nothing working

[Guest guest]

Nothing is working for our son. Please help us. We have tried so

many things...ABA, chelation, b-12 shots, supplements, the diet,

speech therapy, OT, etc. Why is nothing helping? He just keeps

regressing. I feel so desperate right now. And his father says

nothing but negative things about how he'll never get better. I just

want to scream!

[Guest guest]

>

> Nothing is working for our son. Please help us. We have tried so

> many things...ABA, chelation, b-12 shots, supplements, the diet,

> speech therapy, OT, etc. Why is nothing helping? He just keeps

> regressing. I feel so desperate right now. And his father says

> nothing but negative things about how he'll never get better. I just

> want to scream!

Sounds like you are at the end of your rope. I wish I had

the perfect answer for you.

As far as chelation, did you confirm toxicity with a hair test

(and is it posted)? What chelator(s), what dose, what frequency

did you use?

How did he react to chelation - on rounds and at the end of

rounds?

Are you avoiding things like chlorella, NDF, Metal-Free, and other

non-chelating substances that can cause problems?

Have you addressed sulfur status (low or high sulfur diet/supps)?

You do not mention anti-virals in the list of things you

have tried. What about gut support, such as enzymes, yeast

protocol?

--

[Guest guest]

Oral and transdermal chelation didn't work for my son.

Though I would recommend trying them first. But here are the results from the

most recent chelation attempts.

Unprovoked - means no chelator used

EDTA suppository... , and the combo on the end is DMPS and EDTA IV the same

visit. My kid is almost 10 years and weighs 56 pounds. here are the results.

__________ref_____________EDTA..DMPS..EDTA

Metals.........range.....Unprov.... supp.....IV........IV.... Combo

Aluminium..< 60_____35_____<dl____<dl____22___69

antimony.....<1.5____0.4_____0.2____0.8____0.8___3.1

arsenic........<130___19______11_____45____14___48

beryllium....<0.6____<dl_____<dl____<dl____<dl___<dl

bismuth.......<20____<dl_____<dl____<dl____<dl___<dl

cadmium.....<2_____1.3______1_____0.5___0.6___0.7

lead.............<5_____1.4_____6.3____7.9___8.8___ 27

mercury......<5_____4.3______0.9____1.4___<dl___2.3

nickel..........<15____7______4.5_____5.9___9.5___12

platinum.....<1_____<dl_____<dl____<dl___<dl___<dl

thallium......<1.1____0.5_____0.3____<dl___<dl___0.2

thorium......<0.5___<dl_____<dl_____<dl___<dl___<dl

tin...............<15____1.2____0.6_____26___0.6___ 17

tungsten......<1.5___2.5____1.6_____0.4___0.4___5.1

uranium......<0.2___0.05____<dl_____0.2___<dl___<dl

Now he had 9 secretin infusions this year before we started the IV chelations,

don't know if that helped or not.

Good Luck

winnchimes

P.S. I've posted this chart on several other replies I've made to other

questions. Sorry, I'm just so excited to see so much coming out finally.

---------------------------------

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Groups.

[Guest guest]

Can you post a detailed list of your supplements and biomed

protocols, current or previous? Every vitamin, mineral, amino acid,

enzyme, etc., with form and amount and when given? We can't give a

lot of help without specific information.

Sorry about your struggles, I know you've been really trying hard.

take care

René

>

> Nothing is working for our son. Please help us. We have tried so

> many things...ABA, chelation, b-12 shots, supplements, the diet,

> speech therapy, OT, etc. Why is nothing helping? He just keeps

> regressing. I feel so desperate right now. And his father says

> nothing but negative things about how he'll never get better. I

just

> want to scream!

>

[Guest guest]

I agree with the writer who said that maybe you need a supplement

break. Dana has often said that her children would regress when they

no longer needed a particular supplement. You could then slowly

reintroduce what you feel is absolutely vital. I also know that

there are supplements which my daughter doesn't tolerate. For

example, synthetic Vitamin C is often derived from corn.

Here's a link to a document called Mastering Autism.

Williss/files/

It's located in the FILES section of another Group. It's a

wonderful resource which discusses just about every aspect of

supplements, etc. in treating autism. I printed a copy and made

notes in the margins and highlighted it. I also keep it on my

computer to use the word find function. It's quite lenghty. If you

are like me, you'll have several instances where you'll say, that's

my child. There are many ideas you could employ.

In the mean time, have a heart to heart with your husband. Show him

examples of how other children have recovered. Dana's site,

Generation Rescue, etc. My daughter has come so far, that my

husband is a true believer. We've gone done several paths which were

horrific and absolutely wrong. I offered him a weekend away from me

and the kids about a month ago. I was shocked when he said that

he'd rather stay home so that we could do a round of chelation.

