HHV6 titers-discouraged

[Guest guest]

I'll make my long story short: My son is 6, probably Asperger's at this

point. All kinds of biomed since age 2.

Lots of improvement, but still with periodic regressions, health problems,

anxiety issues, social issues, etc.

He has been on antivirals (Valtrex and Famvir) since age 2. That's 4 yrs.

His HHV-6 (herpes 6 ) titers are still elevated. The ONLY time they were ever

normal was when we were doing IMMG shots (gamma globulin). These are horribly

painful and we haven't done them for about 4 months now.

So, clearly, antivirals don't take care of the problem. A temporary fix,

at best. Boosting the immune system with IMGG helps, but again, a temporary

fix. The titers come right back up as soon as the shots are d/c'd We are

chelating, only managed to get 5 rounds in so far.

My question is-- has anyone had elevated HHV6 (or other viral) levels, done

a lot of chelation, then no longer had the viral elevation (removing antiviral

meds as a variable)??

I am wondering what to do at this point. My son's immune

(and GI, and endocrine, and nervous) system are all clearly messed up. I know

mercury and other toxicities have to be at the bottom of it, tho we have yet to

see a trace of mercury anywhere.

I will keep chelating, but I'm just so discouraged. It seems every biomed

thing we do helps for a while, then he regresses again. I'm wondering if the

Famvir is even worth the stress it puts on his liver anymore, since it obviously

doesn't repress the virus effectively anymore.

Ironically, when his HHV6 levels are down with the IMGG, he doesn't really

look any better clinically. I don't know if it's worth it to start the

injections again or just keep chelating to address the true problem.

Sigh. Does this ever end???

Becky

[Guest guest]

Dear Becky,

I don't have any answers for you, but I did have a question.

Primarily, how do you know when the titers are too high? I had my

two oldests' titers tested for MMR. Their IgG levels were pretty

high (don't know about IgM levels). But what is the " threshold " for

needing to go the anti-viral route? What information do you need to

make that decision?

I would really appreciate any answers because this has been weighing

VERY HEAVY on my mind lately.

Jeni Lynn

>

> I'll make my long story short: My son is 6, probably Asperger's

at this point. All kinds of biomed since age 2.

> Lots of improvement, but still with periodic regressions, health

problems, anxiety issues, social issues, etc.

>

> He has been on antivirals (Valtrex and Famvir) since age 2.

That's 4 yrs. His HHV-6 (herpes 6 ) titers are still elevated. The

ONLY time they were ever normal was when we were doing IMMG shots

(gamma globulin). These are horribly painful and we haven't done

them for about 4 months now.

>

> So, clearly, antivirals don't take care of the problem. A

temporary fix, at best. Boosting the immune system with IMGG helps,

but again, a temporary fix. The titers come right back up as soon as

the shots are d/c'd We are chelating, only managed to get 5 rounds in

so far.

>

> My question is-- has anyone had elevated HHV6 (or other viral)

levels, done a lot of chelation, then no longer had the viral

elevation (removing antiviral meds as a variable)??

> I am wondering what to do at this point. My son's immune

> (and GI, and endocrine, and nervous) system are all clearly messed

up. I know mercury and other toxicities have to be at the bottom of

it, tho we have yet to see a trace of mercury anywhere.

>

> I will keep chelating, but I'm just so discouraged. It seems

every biomed thing we do helps for a while, then he regresses again.

I'm wondering if the Famvir is even worth the stress it puts on his

liver anymore, since it obviously doesn't repress the virus

effectively anymore.

>

> Ironically, when his HHV6 levels are down with the IMGG, he

doesn't really look any better clinically. I don't know if it's

worth it to start the injections again or just keep chelating to

address the true problem.

>

> Sigh. Does this ever end???

>

> Becky

>

>

[Guest guest]

,

I don't think you are alone with this. I think there are a number of kids who

have largely chelated out their metals but are still left with immune system

problems.

We are one of them. Our little one 5.6, is no longer dx'd as anything, but her

health issues make me believe that their is still a problem with her immune

system, its out of whack and while it no longer causes any

social/behavioral/cognitive issue, it is still lurking.

