New to LDN, things are going well.

[Guest guest]

Hi to all.

I've been reading your posts for many months and researching LDN.

I was diagnosed with RRMS in Sept of 2006. I'm male, 43 years old.

Symptoms were numbness, tingling and heaviness in legs and arms,

balance issues, tripping, etc. MRI showed 4-5 lesions. My brother has

MS and is in tough shape, my mother also has MS and does ok.

I started Rebif right away and was on it for one year. During that

year I didn't feel good, no energy, etc. I also felt I was

progressively getting worse. I wanted to start LDN sooner but felt I

needed to try Rebif for a year and get an MRI and see what the

results were. I had my MRI in October and before getting the results

I started on LDN because I knew I was getting worse. My MRI results

showed that I now had 6 – 7 lesions.

I started on 3mg of LDN for 2 weeks. The first night I had to get up

and go to the bathroom and I walked in a straight line to the

bathroom without waddling or swaying back and forth. I haven't been

able to do this for years during the middle of the night or morning.

After two weeks on 3mg of LDN I went to 4.5mg. I have been on 4.5mg

now for 6 weeks. It is still real early and hard to judge my symptoms

but I can tell you this.

I now sleep through the night almost every night without having to

get up to go to the bathroom.

I have a general sense of well being that wasn't there before. (Is

this do to the LDN or just from not taking the Rebif??)

I have a lot more energy, I'm even remodeling my bathroom. A year ago

I never would have tried this.

My balance is better.

I sense my numbness and heaviness feeling is getting better.

Many times I felt really hot and had to sit in front of a fan to stay

cool. I haven't had to do this since starting the LDN – might have to

do with the Minnesota winters!

I used to go to work and come home and lay on the couch. Now I come

home and do other things.

My mind seems to be a little sharper/clearer.

When going off the Rebif and prior to starting the LDN I was having

multiple muscle twitches/shocks many times per day (I had these when

first diagnosed also). This is now at a minimum, a couple of twitches

per day, mostly at night.

Best of all, I haven't noticed/felt any progression in the last 2

months.

My brother also started LDN a few months ago, but hasn't seen any

symptom improvement.

My focus for the next year will be changing my diet to follow the

Best Bet Diet or a variation of it. I welcome any recommendations you

have on this topic.

Thanks for all the info your posts have provided. Let me know if I

can help in any way.

bmk