Susie

[Guest guest]

Susie, yes I can see your point. He would be the one to tell, maybe something

great will come of it. I thought I was going crazy trying to find out which

thing was giving me which symptom etc, so I would know how to take care of it.

I

can imagine Dr. have a rough time of it too, maybe that is why our general drs.

don't say much, maybe they are confused too. I just hope you find out something

that will help.

Yes, I think there are many people that suffer from these awful childhoods, I

still do, but just pray that i get by everyday. Some days I could care less if

I

make it by, all these years what has kept me going is my three girls. You are

right about sights, sounds and even smells, that can bring that all back. My

whole family (dad died) lives fairly close and they are all living in total

denial and see me as a creep, for ever bringing anything up. My mom won't come

and visit her grandkids because she doesn't feel comfortable in my house. Can't

figure out why, but okay. As far as I am concerned they can all stay where they

are and let me have piece with my own family. I guess I still harbor bad

feelings (if that is what you want to call it), but I still try to live with it.

I also think that is why I am so fat, the anger. I am trying to rectify that

now, so we will see. Please don't feel alone. We are all here for you. Lynn

in

Wa AIH

SUSIE22658@... wrote:

> From: SUSIE22658@...

>

> Lynn,

> I have thought of that, but I feel this is my only opportunity to have

> everything evaluated hopefully at one time-maybe they can shed some light on

> the depression, bulimia, PTSD etc and liver disease and how meds will effect

> each disease. I just can't live like this anymore! I have had some horrible

> doctors, but I feel from this group Dr. Czaja may be just the doctor I need

> for now. Hopefully I can just lay out all my cards!

> Susie

> I guess I'm not the only one with difficult past-I hope you are doing Ok with

> it all.

> I don't feel so alone anymore. I guess I'm surprised at how many in this

> group have had such difficulties and such stress-WOW. Take care.

> Susie

>

> ---------------------------

[Guest guest]

Susie, nice to hear from you, hope you are doing well today, and hope we keep

hearing from you. I stopped at the Dr. for some things today and weighed

myself,

and I have lost exactly 20 lbs. So I am happy about that, but still don't know

if I am doing it in a healthy way. So hope to still talk to a dietician or a

naturpath sometime shortly. Lynn aih

SUSIE22658@... wrote:

> From: SUSIE22658@...

>

> To Geri and everybody who responded I just wanted to say thanks to all of you

> for being so supportive. I didn't answer all individually but wanted you to

> know how much I appreciated it and gave me a lot of food for thought. (you

> know me FOOD for thought!) Oh well!

> Susie

>

> ---------------------------

[Guest guest]

I am so concerned with Susie and her children. Does anyone know what ECT

treatments are? It makes me feel helpless to hear what she is going through

compounded with this disease. I do hope that the prayers we have for her are

powerful.

Roxanne

[Guest guest]

Roxanne,

As a mother it nearly kills me to think about Susie. Hey Linie, do you have

an address where she is at that we could send cards or something? Susie, you

are in my thoughts and prayers. Joan in PA

[Guest guest]

Thanks for Susie's address Geri. I think we should all support her through

this rough time. My heart goes out to her. Joan in PA

[Guest guest]

Susie,

You are in my thoughts and prayers. I've battled life long depression too,

from both sides of my family who also suffered from depression. I had a best

friend who passed away June 12, 1998 who had Wegener's Granulomatosis (a

particulary wicked autoimmune diease.) Anyway, she also had suffered from

severe depression and they did ECT on her too. It helped some, but with her

physical condition they had to stop before they received great results.

I sincerely hope ECT helps you, and I'll be praying for you.

Love,

Dianne A.

[Guest guest]

Yes, I know what ECT is and I am not happy that she is having them. What

they do is send electical current in her brain throwing her into

convulsions.

Wish I could contact her and make her not do it.

J

>From: CREE8V1@...

>Reply- onelist

> onelist

>Subject: [ ] Re: Susie

>Date: Tue, 28 Sep 1999 10:05:03 EDT

>MIME-Version: 1.0

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>

>From: CREE8V1@...

>

>I am so concerned with Susie and her children. Does anyone know what ECT

>treatments are? It makes me feel helpless to hear what she is going

>through

>compounded with this disease. I do hope that the prayers we have for her

>are

>powerful.

