Re: Calling All Methylation Experts...Please Advise

[Guest guest]

Anne,

Are you sure the marks are related to B12 deficiency? Have they always been

there? A lot of times tongue marks are a sign of allergy or food intolerance.

I'm assuming you are on a restricted diet? My daughter gets marks with yeast,

but her throat also gets red and inflamed.

-------------- Original message --------------

From: " anneecbrynn " <abrynn@...>

Hi All,

My son, 4.3, has gone through some big changes lately. It appears

that what we have been doing (primarily Valtrex and AC DMSA/ALA

chelation) have finally opened up some methylation pathways. Asher

is finally able to tolerate and get some benefit from MB12. We are

giving it nasally, since he doesn't appear to derive any benefit

when given orally. His nasal stuff has folinic acid in it.

Asher has marks on the sides of his tongue that I have assumed are

indications of B-12 deficiency. The tip of his tongue gets red, but

it comes and goes. The sides of his tongue are wierd. It almost

looks like they have scars, and outside of the " scars " looks kind of

red and shiny. Has anyone seen this? Is there some interpretation

of this that anyone can offer other than B-12 deficiency? This does

appear to get better with B-12, but has not gone away, despite him

getting 4 squirts/day. So, my question is this: should I just keep

upping the B-12 to tolerance? Should I add B-12 shots? Should I

start with DMG or TMG to get this kiddo's methylation pathways

really going? His system is changing so fast that I can't keep up.

Yesterday he got what appears to be the first cold that I have not

induced with anti-virals (although we still have OLE and Valtrex in

place) in several years, so I am thinking that is a good sign....

If anyone can point me to appropriate reading or share their

relevant experiences, I would be most grateful. As it stands now,

we have dropped our Apraxia diagnosis and moved from an autism to

HFA diagnosis. We are very pleased with Asher's progress and want

to keep it moving forward...

Thanks in advance.

Anne

[Guest guest]

Hi ,

Well, the marks appear to ebb and flow with B-12, but I am not 100%

sure yet. My son is a yeast king, so that is something I have been

trying to track, but the marks seem at this point to correlate more

with B-12. It could, of course, be food intolerance, though that

would be the only sure fire evidence we have, since nothing else

changes when diet is changed (his poops have never been totally

normal). Asher is GF/CF, except that he gets raw goat's milk cheese

every day. I will look at the cheese to see if that could be part

of the problem.

Thanks .

Hope all is well with you and yours.

Anne

>

> Anne,

>

> Are you sure the marks are related to B12 deficiency? Have they

always been there? A lot of times tongue marks are a sign of allergy

or food intolerance. I'm assuming you are on a restricted diet? My

daughter gets marks with yeast, but her throat also gets red and

inflamed.

>

>

>

> -------------- Original message --------------

> From: " anneecbrynn " <abrynn@...>

>

> Hi All,

>

> My son, 4.3, has gone through some big changes lately. It appears

> that what we have been doing (primarily Valtrex and AC DMSA/ALA

> chelation) have finally opened up some methylation pathways. Asher

> is finally able to tolerate and get some benefit from MB12. We are

> giving it nasally, since he doesn't appear to derive any benefit

> when given orally. His nasal stuff has folinic acid in it.

>

> Asher has marks on the sides of his tongue that I have assumed are

> indications of B-12 deficiency. The tip of his tongue gets red,

but

> it comes and goes. The sides of his tongue are wierd. It almost

> looks like they have scars, and outside of the " scars " looks kind

of

> red and shiny. Has anyone seen this? Is there some interpretation

> of this that anyone can offer other than B-12 deficiency? This

does

> appear to get better with B-12, but has not gone away, despite him

> getting 4 squirts/day. So, my question is this: should I just keep

> upping the B-12 to tolerance? Should I add B-12 shots? Should I

> start with DMG or TMG to get this kiddo's methylation pathways

> really going? His system is changing so fast that I can't keep up.

> Yesterday he got what appears to be the first cold that I have not

> induced with anti-virals (although we still have OLE and Valtrex

in

> place) in several years, so I am thinking that is a good sign....

