Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 My little girl who is recoveying from PDD-NOS will be 5 tomorrow. She is pretty much recovered. When she was diagnosed in August 05 she had very little awareness. Today she is on a ton of supplements but she is able to tolerate all foods with enzymes and we are still very low sugar. Tomorrow she will be eating typical BIRTHDAY CAKE!! I think we will even do the frosting! We did SCD for six months and have been GFCF since the diagnosis. During the past few months I have been adding in gluten, some dairy, egg, peanut and vanilla and she appears to be tolerating them just fine. We are trying to be careful with slowly adding and watching for infractions. She is in a regular classroom and is doing GREAT! She has not needed an aid since last Spring. School is currently not able to pick up on any cognitive concerns. She has an IEP goal to gain a listener, sustain the conversation, maintain topic and refuse/reject appropriately and she is doing all of the above independently. The latter two she fluctuates on at times which appears to be related to viral issues. Her teacher says she has no shortage of friends. She is also working on fine motor skills such as writing letters. I think our current biggest issues are viral. We are also dealing with high arsenic and deranged mineral transport. We have a lot to celebrate and this group has been a big part of her success! THANK YOU!! The reason why I started to write this was to ask if you guys had heard of a supplement called del-immune? Our ARNP recommended it and it has been very helpful. While reading the posts I just realized my kids have always been sick all winter long and this year we are off to a very good start. My daughter is taking vitamin c four times a day and we also give her colostrum, virastop and extra zinc. Without a viral protocal my daughters cognitive whanes. Hopefully her viral panel will be back soon. We use lots of things to address yeast such as candidase, biotin, epicor, o of o and of course lots of probiotics. You can find info on del-immune at del-immune.com I cut and pasted this from the web-site. I hope it is ok to do this. Del-Immune is not the creation of the alternative medicine world. It was developed for the Red Army by a research team at one of the former Soviet Union's leading biological warfare laboratories. According to Sichel, the research was undertaken following the accidental release of anthrax from a biological weapons complex near the city of Sverdlovsk (since renamed Ekaterinburg) on April 2, 1979, causing at least 64 deaths. The accident convinced the Soviet military it needed a protective substance that could be used in case of an enemy attack with biological weapons. It wanted something fast acting, simple to use, and cheap to produce (the last so it could stockpiled in large quantities). The also wanted it to work against a variety of possible bio-warfare threats in addition to anthrax, including smallpox, botulism, and plague. The Soviet Researchers quickly concluded the two most obvious avenues of research - antibiotics or vaccines - wouldn't produce satisfactory solutions. Vaccines generally don't work quickly enough and antibiotics can be defeated by the weaponization of new strains of bugs. Instead, the researchers attempted to develop a product that would sufficiently stimulate a person's immune system to allow it to fend off whatever pathogen was thrown at it. The work was conducted at the State Scientific Center Research Institute of Highly Pure Bio-preparations in Leningrad (now St. sburg). The researchers tested more than 600 types of immune- related substances. They found what they were looking for in the cell wall of a bacillus now identified as lactobacillus rhamnosus. It could be turned into a medication by breaking up the cells and collecting the cell wall fragments (a process called lysing). Sichel says Del-Immune works by activating biological switches called cytokines that turn on the body's " innate " immune system, the immune system that you're born with. This system reacts swiftly to threats. (The body has a second immune system as well, the " acquired " immune system, which responds to vaccines and is slower acting.) The results of the research were kept secret, so secret that most of the researchers didn't know how well their compound was performing, Then, as the Soviet Union was collapsing, the project was shelved in 1986. The remaining samples languished in a refrigerator until 1992, when one of the scientists associated with the project obtained the commercial rights to the product in lieu of back pay. Sichel got interested in 1999, when a group of American investors who had obtained samples of the product asked him to help them find a U.S. manufacturer. He tried for a year, unsuccessfully. Then one evening he got a call from his daughter and his ex-wife. They had both come down with the flu and wanted to know if he had anything for it. He gave them some of the Russian samples. Overnight their symptoms had disappeared. His daughter, who also suffered from Hepatitis C, kept taking the drug. She reported her symptoms vanished. A subsequent blood test revealed virus had completely disappeared. That prompted Sichel to investigate distributing the product - not as a drug but as a nutritional supplement. This was possible because lactobacillus strains have been consumed by humans since they started drinking milk and eating cheese and yogurt. To back up his claims, he has more than a dozen Russian research, along with a growing body of anecdotal evidence from U.S. patients and doctors who report dramatic results. Does this stuff really work? I don't know. But given its origins, given the real threat of bio-terror attacks in the U.S., and given the escalating concern that current antibiotics are losing their effectiveness, it would be nice of someone in the government had the intellectual curiosity to find out. (Published in the Colorado Daily April 24, 2005) Hope someone finds this info. helpful. This group has helped my family out tremendously. Thanks, Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 Melinda, Happy Birthday to your little girl and congratulations on your many areas of improvement, thanks for sharing. I will