Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Elaine, I LOVE YOUR STORY! I am so happy your daughter is doing better! Thanks for posting a positive story. And I am headed to Portland next week and I loved reading your mail. I can't wait to just sit in the rose and Japanese gardens there! I live in Arizona and it is so hot here, I can't wait to be in the Northwest. Thanks again!! I am glad you found her the help she needed! > We have a happy story: 34 yr old daughter was dx with CFS 6+ years ago. > Research brought us to the possibility of Lyme. This part isn't so > happy---cuz we're in Or where they all deny the possibility. So we went > elsewhere and got her treated (IV Rocephin, Flagyl on the days off the > Rocephin, etc.) She was treated for several months and now is about 90%. > She still has a couple of neuro things (some balance issues, light and sound > sensitivity, etc.) and a pain in the back of her neck we can't resolve. > But, overall, much better. She's finishing off with Zithro right now and > will probably continue with the naturopath in an effort to get to the last > sticky symptoms. > Hang in there...I agree with whomever said the well people aren't spending > time on the website. My daughter went to the Portland Rose parade yesterday > early morning, lunch with friends afterwards. Rushed home to shower and > change for a game night at a friend's farm...left there at 11 and dropped by > the end of another party until 2:15. Up early this morning running to the > grocery store, going to a baby shower, rushing home in time to entertain an > out of town friend. Her husband's pooped...but she's pretty much like she > was 8 years ago. She says if she has to live with what's left, she can do > that. Good luck, all!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 Elaine, It great to know that some people do get better!! I'd be thrilled with a 50% improvenment!! Thanks, Kathy > We have a happy story: 34 yr old daughter was dx with CFS 6+ years ago. > Research brought us to the possibility of Lyme. This part isn't so > happy---cuz we're in Or where they all deny the possibility. So we went > elsewhere and got her treated (IV Rocephin, Flagyl on the days off the > Rocephin, etc.) She was treated for several months and now is about 90%. > She still has a couple of neuro things (some balance issues, light and sound > sensitivity, etc.) and a pain in the back of her neck we can't resolve. > But, overall, much better. She's finishing off with Zithro right now and > will probably continue with the naturopath in an effort to get to the last > sticky symptoms. > Hang in there...I agree with whomever said the well people aren't spending > time on the website. My daughter went to the Portland Rose parade yesterday > early morning, lunch with friends afterwards. Rushed home to shower and > change for a game night at a friend's farm...left there at 11 and dropped by > the end of another party until 2:15. Up early this morning running to the > grocery store, going to a baby shower, rushing home in time to entertain an > out of town friend. Her husband's pooped...but she's pretty much like she > was 8 years ago. She says if she has to live with what's left, she can do > that. Good luck, all!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 Great news Clare Aletha [low dose naltrexone] Happy Story Hi All I would like to share this with you.I started ldn 9 weeks ago. As I do not like mri I dont intend going for 1, so I dont know if ldn is working on getting rid of lesions.However as I'm from Ireland I went to Wales last weekend to visit friends I had'nt seen for years.On Friday night we sat talked ate and drank till 3am.On Sat night we did the same, we said we better get fresh air on Sun so we walked around Cardiff. For me that was unreal as I could not do all that before. I was completely symptom free. Since my return I have felt the usual tiredness for having been away a weekend,but looking back i truely enjoyed it I told my friends all about ldn.Last night I had muscle spasm and my legs are stiff and weak, but I dont mind as weekend away was brill and 1st in three year I was dx withms three years ago. Clare. Quote Link to comment Share on other sites More sharing options...
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