Re: 6th round of ALA chelation, no improvment, throw in the towel?

[Guest guest]

Hi Mark, what was his hair test like?

It's my understanding that with older kids/adults it can take longer (more

rounds) to see

marked improvement. I wouldn't throw in the towel quite yet.

What does your son weigh and how much ALA is he taking? Every 3 hours?

Supplements?

in Illinois

[Guest guest]

Yes, it is too soon to quit

I would up the dose as tolerated to 1/2 mg per

lb of body weight, per Andy's protocol. I would

continue chelating for at least 50 rounds.

If he is not reacting badly, what's the down side.

Wait and see. Be patient with an older kid.

--- markautismcharge

<mark.connolly.cgb5@...> wrote:

> We just finished our 6th round of ALA chelation on

> my 13 yo non-verbal

> son and there have been no improvements in his

> autistic symptoms. I

> figure I would have seen some improvement by now if

> we were going to

> see any. He tolerates the ALA well and seem a little

> mellower while on

> but that's it. I am considering the 6th round his

> last. Is it too

> soon to throw in the towel?

>

>

>

>

>

__________________________________________________

[Guest guest]

He weighs 132 lbs. 25 mg of ALA every 3 hours even at night.

No supplements at the moment. He is one of those kids that

everything we try does just the opposite of what it is supposed to

do. B vitamins make him worse. Epsom salt baths make him more

hyper if I put too much in the tub, etc.

AC counting rules showed 3 separate instances of probable mercury

toxicity.

Thanks

>

> Hi Mark, what was his hair test like?

>

> It's my understanding that with older kids/adults it can take

longer (more rounds) to see

> marked improvement. I wouldn't throw in the towel quite yet.

>

> What does your son weigh and how much ALA is he taking? Every 3

hours? Supplements?

>

> in Illinois

>

[Guest guest]

I remember a discussion where Andy (?) said it might take the older

kids more rounds to see improvements... at least 10? Don't throw in

the towel quite yet.

How much oral ALA are you using and how much does your son weigh? I

am using 1/2 mg per lb oral ALA for my son and he is doing well (25

mgs/48 lbs).

Pam

>

> We just finished our 6th round of ALA chelation on my 13 yo non-

verbal

> son and there have been no improvements in his autistic symptoms. I

> figure I would have seen some improvement by now if we were going to

> see any. He tolerates the ALA well and seem a little mellower while

on

> but that's it. I am considering the 6th round his last. Is it too

> soon to throw in the towel?

>

[Guest guest]

> We just finished our 6th round of ALA chelation on my 13 yo non-

verbal

> son and there have been no improvements in his autistic symptoms. I

> figure I would have seen some improvement by now if we were going to

> see any. He tolerates the ALA well and seem a little mellower while

on

> but that's it. I am considering the 6th round his last. Is it too

> soon to throw in the towel?

Did you do a hair test before chelating? We did a trial of ALA

chelation with our dd a yr ago, about as long as you did, with the

same results your reporting. We stopped. Now we decided to do a hair

test and we see ALA was probably the wrong choice of chelator because

of lead and high copper. We are going to try again with DMSA first

this time.

[Guest guest]

>

> We just finished our 6th round of ALA chelation on my 13 yo non-verbal

> son and there have been no improvements in his autistic symptoms. I

> figure I would have seen some improvement by now if we were going to

> see any. He tolerates the ALA well and seem a little mellower while on

> but that's it. I am considering the 6th round his last. Is it too

> soon to throw in the towel?

I saw improvements in my kids that would come and then go. As it

turned out, they had other issues also, and all the chelation really

did was allow them to tolerate foods and supplements. It was the

supplements that caused most of the improvements.

Does your child have food intolerance issues? If so, I would keep

chelating. It was enzymes and chelation, and then when he tolerated

supplements I added B vitamins, that eliminated most food intolerances

for my son.

What are his " autistic symptoms " that you are looking to eliminate?

