on a custom program since October. We started the

> > transdermal glut. We are planning on retesting his stool for

yeast

> > and also doing another urine test in January. If all was well

with

> > those tests, we were going to try chelation in February. Now I'm

> not

> > so sure what to do. I'm anxious to get the metals out, but I am

> very

> > worried about how abnormal his EEG results were. If anyone can

> give

> > me any advice on any of this I would appreciate it very much.

> Thanks

> > in advance and a Happy New Year to all!

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Hi Donna,

My son, aged 11, (Angelman Syndrome/some autism) was on lamictal for

5 years, his only reaction was to sleep for the first 3 weeks, and

we had to introduce it at 5mg increments, up to 100mg.

I have taken him off it since we noted no seizures for the past 2

years. Did this earlier this year, and he is much brighter now. Most

of his seizures were around vaccine times (thimersol dahhh), then

the myriad of illnesses that followed - ears, tonsils, chest

infections etc.

na

> >

> > Hi All! My son had an EEG done in October. The neurologist

called

> > this week and said that it was highly irregular and showed

problems

> in

> > the temporal and parietal lobes of the brain. He said that

there

> was

> > a lot of " seizure activity " during sleep. I had talked to the

> nurse a

> > few days earlier and she described countless episodes

of " static "

> > during the EEG. The neurologist wants to put him on Depakote.

We

> > have never actually seen any seizures, but he does blank out at

> > times. We also just had a porphryn test done and it showed

markers

> of

> > very high mercury toxicity. We have been doing biomed since

July,

> and

> > he has been on a custom program since October. We started the

> > transdermal glut. We are planning on retesting his stool for

yeast

> > and also doing another urine test in January. If all was well

with

> > those tests, we were going to try chelation in February. Now

I'm

> not

> > so sure what to do. I'm anxious to get the metals out, but I am

> very

> > worried about how abnormal his EEG results were. If anyone can

> give

> > me any advice on any of this I would appreciate it very much.

> Thanks

> > in advance and a Happy New Year to all!

> >

>

[Guest guest]

Hi na,

when you say his only reaction was to sleep, did it improve sleep or

make it worse?

Did your son have " croup " when he was a baby?

My son still has seizures, The doctor told me some never out grow the

seizures. I think this will be the case for .

Have you done a recent EEG to see if it normalized?

My sons EEG was normal when he was 18 months old, After this EEG he

another DPT and the MMR, within a few weeks of the MMR my son was

hospitalized in status seizures.(He was 21 months old)He was

hospitalized in one hospital, When he was released 5 days later, we

had an appt the next morning at the main hospital where my sons neuro

practiced. After the EEG, I wanted to leave, the technician told me

I cant go anywhere until the neuro looks at my sons EEG. s neuro

came down stairs within 15 minutes,looked over the EEG and admitted

in the hospital. During this EEG, was " cranky " and fussy,

I tried to console him and the technician told me there was nothing I

could do, was in a seizure.

Does your son have del+?

Thanks,

Donna

-- In , " vaccinesuk " <vaccinesuk@...>

wrote:

>

> Hi Donna,

>

> My son, aged 11, (Angelman Syndrome/some autism) was on lamictal

for

> 5 years, his only reaction was to sleep for the first 3 weeks, and

> we had to introduce it at 5mg increments, up to 100mg.

>

> I have taken him off it since we noted no seizures for the past 2

> years. Did this earlier this year, and he is much brighter now.

Most

> of his seizures were around vaccine times (thimersol dahhh), then

> the myriad of illnesses that followed - ears, tonsils, chest

> infections etc.

>

> na