Re: Where do you get patience?

[Guest guest]

It is overwhelming, many times. I don't want to sugar coat this, because it IS

hard. Most kids need a minimum of a year, most two before all the metals are

removed.

Most of the kids are like yours, little gains every round, but they add up. It

goes a lot faster than you think it will, and there will be many ups and downs,

prepare yourself for these.

Mostly you just trudge onward, because there are no other good choices. Other

people here make it a lot better.

Life does get easier, a little bit at a time. Count yourself lucky that the

chelation is bringing improvement, that's great!

[ ] Where do you get patience?

Many of you have seen me on this site now. My son, 5 y.o. with ASD,

diagnosed in Nov. 2005.

We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT. We

have seen little improvements. We are now doing chelation -- round 3.

He has made small gains. How many rounds does it take to get the job

done? When will I see significant gains?

So how do you folks get patience? I don't know if my son will ever

function normally. I'm tired of hearing everyone else talk about their

NT kids. I'm tired of going to the park and hearing the sounds of

normal families. Does life ever get easier? What did my son do to

deserve this? There are certain times I feel so frustrated, I wish I

were dead. I'm in one of those off moods and rather than talking to

myself, just started typing away. Dear God, sometimes I feel so alone.

=======================================================

[Guest guest]

Hon, my son is 25. I've lived with this autism thing for a loooooong time.

You are SO fortunate to know how to get him back. I wish I could have

started when my son was much younger.

Just hang in there, and take it one round at a time. Pretty soon those two

years or whatever will be over, and you'll be SO GLAD you invested all this

time in giving him a better chance at life.

Barb

[ ] Where do you get patience?

Many of you have seen me on this site now. My son, 5 y.o. with ASD,

diagnosed in Nov. 2005.

We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT. We

have seen little improvements. We are now doing chelation -- round 3.

He has made small gains. How many rounds does it take to get the job

done? When will I see significant gains?

So how do you folks get patience? I don't know if my son will ever

function normally. I'm tired of hearing everyone else talk about their

NT kids. I'm tired of going to the park and hearing the sounds of

normal families. Does life ever get easier? What did my son do to

deserve this? There are certain times I feel so frustrated, I wish I

were dead. I'm in one of those off moods and rather than talking to

myself, just started typing away. Dear God, sometimes I feel so alone.

=======================================================

[Guest guest]

You are not alone. There is no doubt about it, this is the hardest

thing I have ever been through. I have to fall apart ever so

often. I cry, scream, pray and then pick myself up and go on

because I can't live with giving up on my children because it was

too hard. This is my only choice. I am happy that I have this

option, as hard as it is. So grateful to those that went before me

and to those on these lists who are going through it with me. Hang

in there - I believe it will get easier.

>

> Many of you have seen me on this site now. My son, 5 y.o. with

ASD,

> diagnosed in Nov. 2005.

>

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT.

We

> have seen little improvements. We are now doing chelation --

round 3.

> He has made small gains. How many rounds does it take to get the

job

> done? When will I see significant gains?

>

> So how do you folks get patience? I don't know if my son will

ever

> function normally. I'm tired of hearing everyone else talk about

their

> NT kids. I'm tired of going to the park and hearing the sounds of

> normal families. Does life ever get easier? What did my son do

to

> deserve this? There are certain times I feel so frustrated, I

wish I

> were dead. I'm in one of those off moods and rather than talking

to

> myself, just started typing away. Dear God, sometimes I feel so

alone.

>

[Guest guest]

Hi Sir,

Good day and God pls u. Patience comes from unconditional love for your child

and trust in God. This will give you the willingness to do anything for your son

to help him. Am not sure you were in a worst situation than us. We live in a

third world country with zero medicare/education for ASD children, a lot of

crime, violence and double digit inflation. We are committing close to 60% of

our income to care for our ASD son. We have to buy all his drugs and food from

the UK and USA and to get them in country is a miracle due to the cost of flying

things in. My wife was refused a visa to take our son who is a US citizen to the

US to see a DAN Doctor. I had to take 2 weeks unpaid leave to do this and there

also goes our close to 2 yrs savings for our house and other things. In our

community their is little to no understanding of ASD so we get terrible looks in

public in church etc but we never gave up becos of unconditional love and trust

in God. Our son is doing very very well

on biomed intervention. The web and groupd have been a blessing. In order

not to miss out all the inforrmation we have had to spend close 3000 USD dollars

equivalent to install a wireless internet system to be able to email and read

the internet (ther goes another 1.5 yr savings). The question you will ask is

how is our son doing. He is doing very well on ABA and biomed - we do the ABA

our selves based on what we read on the web. There are very few language

pathologists here - we get help from a psychologist who has learnt SLP on his

own . Our son who is 4 plus is in normal school, plays, reads, is almost

conversational in communications and his body health is excellent and we are yet

to start chelation. Our drugs for Chelation will arrive from the US next week we

intend to use the ALA and DMSA using andy's protocol. He has lost a lot of his

asd symptons.

My suggestions are as follows:

With your son's age you need intensive ABA try contarting the CARD organization

to see if they are in your locality - www.centerforautism.com

Wish we had access to ABA ourselves.

For biomed you need to get a good DAN doctor - pls try contacting Dr Liz Mumper

will send email address to you.

