Fwd: Re: Questions on urinary porphyrins test

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>Envelope-to: alvarez3@...

>From: AndyCutler@...

>Date: Wed, 27 Sep 2006 16:37:07 EDT

>Subject: Re: Questions on urinary porphyrins test

>alvarez3@...

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>24 hour is fine. The issue is proper sample handling so as to not

>destroy the analyte by exposing it to UV (sunlight, fluoresecent

>lights) or air oxidation (shaking, agitation to mix it, pouring

>samples into 24 hour collection bottle carelessly and creating a lot

>of air bubbles).

>

>Andy

>www.noamalgam.com

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>Envelope-to: alvarez3@...

>From: AndyCutler@...

>Date: Wed, 27 Sep 2006 16:38:29 EDT

>Subject: Re: Questions on urinary porphyrins test

>alvarez3@...

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>In a message dated 9/23/06 2:53:48 PM, alvarez3@... writes:

>

>

>>A third question. The pediatrician who wants to retest suggested that

>>the elevation of porphyrins are not necessary linked to heavy metal

>>toxicity. There are other options that need to be rule out first.

>>What other problems could result in elevated porphyrins?

>

>

>LIver disease such as mono, hepatitis, cancer, some genetic

>disorders, other nonmetal toxicities, side effect of certain well

>known medications.

>

>

>

>Andy

>www.noamalgam.com

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>Envelope-to: alvarez3@...

>From: AndyCutler@...

>Date: Wed, 27 Sep 2006 16:37:43 EDT

>Subject: Re: Questions on urinary porphyrins test

>alvarez3@...

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>In a message dated 9/23/06 2:53:48 PM, alvarez3@... writes:

>

>

>>My understanding is that you

>>recomend that any medication be stop for a week before testing. Is

>>this correct?

>

>

>Depends on the situation. I don't know that there is any interaction

>and I do not recall ever making a recommendation.

>

>

>

>Andy

>www.noamalgam.com

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>Envelope-to: alvarez3@...

>From: AndyCutler@...

>Date: Wed, 27 Sep 2006 16:39:50 EDT

>Subject: Re: Questions on urinary porphyrins test

>alvarez3@...

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>In a message dated 9/23/06 2:53:48 PM, alvarez3@... writes:

>

>

>>My last question regarding this test. The doctor who actually runs

>>the test at the hospital was surprised that the pediatrician did not

>>request feces and blood porphyrins, but she did not explain why. I

>>was wondering if these other tests are necessary.

>

>

>They are all thinking of looking for the genetic porphyrias, not

>toxic or acquired porphyria.

>

>Depends on the situation but they seldom are. If blood is to be

>drawn anyway you might as well check blood porphyrins, but don't get

>him stuck just to do that.

>

>

>

>Andy

>www.noamalgam.com

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>Envelope-to: alvarez3@...

>From: AndyCutler@...

>Date: Wed, 27 Sep 2006 16:40:50 EDT

>Subject: Re: Questions on urinary porphyrins test

>alvarez3@...

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>The most ineffective thing I see people do is " fight " with their

>doctor about what is going on when the doc is trying to " prove " it

>isn't something that is against his religion instead of help the sick person.

>

>Andy

>www.noamalgam.com

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>Envelope-to: alvarez3@...

>From: AndyCutler@...

>Date: Wed, 27 Sep 2006 16:41:50 EDT

>Subject: Re: Questions on urinary porphyrins test

>alvarez3@...

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>In a message dated 9/23/06 2:53:48 PM, alvarez3@... writes:

>

>

>> Woods

>>recommends the spot urine rather than a 24 hour collection.

>

>

>Because he couldn't get any research subjects to participate in

>trials where they had to collect a 24 hour sample, not for good

>technical reasons.

>

>

>

>Andy

>www.noamalgam.com

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The French Porphyrins test which is more extensive than the US one is

morning urine only FWIW

Mandi in UK