Re:viral problems?

[Guest guest]

So far, I have not seen anything that would point in that direction.

No rashes, warts, boils

Nothing that would *appear* viral....

Anything I should be looking for that may no t be obvious?

Amy

lanellici <lanellici@...> wrote:

> a typical kid...and in many ways, that's already the case......

> But there's still something......

>

> And I want that " something " to go away with everything else that

has gone away.......

I know just what you mean. That's about where my kid is now too -- no

one would guess he'd been autistic, but there's

still...something...that crops up now and again. Hard to describe

exactly.

You could do a trial of ALA, say 5 or 10 rounds, and then reassess.

Have you checked out the possibility of viral problems?

Nell

__________________________________________________

[Guest guest]

>

> So far, I have not seen anything that would point in that direction.

> No rashes, warts, boils

> Nothing that would *appear* viral....

> Anything I should be looking for that may no t be obvious?

For n, antiviral treatment led to much improved focus and social

skills, and less anxiety (which I hadn't realized was anxiety until it

got better). You can have a viral panel done at a regular doc's if you

have one who's friendly. Typical viral problems are herpes and

Epstein-Barr.

Did your kid get vaxed?

Nell

[Guest guest]

Blood viral panel was normal according to Dr. Buttram (drawn about a month ago).

I will have him draw another to be sure.

We don't have social problems, never did, but attention is definitely an

issue.

Yes he was vax'd, but I don't believe that was the problem. Signs were there

immediately. he lost oxygen at birth. Apgar was 5. I noticed something was

" just not right " within hours of his birth....something was just different, I

knew there would be " issues " .....I'd have been a fool to think there would not

have been!

I remember the " light going on " when I put him in the Jolly Jumper (that neat

device that hangs in the doorway and baby jumps up and down) when he was about 3

months old and he couldn't figure it out. My older kids loved that...I realized

at that moment....Motor planning....no one agreed with/believed me. Eye contact

was normal, he laughed, giggled, pointed, babbled. Never lost any

skills/function. Spoke timely but unintelligibly. Potty trained a bit late, I

believed that to be hypotonia. Once trained (at 3) no accidents. Made up his

own language, and then taught the entire 2 year old preschool class (VERY social

child, always was,) It was all motor planning. good therapy, most of that is

resolved. He totally understands his deficit (a classmate asked him if he was

going to go to the roller skating party, he responded " I'd have a heart attack

if I tried to roller skate, either that or split my head open! " So he knows....

I never heard the word " autism " until I

went to the school district and they have this BRILLIANT idea that they could

get me to " pay someone to say he has autism " so they could then stick him in a

restrictive envrionment with non verbal, behaviorally challenged children. OK.

I'm the village idiot, m ethinks.... Of course we weren't doing THAT, and

developmental ped reminds me that her partner is an attorney and they will NOT

dx a child with something he does not have....But I continue to search and read.

Dyspraxia fits this child to a " t " ....but am I missing something? I dont' want

to miss ANYTHING....if I can give him 100% resolve, I want to do that.....

Sorry for the ramble, I find this list most informative and the parents to be

extraordinarily helpful.

Thanks to all for the information and support.

Amy

lanellici <lanellici@...> wrote:

>

> So far, I have not seen anything that would point in that direction.

> No rashes, warts, boils

> Nothing that would *appear* viral....

> Anything I should be looking for that may no t be obvious?

For n, antiviral treatment led to much improved focus and social

skills, and less anxiety (which I hadn't realized was anxiety until it

got better). You can have a viral panel done at a regular doc's if you

have one who's friendly. Typical viral problems are herpes and

Epstein-Barr.

Did your kid get vaxed?

Nell

__________________________________________________

[Guest guest]

>

> Blood viral panel was normal according to Dr. Buttram (drawn about a

month ago). I will have him draw another to be sure.

You could consider a trial of antivirals instead of putting him

through another draw. They're not risky. Olive leaf extract and the

enzyme Virastop are popular and effective.