check out the product and let you know. [ ] Thank you & info. on a supp. that is helping immune issues My little girl who is recoveying from PDD-NOS will be 5 tomorrow. She is pretty much recovered. When she was diagnosed in August 05 she had very little awareness. Today she is on a ton of supplements but she is able to tolerate all foods with enzymes and we are still very low sugar. Tomorrow she will be eating typical BIRTHDAY CAKE!! I think we will even do the frosting! We did SCD for six months and have been GFCF since the diagnosis. During the past few months I have been adding in gluten, some dairy, egg, peanut and vanilla and she appears to be tolerating them just fine. We are trying to be careful with slowly adding and watching for infractions. She is in a regular classroom and is doing GREAT! She has not needed an aid since last Spring. School is currently not able to pick up on any cognitive concerns. She has an IEP goal to gain a listener, sustain the conversation, maintain topic and refuse/reject appropriately and she is doing all of the above independently. The latter two she fluctuates on at times which appears to be related to viral issues. Her teacher says she has no shortage of friends. She is also working on fine motor skills such as writing letters. I think our current biggest issues are viral. We are also dealing with high arsenic and deranged mineral transport. We have a lot to celebrate and this group has been a big part of her success! THANK YOU!! The reason why I started to write this was to ask if you guys had heard of a supplement called del-immune? Our ARNP recommended it and it has been very helpful. While reading the posts I just realized my kids have always been sick all winter long and this year we are off to a very good start. My daughter is taking vitamin c four times a day and we also give her colostrum, virastop and extra zinc. Without a viral protocal my daughters cognitive whanes. Hopefully her viral panel will be back soon. We use lots of things to address yeast such as candidase, biotin, epicor, o of o and of course lots of probiotics. You can find info on del-immune at del-immune.com I cut and pasted this from the web-site. I hope it is ok to do this. Del-Immune is not the creation of the alternative medicine world. It was developed for the Red Army by a research team at one of the former Soviet Union's leading biological warfare laboratories. According to Sichel, the research was undertaken following the accidental release of anthrax from a biological weapons complex near the city of Sverdlovsk (since renamed Ekaterinburg) on April 2, 1979, causing at least 64 deaths. The accident convinced the Soviet military it needed a protective substance that could be used in case of an enemy attack with biological weapons. It wanted something fast acting, simple to use, and cheap to produce (the last so it could stockpiled in large quantities). The also wanted it to work against a variety of possible bio-warfare threats in addition to anthrax, including smallpox, botulism, and plague. The Soviet Researchers quickly concluded the two most obvious avenues of research - antibiotics or vaccines - wouldn't produce satisfactory solutions. Vaccines generally don't work quickly enough and antibiotics can be defeated by the weaponization of new strains of bugs. Instead, the researchers attempted to develop a product that would sufficiently stimulate a person's immune system to allow it to fend off whatever pathogen was thrown at it. The work was conducted at the State Scientific Center Research Institute of Highly Pure Bio-preparations in Leningrad (now St. sburg). The researchers tested more than 600 types of immune- related substances. They found what they were looking for in the cell wall of a bacillus now identified as lactobacillus rhamnosus. It could be turned into a medication by breaking up the cells and collecting the cell wall fragments (a process called lysing). Sichel says Del-Immune works by activating biological switches called cytokines that turn on the body's " innate " immune system, the immune system that you're born with. This system reacts swiftly to threats. (The body has a second immune system as well, the " acquired " immune system, which responds to vaccines and is slower acting.) The results of the research were kept secret, so secret that most of the researchers didn't know how well their compound was performing, Then, as the Soviet Union was collapsing, the project was shelved in 1986. The remaining samples languished in a refrigerator until 1992, when one of the scientists associated with the project obtained the commercial rights to the product in lieu of back pay. Sichel got interested in 1999, when a group of American investors who had obtained samples of the product asked him to help them find a U.S. manufacturer. He tried for a year, unsuccessfully. Then one evening he got a call from his daughter and his ex-wife. They had both come down with the flu and wanted to know if he had anything for it. He gave them some of the Russian samples. Overnight their symptoms had disappeared. His daughter, who also suffered from Hepatitis C, kept taking the drug. She reported her symptoms vanished. A subsequent blood test revealed virus had completely disappeared. That prompted Sichel to investigate distributing the product - not as a drug but as a nutritional supplement. This was possible because lactobacillus strains have been consumed by humans since they started drinking milk and eating cheese and yogurt. To back up his claims, he has more than a dozen Russian research, along with a growing body of anecdotal evidence from U.S. patients and doctors who report dramatic results. Does this stuff really work? I don't know. But given its origins, given the real threat of bio-terror attacks in the U.S., and given the escalating concern that current antibiotics are losing their effectiveness, it would be nice of someone in the government had the intellectual curiosity to find out. (Published in the Colorado Daily April 24, 2005) Hope someone finds this info. helpful. This group has helped my family out tremendously. Thanks, Melinda Quote Link to comment Share on other sites More sharing options...
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