afraid to continue chelation (long)

December 5, 2006

Hi folks, looking for some advice. We did two Cutler protocol rounds

of DMSA a few weeks ago on my son with very bad results. He is 28.5

lbs, very high porphyrins, meets counting rules. We used 6.25 mg per

dose. He reacted horribly, with zero positives and TONS of negatives

which continued while off the rounds. Severe yeast despite Diflucan

plus GSE, a combo that has always worked in the past. Stopped

sleeping, started violent head banging all night long. All of his

stimmy and OCD behaviors worsened, and his gut totally fell apart. He

is a " gut kid " but we finally had it under control before starting

chelation and were getting fairly good poops for weeks. But on DMSA

he instantly imploded. Severe yeast and bacteria and constant

diarrhea again, often a lovely shade of yellow. One month after his

first round we now just barely have a handle on the yeast again, and

the bacteria is back big time so we're having to go back on

antibiotics which we'd managed to avoid these last 3 months. He

continues to wake up multiple times during the night and during his

nap, and the head banging has continued too, seems like he won't

" unlearn " it. We had to move him to a playpen.

I'm pretty devastated and quite honestly scared of doing another

round. But he is so severely autistic and so obviously toxic! We

have tried so many biomed interventions these last 6 months, even the

crazily expensive HBOT, but he is a non-responder. We just got a

bottle of Neutrophil Plus so I'm going to start that as soon as we

finish this round of antibiotics. But even if he tolerates that --

always iffy since he is highly allergic or intolerant to many foods

and supps -- I'm still distrustful now. I'm thinking gee, last time

he learned how to nearly give himself concussions all night long, what

will he learn this time?!! He is breastfed and I have 4 amalgams so

we can't risk trying ALA, and we're chelating without a doc (our doc

is *massively* against this protocol and I think would try to kill

us!!), so DMSA is our only option right now. Do we just wait and try

again when he's older and maybe his gut is a little better? Do we

wait until doc thinks he's ready and try the TD-DMSA the doc prefers?

I know there may not be any answers here, but I'm at a loss and

really need some input. Or maybe just a few shoulders to cry on, I dunno!

Sorry so long,

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