> I noticed something was " just not right " within hours of his

birth....something was just different, I knew there would be

" issues " .....I'd have been a fool to think there would not have been!

If you post his hair test there are some listmates who are good at

reading them, they might be able to shed some light for you.

> He totally understands his deficit (a classmate asked him if he was

going to go to the roller skating party, he responded " I'd have a

heart attack if I tried to roller skate, either that or split my head

open! "

LOL smart kid! The stuff that's helped n with some of those motor

issues has been Nordic Naturals ProEFA, and creatine. I think the

latter is not so much a supp for planning issues as accessing ATP for

energy -- but n would cry if he had to write anything and

creatine totally fixed that.

Nell

[Guest guest]

He takes Pro EFA and DHA twice a day. I think the biggest improvement was when

those two were implemented (this kid does NOT like to take supps.) Much better

coordination, can tie shoes much better now, handwriting has taken a definite

turn for the better).

I guess I am just so anxious about reading all of this and then hearing

parents whose children have had regression. I don't think I could live with

myself if that happened.....

My doc's thinking for chelation is glutathione. He gave me a very interesting

article (which of course I now cannot find!) about that being the most natural

chelator we have, and the most benign.

MB12 is causing hyperactivity, but I hear that's a GOOD thing? How long

before we see full results from MB12?

Amy

lanellici <lanellici@...> wrote:

>

> Blood viral panel was normal according to Dr. Buttram (drawn about a

month ago). I will have him draw another to be sure.

You could consider a trial of antivirals instead of putting him

through another draw. They're not risky. Olive leaf extract and the

enzyme Virastop are popular and effective.

> I noticed something was " just not right " within hours of his

birth....something was just different, I knew there would be

" issues " .....I'd have been a fool to think there would not have been!

If you post his hair test there are some listmates who are good at

reading them, they might be able to shed some light for you.

> He totally understands his deficit (a classmate asked him if he was

going to go to the roller skating party, he responded " I'd have a

heart attack if I tried to roller skate, either that or split my head

open! "

LOL smart kid! The stuff that's helped n with some of those motor

issues has been Nordic Naturals ProEFA, and creatine. I think the

latter is not so much a supp for planning issues as accessing ATP for

energy -- but n would cry if he had to write anything and

creatine totally fixed that.

Nell

__________________________________________________

[Guest guest]

I agree with Nell, I would suspect Virus as well.

When you start using the anti-virals, expect to see a reaction when the

Virus suddenly goes " active " .. Push thru that to kill it.

Possibly add in some immune system boosters, Colostrum (Casein free liquid

Gold from Kirkmans) and others that you can ask about on-list.

Good Luck !

Neil

_____

From: [mailto: ]

On Behalf Of lanellici

Sent: Friday, December 29, 2006 11:21 AM

Subject: [ ] Re:viral problems?

>

> Blood viral panel was normal according to Dr. Buttram (drawn about a

month ago). I will have him draw another to be sure.

You could consider a trial of antivirals instead of putting him

through another draw. They're not risky. Olive leaf extract and the

enzyme Virastop are popular and effective.

> I noticed something was " just not right " within hours of his

birth....something was just different, I knew there would be

" issues " .....I'd have been a fool to think there would not have been!

If you post his hair test there are some listmates who are good at

reading them, they might be able to shed some light for you.

> He totally understands his deficit (a classmate asked him if he was

going to go to the roller skating party, he responded " I'd have a

heart attack if I tried to roller skate, either that or split my head

open! "

LOL smart kid! The stuff that's helped n with some of those motor

issues has been Nordic Naturals ProEFA, and creatine. I think the

latter is not so much a supp for planning issues as accessing ATP for

energy -- but n would cry if he had to write anything and

creatine totally fixed that.

Nell

[Guest guest]

Amy,

Try upping Folinic Acid - or Folic Acid (whichever one helps your child

w/MB12 hyperactivity).

