Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Personally...re: swimming ....i would hang fire and ask your consultant again! francesca's consultant has said NO swimming whilst she has a cavity!!! absolutely NO WATER whilst she has a cavity. i explained that my parents had a pool, a lake and a moat running through the grounds of their house and that it was important from a safety angle to be able to swim. he said that he appreciated what i was saying, but that whilst she had a cavity, that swimming was out of the question. she has moulded ear plugs that she uses for bathing and hairwashing, and we also use the vasaline and cotton wool plugs. i found a company in england, that made a special elastic head band that covered the ears. it was waterproof and designed for exactly this purpose. it was recommended for use with custom moulded ear plugs. i showed the article to her ENT who said...never the less....not good enough, might let water in and absolutely no swimming whilst she had a cavity (canal wall down). he went on to explain that there was a female med student whilst he was training who would never accompany them if they went swimming or did water sports. it wasnt until they started a secondment in training that she divulged that she had an open cavity...she just accepted that she couldnt go! i know what he was trying to say. having said that, i have broken the rules, by using a deep vasaline and cotton wool plug. then put in the custom moulded ear plugs and more cottonwool and vasaline over the outside of the plug. this creates a big mess, but seals the ouside of the ear. then i make her wear a tight fitting swim hat, which she hates and a lifejacket, so she cant get more than the top of her shoulders wet. this stops her head getting in the water. its not ideal, but then she's been " banned " so it's a compromise, but one that her ENT wouldnt approve of. we dont do it very often, but on very rare occasions it helps make her feel more " normal " . i think it's a fair balance. please ask again as opinions do seem to vary. reconstructive surgery changes things, so it may be just a case of waiting for a bit. but make sure you are aware of all the pros and cons before making a choice. best of luck julie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 > Hi My son (5) is due to have Canal wall up surgery in May. Our consultant says that once he has recovered from the operation he can go swimming. was taking swimming lessons but weve put them on hold for now. I understand that it is possible to swim after canal wall down surgery and our consultant has suggested that if has to have that type of surgery in the future that a custom made ear plug should do the job. Hope this helps Regards Caroline I'm wondering, if my little guy (Zach, 3) ends up with a canal wall > down procedure, or mastoidectomy or whatever, does this mean he can > never swim in his life? The doctor had so much to cover with us in > what felt like a short time, I am assuming this would be discussed > with us later. But any info will be helpful from othrs here! We > have a pool and Zach was to start his first swimming lessons this > summer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Thank you Caroline! Very encouraging to know that a plug can be fitted for a canal wall down procedure. I wasn't sure. I just hate waiting a month for his surgery. We dont know the extent of the c-toma and so have no idea exactly what kind of surgery it will be. His surgeon is going to do mastoidectomy if needed and hearing reconstruction also, if needed, on that day April 2. I just want this cholsteatoma out of him NOW. But we have to wait for special blood tests that take 3 weeks. Zach has a probable bleeding disorder which has to be considered. It is so hard to wait. I keep trying to tell myself that at least it isn't brain tumor, cancer, etc. But I can't help my feelings of anger and outrage over this. I love my little guy so much, like all parents. I have been spending time with him and hugging him more these days. Things like this make me realize how much I have been taking for granted... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Hi, Donna. I'm so sorry about Zach. It's terrible that they didn't pick up on it months ago. It's a good thing you sought a second opinion! I can sympathize with what you're going through. When we finally saw the first ENT and she diagnosed the problem, we were numb. If only we had insisted that our son see an ENT earlier, he could have possibly been spared some of the trauma. It's easy to say that things could be worse -- c-toma is not a terminal disease, like cancer. We should feel lucky, but as a parent, it's sometimes difficult to think that way. When you see what your child has to endure, it just isn't fair. You would trade places with him/her at any moment. My son wasn't even three years old when he had his first surgery. It was harder on us than it was on him. Children are truly amazing individuals (I thank God for making them this way!). During this recovery, he was bouncing off the walls. It was very hard to keep him calm. I don't think I would have handled it the same way. Think positive and rely on your son for your strength! We will be praying for you. Terri (mother of Troy, age 8) Re: Swimming? Thank you Caroline! Very encouraging to know that a plug can be fitted for a canal wall down procedure. I wasn't sure. I just hate waiting a month for his surgery. We dont know the extent of the c-toma and so have no idea exactly what kind of surgery it will be. His surgeon is going to do mastoidectomy if needed and hearing reconstruction also, if needed, on that day April 2. I just want this cholsteatoma out of him NOW. But we have to wait for special blood tests that take 3 weeks. Zach has a probable bleeding disorder which has to be considered. It is so hard to wait. I keep trying to tell myself that at least it isn't brain tumor, cancer, etc. But I can't help my feelings of anger and outrage over this. I love my little guy so much, like all parents. I have been spending time with him and hugging him more these days. Things like this make me realize how much I have been taking for granted... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 i am just curious, your doctor siad no swimming while there is an open cavity? does this mean that if you have a canal wall down that later they can rebuild it? i hadn't heard of that. i am going in for stage 2 in a few days and the doc said if there is regrowth he will have to take the wall down. would love to know that they could put it back later. thanks for your help. scot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Thank you so much ! It means so much to me to connect with others right now. Helps me accept the things which I must! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Thanks Terri! Your words mean so much to me as they did back in January. You people are wonderful! True heroes. And now me and Zach get to join your ranks! More later... Love, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 At 02:54 PM 02/23/2002 +0000, you wrote: >It is so hard to wait. I keep trying to tell myself that at least it >isn't brain tumor, cancer, etc. But I can't help my feelings of >anger and outrage over this. I love my little guy so much, like all >parents. I have been spending time with him and hugging him more >these days. Things like this make me realize how much I have been >taking for granted... I'll bet you're feeling the same things a lot of us have! Outrage is a good description. I wondered how long I had this thing and how the hell anyone (meaning trained medical professionals) could have missed it. Yeah, it might not be a brain tumor or " cancer " , but it matters just as much to all of us, in different ways! And taking things for granted...I will never, ever, ever take my hearing for granted again. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 My 7 year old son is about to undergo his first round of chelation. (EDTA - transdermal) Does anyone know if swimming in a chlorinated pool is OK before, during, or after chelation? --le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 > > My 7 year old son is about to undergo his first round of chelation. > (EDTA - transdermal) > Does anyone know if swimming in a chlorinated pool is OK before, > during, or after chelation? Watch for additional yeast overgrowth, chlorine tends to increase yeast http://www.danasview.net/chlorine.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 Thank you! That explains a lot! He has terrible yeast issues and has been taking swimming lessons for over 2 years. --le > > > > My 7 year old son is about to undergo his first round of chelation. > > (EDTA - transdermal) > > Does anyone know if swimming in a chlorinated pool is OK before, > > during, or after chelation? > > > Watch for additional yeast overgrowth, chlorine tends to increase yeast > > http://www.danasview.net/chlorine.htm > > Dana > Quote Link to comment Share on other sites More sharing options...
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