Renew your resolve because this task was appointed to you. If you

don't find a way, no one else will.

>

> Nothing is working for our son. Please help us. We have tried so

> many things...ABA, chelation, b-12 shots, supplements, the diet,

> speech therapy, OT, etc. Why is nothing helping? He just keeps

> regressing. I feel so desperate right now. And his father says

> nothing but negative things about how he'll never get better. I

just

> want to scream!

>

[Guest guest]

What did the hair elements test show? What chelator, dose and dosing schedule

did you use?

S S

<p>Nothing is working for our son. Please help us. We have tried

so <br>

many things...ABA, chelation, b-12 shots, supplements, the diet, <br>

speech therapy, OT, etc. Why is nothing helping? He just keeps <br>

regressing. I feel so desperate right now. And his father says <br>

nothing but negative things about how he'll never get better. I just <br>

want to scream!<br>

<br>

</p>

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[Guest guest]

Yes, I agree about the supplement break. One of my kid's biggest problems is

sleep. Last week I didn't give him any supplements that day just because we were

so busy. He slept like a baby that night! So I took a cue from that and have

slowly re-introduced supplements one a day at normal doses. This has helped a

lot! There is obviously something I was giving him too much of, or he doesn't

need anymore. If I remember, Dana's kid's are only on one or two supplements

each.

winnchimes

orelindel <whatmattersmost@...> wrote:

I agree with the writer who said that maybe you need a supplement

break. Dana has often said that her children would regress when they

no longer needed a particular supplement. You could then slowly

reintroduce what you feel is absolutely vital. I also know that

there are supplements which my daughter doesn't tolerate. For

example, synthetic Vitamin C is often derived from corn.

Here's a link to a document called Mastering Autism.

Williss/files/

It's located in the FILES section of another Group. It's a

wonderful resource which discusses just about every aspect of

supplements, etc. in treating autism. I printed a copy and made

notes in the margins and highlighted it. I also keep it on my

computer to use the word find function. It's quite lenghty. If you

are like me, you'll have several instances where you'll say, that's

my child. There are many ideas you could employ.

In the mean time, have a heart to heart with your husband. Show him

examples of how other children have recovered. Dana's site,

Generation Rescue, etc. My daughter has come so far, that my

husband is a true believer. We've gone done several paths which were

horrific and absolutely wrong. I offered him a weekend away from me

and the kids about a month ago. I was shocked when he said that

he'd rather stay home so that we could do a round of chelation.

Renew your resolve because this task was appointed to you. If you

don't find a way, no one else will.

>

> Nothing is working for our son. Please help us. We have tried so

> many things...ABA, chelation, b-12 shots, supplements, the diet,

> speech therapy, OT, etc. Why is nothing helping? He just keeps

> regressing. I feel so desperate right now. And his father says

> nothing but negative things about how he'll never get better. I

just

> want to scream!

>

---------------------------------

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[Guest guest]

have faith in the almighty and firm in your endeavour in getting back

your child.i think one must start the biomedical intervention after

having done blood work for child like metabolic disorders,serum

ammonia,creatinine deficiency,lactate etc. serum ammonia is one

biological marker that reveals many disorders,especially in children.

may god bless you

m srinu

>

> Nothing is working for our son. Please help us. We have tried so

> many things...ABA, chelation, b-12 shots, supplements, the diet,

> speech therapy, OT, etc. Why is nothing helping? He just keeps

> regressing. I feel so desperate right now. And his father says

> nothing but negative things about how he'll never get better. I just

> want to scream!

>

[Guest guest]

I have found that when all else fails (I don't know what you have / have not

tried) you should test your son for high testosterone. High testosterone seems

to make other therapies like chelation and MB12 ineffective. When you test, be

sure to stop all therapies (other than vitamins) for 3 weeks. Please listen to

the Geiers:

http://www.autismmedia.org/media4.html

joshisims <joshisims@...> wrote:

Can you post a detailed list of your supplements and biomed

protocols, current or previous? Every vitamin, mineral, amino acid,

enzyme, etc., with form and amount and when given? We can't give a

lot of help without specific information.

Sorry about your struggles, I know you've been really trying hard.

take care

René

>

> Nothing is working for our son. Please help us. We have tried so

> many things...ABA, chelation, b-12 shots, supplements, the diet,

> speech therapy, OT, etc. Why is nothing helping? He just keeps

> regressing. I feel so desperate right now. And his father says

> nothing but negative things about how he'll never get better. I

just

> want to scream!

>

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[Guest guest]

You may want to look at Amy Yasko's work.

Pamela

" Courage is doing what you're afraid to do. There can be no courage unless

you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

_____

From: [mailto: ]

On Behalf Of dannenedrummond

Sent: Tuesday, August 01, 2006 8:40 PM

Subject: [ ] nothing working

Nothing is working for our son. Please help us. We have tried so

many things...ABA, chelation, b-12 shots, supplements, the diet,

speech therapy, OT, etc. Why is nothing helping? He just keeps

regressing. I feel so desperate right now. And his father says

nothing but negative things about how he'll never get better. I just

want to scream!

[Guest guest]

Rene:

Zach is taking Brainchild nutrients, GSE 2xs a day 2 drops, claritin

in the morning for allergies, melatonin at night (he sleeps great

from it), Omega369 by nordic naturals, TD-DMPS every other day (we

tried andy's protocol and saw zero improvements...we were seeing

slight improvements but they stopped with this protocol too). We

have tried the diet (4 months gf/cf/egg/peanuts/etc. etc.), enzymes,

b-12 injections. We have ALA, virastop and olive leaf extract in

our possession but haven't tried them. We don't have a doctor so I

guess I'm afraid to try things without knowing what is going on with

Zach.

> >

> > Nothing is working for our son. Please help us. We have tried

so

> > many things...ABA, chelation, b-12 shots, supplements, the diet,

> > speech therapy, OT, etc. Why is nothing helping? He just keeps

> > regressing. I feel so desperate right now. And his father says

> > nothing but negative things about how he'll never get better. I

> just

> > want to scream!

> >

>

[Guest guest]

thanks whatmattersmost. i stopped the chelation and have seen

absolutely no change. i may stop the other supplements too. i

really wish i could find a good doctor and get things figured out!

i just don't trust any doctors, ya know?

> >

> > Nothing is working for our son. Please help us. We have tried

so

> > many things...ABA, chelation, b-12 shots, supplements, the diet,

> > speech therapy, OT, etc. Why is nothing helping? He just keeps

> > regressing. I feel so desperate right now. And his father says

> > nothing but negative things about how he'll never get better. I

> just

> > want to scream!

> >

>

[Guest guest]

hair test a year ago showed aluminum, arsenic, antimony and tin. we

were chelating with TD-DMPS.

> <p>Nothing is working for our son. Please help us.

We have tried so <br>

> many things...ABA, chelation, b-12 shots, supplements, the diet,

<br>

> speech therapy, OT, etc. Why is nothing helping? He just keeps

<br>

> regressing. I feel so desperate right now. And his father says

<br>

> nothing but negative things about how he'll never get better. I

just <br>

> want to scream!<br>

> <br>

> </p>

> </div>

>

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[Guest guest]

I think you are right mamanduru. I hven't had my son tested for any

of those. I need to find a doctor in Michigan (where I just moved

to) and have my son tested for those things.

> >

> > Nothing is working for our son. Please help us. We have tried

so

> > many things...ABA, chelation, b-12 shots, supplements, the diet,

> > speech therapy, OT, etc. Why is nothing helping? He just keeps

> > regressing. I feel so desperate right now. And his father says

> > nothing but negative things about how he'll never get better. I

just

> > want to scream!

> >

>

[Guest guest]

abid...i have always wanted to have that tested...something makes me

think that may be true.

> >

> > Nothing is working for our son. Please help us. We have tried so

> > many things...ABA, chelation, b-12 shots, supplements, the diet,

> > speech therapy, OT, etc. Why is nothing helping? He just keeps

> > regressing. I feel so desperate right now. And his father says

> > nothing but negative things about how he'll never get better. I

> just

> > want to scream!

> >

>

>

>

>

>

>

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>

[Guest guest]

Have you identified and reduced/removed sources of all of those? Did you apply

counting rules? What did that reveal? ALA chelates arsenic, some say that

apple pectin/malic acid help get rid of aluminum, some say SAMe or a home-made

version of something similar helps get rid of antimony, tin generally goes down

as other toxic metals are decreased.

S S

<p>hair test a year ago showed aluminum, arsenic, antimony and tin.

we <br>

were chelating with TD-DMPS.<br>

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[Guest guest]

I second this. Testosterone levels in my 3 year old were through the roof.

He had 17 when he was supposed to have 2-5 - for a 33lb 3 year old as per

the statistical sample average from labcorp.

After going on Lupron - geier protocol - they shot up before comming down.

Went to 91 and then to 34, then hit 20's and then dropped back to the teens

and then finally to under detection limit. 3 months of spike. Adult males

who get on Lupron experience a 2-3 week spike. It just shows you how much he

had stored up. BTW this kid had already showed response to NDF, B12, school

and several other treatments. He also didn't have gut issues nor does he

have any detectable Gluten/casein behavior changes. AKA GFCF did nothing.

Testosterone definetly intervenes with chelation and definetly gets in the

way of excreting metals. It also makes them scatter brained and agressive.

In any case The very first protocol we tried was Dr Geier's and he is

turning out to be a textbook case. So I dont have any thing else to compare

it to.

Cool.

Srinath.

>From: " dannenedrummond " <dannenedrummond@...>

>Reply-

>

>Subject: [ ] Re: nothing working

>Date: Fri, 04 Aug 2006 02:22:24 -0000

>

>abid...i have always wanted to have that tested...something makes me

>think that may be true.

>

>

> > >

> > > Nothing is working for our son. Please help us. We have tried so

> > > many things...ABA, chelation, b-12 shots, supplements, the diet,

> > > speech therapy, OT, etc. Why is nothing helping? He just keeps

> > > regressing. I feel so desperate right now. And his father says

> > > nothing but negative things about how he'll never get better. I

> > just

> > > want to scream!

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Messenger with Voice. Make PC-to-Phone Calls to the US (and

>30+ countries) for 2¢/min or less.

> >

> >

[Guest guest]

>

> Nothing is working for our son. Please help us. We have tried so

> many things...ABA, chelation, b-12 shots, supplements, the diet,

> speech therapy, OT, etc. Why is nothing helping? He just keeps

> regressing. I feel so desperate right now. And his father says

> nothing but negative things about how he'll never get better. I just

> want to scream!

It is very frustrating, I can relate.

Have you tried anti-virals? That was very successful at eliminating

quite a few of my son's issues.

You might try removing everything for a while. Once my son no longer

needed a supplement, continuing to give it to him would cause the same

issues that at one time it eliminated.

What are his issues that you want to address?

Dana

[Guest guest]

Dana:

His issues are he is very hyper, has no attention span, has severe

apraxia, taps things all day long, stims with his eyes a lot. The

tapping thing is the worst! Oh, and I can't tell if he is being

aggressive with his sister (20months) or not. He goes up to her all

the time and throws himself into her lap laughing hysterically. She

cries and he chases her around to push into her or fall into her lap

again. She is very afraid of him and throws punches when he is

near

On a positive note, he is always happy, has perfect poops and was

potty trained at 3, has great eye contact, attempts to imitate

everything you ask him to (you just can't understand it from the

apraxia), and has really good receptive language

> >

> > Nothing is working for our son. Please help us. We have tried

so

> > many things...ABA, chelation, b-12 shots, supplements, the diet,

> > speech therapy, OT, etc. Why is nothing helping? He just keeps

> > regressing. I feel so desperate right now. And his father says

> > nothing but negative things about how he'll never get better. I

just

> > want to scream!

>

>

> It is very frustrating, I can relate.

>

> Have you tried anti-virals? That was very successful at

eliminating

> quite a few of my son's issues.

>

> You might try removing everything for a while. Once my son no

longer

> needed a supplement, continuing to give it to him would cause the

same

> issues that at one time it eliminated.

>

> What are his issues that you want to address?

>

> Dana

>

[Guest guest]

: we don't have a doctor and haven't been able to test him to

see if any of the metals have come out. we never identified sources

for them but we recently moved so maybe the sources are gone. I

eliminated any sources I could think of. I am thinking of trying

ALA but want to find a transdermal form because I won't be able to

force my son to drink in the middle of the night.

> <p>hair test a year ago showed aluminum, arsenic,

antimony and tin. we <br>

> were chelating with TD-DMPS.<br>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

[Guest guest]

www.danasview.net/metals

has a comprehensive list of sources of exposure.

S S

<p>: we don't have a doctor and haven't been able to test him

to <br>

see if any of the metals have come out. we never identified sources <br>

for them but we recently moved so maybe the sources are gone. I <br>

eliminated any sources I could think of. I am thinking of trying <br>

ALA but want to find a transdermal form because I won't be able to <br>

force my son to drink in the middle of the night.<br>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

>

> Dana:

> His issues are he is very hyper, has no attention span, has severe

> apraxia, taps things all day long, stims with his eyes a lot.

I wrote on this page, what my son needed to eliminate visual stims

http://www.danasview.net/issues.htm

Hyper can be several things, like phenol intolerance, yeast

overgrowth, certain nutritional deficiencies, certain nutritional

toxicities, and virus issues.

For my kids, attention was mostly helped with anti-virals.

I have read CLO helps with apraxia.

Tapping things all day long might be OCD, which for my son was virus

related.

Dana

[Guest guest]

>

> Dana:

> His issues are he is very hyper, has no attention span, has severe

> apraxia, taps things all day long, stims with his eyes a lot.

I'm way behind on the list...but those symptoms make me think of

viruses and oils. Have you done any antivirals? And I'm no oil expert

but that's a direction I'd look into. CLO, for starters, and Nordic

Naturals ProEFA was helpful here (and tolerated).

Nell