>

>Roxanne

>

>>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

[Guest guest]

,

I also am familiar with the treatment that Susie is going to have for her

depression and I also worried for her. I understand it's a treatment that

is usually reserved as a last resort these days. However, in defense of

the treatment, I have a cousin who has had to have the same treatment

yearly for many years due to an unusual hormone imbalance that manifests

itself like a form of schizophrenia. (I haven't mentioned this to Susie).

Before she started this form of therapy, she was nearly unable to function.

In the years since it's started, she has been able to live a normal life

(except when her condition deteriorates about once a year) and has married,

raised two lovely daughters, worked and is a very happy young woman. For

some people, this offers their only hope.

As I'm sure Susie would tell you, she's suffered almost crippling

depression and has been very suicidal. She hasn't been able to break the

depression through normal treatment and because of her suicide attempt(s)

has been told she is not eligible for a liver transplant. Making matters

worse, she's being denied Prednisone also because of the depression.

I've talked to Susie (on the phone) and my heart breaks for her. I know

she's desperate to find something that will break this cycle. She has good

reason to be depressed, in addition to her fears and anxieties over her

liver disease. I don't know what I'd do in her place, but I suspect that

she feels that this may be the only hope she has right now.

She needs our love and support. Her decision was something she had to make

by herself and I personally admire her courage for taking this drastic step

to try to stop the downward spiral she felt her life had become. I don't

know that I could be as strong as she's proving to be.

We need to all let her know how much we care about her and I hope that

everyone who can will drop her a note to let her know that we think about

her even when we're not online.

Take care,

Geri

[Guest guest]

I feel for Susie also, especially since I've " been there, done that " as far

as depression, hospitalization for depression and suicide attmept.

Currently I take 40 mg of Prozac a day which keeps my chemical imbalance

under control.

I realize Susie is feeling desparate, and I guess her physicians feel this

is best, I just dont like the idea. I hope it works for her.

J

>From: Geri Spang <spangs@...>

>Reply- onelist

> onelist

>Subject: Re: [ ] Susie

>Date: Wed, 29 Sep 1999 05:06:37 -0700

>MIME-Version: 1.0

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>List-Unsubscribe: <mailto: -unsubscribeONElist>

>

>From: Geri Spang <spangs@...>

>

>,

>I also am familiar with the treatment that Susie is going to have for her

>depression and I also worried for her. I understand it's a treatment that

>is usually reserved as a last resort these days. However, in defense of

>the treatment, I have a cousin who has had to have the same treatment

>yearly for many years due to an unusual hormone imbalance that manifests

>itself like a form of schizophrenia. (I haven't mentioned this to Susie).

>Before she started this form of therapy, she was nearly unable to function.

> In the years since it's started, she has been able to live a normal life

>(except when her condition deteriorates about once a year) and has married,

>raised two lovely daughters, worked and is a very happy young woman. For

>some people, this offers their only hope.

>

>As I'm sure Susie would tell you, she's suffered almost crippling

>depression and has been very suicidal. She hasn't been able to break the

>depression through normal treatment and because of her suicide attempt(s)

>has been told she is not eligible for a liver transplant. Making matters

>worse, she's being denied Prednisone also because of the depression.

>

>I've talked to Susie (on the phone) and my heart breaks for her. I know

>she's desperate to find something that will break this cycle. She has good

>reason to be depressed, in addition to her fears and anxieties over her

>liver disease. I don't know what I'd do in her place, but I suspect that

>she feels that this may be the only hope she has right now.

>

>She needs our love and support. Her decision was something she had to make

>by herself and I personally admire her courage for taking this drastic step

>to try to stop the downward spiral she felt her life had become. I don't

>know that I could be as strong as she's proving to be.

>

>We need to all let her know how much we care about her and I hope that

>everyone who can will drop her a note to let her know that we think about

>her even when we're not online.

>

>Take care,

>Geri

>

>>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

[Guest guest]

Geri:

Thank you for Susie's address. You are right, she needs all the support she can

get from us.

I will be sure to write to her from time to time.

Warmly,

[Guest guest]

Roxanne,

ECT is Electroconvulsive therapy. Shock treatments... It's gotta be scary

as h*** for her. She will be okay though, I've met people who have had them.

