Zeolite Study - any thoughts?

[Guest guest]

I would like to get other parents' insight on this:

http://www.zeoliteautismstudy.com/home/

Has anyone here ever tried it?

Thanks all,

Stacey

[Guest guest]

In a message dated 06/10/2006 20:57:42 GMT Daylight Time,

souzagilmara@... writes:

Yes we are hearing a lot about zeolite, and though I

have not tried it I wonder what all the fuss is about

it for its expensive and has similar actions to much

less expensive substances like clay or activated

charcoal.

>>Given that there are 300 drops in a bottle it works out cheaper than using

DMSA.....................

Lately the marketing hype has grown to a

hurricane thus tempting people greatly.

>>Marketign didn't attract me - people gettign results did. I actually

ignored the product for 4 months BECAUSE of the marekting

It certainly

sounds good but the science seems iffy and no long

term studies for long term effects. My guess is its

good for short term treatment but I see no reason not

to put clay, which has been in use for thousands of

years first.......y

>>Clay and activate charcoal didn't make my son have the gains we have seen

on Zeolite or anything for that matter except HNI enzymes. They did give him

starnge coloured stools.

We have completed 100+ rounds of chelatioN AC style nd 9 months of Buttar

style TD-DMPS.

People who have never used the stuff making judegment kinda irritate

me...................

Mandi in Uk

Very Old timer

[Guest guest]

In a message dated 06/10/2006 21:58:26 GMT Daylight Time, stacer_b@...

writes:

>>We have completed 100+ rounds of chelatioN AC style nd 9 months of

Buttar style TD-DMPS.

AC style - does that mean Andy's protocol?

>>YEP thats Andys protocl - DMSA +ALA and TDDMPS+ ALA

What is Buttar style?

>>>Not worth knowing about IMHO - dosing every 48 hours continuously - if it

did what Dr Buattar said it does on the tin there wouldn't be any austistic

kids he would have recovered them all - if you are investigating doign

chelation - my advice is to do Andy's protocol. You can add Zeolites later if

you

need too.

Sam has improved inmmensley on AC protocol though it took 20 or so rounds to

see any gains at all, NCD gave us gains (small but significant) in 3 days

flat.

Mandi in UK

Sorry, hope these aren't stupid questions, I'm still a little new to this.

[Guest guest]

Yes we are hearing a lot about zeolite, and though I

have not tried it I wonder what all the fuss is about

it for its expensive and has similar actions to much

less expensive substances like clay or activated

charcoal. Lately the marketing hype has grown to a

hurricane thus tempting people greatly. It certainly

sounds good but the science seems iffy and no long

term studies for long term effects. My guess is its

good for short term treatment but I see no reason not

to put clay, which has been in use for thousands of

years first........

__________________________________________________

[Guest guest]

So you use it instead of DMSA? How long have you been using it, and

what kind of gains have you gotten? Did you use DMSA at all and did

you have any results from that?

>>We have completed 100+ rounds of chelatioN AC style nd 9 months of

Buttar style TD-DMPS.

AC style - does that mean Andy's protocol?

What is Buttar style?

Sorry, hope these aren't stupid questions, I'm still a little new to this.

Thanks,

Stacey

>

>

> In a message dated 06/10/2006 20:57:42 GMT Daylight Time,

> souzagilmara@... writes:

>

> Yes we are hearing a lot about zeolite, and though I

> have not tried it I wonder what all the fuss is about

> it for its expensive and has similar actions to much

> less expensive substances like clay or activated

> charcoal.

>

>

> >>Given that there are 300 drops in a bottle it works out cheaper

than using

> DMSA.....................

>

>

> Lately the marketing hype has grown to a

> hurricane thus tempting people greatly.

>

>

> >>Marketign didn't attract me - people gettign results did. I actually

> ignored the product for 4 months BECAUSE of the marekting

>

>

> It certainly

> sounds good but the science seems iffy and no long

> term studies for long term effects. My guess is its

> good for short term treatment but I see no reason not

> to put clay, which has been in use for thousands of

> years first.......y

>

>

> >>Clay and activate charcoal didn't make my son have the gains we

have seen

> on Zeolite or anything for that matter except HNI enzymes. They did

give him

> starnge coloured stools.

>

> We have completed 100+ rounds of chelatioN AC style nd 9 months of

Buttar

> style TD-DMPS.

>

> People who have never used the stuff making judegment kinda irritate

> me...................

>

> Mandi in Uk

> Very Old timer

>

>

>

>

>

>

>

>

>

[Guest guest]

Clay and activate charcoal didn't make my son have the

gains we have seen

on Zeolite

Well thats nice to know. So from what you are saying

do you think zeolite can be used as a principle

chelator meaning as a replacement for ala or

dmsa/dmps? Or something to use in parallel?

