Re: Discouraged! - 5th round - ANDY, anyone

July 9, 2006

>

> We're in the middle of our fifth round of the Cutler Protocol of

ALA. I'm

> feeling discouraged because we aren't seeing a thing. Initially, we

thought

> maybe he was a little calmer, but now I'm not sure.

I saw frequent improvements that would gradually disappear over the

next month or so. Chelation helped my son with food and supplement

intolerance, and yeast overgrowth, but did not affect much else. It

was the supplements that recovered him, but the ALA chelation was

required for him to tolerate the supplements.

>>When we do get a gain, it often doesn't stick.

Yep, this was my son until after ALA chelation and the introduction of

several supplements.

>>We are giving 12.5mg of Kirkman's ALA 2-3 hours day and four at

> night. We do Friday afternoon after school through Monday morning. He

> weighs about 55 pounds.

Keep going with this. It took my son approx 100 rounds of ALA.

Dana

July 9, 2006

Pam, same boat here. Just finished round 6 of ALA and not seeing

much. Per a suggestion from here I am doubling his dosage from 25

to 50mg @ 131 pounds every 3 hours even at night.

>

> We're in the middle of our fifth round of the Cutler Protocol of

ALA. I'm

> feeling discouraged because we aren't seeing a thing. Initially,

we thought

> maybe he was a little calmer, but now I'm not sure.

>

> We have been doing biomedical interventions on our son for about

four years

> now. He has proven to be a sensitive, tough nut, Nonresponder

kind of kid.

> He is life Teflon. When we do get a gain, it often doesn't

stick. He has

> been scoped. He is nonverbal, not potty trained. He will be

seven years

> old in a week. He attends a small, private, ABA school.

>

> Previously, we have done PCA-RX and TD-DMSA. He poured out metals

on both

> according to Doctors Data tests. However, these results rarely

matched up

> with noticeable gains in him. He dumped out lots of Uranium and

Beryllium.

> Also we got moderate amounts of Titanium, Arsenic and Lead. We

never hit

> Mercury.

>

> We did not do a hair test before starting the Cutler Protocol. We

have only

> done a hair test once and that was on the initial evaluation by

our DAN!

> years ago. We are giving 12.5mg of Kirkman's ALA 2-3 hours day

and four at

> night. We do Friday afternoon after school through Monday

morning. He

> weighs about 55 pounds.

>

> Any thoughts, advice, or suggestions are appreciated. Thank you.

>

> Pamela

>

> " Courage is doing what you're afraid to do. There can be no

courage unless

> you're scared. "

>

> Eddie Rickenbacker, top US fighter ace, WWI

>

July 9, 2006

Did the original hair test meet the counting rules?

How much chelation did you do with TD-DMSA?

Since you saw some lead in the past, you will do better

using DMSA. It is not known whether ALA chelates lead,

although it is supportive along with DMSA.

--

>

> We're in the middle of our fifth round of the Cutler Protocol of

ALA. I'm

> feeling discouraged because we aren't seeing a thing. Initially, we

thought

> maybe he was a little calmer, but now I'm not sure.

> We have been doing biomedical interventions on our son for about

four years

> now. He has proven to be a sensitive, tough nut, Nonresponder kind

of kid.

> He is life Teflon. When we do get a gain, it often doesn't stick.

He has

> been scoped. He is nonverbal, not potty trained. He will be seven

years

> old in a week. He attends a small, private, ABA school.

>

> Previously, we have done PCA-RX and TD-DMSA. He poured out metals

on both

> according to Doctors Data tests. However, these results rarely

matched up

> with noticeable gains in him. He dumped out lots of Uranium and

Beryllium.

> Also we got moderate amounts of Titanium, Arsenic and Lead. We

never hit

> Mercury.

>

> We did not do a hair test before starting the Cutler Protocol. We

have only

> done a hair test once and that was on the initial evaluation by our DAN!

> years ago. We are giving 12.5mg of Kirkman's ALA 2-3 hours day and

four at

> night. We do Friday afternoon after school through Monday morning. He

> weighs about 55 pounds.