As long as she doesn't need it repeated too often she'll do okay. Our

prayers are definitely with her....

(AIH)

[Guest guest]

,

I've been sending Susie a card every other day. Hope I'm not overdoing it.

I'm very anxious to hear from her but I suppose there will be no word

until she's out of the hospital. I have her phone number at home and I'm

tempted to call the hospital if I can locate the phone number. Just to

make sure she's doing okay.

Take care,

Geri

[Guest guest]

J.,

Depression is so insidious. I don't think that doctors really do know how

to deal with it. For the past few weeks I've almost completely lost my

appetite. I simply can't bring myself to eat anything until dinnertime.

My husband brings me OJ every morning (he gets up much earlier than I do)

and tries to talk me into at least a slice of toast or a bowl of cereal,

but it's about as appealing as a piece of cardboard. I simply can't get

anything down. Doesn't make me sick, I just can't do it. Lately, even OJ

is unappealing. Generally I don't eat anything all day except perhaps a

cookie if my stomach starts to burn, or maybe a banana. We rarely eat

dinner before 8:00 PM and even then, I can only get down about half of my

meal. I have no idea why this is happening. I never did eat much before

I started taking Prednisone, but it's never been this bad since I was very

young. I told my doctor about it and he immediately asked me if I am

depressed. I'm not depressed. In fact, I'm feeling pretty good about life

and the future. I could tell that he really didn't believe me and thought

I was holding something back.

I have a son who has battled severe depression for years. He's been

hospitalized several times following suicide attempts. One of my brothers

was also suicidally depressed and was repeatedly hospitalized over the

years. A younger cousin who I'd babysat for when he was a little boy

actually killed himself after battling depression over a failed marriage.

I have deep empathy for people who find themselves falling into these

depths. I know I can't carry the weight of everyone I love and care about

on my shoulders, but I also know how important it is to not turn away from

them when they need to know someone cares.

You mentioned that you are taking Prozac for a chemical imbalance that

causes depression. You are so lucky to have an enlightened doctor who

recognizes that depression is most often the result of a physical

condition, aggravated by medical factors like blood sugar as well as life

circumstances. Though I haven't been depressed for many years, I also had

a period in my life when I felt I simply could not go on. It's still as

clearly in my mind as though it was yesterday. I've never forgotten what

it was like to feel that total hopelessness.

Take care,

Geri

[Guest guest]

Geri,

I eat the same way as you. It's been at least 5 months since I've lost my

appetite. I get hungry, but don't eat because nothing sounds " edible " . Even

at the grocery store nothing looks good. The following link tells us that

one of the symptoms of AIH is loss of appetite: <A

HREF= " http://www.intelihealth.com/IH/ihtIH?c=187089 & t=8461 & p=~br,IHW|~st,8270|

~r,WSIHW000|~b,*| & d=dmtJHE " >Click here: InteliHealth - Home to s Hopkins

Health Information: The Liver</A>

What really bites me is that I am heavier than I have ever been! Of course

no one believes me when I say I hardly eat. I can only guess it is because

the liver is not able to metabolize the fat. Oh well, just wanted you to

know you aren't alone on that symptom either..

Love you,

(AIH)

[Guest guest]

Susie, i sure will say a prayer for you. You are a strong person.

Rosemary

[Guest guest]

Sue, I too have the same disease (AVN) I have had the hip replacements this past year and now my shoulders are getting bad. I know that it is coming. I really would like to know more about the shoulder replacement. Where do you live? Was the shoulder surgery worse than the hips? or vice-versa? How long was the shoulder recovery? Do you have full motion of your arms now?

Not many people have mentioned anything about shoulder replacements. That is why I am asking so many questions.