__________________________________________________

[Guest guest]

In a message dated 07/10/2006 03:20:58 GMT Daylight Time,

souzagilmara@... writes:

Well thats nice to know. So from what you are saying

do you think zeolite can be used as a principle

chelator meaning as a replacement for ala or

dmsa/dmps? Or something to use in parallel?

>>>IMHO there is no replacement or subsitute for using ALA, period.

As we have so many rounds under our belt and after 4 .5 years getting up

every wekend gets a littel old, we are doing DMSA/ALA once per month and using

NCD daily in between. I am not prepared to put all my eggs in one basket and

after this amount of time I don't think anybody would blame me. Thats the NCD

basket or the DMSA/ALA basket.

NCD is helping viral issues with my son this I am sure of, the gains it has

brought us this I am sure of, how it does it I have not a clue and hence would

not recommend it as a sole CHELATOR excpet for kids that cannot handle

(metabolism wise) the sulphur chelators at all.

What I like about it also - if you keep the dose very low, its hard to make

a mistake with NCD.

Please subsitute Liquid Zeolite for my use of name NCD, I plan to try an

alternative brand - one that has been developed by the ACTUAL chap who has the

patent not the Waiora people although Waiora product is what I am basing my

opinions on so far

Does this make any sense at all?

Mandi in UK on round - 3 hourly dosing is hard after a while off

[Guest guest]

In a message dated 07/10/2006 11:13:33 GMT Daylight Time,

kddervishi@... writes:

What is ACTUAL ? I like NCD too.

>>>Thats not his name I mean the guy that actually invented this product and

owns the patent- which isn't anybody at Waiora I learned this week - I

forgot his name - this was telehone call not email so no record but speaking

with

the people again soon so will ask and write it down this time.

I was just a bit gobsmacked at the time.

His product won't be MLM but it won't be much cheaper either.

Waiora have said nobody can sell this product except from the site they give

you when you sign up for the discount.

I am in the UK we can't sign up from here which means UK and Europeans

cannot access the product as a distributor OR via on-line retail outlets like

mine

(I keep ASD supps at discount) from the end of this month.

Nobody is allowed to retail it either - which is what I do as there is no

other way to do it in the UK. ASD Market and others do it in the US so people

could buy one instead of 4 - its a big outlay if you just want to try it. Its a

mess. Keeping control seems more important to Waiora than getting the

product to the people that need or want to use it

Which is why we are all so suspicious of MLM in the first place isn;t it?

Mandi in UK

[Guest guest]

>

> I would like to get other parents' insight on this:

>

> http://www.zeoliteautismstudy.com/home/

>

On the Zeoliteautsimstudy page it says

" Wastewater studies show that they have the ability to attract, trap,

bind and remove various heavy metals and toxins such as mercury, lead

and arsenic. "

Waste water studies tell us nothing about what happens in the human

body. To use waste water studies to base a human treatment on is

nonsense.

Looking at the existing studies page..

http://www.zeoliteautismstudy.com/home/index.php?option=com_content & task=view & id\

=16 & Itemid=41

The first one is just a product promotion page.

The second one is about purifying waste water and is looking at Co,

Cu, Zn, Mn. The study only concludes that zeolites have " potential "

for use in waste waters.

The third one has to do with the " potential " of removing lead from soil.

The forth one has to do with the " potential " of removing mercury ions

from industrial effluents.

The fifth one has to do with the " potential " of removing arsenic from

drinking water.

The sixth one has to do with the " potential " of using zeolite as an

anti- diarrheic drug.

The seventh one has to do with broiler chicks and aflotoxin.

The eighth one came up as an error on my computer.

The nineth one has to do with zeolite and the levels of minerals and

vitamins in sow.

I didn't feel that any of these articles were worth reading.

The proponents of the autism study have not presented enough evidence

to support any type of study with zeolites in children, in my opinion.

> Has anyone here ever tried it?

>

I wouldn't try it because I am not convinced that it is even safe to

use them in people. There have been very few reports in adult groups

from people who have tried them, but I have noticed that adults have

reported significant side effects at low doses. That tells me that

something is going on, but no one knows what is going on. The whole

thing is just too experimental.

J

>

> Thanks all,

> Stacey

>

[Guest guest]

From our clinical trial (too small yet to be of relevance, 30

patients)

No increase in pull of metals from the DD Urine Toxic Elements.

Now, before the ... hits the fan. It does work in a small subset.

Best guess is anti-viral (note the word guess).

> >

> > I would like to get other parents' insight on this:

> >

> > http://www.zeoliteautismstudy.com/home/

> >

>

>

>

> On the Zeoliteautsimstudy page it says

> " Wastewater studies show that they have the ability to attract,

trap,

> bind and remove various heavy metals and toxins such as mercury,

lead

> and arsenic. "

>

> Waste water studies tell us nothing about what happens in the human

> body. To use waste water studies to base a human treatment on is

> nonsense.