Most of my son's " symptoms " were eliminated with supplements, not with

chelation.

Dana

[Guest guest]

>

> He weighs 132 lbs. 25 mg of ALA every 3 hours even at night.

>

> No supplements at the moment. He is one of those kids that

> everything we try does just the opposite of what it is supposed to

> do. B vitamins make him worse.

B vitamins made my son worse until his basic phenol intolerance was

eliminated [round 10] and his intolerance to artificials was

eliminated [round 50]. At that time, I added rather HIGH doses of B

vitamins with really great results.

Dana

[Guest guest]

>

> He weighs 132 lbs. 25 mg of ALA every 3 hours even at night.

You could go higher and still stay " conservative " .

>

> No supplements at the moment. He is one of those kids that

> everything we try does just the opposite of what it is supposed to

> do. B vitamins make him worse. Epsom salt baths make him more

> hyper if I put too much in the tub, etc.

No antioxidant support? Vit. C? Mg orally?

>

> AC counting rules showed 3 separate instances of probable mercury

> toxicity.

Can you link to the previously posted hair test or repost it?

[Guest guest]

Yes, hair test before chelation. Copper was fine. Zinc and

Magnesium low as expected.

Here is our list of goodies we've done since 1995 in no particular

order.

Ivig infusions- once a month for one year.

Secretein infusion and TD-secretin

DMG

TMG

Super-Nu thera

GF\CF diet

Magnesium

Zinc

Prednisone- this was given after reviewing his MRI results to halt

further demylination

Nystatin

Flagyl- for parasite control

Bovine Brain supplement

Olive leaf extract

Epsom salts baths

Depakote

Luvox

Adderal

Ritalin

Seraquel

Zyprxa

Abilify

Zoloft- still on this, helps with aggression during puberty

PCA-Rx

>

>

> > We just finished our 6th round of ALA chelation on my 13 yo non-

> verbal

> > son and there have been no improvements in his autistic

symptoms. I

> > figure I would have seen some improvement by now if we were

going to

> > see any. He tolerates the ALA well and seem a little mellower

while

> on

> > but that's it. I am considering the 6th round his last. Is it

too

> > soon to throw in the towel?

>

>

> Did you do a hair test before chelating? We did a trial of ALA

> chelation with our dd a yr ago, about as long as you did, with the

> same results your reporting. We stopped. Now we decided to do a

hair

> test and we see ALA was probably the wrong choice of chelator

because

> of lead and high copper. We are going to try again with DMSA

first

> this time.

>

>

>

[Guest guest]

What are his " autistic symptoms " that you are looking to eliminate?

Decsions, decsions...

Well since he really hasn't ever uttered a word some speech would be

nice. Reduction in stimming would be a step in the right direction

as well. He would love to just walk around all day and dangle a

rope or cord or a tie except when is dumping the milk, pop or juice

down the kitchen sink. Receptive is pretty good and follows

instructions. Go get your shoes, get in the car, hand me the phone,

go put your shorts on, etc. A little calmer would be good too I'm

waiting for the Theanine Serene with Relora to arrive and give that

a try to help slow him down.

I also noticed over the weekend his thumb nails are getting ridges

in them. I looked this up (I think it was link Dana provided on

here) and this could mean malabsorption of nutrients, hypothyroid,

low minerals.

Thanks for everyones input on this!!

> >

> > We just finished our 6th round of ALA chelation on my 13 yo non-

verbal

> > son and there have been no improvements in his autistic

symptoms. I

> > figure I would have seen some improvement by now if we were

going to

> > see any. He tolerates the ALA well and seem a little mellower

while on

> > but that's it. I am considering the 6th round his last. Is it

too

> > soon to throw in the towel?

>

>

> I saw improvements in my kids that would come and then go. As it

> turned out, they had other issues also, and all the chelation

really

> did was allow them to tolerate foods and supplements. It was the

> supplements that caused most of the improvements.