I know not much help just wanted to report that I see the same thing, and it is

concerning to me. Any answers you might find would be appreciated.

[ ] HHV6 titers-discouraged

I'll make my long story short: My son is 6, probably Asperger's at this point.

All kinds of biomed since age 2.

Lots of improvement, but still with periodic regressions, health problems,

anxiety issues, social issues, etc.

He has been on antivirals (Valtrex and Famvir) since age 2. That's 4 yrs. His

HHV-6 (herpes 6 ) titers are still elevated. The ONLY time they were ever normal

was when we were doing IMMG shots (gamma globulin). These are horribly painful

and we haven't done them for about 4 months now.

So, clearly, antivirals don't take care of the problem. A temporary fix, at

best. Boosting the immune system with IMGG helps, but again, a temporary fix.

The titers come right back up as soon as the shots are d/c'd We are chelating,

only managed to get 5 rounds in so far.

My question is-- has anyone had elevated HHV6 (or other viral) levels, done a

lot of chelation, then no longer had the viral elevation (removing antiviral

meds as a variable)??

I am wondering what to do at this point. My son's immune

(and GI, and endocrine, and nervous) system are all clearly messed up. I know

mercury and other toxicities have to be at the bottom of it, tho we have yet to

see a trace of mercury anywhere.

I will keep chelating, but I'm just so discouraged. It seems every biomed

thing we do helps for a while, then he regresses again. I'm wondering if the

Famvir is even worth the stress it puts on his liver anymore, since it obviously

doesn't repress the virus effectively anymore.

Ironically, when his HHV6 levels are down with the IMGG, he doesn't really

look any better clinically. I don't know if it's worth it to start the

injections again or just keep chelating to address the true problem.

Sigh. Does this ever end???

Becky

[Guest guest]

Becky,

I haven't chelated my daughter yet so don't have advice. Just some

encouragement. I know it is so hard with the regressions and some days you just

cry your eyes out, but be encouraged and keep your faith Your son will get

better Love Jen

Norvell <beckeric@...> wrote:

I'll make my long story short: My son is 6, probably Asperger's at this point.

All kinds of biomed since age 2.

Lots of improvement, but still with periodic regressions, health problems,

anxiety issues, social issues, etc.

He has been on antivirals (Valtrex and Famvir) since age 2. That's 4 yrs. His

HHV-6 (herpes 6 ) titers are still elevated. The ONLY time they were ever

normal was when we were doing IMMG shots (gamma globulin). These are horribly

painful and we haven't done them for about 4 months now.

So, clearly, antivirals don't take care of the problem. A temporary fix, at

best. Boosting the immune system with IMGG helps, but again, a temporary fix.

The titers come right back up as soon as the shots are d/c'd We are chelating,

only managed to get 5 rounds in so far.

My question is-- has anyone had elevated HHV6 (or other viral) levels, done a

lot of chelation, then no longer had the viral elevation (removing antiviral

meds as a variable)??

I am wondering what to do at this point. My son's immune

(and GI, and endocrine, and nervous) system are all clearly messed up. I know

mercury and other toxicities have to be at the bottom of it, tho we have yet to

see a trace of mercury anywhere.

I will keep chelating, but I'm just so discouraged. It seems every biomed

thing we do helps for a while, then he regresses again. I'm wondering if the

Famvir is even worth the stress it puts on his liver anymore, since it

obviously doesn't repress the virus effectively anymore.

Ironically, when his HHV6 levels are down with the IMGG, he doesn't really

look any better clinically. I don't know if it's worth it to start the

injections again or just keep chelating to address the true problem.

Sigh. Does this ever end???

Becky

[Guest guest]

> He has been on antivirals (Valtrex and Famvir) since age 2.

That's 4 yrs. His HHV-6 (herpes 6 ) titers are still elevated.

Those medications only *suppress* the virus. Apparently your child's

body can't get beyond the suppression. Try adding Virastop enzyme,

see if that helps eliminate the virus.

Watch for yeast overgrowth as the virus is being eliminated.

Try giving high doses of vitamin C, colostrum, astralagus root, and

other things to boost the immune system.

