Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 Nell, Our daughter is a positive responder to lod. However, I was of the same mind frame re vit C. I just could NOT remove it. She only tolerates the sago palm C. About 8 mos into lod, I ran out and was waiting on a mail order. She experienced major 'dumping' symptoms during the wait!! Since then I've substantially reduced vit C supp and have seen no real negatives from it. > Veering off-topic, another thing she said was that his high oxalate > number was probably because of vit C, and I'm not willing to give that > up to go on that blasted diet. > > Nell > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 > > Nell, > Our daughter is a positive responder to lod. However, I was of the > same mind frame re vit C. I just could NOT remove it. She only > tolerates the sago palm C. About 8 mos into lod, I ran out and was > waiting on a mail order. She experienced major 'dumping' symptoms > during the wait!! Since then I've substantially reduced vit C supp and > have seen no real negatives from it. , Thanks for telling your experience. I flirted with LOD last fall, getting the supps in place and starting to reduce high oxalate foods. I can't be certain but I did think dropping vit C caused trouble, and I bailed on the diet. Recently I shifted n's antiviral protocol from kitchen-cabinet approach (lysine, echinacea, transfer factor, sambucol, mushroom extract, LDN) to only LDN and high-dose vit C. I haven't gotten as high as Dana -- we're up to 25 g/day so far, with no diarrhea yet -- but it's working really well. Did you use an alternative antioxidant, or figure whatever else you were giving covered it? I haven't crossed LOD off the list forever, but I admit I'm hoping I won't have to revisit it.... Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Nell, Over the years it has been apparent that my daughter reacts in varying degrees of distress to foods, supps, anything that goes in her mouth, sometimes just breathing things or topicals. It was a major eye opener to me to have seizures well controlled on gfcfsf after so many years of high dose meds doing little good. In looking over the low oxalate symptoms pattern, many seemed pertinent; same with the list of foods - we had already ditched some of them due to the negative response that they caused. I just tried to refine it a bit - somewhat difficult. She definitely has a preference for some of those high oxalate foods! and gets reinforced by others to eat what she wants. We also have family history of stones and gout. In ignorance this fall, I tried some eggplant not realizing that it was high oxalate. It was soemthing we do not usually eat and I was trying to vary the food pattern. Her response to it sent me looking to oxalate content. Of course it was a high food. I saw neuro irritability 8-9[on a 10 point scale] for about ~30 hours~. It was enough to get me pouring charcoal and alka seltzer gold down her. Both usually help with this pattern and sometimes will help prevent her going into a seizure mode. Dropping the C caused the same nasty response along with urinary urgency and frequency - what others have described as 'dumping.' She does get some C in a multi, but I've dropped her to about 1 gm per day. I've upped the E. As a result of recent testing she's on a rotation diet. It, too, seems to be beneficial - a real pain though! > > > > Nell, > > Our daughter is a positive responder to lod. However, I was of the > > same mind frame re vit C. I just could NOT remove it. She only > > tolerates the sago palm C. About 8 mos into lod, I ran out and was > > waiting on a mail order. She experienced major 'dumping' symptoms > > during the wait!! Since then I've substantially reduced vit C supp and > > have seen no real negatives from it. > > , > > Thanks for telling your experience. I flirted with LOD last fall, > getting the supps in place and starting to reduce high oxalate foods. > I can't be certain but I did think dropping vit C caused trouble, and > I bailed on the diet. Recently I shifted n's antiviral protocol > from kitchen-cabinet approach (lysine, echinacea, transfer factor, > sambucol, mushroom extract, LDN) to only LDN and high-dose vit C. I > haven't gotten as high as Dana -- we're up to 25 g/day so far, with no > diarrhea yet -- but it's working really well. > > Did you use an alternative antioxidant, or figure whatever else you > were giving covered it? > > I haven't crossed LOD off the list forever, but I admit I'm hoping I > won't have to revisit it.... > > Nell > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 , Have you seen positives after the dumping symptoms? Anne > > Nell, > Our daughter is a positive responder to lod. However, I was of the > same mind frame re vit C. I just could NOT remove it. She only > tolerates the sago palm C. About 8 mos into lod, I ran out and was > waiting on a mail order. She experienced major 'dumping' symptoms > during the wait!! Since then I've substantially reduced vit C supp and > have seen no real negatives from it. > > > > Veering off-topic, another thing she said was that his high oxalate > > number was probably because of vit C, and I'm not willing to give > that > > up to go on that blasted diet. > > > > Nell > > > Quote Link to comment Share on other sites More sharing options...
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