>

> If anyone can point me to appropriate reading or share their

> relevant experiences, I would be most grateful. As it stands now,

> we have dropped our Apraxia diagnosis and moved from an autism to

> HFA diagnosis. We are very pleased with Asher's progress and want

> to keep it moving forward...

>

> Thanks in advance.

>

> Anne

>

>

>

>

>

[Guest guest]

Anne,

Is is one large mark or lots of little ones. I did find something called

glossitis (sp?) where they did say it could be either anemia or allergy, seems

to be either one of those. Probably not helpful.

[ ] Re: Calling All Methylation Experts...Please Advise

Hi ,

Well, the marks appear to ebb and flow with B-12, but I am not 100%

sure yet. My son is a yeast king, so that is something I have been

trying to track, but the marks seem at this point to correlate more

with B-12. It could, of course, be food intolerance, though that

would be the only sure fire evidence we have, since nothing else

changes when diet is changed (his poops have never been totally

normal). Asher is GF/CF, except that he gets raw goat's milk cheese

every day. I will look at the cheese to see if that could be part

of the problem.

Thanks .

Hope all is well with you and yours.

Anne

>

> Anne,

>

> Are you sure the marks are related to B12 deficiency? Have they

always been there? A lot of times tongue marks are a sign of allergy

or food intolerance. I'm assuming you are on a restricted diet? My

daughter gets marks with yeast, but her throat also gets red and

inflamed.

>

>

>

> -------------- Original message --------------

> From: " anneecbrynn " <abrynn@...>

>

> Hi All,

>

> My son, 4.3, has gone through some big changes lately. It appears

> that what we have been doing (primarily Valtrex and AC DMSA/ALA

> chelation) have finally opened up some methylation pathways. Asher

> is finally able to tolerate and get some benefit from MB12. We are

> giving it nasally, since he doesn't appear to derive any benefit

> when given orally. His nasal stuff has folinic acid in it.

>

> Asher has marks on the sides of his tongue that I have assumed are

> indications of B-12 deficiency. The tip of his tongue gets red,

but

> it comes and goes. The sides of his tongue are wierd. It almost

> looks like they have scars, and outside of the " scars " looks kind

of

> red and shiny. Has anyone seen this? Is there some interpretation

> of this that anyone can offer other than B-12 deficiency? This

does

> appear to get better with B-12, but has not gone away, despite him

> getting 4 squirts/day. So, my question is this: should I just keep

> upping the B-12 to tolerance? Should I add B-12 shots? Should I

> start with DMG or TMG to get this kiddo's methylation pathways

> really going? His system is changing so fast that I can't keep up.

> Yesterday he got what appears to be the first cold that I have not

> induced with anti-virals (although we still have OLE and Valtrex

in

> place) in several years, so I am thinking that is a good sign....

>

> If anyone can point me to appropriate reading or share their

> relevant experiences, I would be most grateful. As it stands now,

> we have dropped our Apraxia diagnosis and moved from an autism to

> HFA diagnosis. We are very pleased with Asher's progress and want

> to keep it moving forward...

>

> Thanks in advance.

>

> Anne

>

>

>

>

>

[Guest guest]

Hell Anne,

My son is not nearly where yours is yet but is also making progress. I

believe his methylation cycle is working better and he is progressing.

Everytime we work with him, we find he is doing something better. I know -- it

seems like he is changing so fast that you " can't keep up " .

Our focus and empasis is changing from biological treatments to behavioral

treatment. We made a list of all the areas he needs improvements (riding a

bike, playing with peers etc) and made an action plan for each. When

bio-treatments did not work, all behavioral training failed.

I applaud and congratulate you on your progress.

anneecbrynn <abrynn@...> wrote:

Hi All,

My son, 4.3, has gone through some big changes lately. It appears

that what we have been doing (primarily Valtrex and AC DMSA/ALA

chelation) have finally opened up some methylation pathways. Asher

is finally able to tolerate and get some benefit from MB12. We are

giving it nasally, since he doesn't appear to derive any benefit

when given orally. His nasal stuff has folinic acid in it.