DorisSue <Suzeegrape@...> wrote:

SusieHad a a rare side effect of steriods that causes your bone to lose blood supply and die. This is what happened to the top of my femur (hip) and humerous (shoulder). I was 40 when I started the replacements and am now 47. I feel great. As soon as my 3 months of THR restrictions, I plan on being back to normal. I keep up with my PT, you have to in order to live a normal life. I have not other health problems. You need a very experienced shoulder doc to get good results from a total shoulder replacement. My doc has done hundreds. Somedays I forget I have "fake" joints.Take careSue> > Hi everyone, I'm new and I need some help deciding on what to do > > first a little background on me... I'm 31 married and

have a 4 > month > > old son. My hips are bad (just something I was born with) I've > had > > pain for about 10 years I've been on Enbrel for about 1 year and > > they do help alot but even in the time I've been on the meds my > left > > hip has gotten worse, it is fussing together. My arthritis doc has > > told me I will need it replaced when I can't stand the pain > anymore. > > I went to see a surgeon a few weeks ago and we set up the surgery > for > > August 17th. Then thing is now I'm wondering if I should go > through > > with it. The pain I'm having right now with it is not to bad > > (because of the meds) but I know at somepoint it will get bad. I > was > > in so much pain the first 4 months of my pg I wanted to die. Dh and > I > > would like to

have another child soon (our son is an IVF baby, and > so > > anymore children will also be IVF) That is one of the concerns we > > think my hubby's insurance will be changing in 2005, and I don't > > think his new insurance will cover the Enbrel and or IVF. My doc > has > > told me the Enbrel is my last step before hip replacement. I guess > > what I'm wondering is if I should put it off as long as possible > and > > be in some pain, not be able to take my son for walks and when he > > starts walking on his own always be in fear that I wouldn't be able > > to move fast enough to keep him safe. Or should I just have it > done > > August 17th and it will be over with? The surgeon would be using > > ceramic onceramic so it would be longer lasting. I know I would > have > > to have

1 or 2 more surgeries but wouldn't it be worth it to be > pain > > free and enjoy my child/children?> > > > Please help me I'm so confused!!!> > > > Whitney> > > >

[Guest guest]

ah yes someone else with A.V.N. your relationship with your o.s is a long term one. i was diagnosed at 35 and don't like the prospect of later in life.

Susie

SusieHad a a rare side effect of steriods that causes your bone to lose blood supply and die. This is what happened to the top of my femur (hip) and humerous (shoulder). I was 40 when I started the replacements and am now 47. I feel great. As soon as my 3 months of THR restrictions, I plan on being back to normal. I keep up with my PT, you have to in order to live a normal life. I have not other health problems. You need a very experienced shoulder doc to get good results from a total shoulder replacement. My doc has done hundreds. Somedays I forget I have "fake" joints.Take careSue> > Hi everyone, I'm new and I need some help deciding on what to do > > first a little background on me... I'm 31 married and have a 4 > month > > old son. My hips are bad (just something I was born with) I've > had > > pain for about 10 years I've been on Enbrel for about 1 year and > > they do help alot but even in the time I've been on the meds my > left > > hip has gotten worse, it is fussing together. My arthritis doc has > > told me I will need it replaced when I can't stand the pain > anymore. > > I went to see a surgeon a few weeks ago and we set up the surgery > for > > August 17th. Then thing is now I'm wondering if I should go > through > > with it. The pain I'm having right now with it is not to bad > > (because of the meds) but I know at somepoint it will get bad. I > was > > in so much pain the first 4 months of my pg I wanted to die. Dh and > I > > would like to have another child soon (our son is an IVF baby, and > so > > anymore children will also be IVF) That is one of the concerns we > > think my hubby's insurance will be changing in 2005, and I don't > > think his new insurance will cover the Enbrel and or IVF. My doc > has > > told me the Enbrel is my last step before hip replacement. I guess > > what I'm wondering is if I should put it off as long as possible > and > > be in some pain, not be able to take my son for walks and when he > > starts walking on his own always be in fear that I wouldn't be able > > to move fast enough to keep him safe. Or should I just have it > done > > August 17th and it will be over with? The surgeon would be using > > ceramic onceramic so it would be longer lasting. I know I would > have > > to have 1 or 2 more surgeries but wouldn't it be worth it to be > pain > > free and enjoy my child/children?> > > > Please help me I'm so confused!!!> > > > Whitney> > > >

[Guest guest]

ah yes someone else with A.V.N. your relationship with your o.s is a long term one. i was diagnosed at 35 and don't like the prospect of later in life.

