we are here

[Guest guest]

What about Botox? Does it work? Is there pain

after it???

We are here

Glad to finally

found the group. I am a fairly newbie here myself,

but there are several that have posted that they have had to have up

to three surgeries. Maybe if you look in the archives you can find

them. Or they could send in some support once more! They have

all

been positive that the surgery is still the best option, as I

remember. I went to the surgeon last week and will schedule surgery

in the near future. Good luck and keep us posted.

Paige

> Hello, In 1998 I was diagnosed with " A " . When I was first

diagnosed I

> searched and searched for information about this disease and for

> anyone else out there who might be going through the same thing.

> I could not find anything or anyone, until several months ago I

came

> across this board. I can't tell you how happy I was to finally

find

> others out there who know how I feel and who understand what it is

> like to live with this terrible disease. I have had several

> dialations with little success, finally my Dr. sent me to a

surgeon

> to have a myotomy. I went through with surgery and was able to

> swallow a little better and was told that was all that could be

done

> for me. This last March I became extremely ill and was unable to

> swallow anything, I became so ill that I was hopitalized for two

> weeks, my physician suggested that I have a j-tube placed for

> nutrition so I could gain enough weight to have another surgeon go

in

> and look to see if maybe the myotomy was incomplete, if so then he

> believes he can fix it so I won't have too continue to live off of

> this tube. Has anyone ever had to have a repeat myotomy? and if

so,

> did it help?. My surgery is schedule for this wednesday, can

someone

> out there give me a little hope!

[Guest guest]

Crystal and I arrived about an hour ago. what a ride!! so happy to be

here.

cyndi

[Guest guest]

Have a great conference - You go gals! LDN/MSCyndi Lenz <psychrn@...> wrote: Crystal and I arrived about an hour ago. what a ride!! so happy to be here.cyndi __________________________________________________

[Guest guest]

Cyndi, Glad you two made it safe and sound. I'm right on yur tail JanetCyndi Lenz <psychrn@...> wrote: Crystal and I arrived about an hour ago. what a ride!! so happy to be here. cyndi __________________________________________________

[Guest guest]

excellent!cyndiOn Oct 18, 2007, at 8:34 PM, Janet Kunselman wrote:Cyndi,     Glad you two made it safe and sound.  I'm right on yur tail  JanetCyndi Lenz <psychrngate (DOT) net> wrote:Crystal and I arrived about an hour ago. what a ride!! so happy to be here.cyndi__________________________________________________

[Guest guest]

The prayers and

fingers & toes are crossed all the way from Down Under for everyone attending...Good

Luck....

Kelli (Australia)

From:

Cyndi Lenz [mailto:psychrn@...]

Sent: Friday, 19 October 2007

10:40 AM

low dose naltrexone

Subject: Re: [low dose naltrexone]

we are here

excellent!

cyndi

On Oct 18, 2007, at 8:34 PM, Janet Kunselman wrote:

Cyndi,

Glad you two made it safe

and sound. I'm right on yur tail

Janet

Cyndi Lenz <psychrngate (DOT) net> wrote:

Crystal

and I arrived about an hour ago. what a ride!! so happy to be

here.

cyndi

__________________________________________________