Viral protocol update: very long

May 30, 2006

Dear listmates,

Here is some information on where we stand in terms of viruses for

my son.

My son clearly regressed at the age of 21 months after thimerosal

containing flu vaccinations, given while he was on antibiotics, but

in retrospect I can look back and see that he changed after his MMR

which he received very shortly after a severe bout of chicken pox.

These changes were slight. Not noticeable to us at the time, but he

found it harder to be around people and he started some repetitive

activity like opening and closing cupboard doors. I didn¡¦t notice

anything amiss at the time because he was still talking like mad,

affectionate and joyful with his family. During his regression

after the flu vaxs, he stopped talking, started self-injuring,

stopped playing, stopped showing affection, etc.

We have done two viral protocols. One I stopped after only a couple

weeks because his response frightened me. He was lethargic,

feverish, vomiting. For this one, we had worked up to only 9

Virastop a day, Sambucol, and a very small amount of OLE

I want to talk about the second viral protocol: what we did, what we

saw, the results.

My son is three. He weighs 34 pounds. He is moderately autistic.

Before starting the second VP I had my son on Sambucol, colostrum,

astragalus and Echinacea rotated, IP6, and the other more usual

assortment of immune boosters our kids tend to get daily (zinc, Vit

C, etc). My idea was that a strengthened immune system would be a

better starting point for a viral protocol.

We started very slowly on March 15, with just one Virastop a day and

a couple of Lauricidin pellets. Over time, until our last day of

the protocol on May 26, we worked up to 45 Virastop a day, 3 scoops

of Lauricidin pellets, and a high of 750 mg of OLE a day. The OLE

had to be stopped during the viral protocol as it constipated my

son, but I did use it for 3 days in the final kick of the protocol.

Because we started slowly the reactions we saw at the beginning were

quite minimal. Very small rashes that would last for 12 hours,

sometimes as small as one or two spots on the cheek. A bit more

fatigue. More yeast (a yeast protocol being a very important aspect

of the process). When we started getting to higher doses, we

started seeing bigger reactions. This was difficult as these

reactions were obviously causing my son pain. He would have sores

on his lips that didn¡¦t look like cold sores, but sort of close,

that would come and go. He developed larger rashes, generally on

his neck, that at times obviously pained or itched him (he is

nonverbal and cannot explain anything to us). He would want to

watch TV for great lengths of time, obviously feeling badly. As I

said, we did have constipation from the OLE, but one time

constipation while not using OLE. When this episode of constipation

ended with an enema-induced BM, vomiting, and then copious amounts

of the foulest smelling poop you can imagine, he seemed to be

through the worst. We raised the number of VS after that to 45,

gave 750 mg of OLE for three days, but there was no effect other

than his very sore looking lips. His poops since that time have

been normal. The kind you talk about in wonderment to other ASD

moms. They only take him a normal amount of time, rather than hours

of off and on pushing.

The way we stopped is not what ¡¦s studies seemed to show was

best. We stopped the VS cold turkey. Quite frankly, I found the

idea of maintaining my son at 45 VS a day for three weeks to be too

daunting. This was only five days ago¡Xif we do experience any

regressions that I think may be a result of our decision, I¡¦ll be

sure to post them here. We continue to give my son the sambucol,

the immune boosters, and 2 scoops of lauricidin each day. I¡¦m not

sure if we¡¦ve kicked out all the viruses, but our outcomes make me

believe that something has been dealt with to some level. There is

no apparent yeast problems using these smaller amounts of

antivirals, and I¡¦m not sure they are doing anything, but they are

easy to dose and seem to be a worthwhile effort.

These have been the outcomes of our protocol:

He no longer has trouble breathing through his nose. For a long

time it was as if we lived with Darth Vader. I think this was a

very long term sinus infection. About 4 weeks into the protocol his

nose shrunk to its normal size and he was able to breathe clearly.

That healthy state has remained. Virastop can work on both viruses

and bacteria¡XI¡¦m not sure the nature of his sinus infection, but it

has clearly been dealt with.

He started swimming again, although he will still not take baths (or

enter the bathroom for that matter). He also started gesturing he

wants to go outside. This is a completely new thing. Before, it

was very difficult to get him to leave the house. Now he stands in

front of the door often and will play outside at a park for 90

minutes at a time, easily. This newfound energy is remarkable to

us. He has also stopped being obsessive about swinging. He still

loves swinging, but will not scream if you take him out of the swing

before 60-80 minutes has passed. Now he will swing joyfully for 10

minutes and then spend the rest of the time climbing, sliding, etc.

He once played chase with a little girl at the park and clearly

loved the experience. He will play chase with us and try hiding in

different places with obvious anticipation on his face when we find

him.

He became affectionate with his father. Prior to the viral

protocol, his father was an adult he tolerated but didn¡¦t show any

affection for. Now he will snuggle with his dad, rub his buzz cut,

leave the house happily with him, even play games. This has been a

wonderful thing for all of us.

He has initiated games. The other day he started a game which

involved biting his dad¡¦s finger. This has never happened before.

His receptive language has improved. He now seems to understand

things that meant nothing to him before.

He has started to eat. My son was severely self-limited in his diet

and he ate very little total. Enzymes allowed us to leave GFCF but

didn¡¦t improve his appetite very much or encourage him to eat

anything other than his 9 or 10 acceptable foods. About 7 weeks

into the protocol, he grabbed a half a bun that had been left on the

table and clearly wanted to eat it. We¡¦ve not looked back since

then. Now he¡¦ll eat almost anything you put in front of him and he

searches out food. He has never searched out food, even when he was

hungry. Just a few days ago, he actually grabbed a cookie I had

just baked from the counter and shoved the whole thing in his

mouth. Now he¡¦ll eat meat. He¡¦ll look at what you¡¦re eating and

ask gesture for some. He has learned to bite, whereas before you

had to break all of his food into pieces or risk him shoving the

entire thing whole into his mouth. Mealtimes are now consistently

lovely ƒº

Sorry for the too-long post, but I know people have lots of

questions about viral protocols.

Anita

May 30, 2006

This is great, Anita, so glad there were improvements.

[ ] Viral protocol update: very long