Susie

SusieHad a a rare side effect of steriods that causes your bone to lose blood supply and die. This is what happened to the top of my femur (hip) and humerous (shoulder). I was 40 when I started the replacements and am now 47. I feel great. As soon as my 3 months of THR restrictions, I plan on being back to normal. I keep up with my PT, you have to in order to live a normal life. I have not other health problems. You need a very experienced shoulder doc to get good results from a total shoulder replacement. My doc has done hundreds. Somedays I forget I have "fake" joints.Take careSue> > Hi everyone, I'm new and I need some help deciding on what to do > > first a little background on me... I'm 31 married and have a 4 > month > > old son. My hips are bad (just something I was born with) I've > had > > pain for about 10 years I've been on Enbrel for about 1 year and > > they do help alot but even in the time I've been on the meds my > left > > hip has gotten worse, it is fussing together. My arthritis doc has > > told me I will need it replaced when I can't stand the pain > anymore. > > I went to see a surgeon a few weeks ago and we set up the surgery > for > > August 17th. Then thing is now I'm wondering if I should go > through > > with it. The pain I'm having right now with it is not to bad > > (because of the meds) but I know at somepoint it will get bad. I > was > > in so much pain the first 4 months of my pg I wanted to die. Dh and > I > > would like to have another child soon (our son is an IVF baby, and > so > > anymore children will also be IVF) That is one of the concerns we > > think my hubby's insurance will be changing in 2005, and I don't > > think his new insurance will cover the Enbrel and or IVF. My doc > has > > told me the Enbrel is my last step before hip replacement. I guess > > what I'm wondering is if I should put it off as long as possible > and > > be in some pain, not be able to take my son for walks and when he > > starts walking on his own always be in fear that I wouldn't be able > > to move fast enough to keep him safe. Or should I just have it > done > > August 17th and it will be over with? The surgeon would be using > > ceramic onceramic so it would be longer lasting. I know I would > have > > to have 1 or 2 more surgeries but wouldn't it be worth it to be > pain > > free and enjoy my child/children?> > > > Please help me I'm so confused!!!> > > > Whitney> > > >

[Guest guest]

Hi Sue,

What is A.V.A ? I had Arthritis in my shoulders my knees Hips and my feet I had my Hip replace five years ago and my Knee replace two years ago I won't have anything else replace unless I feel nomal on my right side thats the side I had replace.

Well I wish you the best of luck. you take care.

Susieb-gcoffey <b-gcoffey@...> wrote:

ah yes someone else with A.V.N. your relationship with your o.s is a long term one. i was diagnosed at 35 and don't like the prospect of later in life.

Susie

SusieHad a a rare side effect of steriods that causes your bone to lose blood supply and die. This is what happened to the top of my femur (hip) and humerous (shoulder). I was 40 when I started the replacements and am now 47. I feel great. As soon as my 3 months of THR restrictions, I plan on being back to normal. I keep up with my PT, you have to in order to live a normal life. I have not other health problems. You need a very experienced shoulder doc to get good results from a total shoulder replacement. My doc has done hundreds. Somedays I forget I have "fake" joints.Take careSue> > Hi everyone, I'm new and I need some help deciding on what to do > > first a little background on me... I'm 31 married and have a 4 > month > > old son. My hips are bad (just something I

was born with) I've > had > > pain for about 10 years I've been on Enbrel for about 1 year and > > they do help alot but even in the time I've been on the meds my > left > > hip has gotten worse, it is fussing together. My arthritis doc has > > told me I will need it replaced when I can't stand the pain > anymore. > > I went to see a surgeon a few weeks ago and we set up the surgery > for > > August 17th. Then thing is now I'm wondering if I should go > through > > with it. The pain I'm having right now with it is not to bad > > (because of the meds) but I know at somepoint it will get bad. I > was > > in so much pain the first 4 months of my pg I wanted to die. Dh and > I > > would like to have another child soon (our son is an IVF baby, and > so > >

anymore children will also be IVF) That is one of the concerns we > > think my hubby's insurance will be changing in 2005, and I don't > > think his new insurance will cover the Enbrel and or IVF. My doc > has > > told me the Enbrel is my last step before hip replacement. I guess > > what I'm wondering is if I should put it off as long as possible > and > > be in some pain, not be able to take my son for walks and when he > > starts walking on his own always be in fear that I wouldn't be able > > to move fast enough to keep him safe. Or should I just have it > done > > August 17th and it will be over with? The surgeon would be using > > ceramic onceramic so it would be longer lasting. I know I would > have > > to have 1 or 2 more surgeries but wouldn't it be worth it to be > pain > >

free and enjoy my child/children?> > > > Please help me I'm so confused!!!> > > > Whitney> > > >

[Guest guest]

AVN is short for Avascular Necrosis. Like Sue said it is when the blood supply to the end of the femur or humerus is blocked and the bone dies.

