Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Hi Maggie, If you normally go to bed at 11:00 pm, take the LDN then. I believe the closer you take LDN to the endorphin producing window of 2 am to 4 am, the better. Best regards, Dudley Delany dudley_delany [low dose naltrexone] First dose of LDN tonight!!!! I will be taking that first step tonight. Got the capsules in the mail today. Question: How do I know what time to take it? I see some folks take it as early as 9 p.m. What determines what time to take it? If I usually go to bed around 11 p.m. do I wait and take it at 11? I am SOoooooo wanting this work for me (MS) and I just am a little cautious of this too. HELP. Cheer me on, folks. Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Hi Maggie, Here is some supplemental information about dealing with MS that may be of help to you: http://tinyurl.com/grpm9 Best regards, Dudley [low dose naltrexone] First dose of LDN tonight!!!! I will be taking that first step tonight. Got the capsules in the mail today. Question: How do I know what time to take it? I see some folks take it as early as 9 p.m. What determines what time to take it? If I usually go to bed around 11 p.m. do I wait and take it at 11? I am SOoooooo wanting this work for me (MS) and I just am a little cautious of this too. HELP. Cheer me on, folks. Maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 I will agree with this. I take my LDN at 10:45PM and go to bed at 11:00PM. Art -- > > Hi Maggie, > > If you normally go to bed at 11:00 pm, take the LDN then. I believe the closer you take LDN to the endorphin producing window of 2 am to 4 am, the better. > > Best regards, > > Dudley Delany > > dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Iam alittle leary of making my own LDN, I would much prefer someone who knows what they are doing.. I live in thr San , CA. area. Is there anyone out there that could point me in the right direction. My insurance is with Kaiser but they dont seem to be supportive of LDN. my e-mail ts alice.kelley@.... I would be very grateful for any help. Thank you, Alice Dudley Delany <DudleyDelany@...> wrote: Hi Maggie,Here is some supplemental information about dealing with MS that may be of help to you:http://tinyurl.com/grpm9Best regards,Dudley-----Original Message-----From: maggspeSent: Monday, December 10, 2007 8:05 PMlow dose naltrexone Subject: [low dose naltrexone] First dose of LDN tonight!!!!I will be taking that first step tonight. Got the capsules in the mail today. Question: How do I know what time to take it? I see some folks take it as early as 9 p.m. What determines what time to take it? If I usually go to bed around 11 p.m. do I wait and take it at 11? I am SOoooooo wanting this work for me (MS) and I just am a little cautious of this too. HELP. Cheer me on, folks.Maggie Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Thanks so much for writing so promptly. I was envisioning me sitting by the computer for two hours wondering what time to swallow that little capsule. I will take it at 10:45, say a prayer and begin this journey. I really appreciate all the information you kind folks have disseminated on this board. I know that there are passionate supporters of LDN here, and I thank you for the welcome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Take it and dont stop.I am on it now 4 months.I do feel more alert and can do more.Also was getting muscle spasms at least once a week none now for four weeks.I had bizzare nightmares and disturbed sleep but these side-effects are nothing compared to C.R.A.B drugs I felt so unwell on those.I now have a sence of wellbeing on ldn which I didnt have for three years.So I say three cheers for ldn, if only I had heard about ldn three years ago. Clare(CorkCity, Ireland) [low dose naltrexone] First dose of LDN tonight!!!! I will be taking that first step tonight. Got the capsules in the mail today. Question: How do I know what time to take it? I see some folks take it as early as 9 p.m. What determines what time to take it? If I usually go to bed around 11 p.m. do I wait and take it at 11? I am SOoooooo wanting this work for me (MS) and I just am a little cautious of this too. HELP. Cheer me on, folks.Maggie No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.16.17/1179 - Release Date: 09/12/2007 11:06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 oh please keep updating I am really wanting to know more about this from a new user as I am going to try and talk my doc into LDN. Sorry I couldn't be of any help, but I have MS also and wondering if you have been on any other med for it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 If its any help I have been on Avonex.But the C.R.A.B medicines I have no faith in it is L.D.N for me and have been on it now four months. More energy and more alert.Have not have muscle spasms now for four weeks and was getting one a week.My legs are still weak but if I stay as I am I will be so happy am not expecting miracles but just stop the progression. Clare. [low dose naltrexone] Re: First dose of LDN tonight!!!! oh please keep updating I am really wanting to know more about this from a new user as I am going to try and talk my doc into LDN. Sorry I couldn't be of any help, but I have MS also and wondering if you have been on any other med for it? No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.16.17/1179 - Release Date: 09/12/2007 11:06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Hi Maggie, I'm SOOOOOOOOOOOOO excited for you !!!!! I remember my first night starting LDN. I remember getting my first bottle in the mail from Skip's!!!!!! I ran around my house showing anyone who'd look at the package I'd just pulled from my mailbox. I know I must've looked like a crazy 'ol lady, but I didn't care. For me, it was more than just a new script or bottle of pills, IT WAS HOPE !!!!!!!!! Hope that NONE of the CRAB drugs or steroids could even come close to. CONGRATULATIONS!!!!!!!!!!!!!!!!!!!!! Keep us all posted here. And please don't be afraid to ask questions. That's why this group exists. My VERY Best To You,Janet RRMS 1994 LDN May '07maggspe <maggspe@...