Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 In a message dated 5/31/2006 8:52:30 AM Pacific Standard Time, Ladyshrink111@... writes: No diet or can eat anything No vitamins necessary Totally on target, age appropriate behavior allowing for individual differences In my opinion.......recovery doesn't mean that they don't need the diet because many have gluten intolerance or celiac disease which means they'll need to be on the diet for life. And the vitamins.....well don't we all need vitamins, unless you eat a perfectly balanced diet, everyone on this earth needs vitamins. But recover to me means that the child would be indistinguishable from his/her peers. On target with all behaviors and academics. Using age appropriate social skills. No one would ever know that your child " had " autism. OH and the child no longer needs any services/therapy. That's just my 2 cents, sorry to disagree, but this is what we're shooting for. Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 I have heard lots use the term " recovered " or " cured " . Are we saying that these folks have fooled themselves? If a person has an autistic-like problem which seems to remain like daydreaming or going into their own world once in a while does that mean they are still autistic. If that were the case, I and many others would be autistic. Bottom line -- if the person is functioning in mainstream society, communicates, socializes but has a few quirks here and there he/she is NT. If they are not considered NT, then I can point to autistic-like behavior in just about anyone I know if I study them long enough. If others have recovered, then so can your kid. Individual habits can be controlled and broken. I used to walk on my toes until I was 13. Kids started making fun out of me -- they called it a " bunny walk " . Within a few weeks I broke the habit. jamiegolf99 <jamiegolf99@...> wrote: > > Maybe would be helpful to define " cured " also. Have heard it reported by these parents that the kids still have to stay on a diet. > > Also, beginning to hear there are still cognitive deficits in the kids they are calling cured with Valtrex, e.g word retrieval problems, saying sentences backward, etc. > > Everyone will have to judge for themselves, but those two facts make me not use the word " cure " , especially the cognitive stuff. Makes me strongly suspect there is still mercury in the brain. > > Always grateful for any improvement of any kid, but wondering if the word cure can be used here as it is pretty debilatating to not have almost total command of your speech. > > hi chiming in here, we are currently on valtrex week 5 and our history with chelation,diet,vitts and supps brought my son to mostly recovered but lacking in some of the scholastic acheivements as he has moved from grade to grade. he still continues the diet and speech therapy for 6 years now despite full chelation so that happens too not only with valtrex. so regardless of the treatment path the defecits in brain development through the lost years, still need some help. i am awaiting a report from school on his recent over all impression and scholastic abilities changing for the good or bad as through out the year met all his ipp goals and is only a grade behind in reading spelling and math. on valtrex we are seeing a decrease in seizure episodes so it really is a help in that area for those viral loaded. we will be doing a metals test to see if any residuals that chelation may have missed are being removed. functionally he is improving on his higher thinking skills and his fine motor weakness is improving. this may or may not be the path that leads us to full recovery we will see but i suspect some of the kids on the valtrex therapy now may notice the same thing i have as years go by there is still work to be done albeit in a much different way and more specific to academics. i used to call my son cured too as i dint realize there was other lingo to use plus at certain ages he was functioning as nt children do (though still struggling with apraxia for a time) and as things got harder and more complex in school and social rules/unwritten rules, the deficits were again noticable. agree with you, happy to see kids improve but a full cure IMO some may not like to hear it, is not possible, i beleive there will always be things probably small and maybe insignificant to over all functioning that these kids find difficult but hey who doesnt especially in this day and age!!!! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 I guess cure/recovery is in the eye of the beholder. When I use the word recovered, I mean: No diet or can eat anything No vitamins necessary Totally on target, age appropriate behavior allowing for individual differences. We are not there yet, still on supplements and will be until chelation is done and viral issues tested. Don't know if we will ever get there, but that is my concept of " recovered " , but I frequently have high expectations of things. Again, very happy for any improvement by any child at anytime, not down playing that. Just discussion was about cured/recovered and how different people define it. Just my opinion, Re: [ ] Re: recovered / cured I have heard lots use the term " recovered " or " cured " . Are we saying that these folks have fooled themselves? If a person has an autistic-like problem which seems to remain like daydreaming or going into their own world once in a while does that mean they are still autistic. If that were the case, I and many others would be autistic. Bottom line -- if the person is functioning in mainstream society, communicates, socializes but has a few quirks here and there he/she is NT. If they are not considered NT, then I can point to autistic-like behavior in just about anyone I know if I study them long enough. If others have recovered, then so can your kid. Individual habits can be controlled and broken. I used to walk on my toes until I was 13. Kids started making fun out of me -- they called it a " bunny walk " . Within a few weeks I broke the habit. jamiegolf99 <jamiegolf99@...