For Home ABA Dr Brown of University of Tennesse has a practical ABA ebook

for non technical people to run ABA its been very helpful to us.

An ABA doctor will help you do the right tests and work on your best choices.

ASD is very specific and their are no silver bullets. Furthermore, pls get the

DAN manual ie. Biomdical interventions by Sidney Baker et al - very very

excellent book.

Do hope my response has been helpful. In gratitude to God for what he has done

for us - we intend to open up a school in the next two months in Port Harcourt

Nigeria to treat and school autistic chilldren. We intend to seek funds and help

from abroad to maintain this facility. In due course we intend to appeeal to the

site moderator to see if we will be allowed to rasie funds from this web group.

We will do nothing without permission.

In conclusion - always remeber to pray until something happens - God never

fails....my son's ASD has been a big blessing - has thought me things I do not

know, has improved my parenting and patience skills. Furthermore, has also

given me and my lovely wife and opportunity to bless and be blessed by others.

We are so grateful to God. So teach your ASD child to always say JESUS HEAL

(HIS/HER NAME). The Lord hears the prayers of young ones.

Rgds,

Chidi Izuwah (Snr)

[ ] Where do you get patience?

Many of you have seen me on this site now. My son, 5 y.o. with ASD,

diagnosed in Nov. 2005.

We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT. We

have seen little improvements. We are now doing chelation -- round 3.

He has made small gains. How many rounds does it take to get the job

done? When will I see significant gains?

So how do you folks get patience? I don't know if my son will ever

function normally. I'm tired of hearing everyone else talk about their

NT kids. I'm tired of going to the park and hearing the sounds of

normal families. Does life ever get easier? What did my son do to

deserve this? There are certain times I feel so frustrated, I wish I

were dead. I'm in one of those off moods and rather than talking to

myself, just started typing away. Dear God, sometimes I feel so alone.

=======================================================

[Guest guest]

I can only speak for myself here, but there have been days and

probably will be days that I could have written your very words. But

remember this scripture and draw some comfort from it:

9: 1 - 3

" As he went along, he saw a man blind from birth. His disciples

asked him, " Rabbi, who sinned, this man or his parents, that he was

born blind? " Neither this man nor his parents sinned, " said

Jesus, " but this happened so that the work of God might be displayed

in his life. "

This has certainly been true for us. Remember you are not alone. I

long for boring typical days at the park or the mall. I want to

enjoy worship service as a family. Day by day, my daughter is

improving. I have faith that she will be neurotypical. Many

recommend keeping a journal. This will allow you to look back and

see the gains.

We are in an epic battle, so here's a quote from my all time

favorite movie, Lord of the Rings: " This task was appointed to you;

if you don't find the way, no one will. "

Every child is different, but others have " recovered " their

children. We too will find the way for our children!

>So how do you folks get patience? I don't know if my son will ever

function normally. I'm tired of hearing everyone else talk about

their NT kids. I'm tired of going to the park and hearing the

sounds of normal families. Does life ever get easier? What did my

son do to deserve this? There are certain times I feel so

frustrated, I wish I were dead. I'm in one of those off moods and

rather than talking to myself, just started typing away. Dear God,

sometimes I feel so alone.

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

Thank you for that post. I have been having the same kind of week.

Not that I am glad anyone else is going through this, but it does

help to know that I am not alone :-( When the going gets really

bad, I just sit back with a glass of wine and cry. Then I get

myself together and keep plugging away. I don't know that my son

will ever be what he would have been without having gone through

this, but he is generally happy and I do think it is possible to

make him healthy, and that is my primary goal.

Best

Anne

>

> Many of you have seen me on this site now. My son, 5 y.o. with

ASD,

> diagnosed in Nov. 2005.

>

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT.

We

> have seen little improvements. We are now doing chelation --

round 3.

> He has made small gains. How many rounds does it take to get the

job

> done? When will I see significant gains?

>

> So how do you folks get patience? I don't know if my son will

ever

> function normally. I'm tired of hearing everyone else talk about

their

> NT kids. I'm tired of going to the park and hearing the sounds of

> normal families. Does life ever get easier? What did my son do

to

> deserve this? There are certain times I feel so frustrated, I

wish I

> were dead. I'm in one of those off moods and rather than talking

to

> myself, just started typing away. Dear God, sometimes I feel so

alone.

>

[Guest guest]

my son is doing great now but when i first started the interventions he wasnt

doing all that great and i honestly felt like i didnt have a son. thats all

changed now but when i use to feel that way i read the messages on a group

called 'brain injured children'. i was looking into to get info on

neurodevelopmental therapy. anyways, some of those post from parents with

children with severe brain injury made me wanna get on my knees and thank god

that i was lucky enough to have a child with autism. one post in particular

always stuck out to me, it was from a mother who was beaming with exstatic joy

that her daughter finally learnt how to use a straw to drink from a cup

with...as i read i couldnt help smiling while i read and could almost feel the

mothers joy coming through in her words. that is until i got to the end of the

post and she said her daughters name was susan and was 12 years old and severly

brain damaged from a car crash when she was three. every time ive wanted to feel

sorry for myself that post keeps popping up in my mind. if you want another

downer story to in some odd way lift your spirits about your situation (anyone

reading this) visit this website. (warning though...its gonna bring you down)

http://www.geocities.com/angelmomfriends5/kayla1.html

[ ] Re: Where do you get patience?