>

> Any thoughts, advice, or suggestions are appreciated. Thank you.

>

> Pamela

>

> " Courage is doing what you're afraid to do. There can be no courage

unless

> you're scared. "

>

> Eddie Rickenbacker, top US fighter ace, WWI

>

July 9, 2006

,

Thank you for your reply. I don't have a copy of his hair test here at

home. It is in his very thick chart at the DAN! doc. I seem to recall that

it did meet the counting rules. I will work on getting a copy of that to

confirm.

We did PCA-RX for one year with great metal pulls, red-lined Uranium again

and again. Then we added TD-DMSA for five months. We got a fabulous metal

pull per Doctors Data toxic metal test. He tolerated it very well.

However, we saw little improvement. We had to stop the TD-DMSA due to

increased liver enzymes. We stopped to rest his liver. During this time,

we did a Valtrex trial and he was a Nonresponder. Instead of returning to

TD-DMSA, we decided to try the Cutler ALA protocol.

Pamela

" Courage is doing what you're afraid to do. There can be no courage unless

you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

July 9, 2006

We had to stop the TD-DMSA due to

> increased liver enzymes. We stopped to rest his liver.

What I do, because I don't want to worry about testing, is only use

DMSA every 3 or 4 rounds. MAybe that would be infrequent enough to

keep his liver in good shape, and it takes awhile for the lead to come

out of the bones anyway so the lead chelating benefit is still there.

I'd consider raising his dose of ALA since you're not seeing any

negative side effects. And I'd say, OK, I'm going to plough through x

number of rounds and then re-evaluate. Maybe 15?

> During this time,

> we did a Valtrex trial and he was a Nonresponder.

Do you have indications that he's got viral problems? Virastop, OLE,

and TF are other things to consider.

> Instead of returning to

> TD-DMSA, we decided to try the Cutler ALA protocol.

I vote hang in there and keep going. We're rooting for you!

Nell

July 10, 2006

>

> ,

>

> Thank you for your reply. I don't have a copy of his hair test here at

> home. It is in his very thick chart at the DAN! doc. I seem to

recall that

> it did meet the counting rules. I will work on getting a copy of

that to

> confirm.

The hair test would be interesting to confirm toxicity. Of

course it doesn't tell the current state of things, but I think

it's safe to say (if the hair test did meet the counting rules)

that you haven't done enough chelation yet.

> We did PCA-RX for one year with great metal pulls, red-lined Uranium

again

> and again. Then we added TD-DMSA for five months. We got a

fabulous metal

> pull per Doctors Data toxic metal test. He tolerated it very well.

> However, we saw little improvement. We had to stop the TD-DMSA due to

I really like Nell's idea of using DMSA once per month.

I don't think you said whether the previous chelation was done

with frequent dosing. If not, you may have stirred up more

metals than you got out.

--

> increased liver enzymes. We stopped to rest his liver. During this

time,

> we did a Valtrex trial and he was a Nonresponder. Instead of

returning to

> TD-DMSA, we decided to try the Cutler ALA protocol.

>

> Pamela

>

> " Courage is doing what you're afraid to do. There can be no courage

unless

> you're scared. "

>

> Eddie Rickenbacker, top US fighter ace, WWI

>

July 21, 2006

In a message dated 09/07/2006 16:49:06 GMT Daylight Time,

pamelaleigh@... writes:

We're in the middle of our fifth round of the Cutler Protocol of ALA. I'm

feeling discouraged because we aren't seeing a thing. Initially, we thought

maybe he was a little calmer, but now I'm not sure.

>>>Took us 20 rounds to see anything, hang in there

Mandi in UK

July 21, 2006

If you're not seeing negatives that's good. Give it time.

S S

In a message dated 09/07/2006 16:49:06 GMT Daylight Time,

<a href= " mailto:pamelaleigh%40comcast.net " >pamelaleigh@comcast.net</a>

writes:

We're in the middle of our fifth round of the Cutler Protocol of ALA. I'm

feeling discouraged because we aren't seeing a thing. Initially, we thought

maybe he was a little calmer, but now I'm not sure.