DorisSUZANNE SNYDER <juneflower60@...> wrote:

Hi Sue,

What is A.V.A ? I had Arthritis in my shoulders my knees Hips and my feet I had my Hip replace five years ago and my Knee replace two years ago I won't have anything else replace unless I feel nomal on my right side thats the side I had replace.

Well I wish you the best of luck. you take care.

Susieb-gcoffey <b-gcoffey@...> wrote:

ah yes someone else with A.V.N. your relationship with your o.s is a long term one. i was diagnosed at 35 and don't like the prospect of later in life.

Susie

SusieHad a a rare side effect of steriods that causes your bone to lose blood supply and die. This is what happened to the top of my femur (hip) and humerous (shoulder). I was 40 when I started the replacements and am now 47. I feel great. As soon as my 3 months of THR restrictions, I plan on being back to normal. I keep up with my PT, you have to in order to live a normal life. I have not other health problems. You need a very experienced shoulder doc to get good results from a total shoulder replacement. My doc has done hundreds. Somedays I forget I have "fake" joints.Take careSue> > Hi everyone, I'm new and I need some help deciding on what to do > > first a little background on me... I'm 31 married and have a 4 > month > > old son. My hips are bad (just something I

was born with) I've > had > > pain for about 10 years I've been on Enbrel for about 1 year and > > they do help alot but even in the time I've been on the meds my > left > > hip has gotten worse, it is fussing together. My arthritis doc has > > told me I will need it replaced when I can't stand the pain > anymore. > > I went to see a surgeon a few weeks ago and we set up the surgery > for > > August 17th. Then thing is now I'm wondering if I should go > through > > with it. The pain I'm having right now with it is not to bad > > (because of the meds) but I know at somepoint it will get bad. I > was > > in so much pain the first 4 months of my pg I wanted to die. Dh and > I > > would like to have another child soon (our son is an IVF baby, and > so > >

anymore children will also be IVF) That is one of the concerns we > > think my hubby's insurance will be changing in 2005, and I don't > > think his new insurance will cover the Enbrel and or IVF. My doc > has > > told me the Enbrel is my last step before hip replacement. I guess > > what I'm wondering is if I should put it off as long as possible > and > > be in some pain, not be able to take my son for walks and when he > > starts walking on his own always be in fear that I wouldn't be able > > to move fast enough to keep him safe. Or should I just have it > done > > August 17th and it will be over with? The surgeon would be using > > ceramic onceramic so it would be longer lasting. I know I would > have > > to have 1 or 2 more surgeries but wouldn't it be worth it to be > pain > >

free and enjoy my child/children?> > > > Please help me I'm so confused!!!> > > > Whitney> > > >

[Guest guest]

Hi Doris,

Thanks for telling me that Its hard to believe that a bone can be blocked and dies I don't know which is worst is that what you have or what I have ,Well you take care.

SusieDoris Provost <dorisprovost2003@...> wrote:

AVN is short for Avascular Necrosis. Like Sue said it is when the blood supply to the end of the femur or humerus is blocked and the bone dies.

DorisSUZANNE SNYDER <juneflower60@...> wrote:

Hi Sue,

What is A.V.A ? I had Arthritis in my shoulders my knees Hips and my feet I had my Hip replace five years ago and my Knee replace two years ago I won't have anything else replace unless I feel nomal on my right side thats the side I had replace.

Well I wish you the best of luck. you take care.

Susieb-gcoffey <b-gcoffey@...> wrote:

ah yes someone else with A.V.N. your relationship with your o.s is a long term one. i was diagnosed at 35 and don't like the prospect of later in life.