Thank you for that post. I have been having the same kind of week.

Not that I am glad anyone else is going through this, but it does

help to know that I am not alone :-( When the going gets really

bad, I just sit back with a glass of wine and cry. Then I get

myself together and keep plugging away. I don't know that my son

will ever be what he would have been without having gone through

this, but he is generally happy and I do think it is possible to

make him healthy, and that is my primary goal.

Best

Anne

>

> Many of you have seen me on this site now. My son, 5 y.o. with

ASD,

> diagnosed in Nov. 2005.

>

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT.

We

> have seen little improvements. We are now doing chelation --

round 3.

> He has made small gains. How many rounds does it take to get the

job

> done? When will I see significant gains?

>

> So how do you folks get patience? I don't know if my son will

ever

> function normally. I'm tired of hearing everyone else talk about

their

> NT kids. I'm tired of going to the park and hearing the sounds of

> normal families. Does life ever get easier? What did my son do

to

> deserve this? There are certain times I feel so frustrated, I

wish I

> were dead. I'm in one of those off moods and rather than talking

to

> myself, just started typing away. Dear God, sometimes I feel so

alone.

>

=======================================================

[Guest guest]

> Many of you have seen me on this site now. My son, 5 y.o. with ASD,

> diagnosed in Nov. 2005.

My son was dx when he was 3-1/2. He is 10 now. I removed all

supplements 2 days ago, and so far he is doing better than ever.

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT. We

> have seen little improvements. We are now doing chelation -- round 3.

> He has made small gains. How many rounds does it take to get the job

> done? When will I see significant gains?

For my son, 100 rounds over 2-1/4 years. I did not see significant

gains from chelation, only small gains. But, chelation allowed him to

tolerate all foods, and eliminated his gut yeast problem, and most

importantly, allowed him to tolerate the supplements which DID recover

him.

> So how do you folks get patience?

Who says I have patience??!

>>I don't know if my son will ever

> function normally. I'm tired of hearing everyone else talk about their

> NT kids. I'm tired of going to the park and hearing the sounds of

> normal families.

Every time I go to the park, I see signs of kids who have metals

issues, and their parents are entirely ignorant of the underlying

cause. At least I know why my kids have the issues they do.

>> Does life ever get easier?

Yes. My " classic Kanner's autism " , severe, low functioning child, who

initially assessed as developmentally 0-3 months, who the pedneuro

told me to put in an institution when he was 3-1/2, is now no longer

autistic. I had him assessed recently [private, independent

assessment], and he assesses as developmental level age 5-6. Here is

a recent picture of him playing " House "

http://www.danasview.net/2_log_house.jpg

>>What did my son do to

> deserve this?

The Bible verse posted by someone else, is one of my favorite verses.

No doctor has ever seen my son except for his initial dx. No school

district has ever seen my son AT ALL. I recovered him by myself, with

lots of help from other parents on this and other message boards, and

lots of research, and lots of prayer. If *I* can do this with a

severe, low functioning child, so can you. But yes, it is very

aggravating and frustrating and lonely and sad. Everyone here

basically can understand exactly how you feel.

Dana

[Guest guest]

>

> Many of you have seen me on this site now. My son, 5 y.o. with ASD,

> diagnosed in Nov. 2005.

>

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT. We

> have seen little improvements. We are now doing chelation -- round 3.

> He has made small gains.

This is *good.

How many rounds does it take to get the job

> done? When will I see significant gains?

IME (also started when my son was 5), it goes like this: glimpses of

improvement that disappear...more rounds...longer glimpses that

fade...more rounds...a whole terrific afternoon, then a

regression....more rounds....new abilities, never seen before, some of

which do not go away ever again....more rounds.....

Slowly, slowly...the good stuff lasts longer and longer and gets

deeper (i.e. moves from not being connected to anyone outside the

family, to being interested but not knowing how, to waving, to making

friends) as you plod through the rounds. In my son's case, antivirals

was a huge piece of the puzzle, as was diet (Feingold mostly).

Fiddling with supps not so much.

>

> So how do you folks get patience?

No other option. Also I try not to evaluate too much, day by day, and

I never wonder about the future. One thing that's made the process

much easier is that n almost always improves on-round, so having

that to look forward to was enough positive reinforcement.

> Does life ever get easier?

Yes. But man, there were some really tough years there. Painful and

just so hard. It is very isolating -- but you *aren't alone, everyone

here is with you.

Can you get out of the house today, even just to walk around the block

with no kids?

Nell

[Guest guest]

Abid,

I feel everything you are saying.

Some days I can cope alright. I am able to accept who my son is and

maybe that is who he will stay. Other days...I want to jump out the

window..but I remind myself that there would be no one to help him.

It is hard. Harder than anything I have been through. I have always

had a hard time of things but this takes the cake. It tears my heart

apart, everytime I see another child my son's age. I think, why my

kid? What makes mine so different that he was affected and not them?

We did everything we were supposed to do just like the other

parents. I fight with acceptance and anger all the time. I just keep

myself busy reading on how to help him and interventions to help

him. Some times is consumes me but I have to take a step back and

enjoy him as he is. It is hard to not let all this get in the way of

enjoying your child in whatever way you can. They still need love

and fun and whatever else you can give them.