Asher has marks on the sides of his tongue that I have assumed are

indications of B-12 deficiency. The tip of his tongue gets red, but

it comes and goes. The sides of his tongue are wierd. It almost

looks like they have scars, and outside of the " scars " looks kind of

red and shiny. Has anyone seen this? Is there some interpretation

of this that anyone can offer other than B-12 deficiency? This does

appear to get better with B-12, but has not gone away, despite him

getting 4 squirts/day. So, my question is this: should I just keep

upping the B-12 to tolerance? Should I add B-12 shots? Should I

start with DMG or TMG to get this kiddo's methylation pathways

really going? His system is changing so fast that I can't keep up.

Yesterday he got what appears to be the first cold that I have not

induced with anti-virals (although we still have OLE and Valtrex in

place) in several years, so I am thinking that is a good sign....

If anyone can point me to appropriate reading or share their

relevant experiences, I would be most grateful. As it stands now,

we have dropped our Apraxia diagnosis and moved from an autism to

HFA diagnosis. We are very pleased with Asher's progress and want

to keep it moving forward...

Thanks in advance.

Anne

__________________________________________________

[Guest guest]

Anne,

Have you run zinc levels? Geographic tongue is a relatively common

tongue problem that normally responds to topical steroids. You'll have

to do a bit of research to determine if this is your child's problem.

There isn't a known cause of geographic tongue and treatment does not

permanently cure it. Antifungal and antibacterial medications may be

used for symptomatic cases; topical or systemic cortisone or prednisone

may also be effective. Check on the side effects of the steroids too.

Some people with this problem have Zinc deficiency and your doctor

could run zinc blood levels for you. If deficient, zinc

supplementation could help if absorption isn't a problem.

Good Luck

[Guest guest]

Abid,

I am so glad to hear that your son is improving. I know how hard

you have worked to make that happen for him!

I think appropriate therapies and other non-biomed interventions are

very important in this process, though that is certainly where I

fall short, since I am the biomed person in the household and work

full time to boot. My husband does a lot of great play/work with

Asher for which I am eternally grateful. I try to follow my

husband's lead in the non-biomed respects, though I find that I

often want to sit back and enjoy the more organic elements of

Asher's development, which I attribute wholly to the interventions I

have initiated (with the help of all here).

My husband and Asher are in Northern California for the weekend.

They rented a cabin with my husband's best friend and his son (who

is 18 months old and completely unvaccinated, thanks to me). When

Asher got out of the car, he looked around and said " WOW, this is

beautiful! " I don't think that would have been possible without

Andy, , Dana, Nell, and all of the others out there who have

contributed to Asher's progress. We have a long ways to go, but we

will get there.

Just a few reflective thoughts as I sit here in Indiana enjoying the

peace and quiet of having the house and my time to myself.....

Thanks everyone.

Best,

Anne

> Hi All,

>

> My son, 4.3, has gone through some big changes lately. It appears

> that what we have been doing (primarily Valtrex and AC DMSA/ALA

> chelation) have finally opened up some methylation pathways. Asher

> is finally able to tolerate and get some benefit from MB12. We are

> giving it nasally, since he doesn't appear to derive any benefit

> when given orally. His nasal stuff has folinic acid in it.

>

> Asher has marks on the sides of his tongue that I have assumed are

> indications of B-12 deficiency. The tip of his tongue gets red,

but

> it comes and goes. The sides of his tongue are wierd. It almost

> looks like they have scars, and outside of the " scars " looks kind

of

> red and shiny. Has anyone seen this? Is there some interpretation

> of this that anyone can offer other than B-12 deficiency? This

does

> appear to get better with B-12, but has not gone away, despite him

> getting 4 squirts/day. So, my question is this: should I just keep

> upping the B-12 to tolerance? Should I add B-12 shots? Should I

> start with DMG or TMG to get this kiddo's methylation pathways

> really going? His system is changing so fast that I can't keep up.

