Guest guest Posted December 22, 2007 Report Share Posted December 22, 2007 I sent this email to that jerk. LDN-Low Dose Naltrexone It's a shame you were not at the 2007 LDN Conference I organized and hosted at Vanderbilt University in Nashville, TN. You would have met many including myself and my mom whose lives have been changed for the better because of 4.5mg LDN. I was diagnosed chronic progressive MS Dec. 1989, started 4.5mg LDN July 2003 and LDN has halted my disease progression dead in its tracks for over 4 years now. My mom was diagnosed with a very aggressive breast cancer, was told if she did not take chemo the cancer would no doubt return, my mom refused chemo and is taking 4.5mg LDN as her cancer treatment, that was 3 1/2 years ago that she was diagnosed with breast cancer, on LDN she's cancer free still today and not feeling the ill effects of chemo and living life to the fullest and will be 70 years old January 08. My grandma who will soon be 89 January 08 has advanced Alzheimer's and has been on 4.5mg LDN as her treatment. LDN actually improved my grandma's Alzheimer's, my grandma is unable to be alone during the day or night NOT taking LDN but she CAN stay alone on LDN while my aunt works an 8 hour day. My grandma is transported every weekend 50 miles one way on Friday to her old home then back 50 miles to her other home for the week on Sunday and any other Alzheimer's patient would shrivel up and die due to all that change, my grandma hasn't progressed/worsened at all in over 2 years because of the LDN. My grandma's squamous cell carcinoma was removed Dec. 2 years ago and no chemo or radiation was given, her only treatment has been 4.5mg LDN and my grandma's cancer has not returned. My best friend with Lupus is on LDN 4.5mg and is no longer progressing. So it looks as if you haven't done your homework. I thank GOD everyday for Dr. Bernard Bihari's work, I have a life worth living now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2007 Report Share Posted December 22, 2007 Hi Bren, I wrote jelinab, too; I suggested a visit to http://tinyurl.com/2boot2 If there ever was a wonder drug, LDN is it! Best regards, Dudley Delany dudley_delany [low dose naltrexone] Re: LDN - Low Dose Naltrexone for jelinab I sent this email to that jerk. LDN-Low Dose Naltrexone It's a shame you were not at the 2007 LDN Conference I organized and hosted at Vanderbilt University in Nashville, TN. You would have met many including myself and my mom whose lives have been changed for the better because of 4.5mg LDN. I was diagnosed chronic progressive MS Dec. 1989, started 4.5mg LDN July 2003 and LDN has halted my disease progression dead in its tracks for over 4 years now. My mom was diagnosed with a very aggressive breast cancer, was told if she did not take chemo the cancer would no doubt return, my mom refused chemo and is taking 4.5mg LDN as her cancer treatment, that was 3 1/2 years ago that she was diagnosed with breast cancer, on LDN she's cancer free still today and not feeling the ill effects of chemo and living life to the fullest and will be 70 years old January 08. My grandma who will soon be 89 January 08 has advanced Alzheimer's and has been on 4.5mg LDN as her treatment. LDN actually improved my grandma's Alzheimer's, my grandma is unable to be alone during the day or night NOT taking LDN but she CAN stay alone on LDN while my aunt works an 8 hour day. My grandma is transported every weekend 50 miles one way on Friday to her old home then back 50 miles to her other home for the week on Sunday and any other Alzheimer's patient would shrivel up and die due to all that change, my grandma hasn't progressed/worsened at all in over 2 years because of the LDN. My grandma's squamous cell carcinoma was removed Dec. 2 years ago and no chemo or radiation was given, her only treatment has been 4.5mg LDN and my grandma's cancer has not returned. My best friend with Lupus is on LDN 4.5mg and is no longer progressing. So it looks as if you haven't done your homework. I thank GOD everyday for Dr. Bernard Bihari's work, I have a life worth living now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2007 Report Share Posted December 22, 2007 Do yours, your mother's and grandmother's 'EARS RING' a lot? When I tell people my story and they're amazed, I tell them YOURS. I've been talking about you 3 lately I've had some