Your Help Neded

[Guest guest]

Sorry if you get this post several times, if you belong to different

boards you just might, but I truly would like your help so please

bear with me. 1st about me. In May of this year I was diagnosed with

Clinically Isolated Syndrome, after an exasperation that left me

walking with a cane. After all the standard MS tests I was found to

have 8 separate lesions on my brain and spinal fluid consistent with

MS, but because I could not remember (at the time) any other odd

past problems this had to be considered my first attack and the

diagnosis had to be CIS and not MS, until I had a separate attack. I

have since had new symptoms in the last few weeks (and remembered

some old ones) and am fairly sure the diagnosis will become MS when

I visit my Neurologist next. I started on Avonex in July and think

maybe that the attack I have been having in the last few weeks has

not been as bad as it might have been because of the Avonex. So like

everyone else I have been on the internet as much as possible since

then and that has led me to you LDN folks. It took me a while to

actually start investigating LDN because there are just too many

snake oil salesmen out there and unless you dig a little deeper, on

the surface LDN seems to fit into that category. The only reason I

eventfully started my investigation was because I found out that

know body was trying to sell me anything. Now that you know where I

am coming from, I would like to ask a few of you, actually the more

the better, to give me some direct information. I have been trying

to find stories from LDN users that have been successfully using LDN

for many years and have also been under a Doctors care for that

time. I know the stories are out there but one gets very dizzy

trying to find all the sites or old posts that store your stories.

If at all possible I would like to have a data base of sorts with

personal stories of long term LDN users that have had great success

that can be verified by their doctor. I am going to my Dr in a

little over a month and I want to have a talk with him about LDN,

but I really want it be as informed as possible. Also, if by chance

any of you have discussed LDN with my doctor, Dr Victor at he

Maxine Mesinger Multiple Sclerosis Clinic in Houston Texas, I would

also like to know how that went. Please, any and all long term

success stories are welcome; I have a friend with cancer of the

esophagus and I would love to get him to at least look at LDN and do

some investigations of his own. Please send these to me via my

private email address so it does not clutter up the board, unless

you want to share your stories once again with the masses.

Thank You in Advance

Tim Purcell