I have accepted that things will just be harder for us, because we

can handle it. Many parents can not handle a healthy child let alone

one like ours. And the biggest thing..I remind myself that while

this is not what I planned...I still have my child. Many lose thier

children to disease, cancer, crime. So when I feel the lowest and

most depressed. I go into his room when he is asleep and just watch

him as the miracle that he is. Patience...that is hard, but I can

never give up on him. I also savor each tiny step of progress.

Best blessing to you and your son.

>

> Many of you have seen me on this site now. My son, 5 y.o. with

ASD,

> diagnosed in Nov. 2005.

>

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT.

We

> have seen little improvements. We are now doing chelation --

round 3.

> He has made small gains. How many rounds does it take to get the

job

> done? When will I see significant gains?

>

> So how do you folks get patience? I don't know if my son will

ever

> function normally. I'm tired of hearing everyone else talk about

their

> NT kids. I'm tired of going to the park and hearing the sounds of

> normal families. Does life ever get easier? What did my son do

to

> deserve this? There are certain times I feel so frustrated, I

wish I

> were dead. I'm in one of those off moods and rather than talking

to

> myself, just started typing away. Dear God, sometimes I feel so

alone.

>

[Guest guest]

You are not alone!! We all walk this journey together!!! Hang in

there and God Bless you!!! Melinda

>

> Many of you have seen me on this site now. My son, 5 y.o. with

ASD,

> diagnosed in Nov. 2005.

>

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT.

We

> have seen little improvements. We are now doing chelation --

round 3.

> He has made small gains. How many rounds does it take to get the

job

> done? When will I see significant gains?

>

> So how do you folks get patience? I don't know if my son will

ever

> function normally. I'm tired of hearing everyone else talk about

their

> NT kids. I'm tired of going to the park and hearing the sounds of

> normal families. Does life ever get easier? What did my son do

to

> deserve this? There are certain times I feel so frustrated, I

wish I

> were dead. I'm in one of those off moods and rather than talking

to

> myself, just started typing away. Dear God, sometimes I feel so

alone.

>

[Guest guest]

Normal Families:

I think being " normal " is overrated. And I think " normal families "

aren't as rosy an experience as one might fantasize.

Patience: When patience runs out, it usually means I need to take

some time to take care of myself. Being a parent can use on up until

one runs dry. This is true of all parents but with a special needs

child (or certain other burdens), it seems to happen more

than " usual " . Some years ago, I found that a large glass of water

and a 10 minute nap was sometimes the difference between feeling like

I could not go on and feeling like I could. Now, I also work on

making sure I take my vitamins, spend time with friends (if only by e-

mail), and pursue something which is personally enriching and

personally valued.

" What did my son do to deserve this? " -- If you are Christian, there

is a passage where someone asks why a child was born blind, was he

being punished and the answer was that it was not a punishment. If

you believe in Karma and reincarnation, I read a book about

reincarnation once where someone reincarnated as a slave in the Deep

South and enjoyed running barefoot. In a previous life, they had

been a privileged Chinese person, subjected to the torture of

the " fashionable " practice of footbinding.

The bible also says " the sins of the father are passed down unto the

fifth and sixth generation " . I think this can be true but does not

have to be true. Negative issues can be passed down and passed down,

getting less with each successive generation until they naturally go

away. Or one can actively seek to change the source of the issue and

refuse to let the child grow up continuing to bear the burden of past

mistakes. Many religions would call this " grace " or similar.

Everyone tries to blame the past and, like all half-truths, such a

viewpoint is insidious -- the kernel of truth makes it too easy to

believe. We all inherit something from a past not of our making. We

all move forward into a future which is partly beyond our control and

partly within it. We all face choices in life. You are choosing to

look for a means to try to address your son's problem and not simply

accept the official view that " it's genetic and you can do nothing " .

Five is still quite young. It is far too soon to give up hope.

Just a few rambling thoughts on a Sunday afternoon,

Michele in Limbo

[Guest guest]

You are not alone: Today, I watched my beautiful baby run in

circles on the beach while the NT kids played appropriately. I felt

my broken heart break further into million other pieces. With tears

rolling down my face, I followed her and took a picture of her foot

prints on the sand. The world never seemed darker or sadder than it

did at that moment. On the way home, while I was crying so bitterly,

all of a sudden I saw a rainbow. I stopped and took a picture and

felt that a tiny ray of light found itself into my soul. My baby was

in the car sleeping so peacefully like an angel. I looked at her

and swore that I am fighting for her until my last breath.

Please don't give up hope. Thank you for being such a wonderful

mom. Happy Mother's Day to you and to all the moms here. Thank you

all again for all the hope that you give me and for all your help.

Samar

>

> Many of you have seen me on this site now. My son, 5 y.o. with

ASD,

> diagnosed in Nov. 2005.

>

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT.

We

> have seen little improvements. We are now doing chelation --

round 3.

> He has made small gains. How many rounds does it take to get the

job

> done? When will I see significant gains?

>

> So how do you folks get patience? I don't know if my son will

ever

> function normally. I'm tired of hearing everyone else talk about

their

> NT kids. I'm tired of going to the park and hearing the sounds of

> normal families. Does life ever get easier? What did my son do

to

> deserve this? There are certain times I feel so frustrated, I

wish I

> were dead. I'm in one of those off moods and rather than talking

to

> myself, just started typing away. Dear God, sometimes I feel so

alone.