life-changing events in my life, but I think LDN was the first one of them For the Better. [low dose naltrexone] Re: LDN - Low Dose Naltrexone for jelinab I sent this email to that jerk.LDN-Low Dose NaltrexoneIt's a shame you were not at the 2007 LDN Conference I organized and hosted at Vanderbilt University in Nashville, TN. You would have met many including myself and my mom whose lives have been changed for the better because of 4.5mg LDN. I was diagnosed chronic progressive MS Dec. 1989, started 4.5mg LDN July 2003 and LDN has halted my disease progression dead in its tracks for over 4 years now. My mom was diagnosed with a very aggressive breast cancer, was told if she did not take chemo the cancer would no doubt return, my mom refused chemo and is taking 4.5mg LDN as her cancer treatment, that was 3 1/2 years ago that she was diagnosed with breast cancer, on LDN she's cancer free still today and not feeling the ill effects of chemo and living life to the fullest and will be 70 years old January 08. My grandma who will soon be 89 January 08 has advanced Alzheimer's and has been on 4.5mg LDN as her treatment. LDN actually improved my grandma's Alzheimer's, my grandma is unable to be alone during the day or night NOT taking LDN but she CAN stay alone on LDN while my aunt works an 8 hour day. My grandma is transported every weekend 50 miles one way on Friday to her old home then back 50 miles to her other home for the week on Sunday and any other Alzheimer's patient would shrivel up and die due to all that change, my grandma hasn't progressed/worsened at all in over 2 years because of the LDN. My grandma's squamous cell carcinoma was removed Dec. 2 years ago and no chemo or radiation was given, her only treatment has been 4.5mg LDN and my grandma's cancer has not returned. My best friend with Lupus is on LDN 4.5mg and is no longer progressing. So it looks as if you haven't done your homework. I thank GOD everyday for Dr. Bernard Bihari's work, I have a life worth living now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2007 Report Share Posted December 22, 2007 > > Do yours, your mother's and grandmother's 'EARS RING' a lot? When I tell people my story and they're amazed, I tell them YOURS. I've been talking about you 3 lately =========== My ears have been ringing for ears, since 1982 but that's due to MS damage. Not sure about mom and grandma. Going to go spend the night with grandma tomorrow, that's my Christmas gift to her this year, ME and a sweater. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2007 Report Share Posted December 22, 2007 , Thank you for sending the email to that person, I got SO upset by reading what he / she had written. The site is not old, as someone's suggesting, cause I looked at other links that is there, those sites is from 2006. But the point is that this person for sure is telling lies because of some hidden agenda. I have NEVER red on Dr. Bihary's sites or other sites that LDN cures 98 % of MS and Cancers.... This person want to destroy the possibilities for a lot of MS'ers to ever try LDN. Ingrid [low dose naltrexone] Re: LDN - Low Dose Naltrexone for jelinabI sent this email to that jerk.LDN-Low Dose NaltrexoneIt's a shame you were not at the 2007 LDN Conference I organized and hosted at Vanderbilt University in Nashville, TN. You would have met many including myself and my mom whose lives have been changed for the better because of 4.5mg LDN. I was diagnosed chronic progressive MS Dec. 1989, started 4.5mg LDN July 2003 and LDN has halted my disease progression dead in its tracks for over 4 years now. My mom was diagnosed with a very aggressive breast cancer, was told if she did not take chemo the cancer would no doubt return, my mom refused chemo and is taking 4.5mg LDN as her cancer treatment, that was 3 1/2 years ago that she was diagnosed with breast cancer, on LDN she's cancer free still today and not feeling the ill effects of chemo and living life to the fullest and will be 70 years old January 08. My grandma who will soon be 89 January 08 has advanced Alzheimer's and has been on 4.5mg LDN as her treatment. LDN actually improved my grandma's Alzheimer's, my grandma is unable to be alone during the day or night NOT taking LDN but she CAN stay alone on LDN while my aunt works an 8 hour day. My grandma is transported every weekend 50 miles one way on Friday to