> Yesterday he got what appears to be the first cold that I have not

> induced with anti-virals (although we still have OLE and Valtrex

in

> place) in several years, so I am thinking that is a good sign....

>

> If anyone can point me to appropriate reading or share their

> relevant experiences, I would be most grateful. As it stands now,

> we have dropped our Apraxia diagnosis and moved from an autism to

> HFA diagnosis. We are very pleased with Asher's progress and want

> to keep it moving forward...

>

> Thanks in advance.

>

> Anne

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

I guess I now have a new term to research! Geographic tongue,

hmmmm. Asher's zinc levels (blood) are tested every three months or

so. An earlier reading had it a bit low, and the last reading (2

months ago) it was fine.

Thanks for the lead.

Anne

>

> Anne,

>

> Have you run zinc levels? Geographic tongue is a relatively

common

> tongue problem that normally responds to topical steroids. You'll

have

> to do a bit of research to determine if this is your child's

problem.

> There isn't a known cause of geographic tongue and treatment does

not

> permanently cure it. Antifungal and antibacterial medications may

be

> used for symptomatic cases; topical or systemic cortisone or

prednisone

> may also be effective. Check on the side effects of the steroids

too.

> Some people with this problem have Zinc deficiency and your doctor

> could run zinc blood levels for you. If deficient, zinc

> supplementation could help if absorption isn't a problem.

>

> Good Luck

>

[Guest guest]

>As it stands now,

> we have dropped our Apraxia diagnosis and moved from an autism to

> HFA diagnosis.

Great, great news! I'm so glad so much is happening for him. I never had any

luck messing

around with methylation so I haven't even a tiny scrap of help for you. But I'm

betting you'll

figure it out!

Nell

[Guest guest]

----- Original Message -----

From: anneecbrynn

When

Asher got out of the car, he looked around and said " WOW, this is

beautiful! "

<<<<Well, this makes me cry as I know just how much something like this means.

What a great weekend, lots of good news everywhere. Enjoy, Anne, your well

deserved rest.

Just a few reflective thoughts as I sit here in Indiana enjoying the

peace and quiet of having the house and my time to myself.....

Thanks everyone.

Best,

Anne

> Hi All,

>

> My son, 4.3, has gone through some big changes lately. It appears

> that what we have been doing (primarily Valtrex and AC DMSA/ALA

> chelation) have finally opened up some methylation pathways. Asher

> is finally able to tolerate and get some benefit from MB12. We are

> giving it nasally, since he doesn't appear to derive any benefit

> when given orally. His nasal stuff has folinic acid in it.

>

> Asher has marks on the sides of his tongue that I have assumed are

> indications of B-12 deficiency. The tip of his tongue gets red,

but

> it comes and goes. The sides of his tongue are wierd. It almost

> looks like they have scars, and outside of the " scars " looks kind

of

> red and shiny. Has anyone seen this? Is there some interpretation

> of this that anyone can offer other than B-12 deficiency? This

does

> appear to get better with B-12, but has not gone away, despite him

> getting 4 squirts/day. So, my question is this: should I just keep

> upping the B-12 to tolerance? Should I add B-12 shots? Should I

> start with DMG or TMG to get this kiddo's methylation pathways

> really going? His system is changing so fast that I can't keep up.

> Yesterday he got what appears to be the first cold that I have not

> induced with anti-virals (although we still have OLE and Valtrex

in

> place) in several years, so I am thinking that is a good sign....

>

> If anyone can point me to appropriate reading or share their

> relevant experiences, I would be most grateful. As it stands now,

> we have dropped our Apraxia diagnosis and moved from an autism to

> HFA diagnosis. We are very pleased with Asher's progress and want

> to keep it moving forward...

>

> Thanks in advance.

>

> Anne

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Anne,

I can hardly spell methylation, so I've no advice, but your news about

Asher is so wonderful it makes me goosebumpy. He has come so far!

What a great mom you are :-)

Big happy congratulations cyber hug!

Anita