Re: Recent improvements - LONG -- Natasa

[Guest guest]

Natasa,

yes, my son has high testosterone. The theory is that high testosterone

prevents traditional ASD treatments from working -- like chelation or MB12.

MB12 & chelation lower testosterone but not effectively. So if testosterone

is too high, chelation becomes ineffective.

Also, those with high testosterone have low glutathione. Glutathione is

necessary to eliminate mercury.

So far so good with my son but he's not out of the woods yet. We have a

struggle ahead of us. I will be trying other things soon like Valtrex and the

stuff you mention.

Feel free to ask me any questions regarding this or anything else.

natasa778 <neno@...> wrote:

Hi Abid, was it you who posted about your son's high testosterone

levels? When Luka was little we used to jokingly call him 'little Rambo'

and 'Mr Testosterone' lol, always was a bit on the macho side...

We did not try Valtrex or any other viral protocol - this sup wasn't

really started as an anti-viral in mind, only that we later noticed

similarities, especially with OLE -type reports from other parents.

(Valtrex was too expensive for us and with OLE there was no way we could

get ds to take it!)

Best,

Natasa

> Hi all, a while ago I posted about our sonÕs massive

improvements on

> Inflammation Control by VRP. We have added some other things since and

> have now had almost 6 weeks of continuous improvements. We are very

> pleased with what we are seeing and decided to share more details in

> case someone recognises his ÔprofileÕ and can benefit in some

way.

> Also, as two of the new supplements we have introduced are relatively

> ÔunknownÕ, I would love to hear from anyone who has used them or

> is planning to try.

>

> Although we do not consider him ÔrecoveredÕ, and there is still

a

> long way to go, for the first time now we feel like he has got a

> Ôfoot in the doorÕ recovery-wise. On particularly good days it

> feels like both his feet are firmly in the door!!! Like we are seeing

> more and more of the real child inside him.

>

> He has been on LDN since late February (half dose only, as could not

> tolerate the full dose after a while). We saw good things with it, in

> most areas, mostly social and communication. About 6 weeks ago we

> started Inlammation Control and saw great improvements straight away,

as

> if all those good effects of LDN just amplified tenfold. We also saw

> some rashes, runny nose and cough, and decided to added Candex, as per

> viral protocols. A week or so later we added a herbal supplement

> Scutellaria B (by Solgar), another chinese herb that is supposed to

> inhibit inflammation. It is also a good antioxidant, antibacterial

> etcÉ as usual I have tons of papers on this one and can forward

> Shortly after that we started HoustonÕs Zyme Prime and saw a FLAT

> belly for the first time ever!! (thanks Mandi, I honestly had no idea

> there was such thing as a tastles enzymes )

>

> As I said he has been doing very well on the above combo. I am

> researching some more herbs at the moment (having seen the Ômagic

of

> herbsÕ in action I am now a convert!), will let you know of

results,

> if any.

>

> LukaÕs Ôsymptoms and interventionsÕ profile:

>

> Luka was always a big ÔgutÕ baby. Massive appetite with very

poor

> digestion. Had diarrheas from the day he was born. Bad reflux à

> although unfortunatelly we did not know that at the time always

> screamed when put in horizontal possition. Always had a red ring

around

> annus (went away on LDN).

>

> He has also belonged to the Ôhyperimmune catergoryÕ à hardly

> ever had colds or runny nose, on few occasions that he did develop a

> fever he would regress in every way.

>

> Met all his physical milestones on time, or often before time à he

> crawled (ran!) at the age of 5 months, at about the same time he

started

> to prop himself up against furniture. As soon as he could stand up he

> stood on his toes! Started teething at 4 months, by the end of his 6th

> month had EIGHT fully grown teeth in all. Walked (ran!) at 11 months,

> mostly on toes again.