>

[Guest guest]

Oh, I appreciate you people so much! This is good to talk about. Two

of my favourite coping mechanisms for this crazy life are:

- meditating on a small bit of scripture and lots of prayer

- driving in the minivan by myself listening to some stinkin'loud

music from my dissipated youth :-).

Some of both, every day, if possible.

happy mother's day, all.

René

ps. here's a current favourite from The Message

(a contemporary paraphrase of the Bible)

Psalm 127:3-5

Don't you see that children are God's best gift?

the fruit of the womb his generous legacy?

Like a warrior's fistful of arrows

are the children of a vigorous youth.

Oh, how blessed are you parents,

with your quivers full of children!

Your enemies don't stand a chance against you,

You'll sweep them right off your doorstep.

>

> Thank you for that post. I have been having the same kind of week.

> Not that I am glad anyone else is going through this, but it does

> help to know that I am not alone :-( When the going gets really

> bad, I just sit back with a glass of wine and cry. Then I get

> myself together and keep plugging away. I don't know that my son

> will ever be what he would have been without having gone through

> this, but he is generally happy and I do think it is possible to

> make him healthy, and that is my primary goal.

>

> Best

>

> Anne

[Guest guest]

Most of you have probably seen the following, but it seems appropriate to repeat

it in light of the discussion on patience and the fact that today is Mother's

Day.

THESE MOMS SHARE SPECIAL GIFTS

by Erma Bombeck

Most women become mothers by accident, some by choice, a few by social

pressures, and a couple by habit. This year, nearly 100,000 women will become

mothers of handicapped children. Did you ever wonder how mothers of handicapped

children are chosen?

Somehow I visualize God hovering over Earth selecting his instruments for

propagation with great care and deliberation. As he observes, he instructs his

angels to make notes in a giant ledger. 'Armstrong, Beth, son, patron saint

. Forrest, Marjorie, daughter, patron saint Cecelia. Rudledge, ,

twins, patron saint...give her Gerard. He's used to profanity.' Finally he

passes a name to an angel and smiles, 'Give her a handicapped child.'

The angel is curious, 'Why this one, God? She's so happy.'

'Exactly,' says God. 'Could I give a handicapped child a mother who does not

know laughter? That would be cruel.'

'But has she patience?' asks the angel.

'I don't want her to have too much patience, or she will drown in a sea of self

pity and despair. Once the shock and resentment wear off, she'll handle it. She

has that feeling of self and independence that is so rare and so necessary in a

mother. You see, the child I'm going to give her has his own world. She has to

make him live in her world, and that's not going to be easy.'

'But, Lord, I don't think that she even believes in you.'

God smiles, 'No matter. I can fix that. This one is perfect. She has just enough

selfishness.'

The angel gasps, 'Selfishness? Is that a virtue?'

God nods, 'If she can't separate herself from the child occasionally, she'll

never survive. Yes, here is a woman whom I will bless with a child less than

perfect. She doesn't realize it yet, but she is to be envied. She will never

take for granted a spoken word. She will never consider a step ordinary. When

her child says Momma for the first time, she will be present at a miracle and

know it! When she describes a tree or a sunset to her blind child, she will see

it as few people ever see my creations.'

'I will permit her to see clearly the things I see...ignorance, cruelty,

prejudice...and allow her to rise above them. She will never be alone. I will be

at her side every minute of every day of her life, because she is doing my work

as surely as she is here by my side.'

'And what about her patron saint?' asks the angel, pen poised in midair.

God smiles, 'A mirror will suffice.'

<BR><br>><BR><br>> Many of you have seen me

on this site now.  My son, 5 y.o. with <BR><br>ASD, <BR><br>> diagnosed in Nov.

2005.  <BR><br>> <BR><br>> We have used vitamins, diet, probiotics, enzymes,

MB12 and HBOT.  <BR><br>We <BR><br>> have seen little improvements.  We are now

doing chelation -- <BR><br>round 3.  <BR><br>> He has made small gains.  How

many rounds does it take to get the <BR><br>job <BR><br>> done?  When will I see

significant gains?<BR><br>> <BR><br>> So how do you folks get patience?  I don't

know if my son will <BR><br>ever <BR><br>> function normally.  I'm tired of

hearing everyone else talk about <BR><br>their <BR><br>> NT kids.  I'm tired of

going to the park and hearing the sounds of <BR><br>> normal families.  Does

life ever get easier?  What did my son do <BR><br>to <BR><br>> deserve this? 

There are certain times I feel so frustrated, I <BR><br>wish I

<BR><br>> were dead.  I'm in one of those off moods and rather than talking

<BR><br>to <BR><br>> myself, just started typing away.  Dear God, sometimes I

feel so <BR><br>alone.<BR><br><br>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

I'm with Barb on this one. Still trekking along with a 21 year old.

What I wouldn't give to have found the information/interventions that

are available now when she was 5. You are SO fortunate!! and surely

not alone. Happy Mother's Day to all and Thank you for the sustenance

you all provide,

>

> Hon, my son is 25. I've lived with this autism thing for a

loooooong time.

>

> You are SO fortunate to know how to get him back. I wish I could

have

> started when my son was much younger.