> wrote: I will be taking that first step tonight. Got the capsules in the mail today. Question: How do I know what time to take it? I see some folks take it as early as 9 p.m. What determines what time to take it? If I usually go to bed around 11 p.m. do I wait and take it at 11? I am SOoooooo wanting this work for me (MS) and I just am a little cautious of this too. HELP. Cheer me on, folks. Maggie Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 > > oh please keep updating I am really wanting to know more about this > from a new user as I am going to try and talk my doc into LDN. Sorry I > couldn't be of any help, but I have MS also and wondering if you have > been on any other med for it? > I'm on Copaxone, have been for 8 yrs. I've had minor increases in the MS in the last year but I'm not ready to give up on the Copaxone yet. Took the pill at 10:45. Drifted off to sleep about 11:30. I always have dreams, and nothing new in that dept. Slept all night til 7 a.m. like usual. I was hoping for some wonderful dreams of traveling somewhere and eating chocolate on a beach. But that didn't happen, lol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 Hi, have you started yet with LDN? If not, look at this site, there is a lot of good info. Including HOW TO TALK YOUR DOC INTO IT...;-) www.gazorpa.com Good luck! Ingrid [low dose naltrexone] Re: First dose of LDN tonight!!!!>> oh please keep updating I am really wanting to know more about this > from a new user as I am going to try and talk my doc into LDN. Sorry I > couldn't be of any help, but I have MS also and wondering if you have > been on any other med for it?>I'm on Copaxone, have been for 8 yrs. I've had minor increases in the MS in the last year but I'm not ready to give up on the Copaxone yet. Took the pill at 10:45. Drifted off to sleep about 11:30. I always have dreams, and nothing new in that dept. Slept all night til 7 a.m. like usual. I was hoping for some wonderful dreams of traveling somewhere and eating chocolate on a beach. But that didn't happen, lol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 I feel kind of guilty. I am one of those people who did the UCSF trial, got great results in symptom relief, had some email correspondence with Dr. Gluck, asked my Kaiser neuro for LDN, got it with no problems and have been on it happily and just got on with my life. I don't really post like some of these wonderful " old-timers " do because I work 2 jobs and have a very rich life with my family and friends and that is a little selfish because in making the decision to go on LDN, this list was very important to me. I started on my 4.5mg LDN prescription that wasn't part of a double blind study in Sept.of this year. My MS is much more of a nuisance than a disease to me, thanks to the LDN. Prior to the LDN I was diagnosed in 2005 and went on betaseron for 2 years. The shots weren't that bad but the lethergy and general malaise I felt was terrible. The clinical word for what I felt was anhedonia, just difficulty feeling pleasure or much interest in life. I took prozac for depression and managed, although I gained about 30 pounds. Then I went off the prozac and in consultation with my neuro tried copaxone. Those shots are horrible. My cousin, who is a great reader and friend, mailed me an article about the LDN trial at UCSF and the rest is history. At my last check-up my neuro put me through the various tests; ie: walk on your toes, relflex testing, eye and hand coordination and such. He stated " You are actually neurologically normal. " HOW ABOUT THAT! While I have had some really good symptom relief in terms of bladder and bowel function, my favorite side effect is what I call a " mood brightening " one. It's just the lifting of the malaise and a overall " brightening " of life. So............Get on it, stay on it, talk about it, encourage others and thanks to all of you regulars who keep this very valuable list going! Bonnie RRMS -2005 LDN-9/1/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 Thank you, Bonnie, for that encouragement!Wishing you continued good health,Dudley Delany dudley_delanyFrom: Bonnie Lyon Sent: Thursday, December 13, 2007 12:49 PM low dose naltrexone Subject: [low dose naltrexone] Re: First dose of LDN tonight!!!! I feel kind of guilty. I am one of those people who did the UCSF trial, got great results in symptom relief, had some email correspondence with Dr. Gluck, asked my Kaiser neuro for LDN, got it with no problems and have been on it happily and just got on with my life. I don't really post like some of these wonderful " old-timers " do because I work 2 jobs and have a very rich life with my family and friends and that is a little selfish because in making the decision to go on LDN, this list was very important to me. I started on my 4.5mg LDN prescription that wasn't part of a double blind study in Sept.of this year. My MS is much more of a nuisance than a disease to me, thanks to the LDN. Prior to the LDN I was diagnosed in 2005 and went on betaseron for 2 years. The shots weren't that bad but the lethergy and general malaise I felt was terrible. The clinical word for what I felt was anhedonia, just difficulty feeling pleasure or much interest in life. I took prozac for depression and managed, although I gained about 30 pounds. Then I went off the prozac and in consultation with my neuro tried copaxone. Those shots are horrible. My cousin, who is a great reader and friend, mailed me an article about the LDN trial at UCSF and the rest is history. At my last check-up my neuro put me through the various tests; ie: walk on your toes, relflex testing, eye and hand coordination and such. He stated " You are actually neurologically normal. " HOW ABOUT THAT! While I have had some really good symptom relief in terms of bladder and bowel function, my favorite side effect is what I call a " mood brightening " one. It's just the lifting of the malaise and a overall " brightening " of life. So............Get on it, stay on it, talk about it, encourage others and thanks to all of you regulars who keep this very valuable list going! Bonnie RRMS -2005 LDN-9/1/07 Quote Link to comment Share on other sites More sharing options...
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