Also, maybe you are giving a little too much or too often, it is easy to

give too much MB12.

Also, they tend to need more MB12 at first and then back off the

amount/frequency.

Good Luck !

Neil

_____

From: [mailto: ]

On Behalf Of Amethyst Mueller

Sent: Friday, December 29, 2006 11:40 AM

Subject: Re: [ ] Re:viral problems?

He takes Pro EFA and DHA twice a day. I think the biggest improvement was

when those two were implemented (this kid does NOT like to take supps.) Much

better coordination, can tie shoes much better now, handwriting has taken a

definite turn for the better).

I guess I am just so anxious about reading all of this and then hearing

parents whose children have had regression. I don't think I could live with

myself if that happened.....

My doc's thinking for chelation is glutathione. He gave me a very

interesting article (which of course I now cannot find!) about that being

the most natural chelator we have, and the most benign.

MB12 is causing hyperactivity, but I hear that's a GOOD thing? How long

before we see full results from MB12?

Amy

lanellici <lanellicigmail (DOT) <mailto:lanellici%40gmail.com> com> wrote:

>

> Blood viral panel was normal according to Dr. Buttram (drawn about a

month ago). I will have him draw another to be sure.

You could consider a trial of antivirals instead of putting him

through another draw. They're not risky. Olive leaf extract and the

enzyme Virastop are popular and effective.

> I noticed something was " just not right " within hours of his

birth....something was just different, I knew there would be

" issues " .....I'd have been a fool to think there would not have been!

If you post his hair test there are some listmates who are good at

reading them, they might be able to shed some light for you.

> He totally understands his deficit (a classmate asked him if he was

going to go to the roller skating party, he responded " I'd have a

heart attack if I tried to roller skate, either that or split my head

open! "

LOL smart kid! The stuff that's helped n with some of those motor

issues has been Nordic Naturals ProEFA, and creatine. I think the

latter is not so much a supp for planning issues as accessing ATP for

energy -- but n would cry if he had to write anything and

creatine totally fixed that.

Nell

__________________________________________________

[Guest guest]

> My doc's thinking for chelation is glutathione. He gave me a very

interesting article (which of course I now cannot find!) about that

being the most natural chelator we have, and the most benign.

Based on my research and experience, ALA qualifies as " most natural

and most benign " .

> MB12 is causing hyperactivity, but I hear that's a GOOD thing?

How long before we see full results from MB12?

mB12 caused hyper for my kids until I reduced the dose, gave it with

folic acid, and increased the yeast protocol.

Dana

[Guest guest]

Hi Nell -

What does a viral panel look like? We had a bunch of blood work done

with Dr. Megson...there doesn't appear to be a viral panel in it, but

I'm not a med person. Here is what is in it:

Testicular Function Prof III

- he shows low LH (.1 mIU/mL)

Celiac Disease Comprehensive

Vitamin A, E, Beta Carotene

CBS with Differential/Platelet

- RDW was high (15.1 %)

Comp. Metabolic Panel

- Creatinine, Serum was low (.4 mg/DL)

- BUN/Creatinine Rateio was high (30)

- Carbon Dioxide, Total was low (17 mmol/L)

- Albumin, Serum was high (5.3 g/dL)

Measles/mumps/rubella Immunity

- Rubeola Ab, IgG, EiA was high (3.32)

- Mumps Abs, IgG was high (2.04)

Vitamin D, 25-Hydroxy

Copper, Serum

Zinc, Plasma or Serum

F078 Casein

-

> >

> > So far, I have not seen anything that would point in that

direction.

> > No rashes, warts, boils

> > Nothing that would *appear* viral....

> > Anything I should be looking for that may no t be obvious?

>

> For n, antiviral treatment led to much improved focus and

social

> skills, and less anxiety (which I hadn't realized was anxiety until

it

> got better). You can have a viral panel done at a regular doc's if

you

> have one who's friendly. Typical viral problems are herpes and

> Epstein-Barr.

