Re: Nell and other Dr. Megon Goers - Bethanechol

[Guest guest]

>

> Hi All,

>

> Has anyone ever checked into whether the Vitamin A that should be in

> place before any Bethanechol is tried has to be the cis form?

I haven't been back to see her since we talked about that, but

amazingly I haven't forgotten. I think n's next appointment is in

Nov.

n didn't tolerate CLO for a long time either, but NN's ProEFA he

did, if that helps.

Nell

[Guest guest]

Hi, we saw Megson a long time ago and had to use CLO 2 months before (even tho

son's vit a levels were normal) starting b-chol... Hope this helps :-)

lanellici <lanellici@...> wrote:

>

> Hi All,

>

> Has anyone ever checked into whether the Vitamin A that should be in

> place before any Bethanechol is tried has to be the cis form?

I haven't been back to see her since we talked about that, but

amazingly I haven't forgotten. I think n's next appointment is in

Nov.

n didn't tolerate CLO for a long time either, but NN's ProEFA he

did, if that helps.

Nell

---------------------------------

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[Guest guest]

>

> Hi, we saw Megson a long time ago and had to use CLO 2 months before

(even tho son's vit a levels were normal) starting b-chol... Hope this

helps :-)

>

> > ---------------------------------

>

Hello ,

Just wondered how your son did or is still doing with the benechol.

Our son is on CLO, and our appt for the benechol first dose is Sept

28th. We are not seeing Megson tho, but a DAN Dr in UK. I am very

hopeful that there will be a tangible difference. We think he is

already communicating better since the CLO started, although he also

had no deficiency in vit A either.

Any news appreciated Sue

[Guest guest]

Anne,

Have you tried the CLO Blue Ice? It says on the label that it

is " unique in the industry offering a premium quality High Vitamin Cod

Liver Oil without the addition of synthetic or soy-based

antioxidants. " Maybe that would address the problem?

Anita

>

> Hi All,

>

> Has anyone ever checked into whether the Vitamin A that should be in

> place before any Bethanechol is tried has to be the cis form? I am

> interested in following up on this with our Dr., but Asher doesn't

seem

> to be doing well with any soy derived stuff, including CLO. For

> omegas, I have him on flax oil and borage oil now.

>

> Thanks,

>

> Anne

>

[Guest guest]

Anita,

I have never tried that, no. In fact, I had no idea there was a non-

soy based CLO out there. Thanks for the information! I will look

into it. Are you by any chance using it?

Anne

> >

> > Hi All,

> >

> > Has anyone ever checked into whether the Vitamin A that should

be in

> > place before any Bethanechol is tried has to be the cis form? I

am

> > interested in following up on this with our Dr., but Asher

doesn't

> seem

> > to be doing well with any soy derived stuff, including CLO. For

> > omegas, I have him on flax oil and borage oil now.

> >

> > Thanks,

> >

> > Anne

> >

>

[Guest guest]

We do use it here Anne. I bought it from here

http://www.greenpasture.org/ . The people at Nourishing Traditions

recommend it. DS has virtually no Vitamin A in him in spite of

heavy supplementing with other CLOs(#%#%$^@ measles virus) and so

although we've not got any problems with soy, I chose this CLO as it

is supposed to have the highest concentration of cis A. I also use

the butter oil, although I cannot speak at all to its efficacy.

As far as taste goes, I cannot give you much information.

Apparently the mint is supposed to be the best flavour for kids, but

this stuff does taste more like the old-fashioned CLO. Yuck. Good

news is you should need less of it.

HTH,

Anita

PS Thanks for all the ammonia talk. It is something I'm looking

into now. :-)

>

> Anita,

>

> I have never tried that, no. In fact, I had no idea there was a

non-

> soy based CLO out there. Thanks for the information! I will look

> into it. Are you by any chance using it?

>

> Anne

>

[Guest guest]

When there is chronic inflammation as there is with any long standing disease,

natural cis A has a hard time getting in. We always try and give a combination

with clo and another water soluble source which has a much quicker uptake, like

retinyl acetate.

[ ] Re: Nell and other Dr. Megon Goers - Bethanechol

We do use it here Anne. I bought it from here

http://www.greenpasture.org/ . The people at Nourishing Traditions

recommend it. DS has virtually no Vitamin A in him in spite of

heavy supplementing with other CLOs(#%#%$^@ measles virus) and so

although we've not got any problems with soy, I chose this CLO as it

is supposed to have the highest concentration of cis A. I also use

the butter oil, although I cannot speak at all to its efficacy.

As far as taste goes, I cannot give you much information.