Susie

SusieHad a a rare side effect of steriods that causes your bone to lose blood supply and die. This is what happened to the top of my femur (hip) and humerous (shoulder). I was 40 when I started the replacements and am now 47. I feel great. As soon as my 3 months of THR restrictions, I plan on being back to normal. I keep up with my PT, you have to in order to live a normal life. I have not other health problems. You need a very experienced shoulder doc to get good results from a total shoulder replacement. My doc has done hundreds. Somedays I forget I have "fake" joints.Take careSue> > Hi everyone, I'm new and I need some help deciding on what to do > > first a little background on me... I'm 31 married and have a 4 > month > > old son. My hips are bad (just something I

was born with) I've > had > > pain for about 10 years I've been on Enbrel for about 1 year and > > they do help alot but even in the time I've been on the meds my > left > > hip has gotten worse, it is fussing together. My arthritis doc has > > told me I will need it replaced when I can't stand the pain > anymore. > > I went to see a surgeon a few weeks ago and we set up the surgery > for > > August 17th. Then thing is now I'm wondering if I should go > through > > with it. The pain I'm having right now with it is not to bad > > (because of the meds) but I know at somepoint it will get bad. I > was > > in so much pain the first 4 months of my pg I wanted to die. Dh and > I > > would like to have another child soon (our son is an IVF baby, and > so > >

anymore children will also be IVF) That is one of the concerns we > > think my hubby's insurance will be changing in 2005, and I don't > > think his new insurance will cover the Enbrel and or IVF. My doc > has > > told me the Enbrel is my last step before hip replacement. I guess > > what I'm wondering is if I should put it off as long as possible > and > > be in some pain, not be able to take my son for walks and when he > > starts walking on his own always be in fear that I wouldn't be able > > to move fast enough to keep him safe. Or should I just have it > done > > August 17th and it will be over with? The surgeon would be using > > ceramic onceramic so it would be longer lasting. I know I would > have > > to have 1 or 2 more surgeries but wouldn't it be worth it to be > pain > >

free and enjoy my child/children?> > > > Please help me I'm so confused!!!> > > > Whitney> > > >

[Guest guest]

Hi Sue,

I have to say that when you have a operation when your younger your body heals faster.

I don't feel like theirs a day that goes by that I can say I don't have a fake part in me:-(

I guess thats why I won't have my left side down. I'm 61 now.Well you have a good day.

SusieSue <Suzeegrape@...> wrote:

SusieHad a a rare side effect of steriods that causes your bone to lose blood supply and die. This is what happened to the top of my femur (hip) and humerous (shoulder). I was 40 when I started the replacements and am now 47. I feel great. As soon as my 3 months of THR restrictions, I plan on being back to normal. I keep up with my PT, you have to in order to live a normal life. I have not other health problems. You need a very experienced shoulder doc to get good results from a total shoulder replacement. My doc has done hundreds. Somedays I forget I have "fake" joints.Take careSue> > Hi everyone, I'm new and I need some help deciding on what to do > > first a little background on me... I'm 31 married and

have a 4 > month > > old son. My hips are bad (just something I was born with) I've > had > > pain for about 10 years I've been on Enbrel for about 1 year and > > they do help alot but even in the time I've been on the meds my > left > > hip has gotten worse, it is fussing together. My arthritis doc has > > told me I will need it replaced when I can't stand the pain > anymore. > > I went to see a surgeon a few weeks ago and we set up the surgery > for > > August 17th. Then thing is now I'm wondering if I should go > through > > with it. The pain I'm having right now with it is not to bad > > (because of the meds) but I know at somepoint it will get bad. I > was > > in so much pain the first 4 months of my pg I wanted to die. Dh and > I > > would like to

have another child soon (our son is an IVF baby, and > so > > anymore children will also be IVF) That is one of the concerns we > > think my hubby's insurance will be changing in 2005, and I don't > > think his new insurance will cover the Enbrel and or IVF. My doc > has > > told me the Enbrel is my last step before hip replacement. I guess > > what I'm wondering is if I should put it off as long as possible > and > > be in some pain, not be able to take my son for walks and when he > > starts walking on his own always be in fear that I wouldn't be able > > to move fast enough to keep him safe. Or should I just have it > done > > August 17th and it will be over with? The surgeon would be using > > ceramic onceramic so it would be longer lasting. I know I would > have > > to have

1 or 2 more surgeries but wouldn't it be worth it to be > pain > > free and enjoy my child/children?> > > > Please help me I'm so confused!!!> > > > Whitney> > > >

[Guest guest]

That is what I have.