>

> He was never severe, in terms of always having some, although minimal,

> eye contact, also liked physical contact with parents à cuddles and

> rough and tumble, liked presence of other people (although as Darla

said

> he did not feel any need to communicate or Ôshare experiencesÕ),

> also liked other kids, but only for as long as they would engage in

> physical 'play'. Mostly this meant him running in circles and them

> chasing after him! As soon as a kid would get tired Luka would lose

> interest in the ÔplayÕ. He also loved having Ôscreaming

> exchanges' with other kids (and still does lol, the difference being

> that now he looks them in the eyes and laughs, whereas before he used

to

> scream and laugh while running away from them)

>

> He never really regressed but never developed normally à he bubbled

> less than other babies, and showed less interest in toys (or more, as

in

> obsessing over one or two toys or videos), and he missed out on

pointing

> and waving phase. When he was around 13-14 months of age he did go

> through a short period of waving by-by and sometimes pointing to

things.

> That soon dissapeared and he started to show lots of OCD, and more and

> more stimming. He would spin his cups for hours and hours on end,

> literally. He also started to develop VERY bad ADHD à his focus and

> attention were almost non-existant by the time he was 18 months old.

> Became manic and quite agressive. When not manic then looking deeply

> anxious. He also develped ezcema. His tantrums and transition problems

> got worse and worse, he was just getting impossible to handle. No

> language or any form of communication, when he e.g. wanted a biscuit

he

> would just go into the kitchen, stand there and scream.

>

> He did not have the MMR or the single vaccines during this period (he

> did have all the early childhood vacs on schedule).

>

> We ÔunknowinglyÕ started interventions when he was about 17

months

> à as we were looking to find the source of his allergy (what was

> causing the eczema), we cut out dairy completely. No more formula milk

> before bedtime. Unexpected to us he started sleeping better - less

> waking up screaming during the night, less screaming and sitting up in

> bed while trying to fall asleep. (soooo painfully obvious now in

> retrospect).

>

> At 20 months, after realising that he definitely WAS on the spectrum,

we

> started gfcf sugar free. He responded very well, with drastic

reduction

> of ADHD. He just seemed to sober up within days of starting the diet.

> His eczema cleared completely!

>

> His lab tests at the time showed bad gut dysbiosis, next to 0 good

> bacteria. His OAT test markers were all over the place, hardly

anything

> in the normal range. His blood results were mostly fine, but he did

have

> markers of chronic inflammation. Some B vitamins were poor or

> borderline, as were his omega 3Õs. The thing that was most

surprising

> (to our DAN at least, as we did not know what to expect anyway) was

that

> his provoked urine challenge came out fine. Everything within range.

>

> A short summary of sucessful and unsucessful treatments:

>

> He has done well on gfcf and sugar free and later SCD (dairy free). He

> regressed on Supernutera, and all other 'multies' we tried

introducing,

> also had a VERY bad regression on calcium supplements. Had nosebleed

the

> day we tried adding Taurine.

>

> We did mb12 shots for 7-8 months - saw some great things about a month

> into them but then benefits leveled off... no bad things from it

either.

> No other methylation support. No chelation.

>

> Apart from those mentioned above these are the sups he has been doing

> well on lately: cp-1 probiotics, benfothiamine, nadh (powder form,

have

> run out recently), riboflavin, p5p, zinc picolinate, magnesium

> glycinate, selenium, l-carnitine, milk thistle. td-gluthatione. All

this

> was introduced between January and March this year.

>

> Hope this information can one day be of help to someone else.

>

> Natasa

>

> p.s. will be posting this on other boards, sorry for repeats.

>

> PostPosted: Wed Jun 07, 2006 11:44 pm Post subject: Reply with

> quote Edit/Delete this post

> Hi and others,

>

> just to let you know that I have found a 'western' product with these

> ingredients. It also contains luteolin extract from another plant,

which

> has many amazing properties as well (I can forward abstracts and a few

> complete studies if anyone interested). The product is called

> Inflammation Control by Vitamin Research Product.

>

> Our story (short version, in case it helps with " profile for seeing

> benefits " ):

>

> Luka has been making very good progress lately on LDN - we started it

in

> March and have seen LOTS of good things. We have added this

Inflammation

> Control a couple of weeks ago and since then his progress has

> eccelerated tenfold!!! We have not started or stopped anything else in

> these past two weeks (we stopped mb12 shots but that was almost a

month

> ago).

