Re: effective methods for parents of ASD kids to manage stress

[Guest guest]

Thanks, !

My son has made huge gains with chelation - no regression at all. We did

HBOT last August (40 dives 1.5 ATA). During HBOT, he began having seizures for

the first time in his life. His regression is mostly all related to the

seizures. At this point, he can no longer chelate, as chelation brings

seizures

for him. Prior to HBOT, he completed almost 70 rounds of Andy's DMPS/ALA

protocol and was doing very well. We think that the seizures are viral in

origin and that HBOT brought about a manifestation of viral issues. Prior to

HBOT, he had no elevated Herpes level. Post HBOT, his Herpes 6 is 8 times the

reference range. We are getting ready to do Valtex.

In a message dated 5/30/2006 4:41:33 P.M. Central Daylight Time,

writes:

What do you mean by extended periods of regression and aggression? We have

been doing chelation for several months now and biomed for 4+ years now and

haven't had that issue. After each chelation round we always see new words,

understanding of language, expressive gains...not any regression. Only time

we had issue with that was when his round was stopped unexpectedly and we had

big redistribution. He didn't fully come out of that until we did a proper

chelation round the following weekend.

[Guest guest]

I have been planning for my next pregnancy for a couple years. My plan was

put on hold because of my son's HBOT related regression/seizures. For quite

a while, I've been working with our DAN! on appropriate supplements and

nutrition as well as monitoring my thyroid. My ASD son is 7 and is doing quite

well, except for the seizure issues which can be quite difficult . I also have

a 5 year old very NT son, who was saved because I chose (after reading

Mothering magazine, but before knowing that I shouldn't vaccinate at all) to

only a

llow one vaccine a month. He did have a tiny speech delay, which went away

with 5 rounds of chelation at age 3. Like said, my two boys are also

twin-like. They have the same interests and are the best of friends. I

cannot imagine them not having each other. There are pros and cons about

having

another baby, but we feel that there are many more pros. We will definitely

need and will have help at our house.

In a message dated 5/30/2006 7:37:35 P.M. Central Daylight Time,

writes:

Message 4

From: " lvchefmel " lvchefmel@...

Date: Tue May 30, 2006 3:05pm(PDT)

Subject: Re: Effective methods for parents of ASD kids to manage stress?

I thought the same thing for a second as well Anne. It is hard, I know this

first hand. My second was born when my first was 2 1/2 and we were just

getting an ABA program started. Supplements are coming and going and there was

a ton going on. But...having my second son around has been an amazing for my

ASD son. He forces him to interact, bugs him constantly. I have had them

sharing a room from the beginning, they were together all the time! They are

so very close now. As my NT son gains skills and vocabulary my ASD son is

encouraged to do the same. It at times is almost like having twins. They

potty trained about the same time...that kind of thing. I have always said if

I

knew my first was autistic at that time I was wanting to get pregnant I

wouldn't have for a long time if ever again. I still believe that would be

true.

I wouldn't have done it with the information I had. I also know it would

have been a huge mistake not to have had my second son. That child

has been an enormous blessing to my ASD son, not to mention just a

blessing!!! Hard, yes it will be. Getting as much organized before the baby

comes

will be very important. Take help from anyone who offers even if it is just

to help with grocery shopping or other errand. If you belong to a church

family get them as involved as you need. I know the teens in our church are

wonderful and have helped me when my husband was on an extended business trip.

It might seem imposing but many people feel great joy when they are able to

help others.

Good advice though to make sure your body is ready to have another baby.

Proper nutrition is crucial. If you suspect any issues with yourself maybe

taking digestive enzymes to ensure you are absorbing the vitamins and minerals.

I know they have helped me tremendously.

Good luck!!!

[Guest guest]

Lightbulb!!! I remember you talking about this before!!! Sorry!!!

Viral treatment sounds promising, I will be curious to see how it goes.

Please post about it. A friend of mine who is an adult started having seizures

a couple years ago. I am about to start doing research for her hoping to help.

Doctors are only looking at drugs and she is now pregnant so that really isn't a

good option for her.

We are just starting a viral program with our son. We are doing Virastop

right now with extra vitamin A. We are going to see how it goes and up both

accordingly. As soon as I can I want to add the OLE as well. So far I am

already seeing positive changes especially verbally.

I have been thinking about the HOBT and am thinking we might give it a go if

after viral treatment and chelation therapy are over. We will see where he is

at that point.

Good luck to you!!

JLJukoski@... wrote:

Thanks, !

My son has made huge gains with chelation - no regression at all. We did

HBOT last August (40 dives 1.5 ATA). During HBOT, he began having seizures for

the first time in his life. His regression is mostly all related to the

seizures. At this point, he can no longer chelate, as chelation brings

seizures

for him. Prior to HBOT, he completed almost 70 rounds of Andy's DMPS/ALA

protocol and was doing very well. We think that the seizures are viral in

origin and that HBOT brought about a manifestation of viral issues. Prior to

HBOT, he had no elevated Herpes level. Post HBOT, his Herpes 6 is 8 times the

reference range. We are getting ready to do Valtex.

In a message dated 5/30/2006 4:41:33 P.M. Central Daylight Time,

writes:

What do you mean by extended periods of regression and aggression? We have

been doing chelation for several months now and biomed for 4+ years now and

haven't had that issue. After each chelation round we always see new words,

understanding of language, expressive gains...not any regression. Only time

we had issue with that was when his round was stopped unexpectedly and we had

big redistribution. He didn't fully come out of that until we did a proper

chelation round the following weekend.

[Guest guest]

If you are going with Valtrex next, you may wish to chime into the MB12valtrex

group. The group was founded by Stan Kurtz whose son was cured by

valtrex. There is so much that is not known about why and how valtrex helps ASD

kids.

All the best.

JLJukoski@... wrote:

Thanks, !

My son has made huge gains with chelation - no regression at all. We did

HBOT last August (40 dives 1.5 ATA). During HBOT, he began having seizures for

the first time in his life. His regression is mostly all related to the

seizures. At this point, he can no longer chelate, as chelation brings

seizures

for him. Prior to HBOT, he completed almost 70 rounds of Andy's DMPS/ALA

protocol and was doing very well. We think that the seizures are viral in

origin and that HBOT brought about a manifestation of viral issues. Prior to

HBOT, he had no elevated Herpes level. Post HBOT, his Herpes 6 is 8 times the

reference range. We are getting ready to do Valtex.

In a message dated 5/30/2006 4:41:33 P.M. Central Daylight Time,

writes:

What do you mean by extended periods of regression and aggression? We have

been doing chelation for several months now and biomed for 4+ years now and

haven't had that issue. After each chelation round we always see new words,

understanding of language, expressive gains...not any regression. Only time

we had issue with that was when his round was stopped unexpectedly and we had

big redistribution. He didn't fully come out of that until we did a proper

chelation round the following weekend.

[Guest guest]

Maybe would be helpful to define " cured " also. Have heard it reported by these

parents that the kids still have to stay on a diet.

Also, beginning to hear there are still cognitive deficits in the kids they are

calling cured with Valtrex, e.g word retrieval problems, saying sentences

backward, etc.

Everyone will have to judge for themselves, but those two facts make me not use

the word " cure " , especially the cognitive stuff. Makes me strongly suspect

there is still mercury in the brain.

Always grateful for any improvement of any kid, but wondering if the word cure

can be used here as it is pretty debilatating to not have almost total command

of your speech.

Re: [ ] effective methods for parents of ASD kids to

manage stress

If you are going with Valtrex next, you may wish to chime into the MB12valtrex

group. The group was founded by Stan Kurtz whose son was cured by

valtrex. There is so much that is not known about why and how valtrex helps ASD

kids.

All the best.

JLJukoski@... wrote:

Thanks, !

My son has made huge gains with chelation - no regression at all. We did

HBOT last August (40 dives 1.5 ATA). During HBOT, he began having seizures

for

the first time in his life. His regression is mostly all related to the

seizures. At this point, he can no longer chelate, as chelation brings

seizures

for him. Prior to HBOT, he completed almost 70 rounds of Andy's DMPS/ALA

protocol and was doing very well. We think that the seizures are viral in

origin and that HBOT brought about a manifestation of viral issues. Prior to

HBOT, he had no elevated Herpes level. Post HBOT, his Herpes 6 is 8 times

the

reference range. We are getting ready to do Valtex.

In a message dated 5/30/2006 4:41:33 P.M. Central Daylight Time,

writes:

What do you mean by extended periods of regression and aggression? We have

been doing chelation for several months now and biomed for 4+ years now and

haven't had that issue. After each chelation round we always see new words,

understanding of language, expressive gains...not any regression. Only time

we had issue with that was when his round was stopped unexpectedly and we had

big redistribution. He didn't fully come out of that until we did a proper

chelation round the following weekend.

[Guest guest]

Stan stated that his son is " recovered " . I used the word " cured " by mistake. I

don't know if that makes it more defined but I needed to correct myself.

Cochran <Ladyshrink111@...> wrote: Maybe would be helpful to

define " cured " also. Have heard it reported by these parents that the kids still

have to stay on a diet.

Also, beginning to hear there are still cognitive deficits in the kids they are

calling cured with Valtrex, e.g word retrieval problems, saying sentences

backward, etc.

Everyone will have to judge for themselves, but those two facts make me not use

the word " cure " , especially the cognitive stuff. Makes me strongly suspect

there is still mercury in the brain.

Always grateful for any improvement of any kid, but wondering if the word cure

can be used here as it is pretty debilatating to not have almost total command

of your speech.

Re: [ ] effective methods for parents of ASD kids to

manage stress

If you are going with Valtrex next, you may wish to chime into the MB12valtrex

group. The group was founded by Stan Kurtz whose son was cured by

valtrex. There is so much that is not known about why and how valtrex helps ASD

kids.

All the best.

JLJukoski@... wrote:

Thanks, !

My son has made huge gains with chelation - no regression at all. We did

HBOT last August (40 dives 1.5 ATA). During HBOT, he began having seizures

for

the first time in his life. His regression is mostly all related to the

seizures. At this point, he can no longer chelate, as chelation brings

seizures

for him. Prior to HBOT, he completed almost 70 rounds of Andy's DMPS/ALA

protocol and was doing very well. We think that the seizures are viral in

origin and that HBOT brought about a manifestation of viral issues. Prior to

HBOT, he had no elevated Herpes level. Post HBOT, his Herpes 6 is 8 times

the

reference range. We are getting ready to do Valtex.

In a message dated 5/30/2006 4:41:33 P.M. Central Daylight Time,

writes:

What do you mean by extended periods of regression and aggression? We have

been doing chelation for several months now and biomed for 4+ years now and

haven't had that issue. After each chelation round we always see new words,

understanding of language, expressive gains...not any regression. Only time

we had issue with that was when his round was stopped unexpectedly and we had

big redistribution. He didn't fully come out of that until we did a proper

chelation round the following weekend.

[Guest guest]

To me, cured and recovered mean the same things. I do note the miraculous

improvement but recovered, to me, means no trace of the illness remains.

Maybe I am being too black and white, but if you recover from cancer, you don't

have just a little cancer. It is hard to tell recovery sometimes, because you

don't know the child's capabilities if they had not been poisoned with mercury,

however, again, pretty clear to me if there are pretty serious residual

speech/language issues like saying sentences backwards or word retrieval

problems, that, IMHO, is not likely to be a recovery or a cure.

Just my opinion,

Re: [ ] effective methods for parents of ASD kids to

manage stress

If you are going with Valtrex next, you may wish to chime into the

MB12valtrex group. The group was founded by Stan Kurtz whose son was

cured by valtrex. There is so much that is not known about why and how valtrex

helps ASD kids.

All the best.

JLJukoski@... wrote:

Thanks, !

My son has made huge gains with chelation - no regression at all. We did

HBOT last August (40 dives 1.5 ATA). During HBOT, he began having seizures

for

the first time in his life. His regression is mostly all related to the

seizures. At this point, he can no longer chelate, as chelation brings

seizures

for him. Prior to HBOT, he completed almost 70 rounds of Andy's DMPS/ALA

protocol and was doing very well. We think that the seizures are viral in

origin and that HBOT brought about a manifestation of viral issues. Prior

to

HBOT, he had no elevated Herpes level. Post HBOT, his Herpes 6 is 8 times

the

reference range. We are getting ready to do Valtex.

In a message dated 5/30/2006 4:41:33 P.M. Central Daylight Time,

writes:

What do you mean by extended periods of regression and aggression? We have

been doing chelation for several months now and biomed for 4+ years now and

haven't had that issue. After each chelation round we always see new

words,

understanding of language, expressive gains...not any regression. Only

time

we had issue with that was when his round was stopped unexpectedly and we

had

big redistribution. He didn't fully come out of that until we did a proper

chelation round the following weekend.

[Guest guest]

>

> Maybe would be helpful to define " cured " also. Have heard it

reported by these parents that the kids still have to stay on a

diet.

>

> Also, beginning to hear there are still cognitive deficits in the

kids they are calling cured with Valtrex, e.g word retrieval

problems, saying sentences backward, etc.

>

> Everyone will have to judge for themselves, but those two facts

make me not use the word " cure " , especially the cognitive stuff.

Makes me strongly suspect there is still mercury in the brain.

>

> Always grateful for any improvement of any kid, but wondering if

the word cure can be used here as it is pretty debilatating to not

have almost total command of your speech.

>

>

hi chiming in here, we are currently on valtrex week 5 and our

history with chelation,diet,vitts and supps brought my son to mostly

recovered but lacking in some of the scholastic acheivements as he

has moved from grade to grade. he still continues the diet and

speech therapy for 6 years now despite full chelation so that

happens too not only with valtrex. so regardless of the treatment

path the defecits in brain development through the lost years, still

need some help. i am awaiting a report from school on his recent

over all impression and scholastic abilities changing for the good

or bad as through out the year met all his ipp goals and is only a

grade behind in reading spelling and math. on valtrex we are seeing

a decrease in seizure episodes so it really is a help in that area

for those viral loaded. we will be doing a metals test to see if any

residuals that chelation may have missed are being removed.

functionally he is improving on his higher thinking skills and his

fine motor weakness is improving. this may or may not be the path

that leads us to full recovery we will see but i suspect some of the

kids on the valtrex therapy now may notice the same thing i have as

years go by there is still work to be done albeit in a much

different way and more specific to academics. i used to call my son

cured too as i dint realize there was other lingo to use plus at

certain ages he was functioning as nt children do (though still

struggling with apraxia for a time) and as things got harder and

more complex in school and social rules/unwritten rules, the

deficits were again noticable. agree with you, happy to see kids

improve but a full cure IMO some may not like to hear it, is not

possible, i beleive there will always be things probably small and

maybe insignificant to over all functioning that these kids find

difficult but hey who doesnt especially in this day and age!!!!

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