Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Stacey, Are you chelating your son, or are you treating for yeast/infection? If so, hives or uticaria can be from liver irritation. I think treating for yeast or other microbe is more irritating to liver than chelating but I don't know for sure. Try taking a break from one of these things and see if it clears up. The break helps the liver to catch up with it's work of cleaning up blood. If it is 'behind' in it's work, it leaves things in the blood that shouldn't be there. That can cause a number of different of symptoms in skin, generalized itching is one, hives, or other rashes. It also could be one of the supplements you are using he is allergic to. If there are any new supplements try stopping those. It also could be not one supplement but both separately could be okay but then when you combine, they cause reaction. I've had a lot of trouble with rashes and hives and eliminating something always turned out to be only thing that helped. If it is chelating or yeast treatment that he needs, maybe he just needs to go slower or different routine of some kind, or needs a longer break between chelating. It's hard to tell. You'd just have to experiment around. I wouldn't add another 'medicine' like an antihistamine. That could just make things worse and is just symptomatic relief and doesn't solve the problem that something is not agreeing with child's system. I wouldn't add another supplement either without first try to find the culprit. --- <stacyc75@...> wrote: > A few weeks ago I posted about a hives issue > we've had, and yes we > still have them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 > > Stacey, > Are you chelating your son, or are you treating > for yeast/infection? No to both. He has not had any chelation since last September, and he's never had yeast problems, never had an antibiotic in his life. Never been treated for any yeast. It also could be one of the supplements > you are using he is allergic to. If there are > any new supplements try stopping those. There are NO new supplements. NO new foods, detergents, carpet, cleaning supplies, clothes, anything in the home, we've been through all that. The hives started on June 20/21. He was taking small dosages, infrequent, of benadryl BEFORE the hives during June 18-20 for seasonal allergies, mainly just to calm down his sneezing and stuff so he could sleep better at night. (My personal opinion is that the benadryl possibly triggered this, since he had not had benadryl in at least a year, maybe year and half) He started taking a probiotic on June 26th. There are NO other supplements, vitamins or minerals being used at this time. Probiotics were started AFTER the hives. He continued the benadryl because otherwise the hives were so bad he was scratching himself raw. A pediatrician gave us another antihistamine to use to replace the benadryl, and also said to give him 25mg of tagamet, wanted us to combine an H1 and H2 blocker. While I agree that giving antihistamine " masks " the symptoms, its only given when his breakout reaches the point that he's scratching at himself, to avoid him scratching to the point of bleeding and raw. Otherwise its not given if there is just a couple patches that don't seem to bother him. The reason I'm asking about the folate, is that from what I'm reading it has to do the methyl groups (and please if I'm wrong correct me, I'm still reading so much info), and this whole ordeal goes back to methyl transport and all that stuff that I don't fully understand but know its a huge problem for our kids. One article I'm trying to digest still: http://www.alternativementalhealth.com/articles/walshMP.htm some quotes: " Elevated histamine and/or elevated basophils indicate undermethylation. " Would I be correct to assume his histames are elevated and because they are he's breaking out in hives? " the bottom line is that undermethylated persons generally exhibit very elevated folate levels.... and these persons get worse if additional folate is given. " So this line says not to give him folate if that first line is true. However: " The late and great Carl Pfeiffer would occasionally resort to use of the anti-histamines Benedryl or Dilantin in high-histamine persons who were slow to respond. Avoidance of folate supplements is essential for most undermethylated persons, an exception being autism " The exception being autism. So I am to consider this true? He also goes on to talk about the use of SAMe for histamine issues, again, I've seen this product mentioned before, but know NOTHING about it. Lastly, the hives were breaking out 2-3 times a day, needing treatment each time. Now he seems to need the antihistamine every other day, and trust me I use it very sparingly, only when the symptoms are causing him problems. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Hi Stacey, I'm an adult chelating for lead and mercury. I've had liver inflamation problems, and rash and hives and am sensitive to drugs and supplements so that is my experience. I don't know anything about the folate situation with autism. Aside from that, my dermatologist gave me Atarax® Syrup. I use it on occasion. What I like about it is that rash usually bothers me more at night since I have time to 'fool' with it. He told me to take it at night and it has calming effect as well as affect on itching. I also like fact that it is a liquid so I can adjust dose to suit myself. However with me usually it is something I am taking and stopping that starts the healing. However there are many causes for uticaria. One other guess...does son have gut problems as many autistic kids do? I have leaky gut due to inflamation in upper digestion area/small intestine. What happens there is that if