Update on child #1

July 31, 2006

Here are our most recent regressions and gains. I decided that I could not

continue to slow down on chelating, so we've ramped it up after having a few

weeks where child #1 asked for a week or two off of supplements and regressed.

He had less eyecontact, more blank stare at his computer, less social, and was

less talkative. When he didn't take enough enzymes on accident several times,

the same dermatitis (red raw spots) he had eight months or so ago before

starting houstons enzymes, came back to his skin. He now is understanding more

and more what the supplements are doing for him. Child #1, age 17, resumed the

zinc loading, and the other things I've listed before (LONG LIST). I called the

pfeiffer center, and they said that the children they worked with continued to

zinc load past two months, with the amino acid mixture (a blend of 14 amino

acids). I started giving child #1 several items the pfeiffer center was giving,

p5p, tmg, l-methionine, and chromium picolinate. I don't know that I can

continue these, since we are cutting spending to the bare bones (whatever that

is...I think so much of it is important. I've cut out borage oil). I'm adding

lithium (again-not with the plan of cutting back..oh well.) I don't know if any

of our wows are from these new aminoes, I doubt it. I think maybe he might be

getting enough aminoes just from the extra absorption from houstons enzymes and

regular food. Oh, speaking of foods, he's added new foods, like fruits, and

orange juice. We are transitioning into the SCD diet, and we added cheese to the

diet in order to do this, but with enzymes. I am trying to make it to where the

only food served here is SCD food, and if he want's other foods he has to drive

to get it himself. That's my plan for him to get 50 hours of driving in with us

so he can get his license. I'm experimenting with raw goat yogurt and kefir.

On rounds, we are probably around round 20 of ala/dmsa, I am starting to lose

count. His OCD fear of leaving the house continues to be gone.

He has been to two more video game tournaments and taken second place in two v.

two halo2, and first place in four v. four halo2 with his team. We continue to

work on the teamwork skills and getting along with his 2v2 team mate, but he now

will automatically thank the organizers.

When going through a store, instead of us leading him and asking sales help and

directing him. He will now lead, find the item himself, independently. He will

now give himself supplements instead of me placing them in his mouth. He gets

offended when I do things for him that I used to do, in many little ways. I

used to put drops in his mouth, now he is embarrassed if I do that, and looks at

me with horror. So I hand it to him and he gives himself the supplements when

he is home.

He has gone over to a friends house for five weeks out of the last three months.

While there, he eats their food (pizza and cereal, subway, taco bell), and takes

enzymes. I think part of the reason he goes over there since we went on the SCD

diet. He says he can breathe better over there because of his chemical

sensitivity, and he says that he can think better over there because it is

quiet, and it helps his migraines. We had some bumpy times where he would not

take the supplements as directed while over there. We explained to him more and

more how important it was and what some of the supplements were for. While over

at his friends two weeks ago, he had a failed round of chelation, where we had

to stop mid round. This last weekend, he just completed a round of chelation

on his own at his friends house. He has been giving himself all of his

supplements. His cellphone alarm, and my cellphone alarm are both set, and I

call him when its time, to remind him. I was amazed that he completed a round

by himself. He wouldn't have been able to go over there during a round again if

we had to stop early again.

I have all of his meal enzymes, clo, and oreganol in ziplock snack bags that he

takes whenever he eats. If he eats a lot, he knows to take extra apf peptizyde

(after he saw what happens to his face if he doesn't). We have now correlated

his bad breath to yeast, so when it flares up, we ramp up our yeast protocol. I

almost have him understanding what several of the supplements do for him. Also,

that he cannot drink a lot of soda without getting yeast. He has experimented

with diet cola, and doesn't like the chemicals in them and the way they make him

feel.

He takes his probiotics after his meals.

4x a day he takes all of his supplements that I put in his pillminder & sent

with him.

He has two things, the orthomega fish oil, and the grapefruit seed extract

(custom 3 drops into size 3 gelatin capsules), that he takes with the pillminder

pills because they would'nt fit in the pillminder.

He gives himself the candex away from meals.

I gave him pascalite clay, and instructed him to take it if he had dieoff.

While over at his friends where it is quiet, he was able to study the driver's

manual and feels confident that he can pass the driver's exam.

I am going to take him to take the written driver's test within the next couple

weeks, and over the next 6 months, my husband is beginning to teach him how to

drive.

He has completed life skills, of going outside the home socially, rinsing his

mouth daily with a water pic, bathing weekly, clipping and cleaning out nails,

washing hands with soap, and now soon to be driving!!! Driving is something

that myself, my cousin, my friends, didn't think was realistic for him. My

husband thinks he can drive and be a good driver, and thinks he can teach him.

Neil on this list had offered to help Child #1 with his computer problem, but my

son had never got together with him. Without being prompted, Child #1 spent two

weeks and fixed all but a harddrive issue on his computer, by himself! I was

amazed, that he took initiative and that he was able to do most of it. It shows

that he knows more about computer's than pressing the on and off button. We are

having someone at my husbands work do one thing to the hard drive, then we see

if the problem child #1's computer has had for two years is fixed. They say it

will be when the hard drive comes back, hopefully making it so he can start the

tutorials for 3D Studio Max. Child #1 expressed an interest in studying for the

SAT or other exams to try to get a college scholorship.

Some of our gains are behavioral, and required more of a nudge than just from

chelation. Like requiring him to complete life skills before playing video

games. Or making him drive himself if he want's to get food that is off of the

diet. I feel that we couldn't have nudged him behaviorally into these new life

skills if it weren't for the supplements and chelation and the gains that he has

experienced. My cousin just had to point out though, that we are doing

behavioral things to get our gains too.

July 31, 2006

,

Another great update!