>

> Looking at the existing studies page..

>

> http://www.zeoliteautismstudy.com/home/index.php?

option=com_content & task=view & id=16 & Itemid=41

>

> The first one is just a product promotion page.

>

> The second one is about purifying waste water and is looking at Co,

> Cu, Zn, Mn. The study only concludes that zeolites

have " potential "

> for use in waste waters.

>

> The third one has to do with the " potential " of removing lead from

soil.

>

> The forth one has to do with the " potential " of removing mercury

ions

> from industrial effluents.

>

> The fifth one has to do with the " potential " of removing arsenic

from

> drinking water.

>

> The sixth one has to do with the " potential " of using zeolite as an

> anti- diarrheic drug.

>

> The seventh one has to do with broiler chicks and aflotoxin.

>

> The eighth one came up as an error on my computer.

>

> The nineth one has to do with zeolite and the levels of minerals

and

> vitamins in sow.

>

> I didn't feel that any of these articles were worth reading.

>

> The proponents of the autism study have not presented enough

evidence

> to support any type of study with zeolites in children, in my

opinion.

>

>

>

> > Has anyone here ever tried it?

> >

>

>

>

> I wouldn't try it because I am not convinced that it is even safe

to

> use them in people. There have been very few reports in adult

groups

> from people who have tried them, but I have noticed that adults

have

> reported significant side effects at low doses. That tells me that

> something is going on, but no one knows what is going on. The

whole

> thing is just too experimental.

>

> J

>

>

>

>

>

>

>

> >

> > Thanks all,

> > Stacey

> >

>

[Guest guest]

I thought I would add my thoughts on NCD. I have

nothing to gain by saying that NCD has been one of the

best interventions we have ever done. It took me a

while to get up the nerve to start it because the

marketing of products like this and so many others

really turn me off...so many sound too good to be

true. My son made tremendous gains the first two

weeks of using NCD. Then we went through a bad

time...I feel pretty confident that it stirred up

major yeast in him. We stopped it and got the yeast

under control and restarted it at very low doses. He

has always made steady progress but it is definitley

more rapid, steady progress when on NCD. Most

interventions that have really helped have shown

improvements in one or two basic areas. With NCD we

have truly seen a wonderful progression of skills,

language, etc. in all areas. I don't know how NCD

does it but it does seem to be very safe and we have

had no problems with it as long as we keep up a very

good yeast protocol.

__________________________________________________

[Guest guest]

Good for you !

to be brave enough to post this so that parents can get off the fear

train.

I get private posts like this all the time and just don't understand

why people don't post such news.

Glad to hear your son is doing so well.

So is mine yippee

>

> I thought I would add my thoughts on NCD. I have

> nothing to gain by saying that NCD has been one of the

> best interventions we have ever done. It took me a

> while to get up the nerve to start it because the

> marketing of products like this and so many others

> really turn me off...so many sound too good to be

> true. My son made tremendous gains the first two

> weeks of using NCD. Then we went through a bad

> time...I feel pretty confident that it stirred up

> major yeast in him. We stopped it and got the yeast

> under control and restarted it at very low doses. He

> has always made steady progress but it is definitley

> more rapid, steady progress when on NCD. Most

> interventions that have really helped have shown

> improvements in one or two basic areas. With NCD we

> have truly seen a wonderful progression of skills,

> language, etc. in all areas. I don't know how NCD

> does it but it does seem to be very safe and we have

> had no problems with it as long as we keep up a very

> good yeast protocol.

>

>

>

> __________________________________________________

>

[Guest guest]

---

I think its great too!

can you tell me what your yeast protocol is?

We are just starting a yeast regimen and I'm not sure what to use

exactly. My son is 8yrs old. Kind of hefty too.

Thanks.

April.

aprilcullins@...

In , Royster <cindyroyster@...>

wrote:

>

> I thought I would add my thoughts on NCD. I have

> nothing to gain by saying that NCD has been one of the

> best interventions we have ever done. It took me a

> while to get up the nerve to start it because the

> marketing of products like this and so many others

> really turn me off...so many sound too good to be

> true. My son made tremendous gains the first two

> weeks of using NCD. Then we went through a bad

> time...I feel pretty confident that it stirred up

> major yeast in him. We stopped it and got the yeast

> under control and restarted it at very low doses. He

> has always made steady progress but it is definitley

> more rapid, steady progress when on NCD. Most

> interventions that have really helped have shown

> improvements in one or two basic areas. With NCD we

> have truly seen a wonderful progression of skills,

> language, etc. in all areas. I don't know how NCD

> does it but it does seem to be very safe and we have

> had no problems with it as long as we keep up a very

> good yeast protocol.

>

>

>

> __________________________________________________

>