>

> Did your kid get vaxed?

>

> Nell

>

[Guest guest]

> > >

> > > So far, I have not seen anything that would point in that

> direction.

> > > No rashes, warts, boils

> > > Nothing that would *appear* viral....

> > > Anything I should be looking for that may no t be obvious?

> >

> > For n, antiviral treatment led to much improved focus and

> social

> > skills, and less anxiety (which I hadn't realized was anxiety until

> it

> > got better). You can have a viral panel done at a regular doc's if

> you

> > have one who's friendly. Typical viral problems are herpes and

> > Epstein-Barr.

> >

> > Did your kid get vaxed?

> >

> > Nell

> >

>

[Guest guest]

Thanks, Nell. I want to get his thyroid checked....I believe that is

blood work so I can have the viral panel done then.

> > > >

> > > > So far, I have not seen anything that would point in that

> > direction.

> > > > No rashes, warts, boils

> > > > Nothing that would *appear* viral....

> > > > Anything I should be looking for that may no t be obvious?

> > >

> > > For n, antiviral treatment led to much improved focus and

> > social

> > > skills, and less anxiety (which I hadn't realized was anxiety

until

> > it

> > > got better). You can have a viral panel done at a regular doc's

if

> > you

> > > have one who's friendly. Typical viral problems are herpes and

> > > Epstein-Barr.

> > >

> > > Did your kid get vaxed?

> > >

> > > Nell

> > >

> >

>

[Guest guest]

Do you know what protocol Dr Megson uses for chelation?

Thanks.

> > > >

> > > > So far, I have not seen anything that would point in that

> > direction.

> > > > No rashes, warts, boils

> > > > Nothing that would *appear* viral....

> > > > Anything I should be looking for that may no t be obvious?

> > >

> > > For n, antiviral treatment led to much improved focus and

> > social

> > > skills, and less anxiety (which I hadn't realized was anxiety

until

> > it

> > > got better). You can have a viral panel done at a regular doc's

if

> > you

> > > have one who's friendly. Typical viral problems are herpes and

> > > Epstein-Barr.

> > >

> > > Did your kid get vaxed?

> > >

> > > Nell

> > >

> >

>

[Guest guest]

>

> Hi Nell -

>

> What does a viral panel look like? We had a bunch of blood work done

> with Dr. Megson...there doesn't appear to be a viral panel in it,

Viral panels are not useful. They are a waste of money.

I have questioned many doc's who order them in great depth about interpretation

and

have yet to get a coherent enough answer to think the panel leads to any

treatment

decisions.

Andy

[Guest guest]

> > My doc's thinking for chelation is glutathione.

Glutathione is not a chelator.

Doctors who think so don't know enough chemistry to practice medicine

responsibly in the

area of heavy metal detox.

> Based on my research and experience, ALA qualifies as " most natural

> and most benign " .

Since it actually IS a chelator, and is something your body naturally has and in

fact makes

in minute quantities.

> > MB12 is causing hyperactivity, but I hear that's a GOOD thing?

No, it is a bad thing.

Incompetent doctors invent stories about how the adverse reactions they cause

with

harmful and inapprorpriate interventions are " healing crises " and are " good. "

They aren't.

Andy

[Guest guest]

>

> Do you know what protocol Dr Megson uses for chelation?

I think she uses some version of DAN, but I told her I'd been doing

Andy's protocol and was going to continue and she had no problem with

that. She says just keep doing what I'm doing.

Nell

[Guest guest]

>

> Viral panels are not useful. They are a waste of money.

Is that because a trial of antivirals tells you all you need to know?

And because viral load at any particular point isn't relevant to

treatment?

My son's tests (hair, OAT, and viral) get worse as he approaches

recovery. So yeah, they're not exactly making the picture clearer.

Nell

[Guest guest]

> >

>

> > Viral panels are not useful. They are a waste of money.

>

> Is that because a trial of antivirals tells you all you need to know?