>

> Of course it could all be a coincidence. And it could be temporary (I

> soooo pray it isn't!!!). Or could be things of the past months finally

> coming together, but I do feel these herbs have a lot to do with it.

>

> We have not done his genetics yet. He has always been a 'gut kid' with

> bad reflux and a 'hyperimmune kid' (hardly ever sick, when he was sick

> he would regress and be EXTREMELY irritable and hard to handle - I

> suspect his immune system grossly overworked and overinflammed). I

also

> suspect he is COMT++ and probably some VDR issues, as history of VDR

> related issues in my family. He never regressed into autism, didn't

have

> MMR but I believe now each of his early childhood vaccines made him

cry

> a bit louder and longer for days afterwards Sad He is not severe but

> lots of OCD (less and less nowdays) and very short-fuse temper.

>

> He has done well on gfcf and sugar free and later SCD dairy free. He

> regressed on Supernutera, and all other 'multies' we tried

introducing,

> also had a very bad regression on calcium supplements. Had nosebleed

the

> day we tried adding Taurine.

>

> We did mb12 shots for 7-8 months - saw some great things about a month

> into them but then benefits leveled off... no bad things from it

either.

> No other methylation support at present.

>

> Apart from LDN these are the sups he has been doing well on lately:

> benfothiamine, nadh (powder form), riboflavin, p5p, zinc picolinate,

> magnesium glycinate, selenium, l-carnitine, milk thistle.

> td-gluthatione. All this was introduced between January and March.

>

> Hope this information can one day be of help to someone else.

>

> Best,

> Natasa

>

>

[Guest guest]

Thanks Abid. My son has been a good responder to treatments so far, if

he does have high testosterone maybe it is not high enough to block

other things.... (he reacts to treatments/sups either way actually, he

has had many regressions upon trying to introduce things, but his

overall progress is three steps forward at present).... or maybe the

fact that mercury is probably not involved in his case makes it a

different ball game (or maybe it is involved, but well hiden... but as

long as it is not messing things up I am not worried at this point)....

huh, this whole thing is so complicated.

I was planning on antivirals sometime soon, but his latest improvements

on antiinflammatories now made me rethink it. I am currently looking

into few more chinese and ayurvedic herbs. Also want to try nasal mb12,

and try some more HEnzymes... will post if we see anything from any of.

Natasa

> > Hi all, a while ago I posted about our sonÕs massive

> improvements on

> > Inflammation Control by VRP. We have added some other things since

and

> > have now had almost 6 weeks of continuous improvements. We are very

> > pleased with what we are seeing and decided to share more details in

> > case someone recognises his ÔprofileÕ and can benefit in some

> way.

> > Also, as two of the new supplements we have introduced are

relatively

> > ÔunknownÕ, I would love to hear from anyone who has used them

or

> > is planning to try.

> >

> > Although we do not consider him ÔrecoveredÕ, and there is

still

> a

> > long way to go, for the first time now we feel like he has got a

> > Ôfoot in the doorÕ recovery-wise. On particularly good days it

> > feels like both his feet are firmly in the door!!! Like we are

seeing

> > more and more of the real child inside him.

> >

> > He has been on LDN since late February (half dose only, as could not

> > tolerate the full dose after a while). We saw good things with it,

in

> > most areas, mostly social and communication. About 6 weeks ago we

> > started Inlammation Control and saw great improvements straight

away,

> as

> > if all those good effects of LDN just amplified tenfold. We also saw

> > some rashes, runny nose and cough, and decided to added Candex, as

per

> > viral protocols. A week or so later we added a herbal supplement

> > Scutellaria B (by Solgar), another chinese herb that is supposed to

> > inhibit inflammation. It is also a good antioxidant, antibacterial

> > etcÉ as usual I have tons of papers on this one and can forward

> > Shortly after that we started HoustonÕs Zyme Prime and saw a FLAT

> > belly for the first time ever!! (thanks Mandi, I honestly had no

idea

> > there was such thing as a tastles enzymes )

> >

> > As I said he has been doing very well on the above combo. I am

> > researching some more herbs at the moment (having seen the Ômagic

> of

> > herbsÕ in action I am now a convert!), will let you know of

> results,

> > if any.