Apparently the mint is supposed to be the best flavour for kids, but

this stuff does taste more like the old-fashioned CLO. Yuck. Good

news is you should need less of it.

HTH,

Anita

PS Thanks for all the ammonia talk. It is something I'm looking

into now. :-)

>

> Anita,

>

> I have never tried that, no. In fact, I had no idea there was a

non-

> soy based CLO out there. Thanks for the information! I will look

> into it. Are you by any chance using it?

>

> Anne

>

[Guest guest]

WE are using the Blu Ice CLO--what a interesting fact. My husband

uses it. My son is on NOrdic Naturals. When he brought it home, I

was suspicious as Ive never heard of it before. A friend from work

(who is an organic grower) buys this stuff by the cases and swears by

it. He gives it to his whole family.

We have the cinnamon Tingle flavor and let me tell you it smells

pretty tingly. Im going to ask Dr Megson about it on our next trip to

VA in October. After all Ive read, it sounds like the best out there.

If she gives the OK--Im switching. Something without soy sounds good

to me.

Tracey

[Guest guest]

> As far as taste goes, I cannot give you much information.

> Apparently the mint is supposed to be the best flavour for kids, but

> this stuff does taste more like the old-fashioned CLO. Yuck.

My daughter and I are making our way through a bottle of NN's

peach-flavored CLO. I swear I'm gagging just typing that. She's said

if I throw the bottle away she'll buy a new one -- different flavor!

-- out of her allowance.

Thanks for posting that site, I'm all over it.

Nell

[Guest guest]

, I had no idea! Where did you find this out? We're doing

only cis A right now, where does one find retinyl acetate?

Thanks

René

>

> When there is chronic inflammation as there is with any long

standing disease, natural cis A has a hard time getting in. We always

try and give a combination with clo and another water soluble source

which has a much quicker uptake, like retinyl acetate.

[Guest guest]

Wish I would have worded this differently. The natural cis A in cod liver oil is

fat soluble and has a slower uptake than the water soluble Vitamin A. Fat

soluble Vitamin A is dependent on someone's ability to properly absorb and

distribute the A, not something a lot of our kids can do.

This is particularly true of anyone who's digestion is not working properly.

There is a discussion of this in Baker and Pangborn's new book, although I have

read this elsewhere prior to reading it there.

Water soluble A, on the other hand is not dependent on someone's ability to

absorb fat. We are still buying retinyl acetate in our town, although I

understand Twin Labs is no longer making it. Last time my dd bought all they

had.

You can use retinyl palmitate, but some kids have more trouble with that form,

although I don't think we do here. Megson is not big on retinyl palmitate.

You can still purchase the retinyl acetate in Twin Labs Allergy A and D, but

would be limited in the amount you could give as you would overdose the D.

[ ] Re: Nell and other Dr. Megon Goers - Bethanechol

, I had no idea! Where did you find this out? We're doing

only cis A right now, where does one find retinyl acetate?

Thanks

René

>

> When there is chronic inflammation as there is with any long

standing disease, natural cis A has a hard time getting in. We always

try and give a combination with clo and another water soluble source

which has a much quicker uptake, like retinyl acetate.

[Guest guest]

LOL Nell! Our kids certainly have a different view of the world--how

many other children talk about spending their allowance on CLO? The

other day my dd was making up her own little rock song--not an

uncommon thing for an 8 year old--except hers was

entitled " Magnesium " :-)

Anyway, I know that the NN oils are highly recommended, but I tried

three different bottles of the CLO and they all tasted horrible to me

(DH is taking them now ;-)) I had much better luck with the Carlsons

and it is cheaper too. But for now we're sticking with the $$$$ Blue

Ice.

Anita

>

>

> My daughter and I are making our way through a bottle of NN's

> peach-flavored CLO. I swear I'm gagging just typing that. She's said

> if I throw the bottle away she'll buy a new one -- different flavor!

> -- out of her allowance.

>

> Thanks for posting that site, I'm all over it.

>

> Nell

>

[Guest guest]

I know I thought it was odd and strange to hear my three year old

running around saying " probiotic " and laughing like it was a nursery

rhyme. Or sometimes he yells...Gummi Zincs! Sad that he even has to

know what those things are. Sadder is that his 11 year old sister

has offered to use her allowance to buy his supplements...

> >

> >

> > My daughter and I are making our way through a bottle of NN's

> > peach-flavored CLO. I swear I'm gagging just typing that. She's

said

> > if I throw the bottle away she'll buy a new one -- different

flavor!

> > -- out of her allowance.

> >

> > Thanks for posting that site, I'm all over it.

> >

> > Nell

> >

>