Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Does someone with ALS can say that LDN had been useful for the illness? I'll appreciate your answers because I have a friend that can't pay for the treatment of it (rilutek) and is doing anything for his illness and I told him to give LDN a chance. Guillermo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 From Dr. Gluck's website: Amyotrophic Lateral Sclerosis In the spring of 2002, several people with amyotrophic lateral sclerosis, after reading the material about multiple sclerosis on this website, asked their physicians to prescribe LDN for their ALS. Two patients with advanced disease showed significant improvement in their breathing, as measured by a forced vital capacity (FVC). One had a 25% improvement within two months of beginning LDN and the other 11% improvement. A third patient who also has advanced ALS and an impaired FVC has had significant subjective improvement in his ability to breathe and a reduction in his resting pulse from 96 to the low 80's. Subsequently, in early fall 2002, the first patient, who had been taking only 3mg of LDN nightly, notified us that both his FVC and that of the second patient, who was using the 4.5mg dose, had reverted to their usual baseline capacities, but that their FVC's appeared to be remaining stable for a prolonged period. [Ed. Note: Given the repeated demonstration of LDN's efficacy in halting progression in virtually all cases of MS (see LDN and MS), and the possibility of its having a therapeutic effect in Parkinson's Disease and in ALS, it may be timely to consider LDN in treating the full spectrum of neurodegenerative diseases whose etiology is unknown— all of which may well have a significant underpinning of immunodeficiency/autoimmunity causing their neurological syndromes. Alzheimer's disease also suggests itself as an important possibility.] http://www.low dose naltrexone.org/ldn_and_ai.htm Art -- > > Does someone with ALS can say that LDN had been useful for the illness? > I'll appreciate your answers because I have a friend that can't pay for > the treatment of it (rilutek) and is doing anything for his illness and > I told him to give LDN a chance. > > Guillermo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Hello, I am interested in knowing if anyone has any knowledge about LDN being used to treat Autism: recommended dosage, or anything regarding the expected results of its use for such treatment Re: [low dose naltrexone] Als Hi Guillermo,There are some encouraging testimonials regarding the use of LDN to treat ALS here:http://www.ldninfo.org/others.htmLook under the heading, "Neurodegenerative Disease."With best wishes,Dudley Delanydudley_delany-----Original Message-----From: alvhe2000Sent: Wednesday, October 17, 2007 5:38 PMlow dose naltrexone Subject: [low dose naltrexone] AlsDoes someone with ALS can say that LDN had been useful for the illness?I'll appreciate your answers because I have a friend that can't pay for the treatment of it (rilutek) and is doing anything for his illness and I told him to give LDN a chance.Guillermo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Hi,There are some links regarding LDN in the treatment of autism on this site: http://tinyurl.com/2boot2 With best wishes, Dudley Delany dudley_delanyFrom: dmforbes1@... Sent: Wednesday, October 17, 2007 11:45 PM low dose naltrexone Subject: Re: [low dose naltrexone] Als Hello, I am interested in knowing if anyone has any knowledge about LDN being used to treat Autism: recommended dosage, or anything regarding the expected results of its use for such treatment Re: [low dose naltrexone] Als Hi Guillermo,There are some encouraging testimonials regarding the use of LDN to treat ALS here:http://www.ldninfo.org/others.htmLook under the heading, "Neurodegenerative Disease."With best wishes,Dudley Delanydudley_delany-----Original Message-----From: alvhe2000Sent: Wednesday, October 17, 2007 5:38 PMlow dose naltrexone Subject: [low dose naltrexone] AlsDoes someone with ALS can say that LDN had been useful for the illness?I'll appreciate your answers because I have a friend that can't pay for the treatment of it (rilutek) and is doing anything for his illness and I told him to give LDN a chance.Guillerm o Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Also, as I posted in response to Barbara's question on LDN and MND/ALS earlier this week, for motor neurone disease (ALS/PLS in particular) see http://low dose naltrexone.org/others.htm#PLS2007 Doesn't seem to always help in cases of fast progressing ALS but absolutely worth a try!! Even if insurance was available to cover the cost of Rilutek I would choose LDN over it any day! Art Hansen wrote: > >From Dr. Gluck's website: > > Amyotrophic Lateral Sclerosis > > In the spring of 2002, several people with amyotrophic lateral > sclerosis, after reading the material about multiple sclerosis on > this website, asked their physicians to prescribe LDN for their ALS. > Two patients with advanced disease showed significant improvement in > their breathing, as measured by a forced vital capacity (FVC). One > had a 25% improvement within two months of beginning LDN and the > other 11% improvement. A third patient who also has advanced ALS and > an impaired FVC has had significant subjective improvement in his > ability to breathe and a reduction in his resting pulse from 96 to > the low 80's. > > Subsequently, in early fall 2002, the first patient, who had been > taking only 3mg of LDN nightly, notified us that both his FVC and > that of the second patient, who was using the 4.5mg dose, had > reverted to their usual baseline capacities, but that their FVC's > appeared to be remaining stable for a prolonged period. > > [Ed. Note: Given the repeated demonstration of LDN's efficacy in > halting progression in virtually all cases of MS (see LDN and MS), > and the possibility of its having a therapeutic effect in Parkinson's > Disease and in ALS, it may be timely to consider LDN in treating the > full spectrum of neurodegenerative diseases whose etiology is unknown— > all of which may well have a significant underpinning of > immunodeficiency/autoimmunity causing their neurological syndromes. > Alzheimer's disease also suggests itself as an important possibility.] > > http://www.low dose naltrexone.org/ldn_and_ai.htm > > Art > -- > > >> Does someone with ALS can say that LDN had been useful for the >> > illness? > >> I'll appreciate your answers because I have a friend that can't pay >> > for > >> the treatment of it (rilutek) and is doing anything for his illness >> > and > >> I told him to give LDN a chance. >> >> Guillermo >> >> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 This is a group for discussing and reporting treatment results with LDN (low dose naltrexone) in autism spectrum disorder. This is a new treatment and the goal is to get as much information as possible to help parents decide if this is an appropriate and safe treatment for their autistic child. Autism_LDN/ Quote Link to comment Share on other sites More sharing options...
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