her old home then back 50 miles to her other home for the week on Sunday and any other Alzheimer's patient would shrivel up and die due to all that change, my grandma hasn't progressed/worsened at all in over 2 years because of the LDN. My grandma's squamous cell carcinoma was removed Dec. 2 years ago and no chemo or radiation was given, her only treatment has been 4.5mg LDN and my grandma's cancer has not returned. My best friend with Lupus is on LDN 4.5mg and is no longer progressing. So it looks as if you haven't done your homework. I thank GOD everyday for Dr. Bernard Bihari's work, I have a life worth living now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2007 Report Share Posted December 22, 2007 Here's what I sent: Get your facts straight. In reference to LDN (low dose Naltrexone), it is used in 3 mg - 4.5 mg doses for various conditions. Naltrexone in higher doses, 50 mg or more, is used for addictions. It was FDA approved in 1984, I believe, for addictions, therefore the patent has long since run out. Also, the New York City doctor who first started using LDN for various conditions may well be a psychiatrist as well as a Neurologist. MS is a scary enough condition without people incorrectly informing patients as to various treatments that may or may not work. Just the facts please. Anyone with MS knows that the disease varies from one individual to the next. A person with RRMS may use traditional treatments and do fairly well. Maybe it's the therapy, maybe not. The Mayo Clinic in Rochester, MN has come out with a study that says that most cases of RRMS are actually Benign MS and would have progressed the same with or without standard treatments. I take LDN but can't claim miraculous results. I do know that it is not hurting me and is not breaking the bank! Other than not walking and various MS symptoms, I am never sick! That's a good thing! Marcie Gunn Dybfest <gunn.ingrid@...> wrote: , Thank you for sending the email to that person, I got SO upset by reading what he / she had written. The site is not old, as someone's suggesting, cause I looked at other links that is there, those sites is from 2006. But the point is that this person for sure is telling lies because of some hidden agenda. I have NEVER red on Dr. Bihary's sites or other sites that LDN cures 98 % of MS and Cancers.... This person want to destroy the possibilities for a lot of MS'ers to ever try LDN. Ingrid [low dose naltrexone] Re: LDN - Low Dose Naltrexone for jelinabI sent this email to that jerk.LDN-Low Dose NaltrexoneIt's a shame you were not at the 2007 LDN Conference I organized and hosted at Vanderbilt University in Nashville, TN. You would have met many including myself and my mom whose lives have been changed for the better because of 4.5mg LDN. I was diagnosed chronic progressive MS Dec. 1989, started 4.5mg LDN July 2003 and LDN has halted my disease progression dead in its tracks for over 4 years now. My mom was diagnosed with a very aggressive breast cancer, was told if she did not take chemo the cancer would no doubt return, my mom refused chemo and is taking 4.5mg LDN as her cancer treatment, that was 3 1/2 years ago that she was diagnosed with breast cancer, on LDN she's cancer free still today and not feeling the ill effects of chemo and living life to the fullest and will be 70 years old January 08. My grandma who will soon be 89 January 08 has advanced Alzheimer's and has been on 4.5mg LDN as her treatment. LDN actually improved my grandma's Alzheimer's, my grandma is unable to be alone during the day or night NOT taking LDN but she CAN stay alone on LDN while my aunt works an 8 hour day. My grandma is transported every weekend 50 miles one way on Friday to her old home then back 50 miles to her other home for the week on Sunday and any other Alzheimer's patient would shrivel up and die due to all that change, my grandma hasn't progressed/worsened at all in over 2 years because of the LDN. My grandma's squamous cell carcinoma was removed Dec. 2 years ago and no chemo or radiation was given, her only treatment has been 4.5mg LDN and my grandma's cancer has not returned. My best friend with Lupus is on LDN 4.5mg and is no longer progressing. So it looks as if you haven't done your homework. I thank GOD everyday for Dr. Bernard Bihari's work, I have a life worth living now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2007 