> wrote: > > Maybe would be helpful to define " cured " also. Have heard it reported by these parents that the kids still have to stay on a diet. > > Also, beginning to hear there are still cognitive deficits in the kids they are calling cured with Valtrex, e.g word retrieval problems, saying sentences backward, etc. > > Everyone will have to judge for themselves, but those two facts make me not use the word " cure " , especially the cognitive stuff. Makes me strongly suspect there is still mercury in the brain. > > Always grateful for any improvement of any kid, but wondering if the word cure can be used here as it is pretty debilatating to not have almost total command of your speech. > > hi chiming in here, we are currently on valtrex week 5 and our history with chelation,diet,vitts and supps brought my son to mostly recovered but lacking in some of the scholastic acheivements as he has moved from grade to grade. he still continues the diet and speech therapy for 6 years now despite full chelation so that happens too not only with valtrex. so regardless of the treatment path the defecits in brain development through the lost years, still need some help. i am awaiting a report from school on his recent over all impression and scholastic abilities changing for the good or bad as through out the year met all his ipp goals and is only a grade behind in reading spelling and math. on valtrex we are seeing a decrease in seizure episodes so it really is a help in that area for those viral loaded. we will be doing a metals test to see if any residuals that chelation may have missed are being removed. functionally he is improving on his higher thinking skills and his fine motor weakness is improving. this may or may not be the path that leads us to full recovery we will see but i suspect some of the kids on the valtrex therapy now may notice the same thing i have as years go by there is still work to be done albeit in a much different way and more specific to academics. i used to call my son cured too as i dint realize there was other lingo to use plus at certain ages he was functioning as nt children do (though still struggling with apraxia for a time) and as things got harder and more complex in school and social rules/unwritten rules, the deficits were again noticable. agree with you, happy to see kids improve but a full cure IMO some may not like to hear it, is not possible, i beleive there will always be things probably small and maybe insignificant to over all functioning that these kids find difficult but hey who doesnt especially in this day and age!!!! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 No, is fine to disagree, and is true, in the case of celiac that would be different, but that is not ASD. And no vitamins Necessary, vitamins always helpful, but no vitamins needed for cogntive functioning. Think we are saying basically the same thing, but thanks for your opinion. Re: [ ] Re: recovered / cured In a message dated 5/31/2006 8:52:30 AM Pacific Standard Time, Ladyshrink111@... writes: No diet or can eat anything No vitamins necessary Totally on target, age appropriate behavior allowing for individual differences In my opinion.......recovery doesn't mean that they don't need the diet because many have gluten intolerance or celiac disease which means they'll need to be on the diet for life. And the vitamins.....well don't we all need vitamins, unless you eat a perfectly balanced diet, everyone on this earth needs vitamins. But recover to me means that the child would be indistinguishable from his/her peers. On target with all behaviors and academics. Using age appropriate social skills. No one would ever know that your child " had " autism. OH and the child no longer needs any services/therapy. That's just my 2 cents, sorry to disagree, but this is what we're shooting for. Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 In a message dated 31/05/2006 16:58:51 GMT Daylight Time, Tamiduncan@... writes: But recover to me means that the child would be indistinguishable from his/her peers. On target with all behaviors and academics. Using age appropriate social skills. No one would ever know that your child " had " autism. OH and the child no longer needs any services/therapy. >>>Thats my definition too Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 A child completely free of treatments, interventions, therapies and medications. A reasonably sound mind able to receive and transmit appropriately using verbal communication. Re: [ ] Re: recovered / cured In a message dated 31/05/2006 16:58:51 GMT Daylight Time, Tamiduncan@... writes: But recover to me means that the child would be indistinguishable from his/her peers. On target with all behaviors and academics. Using age appropriate social skills. No one would ever know that your child " had " autism. OH and the child no longer needs any services/therapy. >>>Thats my definition too Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 personally to me when I say I am going to 'cure' my child what I am referring to is a boy who nobody would ever guess had the slightest delay in any area of his development. I have two neurotypical daughters (normal) that have no issues what so ever in their development and are the children that you think of when you say 'normal' kids. I want to look at my son and see no issues that I would like to 'tweak'. that to me is truly a cured child. but that's just me, but that is what I am going to achieve with my child...or go bankrupt trying! phil Re: [ ] Re: recovered / cured In a message dated 31/05/2006 16:58:51 GMT Daylight Time, Tamiduncan@... writes: But recover to me means that the child would be indistinguishable from his/her peers. On target with all behaviors and academics. Using age appropriate social skills. No one would ever know that your child " had " autism. OH and the child no longer needs any services/therapy. >>>Thats my definition too Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Dana, Based on things I have read from a huge number of parents -- if a child is biomedically recovered but not on target -- he can and will catch up with enough work (ABA etc.). danasview <danasview@...> wrote: > I guess cure/recovery is in the eye of the beholder. When I use the word recovered, I mean: > > No diet or can eat anything > No vitamins necessary > Totally on target, age appropriate behavior > allowing for individual differences. This sounds good. But then there is my son, who qualifies under your first two but not under your third. I have removed all supplements and for the last five days he has done WONDERFULLY. I plan to throw in small doses of various supplements every few days or so, just because I am paranoid LOL However, he is still significantly delayed in language. He speaks and acts like a much younger child. So basically, I guess he is biomedically recovered, but not developmentally recovered. Not sure whether I would prefer it this way, or if I would prefer that he be developmentally recovered but not biomedically recovered. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 This is interesting - I am working with a nutritionist who swears that learning that our son needs a GFCF diet is one of the best things that ever happened for our family. She says G and C aren't particularly good for anyone. Since we implemented the diet as a family, I have seen that I have reactions when I 'cheat'. And, I don't feel good if I don't take my vitamins. So, under the following definition, *I* am not recovered. danasview <danasview@...> wrote: > I guess cure/recovery is in the eye of the beholder. When I use the word recovered, I mean: > > No diet or can eat anything > No vitamins necessary > Totally on target, age appropriate behavior > allowing for individual differences. This sounds good. But then there is my son, who qualifies under your first two but not under your third. I have removed all supplements and for the last five days he has done WONDERFULLY. I plan to throw in small doses of various supplements every few days or so, just because I am paranoid LOL However, he is still significantly delayed in language. He speaks and acts like a much younger child. So basically, I guess he is biomedically recovered, but not developmentally recovered. Not sure whether I would prefer it this way, or if I would prefer that he be developmentally recovered but not biomedically recovered. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Well, not if you had ASD to begin with, then, no. There are lots of people who think milk is poison, go to www.rawmilk.com Milk is one of nature's best foods, next to eggs, it has the highest biological value of protein. I have talked to mothers who took their children off milk to find that their child now developed their first yeast infection, ever, intractable, after that. Milk is a source of methionine, needed for detoxification, as well as lactoferrin which keeps yeast and other infections at bay, and a great source of protein, as well as tryptophan, necessary for good nerves. Now, some kids do lack the appropriate enzymatic processes to digest milk, and shouldn't have it. But chelation is supposed to help recover those enzymatic reactions. Re: [ ] Re: recovered / cured This is interesting - I am working with a nutritionist who swears that learning that our son needs a GFCF diet is one of the best things that ever happened for our family. She says G and C aren't particularly good for anyone. Since we implemented the diet as a family, I have seen that I have reactions when I 'cheat'. And, I don't feel good if I don't take my vitamins. So, under the following definition, *I* am not recovered. danasview <danasview@...> wrote: > I guess cure/recovery is in the eye of the beholder. When I use the word recovered, I mean: > > No diet or can eat anything > No vitamins necessary > Totally on target, age appropriate behavior > allowing for individual differences. This sounds good. But then there is my son, who qualifies under your first two but not under your third. I have removed all supplements and for the last five days he has done WONDERFULLY. I plan to throw in small doses of various supplements every few days or so, just because I am paranoid LOL However, he is still significantly delayed in language. He speaks and acts like a much younger child. So basically, I guess he is biomedically recovered, but not developmentally recovered. Not sure whether I would prefer it this way, or if I would prefer that he be developmentally recovered but not biomedically recovered. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Would depend on your goal and your situation. Ours, for better of worse, is going to school, so on target cognitive and social behavior is of the utmost importance, wouldn't send her if we didn't have it. If we were homeschooling, I would agree that biomedical recovery would be the most desirable, as you would have lots of time to wait for the developmental recovery. So, again, situation and event specific. But, of course, noone gets to choose. [ ] Re: recovered / cured >> > However, he is still significantly delayed in language. He speaks and > acts like a much younger child. > > So basically, I guess he is biomedically recovered, but not > developmentally recovered. Not sure whether I would prefer it this > way, or if I would prefer that he be developmentally recovered but not > biomedically recovered. > > Dana If I were choosing, I'd choose what you have. Kids who are developmentally behind, but no longer suffer from the physical problems that impaired their development in the first place just need time and some extra attention to make up those deficits. In fact, I can't think of a single person I know and admire who didn't have some sort of developmental delays: they just weren't as enormous as those our children must and will overcome. But kids who are still not biomedically recovered need a lot more, as you know. And, if a child is not completely biomedically recovered, there is a chance that development could stall or regress again, given the right circumstances. So, Dana, what are you going to do with all that money you used to spend on supplements? Come visit Alberta??? We welcome the paranoid ;-) Anita > ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Amen to that! Again, don't know which I would pick, but we have what we have, and I know just how lucky we are. lanellici wrote: But when the day comes that I don't have to think about diets and supps will be a happy happy day. I'm looking forward to the idea of an AutismOne in years to come where we come to celebrate! Nell ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 Dana, I wasn't trying to " lecture " you but encourage as you have done for me and others. Sorry if I appeared to be lecturing. danasview <danasview@...> wrote: > Dana, > Based on things I have read from a huge number of parents -- if a child is biomedically recovered but not on target -- he can and will catch up with enough work (ABA etc.). Well, my son is well beyond ABA [i don't need lectures on this subject, thanks]. I had him doing a pre-K program this past school year, and he did very well [i homeschool]. He tests at K.0-1.5 on Woodcock , so he is ready for a K program next year. The problem is that he is 10 already, so altho I will try to accelerate him into a first grade program before the end of the year, I don't know if I have enough time left. But I still have hope! =) Thanks for the encouragement. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
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