> And because viral load at any particular point isn't relevant to

> treatment?

The panels I see are antibodies, not viral loads. Antibody levels are not

relevant.

A trial tells you what you need to know, results of trials are not correlated to

what the

panels purportedly tell you.

> My son's tests (hair, OAT, and viral) get worse as he approaches

> recovery. So yeah, they're not exactly making the picture clearer.

Yes, people need to remember to pay attention to the health of the human being

in front

of them, not the health of the numbers on pieces of paper that come from the

laboratory.

> Nell

>

[Guest guest]

Ok, so antibody viral panels are not useful. But... I got the tests

back from Lab Corp today and have no idea how to read them. My

daughter with PDD-NOS has really responded to anti-virals like

Vitamin C, ViraStop, Colostrum, Del-Immune, Epicor and so on. We

definately will continue no matter what a test says. Is there anybody

that would be willing to take a look at these if I fax them to you?

It appears that some antibodies were detected and some were not. Also

the referring facility gave notification to cancel tests by Mayo

Medical laborities for Immunoglobulin A (IgA),S & Immunoglobulin M

(IgM), S and Immunoglobulin G (IgG), S. Why would that happen? If I

can piece this together with some help I would rather use our

increasingly limited funds on supplements than expensive medical

visits/calls.

Thanks, Melinda

> >

> > >

> >

> > > Viral panels are not useful. They are a waste of money.

> >

> > Is that because a trial of antivirals tells you all you need to

know?

> > And because viral load at any particular point isn't relevant to

> > treatment?

>

> The panels I see are antibodies, not viral loads. Antibody levels

are not relevant.

>

> A trial tells you what you need to know, results of trials are not

correlated to what the

> panels purportedly tell you.

>

> > My son's tests (hair, OAT, and viral) get worse as he approaches

> > recovery. So yeah, they're not exactly making the picture clearer.

>

> Yes, people need to remember to pay attention to the health of the

human being in front

> of them, not the health of the numbers on pieces of paper that come

from the laboratory.

>

> > Nell

> >

>

[Guest guest]

Rubeola Ab, IgG, EIA 5.20H index 0.00-0.90

Negative <0.91 Equivocal 0.91-1.09, Positive > 1.09

Mumps Aba, IgG 3.27H index 0.00-0.90

Negative <0.91, Equivocal 0.91-1.09, Positive > 1.09

Cytomegalovirus (CMV) Ab, IgG

CMV Ab, IgG (Cytomegalovirus) 12.1H index 0.0-0.8

Negative < 0.9, Equivocal 0.9-1.0, Positive > 1.0

HHV-6, IgG Antibodies, Quant 1:320H

Note: 4-fold rises in titer are suggestive of either recent, primary

or reactivated infection. The presence of elevated titers to HHV-6 in

the abscence of responses to HAV, HBV, CMV, AND EBV suggest that

titer results are associated with high specificity.

Negative < 1:20

Equivocal 1:20-1:80

Positive > = 1:160

Those were the ones that were bolded which I think indicates concerns.

I am feeling very overwhelmed. How much can you read into this stuff?

Thanks, Melinda

>

> Ok, so antibody viral panels are not useful. But... I got the tests

> back from Lab Corp today and have no idea how to read them. My

> daughter with PDD-NOS has really responded to anti-virals like

> Vitamin C, ViraStop, Colostrum, Del-Immune, Epicor and so on. We

> definately will continue no matter what a test says. Is there

anybody

> that would be willing to take a look at these if I fax them to you?

> It appears that some antibodies were detected and some were not.

Also

> the referring facility gave notification to cancel tests by Mayo

> Medical laborities for Immunoglobulin A (IgA),S & Immunoglobulin M

> (IgM), S and Immunoglobulin G (IgG), S. Why would that happen? If I

> can piece this together with some help I would rather use our

> increasingly limited funds on supplements than expensive medical

> visits/calls.

> Thanks, Melinda

>

>