Report Share Posted December 22, 2007 Great, great responce Larry. Aletha> In response to http://www.jelinab-mswalk.net/alternative_treatments.html > > > Did you READ the LDN website and Dr. Bihari's CV? > > > http://ldninfo.org/ > > > http://ldninfo.org/bbihari_cv.htm > > http://www.larrygc.com/mystory is my own personal story > > And this year my dad was DX with stomach cancer, in March, they gave him > SIX months to live. We got a doc to put him on LDN 3/28; 9/4 CT scan > showed the tumors were 1/2 the size as from March. LDN saved my dad's > life. > > My brother is on it for sarcoidosis and is stable on it. > > Everything you wrote needs to be re-examined, you're close... but this is > no snake oil. It Orchestrates your immune system, and Dr. Bihari's > daughter's friend with MS is a true story of the roots. > > WHY doesn't everyone know about it? I pay less than $20/month for my > 3.0 MG fills. TWENTY a month, less than half a cup of coffee per DOSE. > WHY isn't it well known? The same reason we don't have Electric cars. > The same reason marijuana is illegal and alcohol & tobacco aren't. > > There seems to be a very high success rate. And you can't say it's > placebo or snake oil, the little kids and babies being treated > transdermally while they SLEEP have NO Idea they're taking LDN, and > they're coming out of their shell. NO FURTHER TESTIMONY is required now. > > My 10/04 killer staph infection was enough to prove the value to me. > > Maybe it's time to do some more research, unless your site has been bought > by the CRAB people. The CRAB people. They're the ones who did QEFTSG on > SP. Hysterical. > > > HAVE A NICE DAY > > > > -- LarryGC/LarryLDN LDN Info rrms (links are for more info) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2007 Report Share Posted December 22, 2007 >Hi , I would like to send 's story as well. Do you have the e-mail addres for this person? Thanks so much Aletha > I sent this email to that jerk. > > LDN-Low Dose Naltrexone > > It's a shame you were not at the 2007 LDN Conference I organized and > hosted at Vanderbilt University in Nashville, TN. You would have met > many including myself and my mom whose lives have been changed for the > better because of 4.5mg LDN. I was diagnosed chronic progressive MS > Dec. 1989, started 4.5mg LDN July 2003 and LDN has halted my disease > progression dead in its tracks for over 4 years now. My mom was > diagnosed with a very aggressive breast cancer, was told if she did > not take chemo the cancer would no doubt return, my mom refused chemo > and is taking 4.5mg LDN as her cancer treatment, that was 3 1/2 years > ago that she was diagnosed with breast cancer, on LDN she's cancer > free still today and not feeling the ill effects of chemo and living > life to the fullest and will be 70 years old January 08. My grandma > who will soon be 89 January 08 has advanced Alzheimer's and has been > on 4.5mg LDN as her treatment. LDN actually improved my grandma's > Alzheimer's, my grandma is unable to be alone during the day or night > NOT taking LDN but she CAN stay alone on LDN while my aunt works an 8 > hour day. My grandma is transported every weekend 50 miles one way on > Friday to her old home then back 50 miles to her other home for the > week on Sunday and any other Alzheimer's patient would shrivel up and > die due to all that change, my grandma hasn't progressed/worsened at > all in over 2 years because of the LDN. My grandma's squamous cell > carcinoma was removed Dec. 2 years ago and no chemo or radiation was > given, her only treatment has been 4.5mg LDN and my grandma's cancer > has not returned. My best friend with Lupus is on LDN 4.5mg and is no > longer progressing. So it looks as if you haven't done your > homework. I thank GOD everyday for Dr. Bernard Bihari's work, I have > a life worth living now. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2007 Report Share Posted December 23, 2007 Dudley, I too sent an email to jelinab, but took a different approach. I wrote that I was a pharmacist seeking to evaluate alternative therapies and wanted the name of the psychiatrist who claimed the astonishing high cure rate for cancer mentioned on the website. Hopefully we'll engage in some dialogue after a discussion with the individual she depicted as selling snake oil. Even if we don't have any meaningful dialogue perhaps I'll be in touch with the psychiatris who could turn out to be an important ally to the LDN cause. Elliot > > Hi Bren, > > I wrote jelinab, too; I suggested a visit to > > http://tinyurl.com/2boot2 > > If there ever was a wonder drug, LDN is it! > > Best regards, > > Dudley Delany > > dudley_delany > > > [low dose naltrexone] Re: LDN - Low Dose Naltrexone for jelinab > > > I sent this email to that jerk. > > LDN-Low Dose Naltrexone > > It's a shame you were not at the 2007 LDN Conference I organized and > hosted at Vanderbilt University in Nashville, TN. You would have met > many including myself and my mom whose lives have been changed for the > better because of 4.5mg LDN. I was diagnosed chronic progressive MS > Dec. 1989, started 4.5mg LDN July 2003 and LDN has halted my disease > progression dead in its tracks for over 4 years now. My mom was > diagnosed with a very aggressive breast cancer, was told if she did > not take chemo the cancer would no doubt return, my mom refused chemo > and is taking 4.5mg LDN as her cancer treatment, that was 3 1/2 years > ago that she was diagnosed with breast cancer, on LDN she's cancer > free still today and not feeling the ill effects of chemo and living > life to the fullest and will be 70 years old January 08. My grandma > who will soon be 89 January 08 has advanced Alzheimer's and has been > on 4.5mg LDN as her treatment. LDN actually improved my grandma's > Alzheimer's, my grandma is unable to be alone during the day or night > NOT taking LDN but she CAN stay alone on LDN while my aunt works an 8 > hour day. My grandma is transported every weekend 50 miles one way on > Friday to her old home then back 50 miles to her other home for the > week on Sunday and any other Alzheimer's patient would shrivel up and > die due to all that change, my grandma hasn't progressed/worsened at > all in over 2 years because of the LDN. My grandma's squamous cell > carcinoma was removed Dec. 2 years ago and no chemo or radiation was > given, her only treatment has been 4.5mg LDN and my grandma's cancer > has not returned. My best friend with Lupus is on LDN 4.5mg and is no > longer progressing. So it looks as if you haven't done your > homework. I thank GOD everyday for Dr. Bernard Bihari's work, I have > a life worth living now. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Can anyone tell me anything good in regards to Chronic Progressive MS? Some good info could be a great Christmas Gif!! Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Hi Stan,Chronic progressive MS has been helped by LDN. See, for example, the book written by Bradley:http://www.marybradleybooks.comFor more information about LDN in the treatment of MS, visithttp://tinyurl.com/grpm9Best regards,Dudley Delany dudley_delanyFrom: Stanley Hunt Sent: Monday, December 24, 2007 2:44 PM low dose naltrexone Subject: Re: [low dose naltrexone] Re: LDN - Low Dose Naltrexone for jelinab Can anyone tell me anything good in regards to Chronic Progressive MS? Some good info could be a great Christmas Gif!! Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2007 Report Share Posted December 25, 2007 Thanks for your comments, pretty much the same as you responded to everyone else's, so I'll share with the groups so you don't have to send out form letters to everyone. The only intent and interest was to bring information up to 2007, not 2002 or 2004. Take it for what it's worth. There's no hate & venom, just better health, sense of humor, and real happy we can still type. Namaste Re: LDN - Low Dose Naltrexone for jelinab First of all the comments that so Offended you werewritten in 2002 and before you go criticizing me fornot updating let me point out that the treatmenthistory of MS using LDN by stops in 2004. At the sametime the LDN website touts the fact that MS Societywas going to start a study in late 2007. I do thankyou for your e-mails had you and your fellow groupmembers not e-mailed me I may have never known aboutthat study. To answer your questions, Yes I read the website andDr. Bihari's CV when I wrote what I did in 2002.No I was not bought out by the CRAB's the MS Societyor any other organization.Here's a few questions for you,What is QEFTSG on SP?Have you ever heard of lasiks? In the late 70's early80's it was touted to cure cancer many people wereaffected by it because they did the same as some othersheep. The "drank the Kool-Aid". Only ot find it wasnot the miracle it was touted to be. I also thank you for being a champion of the cause ofLDNand leading the charge to straighten me out in yourgroup. Yes this is not such a civile-mail. because you and everyone else who chose topost the website and the e-mail address were in directviolation of the rules set down by your LDN group leader. If you bothered to read the wholewebsite you would find that I encourage all people tobe proactive in the treatment of their disease,educate themselves, challenge their doctors. The MSSociety does not endorse my website nor does the MSassociation, or the MS foundation. If you notice theMS logo is nowhere to be found on the alternativetreatments page... reason being they did not like thefact that I wrote about medical marijuana andrequested I remove their logo from that page. You seeIhave no qualms about alternative treatments the use ofor the study of. If you read the part about bee stingtherapy I do not discount it or its effectiveness. Ifyou click on this link of the website you will see Iam also attempting to do my part.http://www.jelinab-mswalk.net/Brake-Well.html Finally since none of you were on the phone when Ispoke to Dr.Bihari in 2002 when I was approached abouta link to the LDN website from ours you have no ideaof the content of the conversation. Also it was theLDN website that touted a 98% success rate in thetreatment of MS as well as a host of other illnessesand diseases. I researched the validity of his claimsby calling the National Multiple Sclerosis ResearchInstitue in Torrey Pines California as well as theEastern Paralyzed veterans Association. They are theones who published the MS Quarterly review when Ifirst put the website up and where the majority of myinformation came from about the Crab drugs.As for my association with the MS Society I onlyasscoiate with them in the form of participating inthe Challenge Walks each year. I choose to particpatein their fund raisers and donate to them because theyhave the lowest administration costs of the big 3previously mentioned NMSS, MSF and MSA. I wish you continued success with your LDN and will domore research into the status of LDN and itsstudies.Perhaps you and your fellow group members hateand venom would be better serve by petitioning theNational MS research Institute in Torrey PinesCalifornia to start a study on the effects of LDN intreating MS. With all that money you all are saving onmedications you could help to fund the research withdonations to them. Thier administrative costs are justunder 8% per year.--- LarryGC <larrygc@...> wrote:> In response to>http://www.jelinab-mswalk.net/alternative_treatments.html> > > Did you READ the LDN website and Dr. Bihari's CV?> > > http://ldninfo.org/> > > http://ldninfo.org/bbihari_cv.htm> > http://www.larrygc.com/mystory is my own personal> story> > And this year my dad was DX with stomach cancer, in> March, they gave him SIX months to live. We got a> doc to put him on LDN 3/28; 9/4 CT scan showed the> tumors were 1/2 the size as from March. LDN saved> my dad's life.> > My brother is on it for sarcoidosis and is stable on> it.> > Everything you wrote needs to be re-examined, you're> close... but this is no snake oil. It Orchestrates> your immune system, and Dr. Bihari's daughter's> friend with MS is a true story of the roots.> > WHY doesn't everyone know about it? I pay less> than $20/month for my 3.0 MG fills. TWENTY a month,> less than half a cup of coffee per DOSE. WHY isn't> it well known? The same reason we don't have> Electric cars. The same reason marijuana is illegal> and alcohol & tobacco aren't.> > There seems to be a very high success rate. And you> can't say it's placebo or snake oil, the little> kids and babies being treated transdermally while> they SLEEP have NO Idea they're taking LDN, and> they're coming out of their shell. NO FURTHER> TESTIMONY is required now.> > My 10/04 killer staph infection was enough to prove> the value to me.> > Maybe it's time to do some more research, unless> your site has been bought by the CRAB people. The> CRAB people. They're the ones who did QEFTSG on SP.> Hysterical.> > > HAVE A NICE DAY > > > > -- LarryGC/LarryLDN LDN Info rrms (links are for> more info)> > > Quote Link to comment Share on other sites More sharing options...
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