Guest guest Posted November 11, 2006 Report Share Posted November 11, 2006 Any version of the Cobating Autism Act that is passed in the next couiple of weeks will need to have money appropriated to it in the next Congress, A bill may get passed in the next few weeks, that doesn't mean Congress will need to spend money on it. So why should we compromise to please Joe Barton and other members of Congress who will either have no power in a couple of weeks, or, like Santorum, will be looking for a new job? What makes the advocates of the CAA think the Democrats are going to be in any way inclined to fund this bill as it stands now, especially given the tepid support for it in the autism community? Please explain this to me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 I completely concur. At this point, I truly feel that if this bill gets passed, it will be worse for us in the long run. I honestly feel that everyone should let up on the pressure and let it die a painless death. The parents who came before me have done an outstanding advocacy job assuring that Autism and the spectrum disorders have had their share of press and that there is more understanding about these issues.Am I alone in feeling that being backed into a corner, accepting a pittance and then having to deal with a potential backfire of a poorly written/modified bill that has been slashed to pieces and too many areas in which it is sorely lacking, is NOT preferable to nothing at all? I honestly believe that if it is passed, and does pretty much a bunch of nothing, or next round on the ballot will have the gut reaction from people that a bill was just passed re: autism.I would love to hear anyone Else's opinion about this. BTW - I have to say that we have an absolutely amazing bunch of people here - I have not once heard any partisan stuff!!!! That is really amazing, especially for a lot of us who are Republican and are stuck in a situation in which we are watching the party that allies closest with our values, ignore the people in society who need them the most ! I apologize everyone for being such a lurker and kind of dive bombing issues as I see them. I realize that it is kind of rude, of course LOL I have never been able to keep my mouth shut. I am in the midst of a VERY uncomfortable situation at work, and have been pretty emotional - then of course my p-doc stopped seeing civilians and by the time I found a new doc - my meds were so out of kilter it was unreal. Thank you for bearing with me and continuing to make me feel welcome here! (add, ocd, sub-clinical bp)Mom to: Max 18 adhd/ld/sid, Molly 14 AS, BP, PTSD, SaraCait 9 Adhd, r/o BP and Hope 5 Autism + add type symptoms - on abilify and tenex + GF Diet.Joy is a net of love by which you can catch soulsMother b. 1910Founder, Missionaries of Charity Gilmore <yogilmore@...> wrote: Any version of the Cobating Autism Act that is passed in the next couiple of weeks will need to have money appropriated to it in the next Congress, A bill may get passed in the next few weeks, that doesn't mean Congress will need to spend money on it. So why should we compromise to please Joe Barton and other members of Congress who will either have no power in a couple of weeks, or, like Santorum, will be looking for a new job? What makes the advocates of the CAA think the Democrats are going to be in any way inclined to fund this bill as it stands now, especially given the tepid support for it in the autism community? Please explain this to me. Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 What do you think the best approach would be to secure funding for autism research? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 That's a good question. It depends on what research is financed. Most of the research funds to date have been used for genetic studies that haven't produced much of anything of use to people with autism, or epidemiological studies that consistently show huge increases in the insidence of autism but then unsupported conclusions are made that this is the result of changes in diagnostic criteria and better case finding. This is the statndard CDC argument. If you want to finance this stuff, which is the basis of the vast majority of the current Combatting Autism Act, I can think of much beetter things to do with the money. > > What do you think the best approach would be to secure funding for autism > research? > Quote Link to comment Share on other sites More sharing options...
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