>

> Just hang in there, and take it one round at a time. Pretty soon

those two

> years or whatever will be over, and you'll be SO GLAD you invested

all this

> time in giving him a better chance at life.

>

> Barb

> [ ] Where do you get patience?

>

>

> Many of you have seen me on this site now. My son, 5 y.o. with ASD,

> diagnosed in Nov. 2005.

>

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT. We

> have seen little improvements. We are now doing chelation -- round

3.

> He has made small gains. How many rounds does it take to get the

job

> done? When will I see significant gains?

>

> So how do you folks get patience? I don't know if my son will ever

> function normally. I'm tired of hearing everyone else talk about

their

> NT kids. I'm tired of going to the park and hearing the sounds of

> normal families. Does life ever get easier? What did my son do to

> deserve this? There are certain times I feel so frustrated, I wish

I

> were dead. I'm in one of those off moods and rather than talking to

> myself, just started typing away. Dear God, sometimes I feel so

alone.

>

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

Thanks for that great post . Sometimes we forget this, but we

were indeed chosen for a very special, tiring, and many times

difficult task. We may not have asked to be chosen, but I have no

doubt that in the long run we will all be tremendously blessed by the

experience. God bless each of you amazing moms out there!!

Sheresa

<BR><br>><BR><br>> Many of you have

seen me on this site now.  My son, 5 y.o. with <BR><br>ASD, <BR><br>>

diagnosed in Nov. 2005.  <BR><br>> <BR><br>> We have used vitamins,

diet, probiotics, enzymes, MB12 and HBOT.  <BR><br>We <BR><br>> have

seen little improvements.  We are now doing chelation --

<BR><br>round 3.  <BR><br>> He has made small gains.  How many rounds

does it take to get the <BR><br>job <BR><br>> done?  When will I see

significant gains?<BR><br>> <BR><br>> So how do you folks get

patience?  I don't know if my son will <BR><br>ever <BR><br>>

function normally.  I'm tired of hearing everyone else talk about

<BR><br>their <BR><br>> NT kids.  I'm tired of going to the park and

hearing the sounds of <BR><br>> normal families.  Does life ever get

easier?  What did my son do <BR><br>to <BR><br>> deserve this?  There

are certain times I feel so frustrated, I <BR><br>wish I

> <BR><br>> were dead.  I'm in one of those off moods and rather than

talking <BR><br>to <BR><br>> myself, just started typing away.  Dear

God, sometimes I feel so <BR><br>alone.<BR><br><br>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

[Guest guest]

What a wonderful Mother's Day gift you all are! I'm printing the

original poster who sums up the days I have every now and then, and

the bitterness I try not to let myself feel towards those with NT

kids who will never " get it. " I'm also printing each of your posts

to remind me when I do get one of those days (had one yesterday)

just what a gift from God you all are, and how you inspire me to

keep going with my daughter, who is God's gift to me as well, and

whom I have to keep reminding myself is also God's child, He just

loaned her to me for this time on earth, even though some of the

days can seem long and hard and make you want to cry and scream at

the world, " Why did this have to happen to my child!!! " But thank

you all for letting us know we're not alone and reminding us to

always look back to see how far we've come.

God's blessings to all of you, in all that you're doing for our

children and passing on to others to help them through their

suffering.

Anita, mom to Kaycie, 11 years old with Aspergers

>

> Hi Sir,

>

> Good day and God pls u. Patience comes from unconditional love for

your child and trust in God. This will give you the willingness to

do anything for your son to help him. Am not sure you were in a

worst situation than us. We live in a third world country with zero

medicare/education for ASD children, a lot of crime, violence and

double digit inflation. We are committing close to 60% of our income

to care for our ASD son. We have to buy all his drugs and food from

the UK and USA and to get them in country is a miracle due to the

cost of flying things in. My wife was refused a visa to take our son

who is a US citizen to the US to see a DAN Doctor. I had to take 2

weeks unpaid leave to do this and there also goes our close to 2 yrs

savings for our house and other things. In our community their is

little to no understanding of ASD so we get terrible looks in public

in church etc but we never gave up becos of unconditional love and

trust in God. Our son is doing very very well

> on biomed intervention. The web and groupd have been a

blessing. In order not to miss out all the inforrmation we have had

to spend close 3000 USD dollars equivalent to install a wireless

internet system to be able to email and read the internet (ther goes

another 1.5 yr savings). The question you will ask is how is our son

doing. He is doing very well on ABA and biomed - we do the ABA our

selves based on what we read on the web. There are very few language

pathologists here - we get help from a psychologist who has learnt

SLP on his own . Our son who is 4 plus is in normal school, plays,

reads, is almost conversational in communications and his body

health is excellent and we are yet to start chelation. Our drugs for

Chelation will arrive from the US next week we intend to use the ALA

and DMSA using andy's protocol. He has lost a lot of his asd

symptons.

>

> My suggestions are as follows:

>

> With your son's age you need intensive ABA try contarting the CARD

organization to see if they are in your locality -

www.centerforautism.com

> Wish we had access to ABA ourselves.

> For biomed you need to get a good DAN doctor - pls try contacting

Dr Liz Mumper will send email address to you.

> For Home ABA Dr Brown of University of Tennesse has a

practical ABA ebook for non technical people to run ABA its been

very helpful to us.

>

> An ABA doctor will help you do the right tests and work on your

best choices. ASD is very specific and their are no silver bullets.

Furthermore, pls get the DAN manual ie. Biomdical interventions by

Sidney Baker et al - very very excellent book.

>

> Do hope my response has been helpful. In gratitude to God for what

he has done for us - we intend to open up a school in the next two

months in Port Harcourt Nigeria to treat and school autistic

chilldren. We intend to seek funds and help from abroad to maintain

this facility. In due course we intend to appeeal to the site

moderator to see if we will be allowed to rasie funds from this web

group. We will do nothing without permission.

>

> In conclusion - always remeber to pray until something happens -

God never fails....my son's ASD has been a big blessing - has

thought me things I do not know, has improved my parenting and

patience skills. Furthermore, has also given me and my lovely wife

and opportunity to bless and be blessed by others. We are so

grateful to God. So teach your ASD child to always say JESUS HEAL

(HIS/HER NAME). The Lord hears the prayers of young ones.

>

> Rgds,

> Chidi Izuwah (Snr)

>

>

> [ ] Where do you get patience?

>

> Many of you have seen me on this site now. My son, 5 y.o. with

ASD,

> diagnosed in Nov. 2005.

>

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT.

We

> have seen little improvements. We are now doing chelation --

round 3.

> He has made small gains. How many rounds does it take to get the

job

> done? When will I see significant gains?

>

> So how do you folks get patience? I don't know if my son will

ever

> function normally. I'm tired of hearing everyone else talk about

their

> NT kids. I'm tired of going to the park and hearing the sounds of

> normal families. Does life ever get easier? What did my son do

to

> deserve this? There are certain times I feel so frustrated, I

wish I

> were dead. I'm in one of those off moods and rather than talking

to

> myself, just started typing away. Dear God, sometimes I feel so

alone.

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

Thanks for the post. My daughter (5yrs) is also vaccine injured and has severe

neurologic injuries (since 6 months old) from thimerosol but only recently got

the diagnosis of PDD/NOS. We wouldn't let them call her MRDD. Instead, the

doctors wanted to give her a diagnosis that made them more comfortable from

Rett's syndrome to Angelman's to severe cortical dysplasia/pacchygyri. We went

down the roller coaster ride of every diagnosis only to learn in a few days or

months that each was wrong. At the end, we had a normal MRI, normal genetic

tests and no diagnosis. With every wrong diagnosis I went down a darker hole.

My sister, a pediatric intensivist, would tell me stories of NT happy children

she saw die in the ICU. She would tell me that I should appreciate what I have

because for example the mom who just happened to forget to lock the porch door

and then had her NT 3 yr old drown in a plastic kiddy pool (only 1 foot of

water) will never hold that child again.

Instead (I hate to say this) but I would think how lucky those parents were to

have enjoyed their NT children for 3, 4, or 5 years of life. I think the

hardest thing for me to get over is the guilt of causing this. With every

little milestone she reaches, a little of that guilt melts away. Hang in there.

You're not alone.

Sheri Wang

>

> Many of you have seen me on this site now. My son, 5 y.o. with

ASD,

> diagnosed in Nov. 2005.

>

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT.

We

> have seen little improvements. We are now doing chelation --

round 3.

> He has made small gains. How many rounds does it take to get the

job

> done? When will I see significant gains?

>

> So how do you folks get patience? I don't know if my son will

ever

> function normally. I'm tired of hearing everyone else talk about

their

> NT kids. I'm tired of going to the park and hearing the sounds of

> normal families. Does life ever get easier? What did my son do

to

> deserve this? There are certain times I feel so frustrated, I

wish I

> were dead. I'm in one of those off moods and rather than talking

to

> myself, just started typing away. Dear God, sometimes I feel so

alone.

>

---------------------------------

Get amazing travel prices for air and hotel in one click on FareChase

[Guest guest]

What a great question. I wish I knew too. I guess that we've got

to just take it one day at a time and try to stay calm. I sometimes

get myself worked up and ask alot of these same questions. It does

feel very lonely alot, and the patience comes and goes, and the

resentment for those not experiencing our pain comes and goes too.

I try to fight the feelings of resentment for those with NT kids,

because I wouldn't wish this pain and suffering on anyone.

My daughter is 3.5 yrs old. We've completed 8 rounds of chelation

since January and have had her on supplements since October (keep

adding to them, too). Although I suspected autism since last

summer, she was just diagnosed 2 months ago. I thought that I was

ready for the diagnosis (since we had started this chelation and

vitamin therapy prior - obviously I knew!), but it has been

devastating, nevertheless. The past two months have been an

emotional roller coaster like no other. The ironic part is that

we're seeing real progress with this chelation and vitamins, and

although it's tiny steps forward all the time, it doesn't seem like

enough, and I oftentimes breakdown and cry, scream, and all the bad

stuff that I guess is normal for us to go through.

I do wonder why us, too. My hope is that God's plan is for us to

heal her and then help others to heal their children too, by

spreading the word, just as so many parents on this list are doing.

In the meantime, it's important to accept and love our children with

all their limitations and to nurture them so that they can develop

as best as possible. Acceptance of this is important to keeping me

calm, although it's very hard to accept!

I'm so glad that you posted and I have tearfully read all the

responses. I too will print these out to remind myself that I'm not

alone! Thanks so much for sharing, I don't think that I would have

shared either if it were not for your post.

We're on the right path, just stay the course, and things will get

easier with time.

Take care,

>

> Many of you have seen me on this site now. My son, 5 y.o. with

ASD,

> diagnosed in Nov. 2005.

>

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT.

We

> have seen little improvements. We are now doing chelation --

round 3.

> He has made small gains. How many rounds does it take to get the

job

> done? When will I see significant gains?

>

> So how do you folks get patience? I don't know if my son will

ever

> function normally. I'm tired of hearing everyone else talk about

their

> NT kids. I'm tired of going to the park and hearing the sounds of

> normal families. Does life ever get easier? What did my son do

to

> deserve this? There are certain times I feel so frustrated, I

wish I

> were dead. I'm in one of those off moods and rather than talking

to

> myself, just started typing away. Dear God, sometimes I feel so

alone.

>

[Guest guest]

Hi,

We went to a birthday party yesterday.. These are always tough and

the reality hits you pretty bad that am gone for a good 4 days after

that into my shell of self pity/ anger / frustration / jealousy

looking at normal parents. Today morning just crawled out of my

shell to check emails and wow..

Looks like i got my mothers day gift.

Thanks all of you.

Kavitha

>

> Many of you have seen me on this site now. My son, 5 y.o. with

ASD,

> diagnosed in Nov. 2005.

>

> We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT.

We

> have seen little improvements. We are now doing chelation --

round 3.

> He has made small gains. How many rounds does it take to get the

job

> done? When will I see significant gains?

>

> So how do you folks get patience? I don't know if my son will

ever

> function normally. I'm tired of hearing everyone else talk about

their

> NT kids. I'm tired of going to the park and hearing the sounds of

> normal families. Does life ever get easier? What did my son do

to

> deserve this? There are certain times I feel so frustrated, I

wish I

> were dead. I'm in one of those off moods and rather than talking

to

> myself, just started typing away. Dear God, sometimes I feel so

alone.

>

[Guest guest]

Thank you to everyone for those encouraging replies -- I really mean that. I

was at Mother's Day get togethor when so many well-meaning folks kept asking my

son " What is your name? " -- I just lost it. I saw a PC and started typing.

We just completed our 3rd round and he's making more sounds today. He just

won't stop! He woke us up so early with all these new sounds.

Again, thanks & God bless.

A_BIT_SOLUTIONS <a_bit_solutions@...> wrote:

Many of you have seen me on this site now. My son, 5 y.o. with ASD,

diagnosed in Nov. 2005.

We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT. We

have seen little improvements. We are now doing chelation -- round 3.

He has made small gains. How many rounds does it take to get the job

done? When will I see significant gains?

So how do you folks get patience? I don't know if my son will ever

function normally. I'm tired of hearing everyone else talk about their

NT kids. I'm tired of going to the park and hearing the sounds of

normal families. Does life ever get easier? What did my son do to

deserve this? There are certain times I feel so frustrated, I wish I

were dead. I'm in one of those off moods and rather than talking to

myself, just started typing away. Dear God, sometimes I feel so alone.

=======================================================

[Guest guest]

Wonderful feeling, isn't it!!!!!!!

Congrats!!!!

We just completed our 3rd round and he's making more sounds today. He just

won't stop! He woke us up so early with all these new sounds.

[Guest guest]

I have been off line for about a week, so I just read this post. I really do

feel what you are feeling. I suffer every day from this disease, because as a

grandmother I cannot decide which (or any) therapies are used for my grandson.

I am asked to sit back in silence and support.

If I were able to do what I feel needs to be done for our boy, I would start

with this realization and determination: this child is very ill and it is

unreasonable to expect him to recover overnight. All of the interventions take

time, more time than I will ever be comfortable with. A little gain is a big

gain, a long waiting time doesn't matter. What matters is one step followed by

another in a positive direction. What matters is that I keep learning, keep

listening, and keep fighting. What matters is that I don't give up. Our boy

has no chance otherwise. None of our kids do. If one kid can recover then it

is simply a matter of finding the combination of therapies to recover ours. I

will try and try and try again.

You are so lucky to be able to choose the therapies you will use. Please

listen to all of the DAN! videos, over and over again. Maybe something you

used, you used too soon. Maybe you didn't wait long enough. Maybe there is a

therapy out there that is waiting to help you. Whatever is needed, you will

find it. I guess what I am saying is that patience isn't nearly as important

as stubborness and determination. Whenever you feel down, reach out again.

We're all here. We all know. You have friends.

A_BIT_SOLUTIONS <a_bit_solutions@...> wrote: Many of you have seen

me on this site now. My son, 5 y.o. with ASD,

diagnosed in Nov. 2005.

We have used vitamins, diet, probiotics, enzymes, MB12 and HBOT. We

have seen little improvements. We are now doing chelation -- round 3.

He has made small gains. How many rounds does it take to get the job

done? When will I see significant gains?

So how do you folks get patience? I don't know if my son will ever

function normally. I'm tired of hearing everyone else talk about their

NT kids. I'm tired of going to the park and hearing the sounds of

normal families. Does life ever get easier? What did my son do to

deserve this? There are certain times I feel so frustrated, I wish I

were dead. I'm in one of those off moods and rather than talking to

myself, just started typing away. Dear God, sometimes I feel so alone.

=======================================================