_______________________________________________

Join Excite! - http://www.excite.com

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July 22, 2006

Haha - I had to laugh when I read this, sorry - but my first thought was " Are

they kidding? " Listen guys, we started chelation when my daughter was six years

old, and have been doing it on and off (mostly on, especially for the last 2 1/2

years) for 5 years. We had our FIRST huge mercury dump 3 months ago - so,

miracles do happen. I'm not saying it's going to take that long for most kids,

but I had all but given up hope until I saw that urine test result with the

mercury slammed up against the right side of the graph, at 30X normal levels.

The only thing I can think is that, either other metals were being pulled out

first (for years?), or that TD-DMSA was the most effective chelation method for

her. Hang in there - it takes a lot of patience!

-------------- Original message --------------

From: Mum231ASD@...

In a message dated 09/07/2006 16:49:06 GMT Daylight Time,

pamelaleigh@... writes:

We're in the middle of our fifth round of the Cutler Protocol of ALA. I'm

feeling discouraged because we aren't seeing a thing. Initially, we thought

maybe he was a little calmer, but now I'm not sure.

>>>Took us 20 rounds to see anything, hang in there

Mandi in UK

July 22, 2006

Now that is persistence!

Were you getting other metals out all this time?

Are you using ALA?

--

>

> Haha - I had to laugh when I read this, sorry - but my first thought

was " Are they kidding? " Listen guys, we started chelation when my

daughter was six years old, and have been doing it on and off (mostly

on, especially for the last 2 1/2 years) for 5 years. We had our FIRST

huge mercury dump 3 months ago - so, miracles do happen. I'm not

saying it's going to take that long for most kids, but I had all but

given up hope until I saw that urine test result with the mercury

slammed up against the right side of the graph, at 30X normal levels.

The only thing I can think is that, either other metals were being

pulled out first (for years?), or that TD-DMSA was the most effective

chelation method for her. Hang in there - it takes a lot of patience!

>

> -------------- Original message --------------

> From: Mum231ASD@...

>

> In a message dated 09/07/2006 16:49:06 GMT Daylight Time,

> pamelaleigh@... writes:

>

> We're in the middle of our fifth round of the Cutler Protocol of

ALA. I'm

> feeling discouraged because we aren't seeing a thing. Initially, we

thought

> maybe he was a little calmer, but now I'm not sure.

>

> >>>Took us 20 rounds to see anything, hang in there

>

> Mandi in UK

>

July 25, 2006

> >

> > Haha - I had to laugh when I read this, sorry - but my first thought

> was " Are they kidding? " Listen guys, we started chelation when my

> daughter was six years old, and have been doing it on and off (mostly

> on, especially for the last 2 1/2 years) for 5 years. We had our FIRST

> huge mercury dump 3 months ago - so, miracles do happen. I'm not

> saying it's going to take that long for most kids, but I had all but

> given up hope until I saw that urine test result with the mercury

> slammed up against the right side of the graph, at 30X normal levels.

> The only thing I can think is that, either other metals were being

> pulled out first (for years?), or that TD-DMSA was the most effective

> chelation method for her. Hang in there - it takes a lot of patience!

> >

> > -------------- Original message --------------

> > From: Mum231ASD@

> >

> > In a message dated 09/07/2006 16:49:06 GMT Daylight Time,

> > pamelaleigh@ writes:

> >

> > We're in the middle of our fifth round of the Cutler Protocol of

> ALA. I'm

> > feeling discouraged because we aren't seeing a thing. Initially, we

> thought

> > maybe he was a little calmer, but now I'm not sure.

> >

> > >>>Took us 20 rounds to see anything, hang in there

> >

> > Mandi in UK

July 25, 2006

Yes, this does occur in girls as well as boys. If you do test, you need to stop

certain treatments for ASD including MB12 because these will lower testosterone

- but not effctively -- but will skew testosterone test results.

<sage@...> wrote: