Re: and again

May 28, 2006

Even at 60 lbs. last summer he was taking 2 capsules every 8 hrs.

That's 200 mg. No pharmacist has even said anything to me. Do you

think this is why his white blood cell count drops too low to chelate

right after the first 3 rounds? He has to do a blood test every 3

rounds. And, inbetween he has to do DDI stool samples. Last summer

when he chelated they sent urine test kits instead of stool test kits

and even with that it showed lots of lead coming out. So really I

could use one capsule 3 times and only 3 capsules per round? Every 4

hours would be easier and less capsules would be too.

He will eat yellow apples. I won't let him have the red apples

because of the phenols.

Bananas, but they seem to make him constipated and he already has

those issues.

Pears for my mom. I don't buy them because he usually doesn't eat

them for me.

Great Value brand potato chips

Mc's Fries and s and Sonic

's and Sonic chicken strips and nuggets

Banquet brand chicken strips and nuggets

turkey

fried okra and sometimes other fried foods. If it wasn't fried he

wouldn't even try it.

sometimes pretzels

Little Debbie Fancy Cakes - we cheat there with the dairy

At school they have been giving him Teddy Grahams

bread

Waffles

He will only drink water. It is well water and has been tested twice

in 6 years.

He is very resistant to foods that have any color.

When he was totally GFCF he would hunt for the bread. A few times

like now when I was on the computer and I thought it got a little too

quiet I would find that he had devoured a loaf of bread.

It never truely showed up on the Great Plains tests and other tests

that he really had a problem with gluten, but his behavior used to

really change if he accidentally ate gluten. So, I kept him off of

it.

In March he did a Genetics Celiac's test. One way would 100% prove

he didn't have Celiac's disease. The other way would be uncertain

and require scoping for a definant answer.

April

-- In , " Shepard Salzer "

<_Shepard@...> wrote:

>

> April,

> That's way too high a dose of DMSA even for an adult. Does it make

sense to do something you don't have to pay for that will probably

make things worse? As someone else mentioned you can cut way back on

the dose and dose every three hours (ALA's half life is 3 hours,

DMSA's in 4 hours, easier to dose both together. You need not tell

the doc until he notices the improvements. Andy Cutler recommends

1/8-1/2 mg per lb, so the highest your son should be taking is 33 mg

every 3 hours. By dosing every 8 hours you run a high risk of

redistributing the toxins into the brain rather than chelating them

out of the body.

>

> What are the foods he'll actually eat?

> S S

>

> weighs 65 lbs.

> Oral DMSA and ALA

> 300mg DMSA and 50 mg. ALA every 8 hrs. 3 days on 11 days off. I

know

> everyone one this board probably uses every 4 hours but our DAN!

doctor

> won't do that.

> Diet : Has been horrible since going GFCF since 2y3m old. He is

now

> 8 1/2 years old. He was GF til 2 years ago. He would never expand

his

> diet. Even therapists helped. Once again his OT that he has had

for a

> year is going to work on food issues this summer. He is still CF.

> I am not consistant with most of the supplements. He gets

magnesium

> and pro mineral support everyday. I just started using L-

glutithione

> again. Put him back on No-Phenol. He has to take Benefiber.

> Yeast Protocal? I don't have one. When he was younger I could

tell

> yeast was a problem. Now, I am not sure.

> Approval? I go through 's DAN! doctor so I can get it paid

for

> by Medicaid. I don't pay for any of it.

> April

>

> _______________________________________________

> Join Excite! - http://www.excite.com

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>

May 28, 2006

Ditto to what said. I hope you'll consider reducing the dose and changing

the

dosing schedule.

in Illinois

May 29, 2006

You need to get empty capsules and divide the capsules you have. 1/8-1/2 mg per

lb at 60 lbs would be 7.5-30 mg per dose so consider dividing a 100 mg capsule

into 4 (25 mg) or 5 (20 mg) doses. You would dose every 3 hours if ALA and DMSA

and every 4 hours if DMSA only. That would mean dosing 8 times in a 24 hour

period with both or 6 times with DMSA only.

Were his white blood cells an issue before you began chelation?

Bananas are constipating. Have you considered digestive enzymes? HNI in

particular might prove helpful. Certainly sound like a gluten seeking diet.

The gluten intolerance that many on the spectrum have is not regular celiac.

S S