> >

> > LukaÕs Ôsymptoms and interventionsÕ profile:

> >

> > Luka was always a big ÔgutÕ baby. Massive appetite with very

> poor

> > digestion. Had diarrheas from the day he was born. Bad reflux à

> > although unfortunatelly we did not know that at the time always

> > screamed when put in horizontal possition. Always had a red ring

> around

> > annus (went away on LDN).

> >

> > He has also belonged to the Ôhyperimmune catergoryÕ à

hardly

> > ever had colds or runny nose, on few occasions that he did develop a

> > fever he would regress in every way.

> >

> > Met all his physical milestones on time, or often before time à

he

> > crawled (ran!) at the age of 5 months, at about the same time he

> started

> > to prop himself up against furniture. As soon as he could stand up

he

> > stood on his toes! Started teething at 4 months, by the end of his

6th

> > month had EIGHT fully grown teeth in all. Walked (ran!) at 11

months,

> > mostly on toes again.

> >

> > He was never severe, in terms of always having some, although

minimal,

> > eye contact, also liked physical contact with parents à cuddles

and

> > rough and tumble, liked presence of other people (although as Darla

> said

> > he did not feel any need to communicate or Ôshare

experiencesÕ),

> > also liked other kids, but only for as long as they would engage in

> > physical 'play'. Mostly this meant him running in circles and them

> > chasing after him! As soon as a kid would get tired Luka would lose

> > interest in the ÔplayÕ. He also loved having Ôscreaming

> > exchanges' with other kids (and still does lol, the difference being

> > that now he looks them in the eyes and laughs, whereas before he

used

> to

> > scream and laugh while running away from them)

> >

> > He never really regressed but never developed normally à he

bubbled

> > less than other babies, and showed less interest in toys (or more,

as

> in

> > obsessing over one or two toys or videos), and he missed out on

> pointing

> > and waving phase. When he was around 13-14 months of age he did go

> > through a short period of waving by-by and sometimes pointing to

> things.

> > That soon dissapeared and he started to show lots of OCD, and more

and

> > more stimming. He would spin his cups for hours and hours on end,

> > literally. He also started to develop VERY bad ADHD à his focus

and

> > attention were almost non-existant by the time he was 18 months old.

> > Became manic and quite agressive. When not manic then looking deeply

> > anxious. He also develped ezcema. His tantrums and transition

problems

> > got worse and worse, he was just getting impossible to handle. No

> > language or any form of communication, when he e.g. wanted a biscuit

> he

> > would just go into the kitchen, stand there and scream.

> >

> > He did not have the MMR or the single vaccines during this period

(he

> > did have all the early childhood vacs on schedule).

> >

> > We ÔunknowinglyÕ started interventions when he was about 17

> months

> > à as we were looking to find the source of his allergy (what was

> > causing the eczema), we cut out dairy completely. No more formula

milk

> > before bedtime. Unexpected to us he started sleeping better - less

> > waking up screaming during the night, less screaming and sitting up

in

> > bed while trying to fall asleep. (soooo painfully obvious now in

> > retrospect).

> >

> > At 20 months, after realising that he definitely WAS on the

spectrum,

> we

> > started gfcf sugar free. He responded very well, with drastic

> reduction

> > of ADHD. He just seemed to sober up within days of starting the

diet.

> > His eczema cleared completely!

> >

> > His lab tests at the time showed bad gut dysbiosis, next to 0 good

> > bacteria. His OAT test markers were all over the place, hardly

> anything

> > in the normal range. His blood results were mostly fine, but he did

> have

> > markers of chronic inflammation. Some B vitamins were poor or

> > borderline, as were his omega 3Õs. The thing that was most

> surprising

> > (to our DAN at least, as we did not know what to expect anyway) was

> that

> > his provoked urine challenge came out fine. Everything within range.

> >

> > A short summary of sucessful and unsucessful treatments:

> >

> > He has done well on gfcf and sugar free and later SCD (dairy free).

He

> > regressed on Supernutera, and all other 'multies' we tried

> introducing,

> > also had a VERY bad regression on calcium supplements. Had nosebleed

> the

> > day we tried adding Taurine.