> My question is-- has anyone had elevated HHV6 (or other viral)

levels, done a lot of chelation, then no longer had the viral

elevation (removing antiviral meds as a variable)??

Chelation did not address my son's virus issues. Only olive leaf

extract, Virastop enzyme, vitamin C, colostrum, and astralagus root

did that. He had high dose vitamin A protocol prior to anti-virals,

for measles virus.

> I will keep chelating, but I'm just so discouraged. It seems

every biomed thing we do helps for a while, then he regresses again.

Yep, and this was primarily caused by virus and immune issues for my son.

Dana

[Guest guest]

> My question is-- has anyone had elevated HHV6 (or other viral)

levels, done a lot of chelation, then no longer had the viral

elevation (removing antiviral meds as a variable)??

My son's main viral problem is EBV, he's done 79 rounds, and still has

high titers. His symptoms are mostly gone, enough for his Asperger's

dx to be removed, but still has mild regressions. He still has metals

so I can't really answer your question except to say chelation doesn't

seem to take care of viral problems quickly.

I'm way behind on the list and people have probably already suggested

this, but have you tried Virastop and/or OLE and/or Transfer Factor?

My son had quite dramatic improvements with those, VS in particular.

I hate viruses.

Nell

[Guest guest]

What symptoms come with the EBV virus? Brittany has EBV and CMV. I never thought

to put the ASD symptoms with the virus issue? Interesting thought.

Thanks

lanellici <lanellici@...> wrote:

> My question is-- has anyone had elevated HHV6 (or other viral)

levels, done a lot of chelation, then no longer had the viral

elevation (removing antiviral meds as a variable)??

My son's main viral problem is EBV, he's done 79 rounds, and still has

high titers. His symptoms are mostly gone, enough for his Asperger's

dx to be removed, but still has mild regressions. He still has metals

so I can't really answer your question except to say chelation doesn't

seem to take care of viral problems quickly.

I'm way behind on the list and people have probably already suggested

this, but have you tried Virastop and/or OLE and/or Transfer Factor?

My son had quite dramatic improvements with those, VS in particular.

I hate viruses.

Nell

[Guest guest]

What kind of protocol is everyone using for Virastop? My son is 64 pounds.

Thanks

_____

From: [mailto: ]

On Behalf Of lanellici

Sent: Friday, July 21, 2006 11:09 AM

Subject: [ ] Re: HHV6 titers-discouraged

> My question is-- has anyone had elevated HHV6 (or other viral)

levels, done a lot of chelation, then no longer had the viral

elevation (removing antiviral meds as a variable)??

My son's main viral problem is EBV, he's done 79 rounds, and still has

high titers. His symptoms are mostly gone, enough for his Asperger's

dx to be removed, but still has mild regressions. He still has metals

so I can't really answer your question except to say chelation doesn't

seem to take care of viral problems quickly.

I'm way behind on the list and people have probably already suggested

this, but have you tried Virastop and/or OLE and/or Transfer Factor?

My son had quite dramatic improvements with those, VS in particular.

I hate viruses.

Nell

[Guest guest]

>

> What kind of protocol is everyone using for Virastop? My son is 64

pounds.

I start with one capsule per day, and increase from there, depending

on how much the child needs. My #2 went up to 30 capsules per day at

one point.

Viral " die off " does tend to significantly increase yeast, so watch

for that.

Dana

[Guest guest]

Hi ,

I'm going to start working on viruses again as well. Here is some

additional information on Virastop.

Orelindel

http://www.enzymestuff.com/conditionviruses.htm

>

> > My question is-- has anyone had elevated HHV6 (or other viral)

> levels, done a lot of chelation, then no longer had the viral

> elevation (removing antiviral meds as a variable)??

>

> My son's main viral problem is EBV, he's done 79 rounds, and still

has

> high titers. His symptoms are mostly gone, enough for his

Asperger's

> dx to be removed, but still has mild regressions. He still has

metals

> so I can't really answer your question except to say chelation

doesn't

> seem to take care of viral problems quickly.

>

> I'm way behind on the list and people have probably already

suggested

> this, but have you tried Virastop and/or OLE and/or Transfer

Factor?