gut lining is injured due to inflamation, it does not properly digest food. It has probably been discussed here already. So there is nutrition problems as one effect. Then secondarily the inflamed area is very poroused and lets the incompletely digested particles of food into the blood stream. This causes irritation in skin as things are in blood that don't belong there. Solution to that doctor gave me is pancreatic enzyme between meals on empty stomach to get into blood and digest the undigested particles that are in there. I saw fibrous matter in my own blood on black field microscopy that were gone after a month of enzyme treatment. Problem with gut inflamation continues though as cause has not been found. I think it is Candidas infection but since people here say metal can be a problem and I had an exposure to alot of lead, maybe that did it. Still unsolved problem that causes me a lot of problems. During this problem I have had the skin problems and the extra sensitivity to drugs and supplements. Just food for thought. I hope you figure it out. My doctor did give my Nystatin for Candidas but I developed a big rash from that also and had to stop, so yeast problem continues, just a side note to above 'list of problems'...! --- <stacyc75@...> wrote: No to both. He has not had any chelation since > last September, and > he's never had yeast problems, never had an > antibiotic in his life. > Never been treated for any yeast. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Stacey, I am coming in the middle of this, so forgive me if I am off target. We had an allergic reaction to Virastop that we were using after we had used it for about 4 months. And a person can become allergic to something one day after not being allergic the day before. We knew it was an allergic reaction because when we gave Benadryl, the rash would subside but as the Benadryl wore off, the rash would reappear. What helped permanently was to give Vitamin C, 250 mgs and pantothenic acid, 50 mgs, every 2-3 hours, and within the first day, the rash began to clear and was gone the next. We knew the source of the reaction, but the treatment works even if you are unaware of what is causing the allergy. [ ] Re: Histamines and folate? > > Stacey, > Are you chelating your son, or are you treating > for yeast/infection? No to both. He has not had any chelation since last September, and he's never had yeast problems, never had an antibiotic in his life. Never been treated for any yeast. It also could be one of the supplements > you are using he is allergic to. If there are > any new supplements try stopping those. There are NO new supplements. NO new foods, detergents, carpet, cleaning supplies, clothes, anything in the home, we've been through all that. The hives started on June 20/21. He was taking small dosages, infrequent, of benadryl BEFORE the hives during June 18-20 for seasonal allergies, mainly just to calm down his sneezing and stuff so he could sleep better at night. (My personal opinion is that the benadryl possibly triggered this, since he had not had benadryl in at least a year, maybe year and half) He started taking a probiotic on June 26th. There are NO other supplements, vitamins or minerals being used at this time. Probiotics were started AFTER the hives. He continued the benadryl because otherwise the hives were so bad he was scratching himself raw. A pediatrician gave us another antihistamine to use to replace the benadryl, and also said to give him 25mg of tagamet, wanted us to combine an H1 and H2 blocker. While I agree that giving antihistamine " masks " the symptoms, its only given when his breakout reaches the point that he's scratching at himself, to avoid him scratching to the point of bleeding and raw. Otherwise its not given if there is just a couple patches that don't seem to bother him. The reason I'm asking about the folate, is that from what I'm reading it has to do the methyl groups (and please if I'm wrong correct me, I'm still reading so much info), and this whole ordeal goes back to methyl transport and all that stuff that I don't fully understand but know its a huge problem for our kids. One article I'm trying to digest still: http://www.alternativementalhealth.com/articles/walshMP.htm some quotes: " Elevated histamine and/or elevated basophils indicate undermethylation. " Would I be correct to assume his histames are elevated and because they are he's breaking out in hives? " the bottom line is that undermethylated persons generally exhibit very elevated folate levels.... and these persons get worse if additional folate is given. " So this line says not to give him folate if that first line is true. However: " The late and great Carl Pfeiffer would occasionally resort to use of the anti-histamines Benedryl or Dilantin in high-histamine persons who were slow to respond. Avoidance of folate supplements is essential for most undermethylated persons, an exception being autism " The exception being autism. So I am to consider this true? He also goes on to talk about the use of SAMe for histamine issues, again, I've seen this product mentioned before, but know NOTHING about it. Lastly, the hives were breaking out 2-3 times a day, needing treatment each time. Now he seems to need the antihistamine every other day, and trust me I use it very sparingly, only when the symptoms are causing him problems. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 My son tested high blood histamine at Pfeiffer Inst. He regressed when given methyl 5 tetrahydrofolate and folinic acid which I believe are the active forms of folic acid. He did have a great response to TMG (trimethylglycine) and MB12. Although I have heard lots of kids do great with folinic acid. Marilyn > > A few weeks ago I posted about a hives issue we've had, and yes we > still have them. > > No we haven't figured out why, or how. Ah, the great mystery continues. > > Naturopath we are seeing has suggested Quercetone as it helps with > allergies and immunity. I know nothing about this product. > > Also, he's given us folate (long word: L-5-methyl tetrahydrofolate > 800mcg) to start on my son. > > A friend suggested today that I google " autism high histamine " and I'm > about blurry eyed reading everything so far. > > My question is, I'm coming up with two answers regarding folic acid > and high histamine levels, some websites say do not combine the two > not to give a high histamine person folic acid, and others say that in > the case of autism its ok. > > First, is folate in the form I mentioned above folic acid? Or is it > maybe a better broken down form? > > Second, who do I believe, or do I just give the folate and see how it > goes? > > Next question I have is the same websites are also at differing > opinions about MB12, which is another thing we are suppose to be > starting on our son. Again, who to believe? > > Anyone a histamine expert? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 We also had high histamine, folinic and Folapro did not cause any regression, but she got highly irritable and cranky when on it. Folic acid at the RDA of 400 mcgs was fine. She also did extremely well on TMG, it caused so much language to develop she talked nonstop for about 4 months. Methylcobalamin was tolerated only in small doses, at first, but with chelation, any amount is fine. I have also talked to adults who took the folinic form of folic acid who said it caused depression, for them. It, like MB12 is not for everyone. [ ] Re: Histamines and folate? My son tested high blood histamine at Pfeiffer Inst. He regressed when given methyl 5 tetrahydrofolate and folinic acid which I believe are the active forms of folic acid. He did have a great response to TMG (trimethylglycine) and MB12. Although I have heard lots of kids do great with folinic acid. Marilyn > > A few weeks ago I posted about a hives issue we've had, and yes we > still have them. > > No we haven't figured out why, or how. Ah, the great mystery continues. > > Naturopath we are seeing has suggested Quercetone as it helps with > allergies and immunity. I know nothing about this product. > > Also, he's given us folate (long word: L-5-methyl tetrahydrofolate > 800mcg) to start on my son. > > A friend suggested today that I google " autism high histamine " and I'm > about blurry eyed reading everything so far. > > My question is, I'm coming up with two answers regarding folic acid > and high histamine levels, some websites say do not combine the two > not to give a high histamine person folic acid, and others say that in > the case of autism its ok. > > First, is folate in the form I mentioned above folic acid? Or is it > maybe a better broken down form? > > Second, who do I believe, or do I just give the folate and see how it > goes? > > Next question I have is the same websites are also at differing > opinions about MB12, which is another thing we are suppose to be > starting on our son. Again, who to believe? > > Anyone a histamine expert? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Stacey, this is correct according to my experience also. Claritin would make rash subside for awhile but as the Claritin would wear off, the rash would come back. Rash is indicating that something is wrong, not agreeing or irritating (from inside OR outside). Uticaria can also be caused by emotional upset, perhaps upsetting hormonal balance or something. Rashes I developed to supplements and drugs (Nystatin), did not come up right away. I did not try the Vitamin C, etc below but I will probably try this nextg time I get a rash and I probably will get another one. It appears to be a trend for me right now. --- Cochran <Ladyshrink111@...> wrote: > Stacey, I am coming in the middle of this, so > forgive me if I am off target. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 At 05:18 PM 7/21/2006, you wrote: >Also, he's given us folate (long word: L-5-methyl tetrahydrofolate >800mcg) to start on my son. > >First, is folate in the form I mentioned above folic acid? Or is it >maybe a better broken down form? It's a better broken down form; some people can't break down/absorb regular folate. But I've heard it's good to build up to the dosage. My son is on the same dose because we have a gene (MTHFR) that inhibits folate metabolism. We did not build up the dosage, and he did fine, but we may have been lucky. Stroyan www.empathic-discipline.com Click here to email me directly: <mailto:lstroyan@...>lstroyan@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 So folate is better form than folic acid? --- Stroyan <lstroyan@...> wrote: > >First, is folate in the form I mentioned above > folic acid? Or is it > >maybe a better broken down form? > > It's a better broken down form; some people > can't break down/absorb > regular folate. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 At 07:49 PM 7/24/2006, you wrote: >So folate is better form than folic acid? From a quick web search, apparently - I thought folate and folic acid were two names for the same thing until I looked it up and that this was a different form. All I was told is that this particular form (L-5-methyl tetrahydrofolate) was more absorbable than what we normally supplement with. I'm still not sure if food-based folate and L-5-methyl tetrahydrofolate are the same thing. Stroyan www.empathic-discipline.com Click here to email me directly: <mailto:lstroyan@...>lstroyan@... Quote Link to comment Share on other sites More sharing options...
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