> >

> > We did mb12 shots for 7-8 months - saw some great things about a

month

> > into them but then benefits leveled off... no bad things from it

> either.

> > No other methylation support. No chelation.

> >

> > Apart from those mentioned above these are the sups he has been

doing

> > well on lately: cp-1 probiotics, benfothiamine, nadh (powder form,

> have

> > run out recently), riboflavin, p5p, zinc picolinate, magnesium

> > glycinate, selenium, l-carnitine, milk thistle. td-gluthatione. All

> this

> > was introduced between January and March this year.

> >

> > Hope this information can one day be of help to someone else.

> >

> > Natasa

> >

> > p.s. will be posting this on other boards, sorry for repeats.

> >

> > PostPosted: Wed Jun 07, 2006 11:44 pm Post subject: Reply with

> > quote Edit/Delete this post

> > Hi and others,

> >

> > just to let you know that I have found a 'western' product with

these

> > ingredients. It also contains luteolin extract from another plant,

> which

> > has many amazing properties as well (I can forward abstracts and a

few

> > complete studies if anyone interested). The product is called

> > Inflammation Control by Vitamin Research Product.

> >

> > Our story (short version, in case it helps with " profile for seeing

> > benefits " ):

> >

> > Luka has been making very good progress lately on LDN - we started

it

> in

> > March and have seen LOTS of good things. We have added this

> Inflammation

> > Control a couple of weeks ago and since then his progress has

> > eccelerated tenfold!!! We have not started or stopped anything else

in

> > these past two weeks (we stopped mb12 shots but that was almost a

> month

> > ago).

> >

> > Of course it could all be a coincidence. And it could be temporary

(I

> > soooo pray it isn't!!!). Or could be things of the past months

finally

> > coming together, but I do feel these herbs have a lot to do with it.

> >

> > We have not done his genetics yet. He has always been a 'gut kid'

with

> > bad reflux and a 'hyperimmune kid' (hardly ever sick, when he was

sick

> > he would regress and be EXTREMELY irritable and hard to handle - I

> > suspect his immune system grossly overworked and overinflammed). I

> also

> > suspect he is COMT++ and probably some VDR issues, as history of VDR

> > related issues in my family. He never regressed into autism, didn't

> have

> > MMR but I believe now each of his early childhood vaccines made him

> cry

> > a bit louder and longer for days afterwards Sad He is not severe but

> > lots of OCD (less and less nowdays) and very short-fuse temper.

> >

> > He has done well on gfcf and sugar free and later SCD dairy free. He

> > regressed on Supernutera, and all other 'multies' we tried

> introducing,

> > also had a very bad regression on calcium supplements. Had nosebleed

> the

> > day we tried adding Taurine.

> >

> > We did mb12 shots for 7-8 months - saw some great things about a

month

> > into them but then benefits leveled off... no bad things from it

> either.

> > No other methylation support at present.

> >

> > Apart from LDN these are the sups he has been doing well on lately:

> > benfothiamine, nadh (powder form), riboflavin, p5p, zinc picolinate,

> > magnesium glycinate, selenium, l-carnitine, milk thistle.

> > td-gluthatione. All this was introduced between January and March.

> >

> > Hope this information can one day be of help to someone else.

> >

> > Best,

> > Natasa

> >

> >

[Guest guest]

Natasa, what kind of anti viral were you

considering?

--- natasa778 <neno@...> wrote:

> I was planning on antivirals sometime soon, but

> his latest improvements

> on antiinflammatories now made me rethink it. I

> am currently looking

> into few more chinese and ayurvedic herbs. Also

> want to try nasal mb12,

> and try some more HEnzymes... will post if we

> see anything from any of.

>

> Natasa

[Guest guest]

Originally Valtrex and OLE but had to drop that idea, next was looking into

Virastop and Lauricidin and also researching herbs... but in the light of

how well ds is doing on antiinflammatories now I think we will stay away

from anything that fights viruses by enhancing immunity/raising cytokine

levels.

Do you have any protocol in place?

Natasa

[Guest guest]

Natasa, Is it good to have high cytokine levels?