Anne

>

> Here are our most recent regressions and gains. I decided that I

could not continue to slow down on chelating, so we've ramped it up

after having a few weeks where child #1 asked for a week or two off

of supplements and regressed. He had less eyecontact, more blank

stare at his computer, less social, and was less talkative. When he

didn't take enough enzymes on accident several times, the same

dermatitis (red raw spots) he had eight months or so ago before

starting houstons enzymes, came back to his skin. He now is

understanding more and more what the supplements are doing for him.

Child #1, age 17, resumed the zinc loading, and the other things

I've listed before (LONG LIST). I called the pfeiffer center, and

they said that the children they worked with continued to zinc load

past two months, with the amino acid mixture (a blend of 14 amino

acids). I started giving child #1 several items the pfeiffer center

was giving, p5p, tmg, l-methionine, and chromium picolinate. I don't

know that I can continue these, since we are cutting spending to the

bare bones (whatever that is...I think so much of it is important.

I've cut out borage oil). I'm adding lithium (again-not with the

plan of cutting back..oh well.) I don't know if any of our wows are

from these new aminoes, I doubt it. I think maybe he might be

getting enough aminoes just from the extra absorption from houstons

enzymes and regular food. Oh, speaking of foods, he's added new

foods, like fruits, and orange juice. We are transitioning into the

SCD diet, and we added cheese to the diet in order to do this, but

with enzymes. I am trying to make it to where the only food served

here is SCD food, and if he want's other foods he has to drive to

get it himself. That's my plan for him to get 50 hours of driving in

with us so he can get his license. I'm experimenting with raw goat

yogurt and kefir. On rounds, we are probably around round 20 of

ala/dmsa, I am starting to lose count. His OCD fear of leaving the

house continues to be gone.

>

> He has been to two more video game tournaments and taken second

place in two v. two halo2, and first place in four v. four halo2

with his team. We continue to work on the teamwork skills and

getting along with his 2v2 team mate, but he now will automatically

thank the organizers.

>

> When going through a store, instead of us leading him and asking

sales help and directing him. He will now lead, find the item

himself, independently. He will now give himself supplements

instead of me placing them in his mouth. He gets offended when I do

things for him that I used to do, in many little ways. I used to

put drops in his mouth, now he is embarrassed if I do that, and

looks at me with horror. So I hand it to him and he gives himself

the supplements when he is home.

>

> He has gone over to a friends house for five weeks out of the last

three months. While there, he eats their food (pizza and cereal,

subway, taco bell), and takes enzymes. I think part of the reason

he goes over there since we went on the SCD diet. He says he can

breathe better over there because of his chemical sensitivity, and

he says that he can think better over there because it is quiet, and

it helps his migraines. We had some bumpy times where he would not

take the supplements as directed while over there. We explained to

him more and more how important it was and what some of the

supplements were for. While over at his friends two weeks ago, he

had a failed round of chelation, where we had to stop mid round.

This last weekend, he just completed a round of chelation on his own

at his friends house. He has been giving himself all of his

supplements. His cellphone alarm, and my cellphone alarm are both

set, and I call him when its time, to remind him. I was amazed that

he completed a round by himself. He wouldn't have been able to go

over there during a round again if we had to stop early again.

>

> I have all of his meal enzymes, clo, and oreganol in ziplock snack

bags that he takes whenever he eats. If he eats a lot, he knows to

take extra apf peptizyde (after he saw what happens to his face if

he doesn't). We have now correlated his bad breath to yeast, so

when it flares up, we ramp up our yeast protocol. I almost have him

understanding what several of the supplements do for him. Also,

that he cannot drink a lot of soda without getting yeast. He has

experimented with diet cola, and doesn't like the chemicals in them

and the way they make him feel.

>

> He takes his probiotics after his meals.

>

> 4x a day he takes all of his supplements that I put in his

pillminder & sent with him.

>

> He has two things, the orthomega fish oil, and the grapefruit seed

extract (custom 3 drops into size 3 gelatin capsules), that he takes

with the pillminder pills because they would'nt fit in the

pillminder.

>

> He gives himself the candex away from meals.

>

> I gave him pascalite clay, and instructed him to take it if he had

dieoff.

>

> While over at his friends where it is quiet, he was able to study

the driver's manual and feels confident that he can pass the

driver's exam.

>

> I am going to take him to take the written driver's test within

the next couple weeks, and over the next 6 months, my husband is

beginning to teach him how to drive.

>

> He has completed life skills, of going outside the home socially,

rinsing his mouth daily with a water pic, bathing weekly, clipping

and cleaning out nails, washing hands with soap, and now soon to be

driving!!! Driving is something that myself, my cousin, my friends,

didn't think was realistic for him. My husband thinks he can drive

and be a good driver, and thinks he can teach him.

>

> Neil on this list had offered to help Child #1 with his computer

problem, but my son had never got together with him. Without being

prompted, Child #1 spent two weeks and fixed all but a harddrive

issue on his computer, by himself! I was amazed, that he took

initiative and that he was able to do most of it. It shows that he

knows more about computer's than pressing the on and off button. We

are having someone at my husbands work do one thing to the hard

drive, then we see if the problem child #1's computer has had for

two years is fixed. They say it will be when the hard drive comes

back, hopefully making it so he can start the tutorials for 3D

Studio Max. Child #1 expressed an interest in studying for the SAT

or other exams to try to get a college scholorship.

>

> Some of our gains are behavioral, and required more of a nudge

than just from chelation. Like requiring him to complete life skills

before playing video games. Or making him drive himself if he

want's to get food that is off of the diet. I feel that we couldn't

have nudged him behaviorally into these new life skills if it

weren't for the supplements and chelation and the gains that he has

experienced. My cousin just had to point out though, that we are

doing behavioral things to get our gains too.

>

July 31, 2006