> My son had quite dramatic improvements with those, VS in

particular.

>

> I hate viruses.

>

> Nell

>

>

>

>

>

>

[Guest guest]

Dana,

Thanks for the information. How did you know that your child needed, at one

point, 30 capsules per day? Are there certain symptoms or indicators to

assess the need to increase?

_____

From: [mailto: ]

On Behalf Of danasview

Sent: Saturday, July 22, 2006 10:39 AM

Subject: [ ] Re: HHV6 titers-discouraged

>

> What kind of protocol is everyone using for Virastop? My son is 64

pounds.

I start with one capsule per day, and increase from there, depending

on how much the child needs. My #2 went up to 30 capsules per day at

one point.

Viral " die off " does tend to significantly increase yeast, so watch

for that.

Dana

[Guest guest]

>

> Dana,

>

> Thanks for the information. How did you know that your child

needed, at one

> point, 30 capsules per day? Are there certain symptoms or indicators to

> assess the need to increase?

Not Dana, but in my son's first go with Virastop, the cycle went like

this: right after the dose, he'd have a meltdown. I'd treat him for

yeast and he'd improve a bit. After a day or so he'd be doing

wonderfully (better socially and cognitively), maintain that for a few

days, and then the improvement would start to fade. At that point I

increased the dosage and the cycle repeated. The improvements stopped

fading when I got up to something like the 30 caps/day Dana reported.

Nell

[Guest guest]

Nell,

How long did you stay at that dosage? We've not been able to get past

3/day - rash, nasty behavior. Do you happen to know if there is

bromelian in it? Thanks,

> >

> > Dana,

> >

> > Thanks for the information. How did you know that your child

> needed, at one

> > point, 30 capsules per day? Are there certain symptoms or

indicators to

> > assess the need to increase?

>

> Not Dana, but in my son's first go with Virastop, the cycle went

like

> this: right after the dose, he'd have a meltdown. I'd treat him for

> yeast and he'd improve a bit. After a day or so he'd be doing

> wonderfully (better socially and cognitively), maintain that for a

few

> days, and then the improvement would start to fade. At that point I

> increased the dosage and the cycle repeated. The improvements

stopped

> fading when I got up to something like the 30 caps/day Dana

reported.

>

> Nell

>

[Guest guest]

>

> Nell,

> How long did you stay at that dosage? We've not been able to get past

> 3/day - rash, nasty behavior. Do you happen to know if there is

> bromelian in it? Thanks,

No bromelain but there is something that some people don't tolerate.

You might try searching onibasu using " virastop rash " to see if that's

what's happening. The nasty behavior my son had too -- it responded to

high doses of GSE and other antifungals.

Generally speaking, if you're seeing glimpses of positive in between

the nastiness, that's an indication to press on. If you're seeing only

rashes and nastiness, try lowering the dose and proceed carefully in

case you're dealing with an intolerance.

Nell

[Guest guest]

>

> Dana,

>

> Thanks for the information. How did you know that your child

needed, at one

> point, 30 capsules per day? Are there certain symptoms or indicators to

> assess the need to increase?

My son's experience was very similar to what Nell wrote for her son.

Dana

[Guest guest]

Our experience with Virastop was a little different from Dana and Nell's. We

started out at one capsule and added a capsule until we got to four a day.

Noticed immediate improvement in attention, but she complained of stomach upset.

We Slowly ramped up to 9 capsules a day, the improvement continued, but so did

the stomach upset, we reduced to 4 capsules a day, but still the stomach thing.

We tried giving it with food but the improvements would fade.

She started breaking out in a rash from the beginning but it got worse at the

end causing a scab on her arm, so we stopped.

I have since been wondering if her improvement on the Virastop was due to one of

its ingredients---Nattokinase, which is used for people with " thicker blood " who

have heart disease. Our little one has hemoglobulin and hemocrit at the top of

the range.

[ ] Re: HHV6 titers-discouraged

>

> Dana,

>

> Thanks for the information. How did you know that your child

needed, at one

> point, 30 capsules per day? Are there certain symptoms or indicators to

> assess the need to increase?

My son's experience was very similar to what Nell wrote for her son.

Dana