DorisSUZANNE SNYDER <juneflower60@...> wrote:

Hi Doris,

Thanks for telling me that Its hard to believe that a bone can be blocked and dies I don't know which is worst is that what you have or what I have ,Well you take care.

SusieDoris Provost <dorisprovost2003@...> wrote:

AVN is short for Avascular Necrosis. Like Sue said it is when the blood supply to the end of the femur or humerus is blocked and the bone dies.

DorisSUZANNE SNYDER <juneflower60@...> wrote:

Hi Sue,

What is A.V.A ? I had Arthritis in my shoulders my knees Hips and my feet I had my Hip replace five years ago and my Knee replace two years ago I won't have anything else replace unless I feel nomal on my right side thats the side I had replace.

Well I wish you the best of luck. you take care.

Susieb-gcoffey <b-gcoffey@...> wrote:

ah yes someone else with A.V.N. your relationship with your o.s is a long term one. i was diagnosed at 35 and don't like the prospect of later in life.

Susie

SusieHad a a rare side effect of steriods that causes your bone to lose blood supply and die. This is what happened to the top of my femur (hip) and humerous (shoulder). I was 40 when I started the replacements and am now 47. I feel great. As soon as my 3 months of THR restrictions, I plan on being back to normal. I keep up with my PT, you have to in order to live a normal life. I have not other health problems. You need a very experienced shoulder doc to get good results from a total shoulder replacement. My doc has done hundreds. Somedays I forget I have "fake" joints.Take careSue> > Hi everyone, I'm new and I need some help deciding on what to do > > first a little background on me... I'm 31 married and have a 4 > month > > old son. My hips are bad (just something I

was born with) I've > had > > pain for about 10 years I've been on Enbrel for about 1 year and > > they do help alot but even in the time I've been on the meds my > left > > hip has gotten worse, it is fussing together. My arthritis doc has > > told me I will need it replaced when I can't stand the pain > anymore. > > I went to see a surgeon a few weeks ago and we set up the surgery > for > > August 17th. Then thing is now I'm wondering if I should go > through > > with it. The pain I'm having right now with it is not to bad > > (because of the meds) but I know at somepoint it will get bad. I > was > > in so much pain the first 4 months of my pg I wanted to die. Dh and > I > > would like to have another child soon (our son is an IVF baby, and > so > >

anymore children will also be IVF) That is one of the concerns we > > think my hubby's insurance will be changing in 2005, and I don't > > think his new insurance will cover the Enbrel and or IVF. My doc > has > > told me the Enbrel is my last step before hip replacement. I guess > > what I'm wondering is if I should put it off as long as possible > and > > be in some pain, not be able to take my son for walks and when he > > starts walking on his own always be in fear that I wouldn't be able > > to move fast enough to keep him safe. Or should I just have it > done > > August 17th and it will be over with? The surgeon would be using > > ceramic onceramic so it would be longer lasting. I know I would > have > > to have 1 or 2 more surgeries but wouldn't it be worth it to be > pain > >

free and enjoy my child/children?> > > > Please help me I'm so confused!!!> > > > Whitney> > > >

[Guest guest]

Susie

Ask your doctor what they put in. Canada the only way you get a

metal/metal is by asking or if things go wrong when they resurface.

They did put 40 in about three years ago as a test. These people

knew they may get one. They wanted to put 100 in but stopped

because they thought that the metal ions levels got to high. Go

figure they will do the resurface that releases the same ions.

Ask about the pain. From what I read three years you should not

have much pain. I know our doctors will show you the x-rays if you

ask. They do not like to but if you say so that I can see and know

for my own peace what it looks like. I really wish we had done

more looking around on the web before we had made the 8 hour drive

to see the doctor. But ask, ask and keep asking. They get the

money to answer these question. You have the right to know and

understand. If you don't like one doctor ask another to look at the

x-rays. It took me 7 years to get someone to listen to me when I

said I was in pain. They kept saying it was growing pains and it

would go away. Then it took five minutes for one doctor to say oh

your everything in your knee is all wrong. Half hour under the

knife and years with alot less pain. Still weather bugs it but it

is alot better.

[Guest guest]

Card_Crafts/ Susie, Here ya go...couldn't figure out how to promote the group from the site. Val

Use Photomail to share photos without annoying attachments.