Does an anti inflamatory raise cytokine levels?

I have very low cytokine levels, almost none and

have Epstein Barr virus.

--- Neno/Natasa <neno@...> wrote:

> Originally Valtrex and OLE but had to drop that

> idea, next was looking into

> Virastop and Lauricidin and also researching

> herbs... but in the light of

> how well ds is doing on antiinflammatories now

> I think we will stay away

> from anything that fights viruses by enhancing

> immunity/raising cytokine

> levels.

>

> Do you have any protocol in place?

>

> Natasa

>

>

[Guest guest]

Some cytokines are raised 20-fold in brains of ASD individuals (probably

not a good thing, as these can influence brain function, especially

developing brains). If they are low, as in your case, the body probably

has less chance in fighting the virus (are you on the spectrum

yoursef?). Have you tried/looked into Reishi mushroom, latin name

Ganoderma Lucidum. supplementation - they raise cytokine levels and have

reportedly good EBV-inhibitory action.

Best,

Natasa

>

> > Originally Valtrex and OLE but had to drop that

> > idea, next was looking into

> > Virastop and Lauricidin and also researching

> > herbs... but in the light of

> > how well ds is doing on antiinflammatories now

> > I think we will stay away

> > from anything that fights viruses by enhancing

> > immunity/raising cytokine

> > levels.

> >

> > Do you have any protocol in place?

> >

> > Natasa

> >

> >

>

[Guest guest]

What is OLE? I tried looking it up but had no

luck.

--- Neno/Natasa <neno@...> wrote:

> Originally Valtrex and OLE but had to drop that

> idea, next was looking into

> Virastop and Lauricidin and also researching

> herbs... but in the light of

> how well ds is doing on antiinflammatories now

> I think we will stay away

> from anything that fights viruses by enhancing

> immunity/raising cytokine

> levels.

>

> Do you have any protocol in place?

>

> Natasa

>

>

[Guest guest]

Hi Barb,

OLE= olive leaf extract.

>

> > Originally Valtrex and OLE but had to drop that

> > idea, next was looking into

> > Virastop and Lauricidin and also researching

> > herbs... but in the light of

> > how well ds is doing on antiinflammatories now

> > I think we will stay away

> > from anything that fights viruses by enhancing

> > immunity/raising cytokine

> > levels.

> >

> > Do you have any protocol in place?

> >

> > Natasa

> >

> >

>

[Guest guest]

Natasa, would these be the " immune boosters " like astragalus and

echinacea? Or antivirals? Or...? Sorry, I should know this

stuff. :-)

René

\

in the light of

> how well ds is doing on antiinflammatories now I think we will stay

away

> from anything that fights viruses by enhancing immunity/raising

cytokine

> levels.

>

[Guest guest]

OLE=olive leaf extract

S S

<p>What is OLE? I tried looking it up but had no<br>

luck.<br>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

Olive Leaf Extract.

Re: [ ] Re: Recent improvements - LONG -- Natasa

What is OLE? I tried looking it up but had no

luck.

--- Neno/Natasa <neno@...> wrote:

> Originally Valtrex and OLE but had to drop that

> idea, next was looking into

> Virastop and Lauricidin and also researching

> herbs... but in the light of

> how well ds is doing on antiinflammatories now

> I think we will stay away

> from anything that fights viruses by enhancing

> immunity/raising cytokine

> levels.

>

> Do you have any protocol in place?

>

> Natasa

>

>

[Guest guest]

Yes, I was thinking more of the immune boosters, although that is not

straightforward either. Here is a nice (long) overview of the ones you

mentioned:

http://66.102.9.104/search?q=cache:yKD9icZYeXEJ:www.blockmd.com/New/Arts/Blo

ck%25202%25203%2520echinacea%2520ginseng%2520astrag.pdf+Modulation+of+cytoki

ne+expression+by+traditional+medicines:+a+review+of+herbal+immunomodulators &

hl=en & gl=uk & ct=clnk & cd=10

or

http://www.blockmd.com/New/Arts/Block%202%203%20echinacea%20ginseng%20astrag

..pdf

Natasa