>

> Does your child have food intolerance issues? If so, I would keep

> chelating. It was enzymes and chelation, and then when he

tolerated

> supplements I added B vitamins, that eliminated most food

intolerances

> for my son.

>

> What are his " autistic symptoms " that you are looking to

eliminate?

> Most of my son's " symptoms " were eliminated with supplements, not

with

> chelation.

>

> Dana

>

[Guest guest]

What dose and dosing schedule, what diet, what supplements?

S S

--- On Wed 07/05, markautismcharge < <p>What are his " autistic

symptoms " that you are looking to eliminate?<br>

<br>

Decsions, decsions...<br>

<br>

Well since he really hasn't ever uttered a word some speech would be <br>

nice. Reduction in stimming would be a step in the right direction <br>

as well. He would love to just walk around all day and dangle a <br>

rope or cord or a tie except when is dumping the milk, pop or juice <br>

down the kitchen sink. Receptive is pretty good and follows <br>

instructions. Go get your shoes, get in the car, hand me the phone, <br>

go put your shorts on, etc. A little calmer would be good too I'm <br>

waiting for the Theanine Serene with Relora to arrive and give that <br>

a try to help slow him down.<br>

<br>

I also noticed over the weekend his thumb nails are getting ridges <br>

in them. I looked this up (I think it was link Dana provided on <br>

here) and this could mean malabsorption of nutrients, hypothyroid, <br>

low minerals.<br>

<br>

Thanks for everyones input on this!!<br>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

Have you tried digestive enzymes? No-Fenol might help him tolerate the Bs.

S S

> He weighs 132 lbs. 25 mg of ALA every 3 hours even at night. <br>

> <br>

> No supplements at the moment. He is one of those kids that <br>

> everything we try does just the opposite of what it is supposed to <br>

> do. B vitamins make him worse.<br>

<br>

B vitamins made my son worse until his basic phenol intolerance was<br>

eliminated [round 10] and his intolerance to artificials was<br>

eliminated [round 50]. At that time, I added rather HIGH doses of B<br>

vitamins with really great results.<br>

<br>

Dana<br>

<br>

</p>

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Join Excite! - http://www.excite.com

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[Guest guest]

>

> We just finished our 6th round of ALA chelation on my 13 yo non-verbal

> son and there have been no improvements in his autistic symptoms. I

> figure I would have seen some improvement by now if we were going to

> see any. He tolerates the ALA well and seem a little mellower while on

> but that's it. I am considering the 6th round his last. Is it too

> soon to throw in the towel?

>

I want to second 's idea that DMSA might work better.

Lead won't always show up on the hair test.

Also, it's not clear what supplementation you are doing and the

supplements are very important. Especially some of the basics like

magnesium, vit C, E, B complex, fish oil, etc. If there are

intolerances, sometimes it is a matter of starting with a very

small amount. For epsom salts, you could start with a small amount

of transdermal cream, or simply apply a washcloth that has been

soaked in an epsom salt solution.

--

[Guest guest]

> > > We just finished our 6th round of ALA chelation on my 13 yo non-

> > verbal

> > > son and there have been no improvements in his autistic

> symptoms. I

> > > figure I would have seen some improvement by now if we were

> going to

> > > see any. He tolerates the ALA well and seem a little mellower

> while

> > on

> > > but that's it. I am considering the 6th round his last. Is it

> too

> > > soon to throw in the towel?

Yes.

Try 3 months at this point.

What was his hair test like?

Andy

[Guest guest]

His hair test (counting rules) met 3 seperate critera for mercury

toxicity. He is 131 pounds and we giving 25mg every 3 hours even at

night. Next round (which will have to be 7/14- 7/17) I am going to

double it to 50 mg every 3 hours and see what happens. He tolerates

the ALA well.

thanks for the reply, Andy.

>

> > > > We just finished our 6th round of ALA chelation on my 13 yo

non-

> > > verbal

> > > > son and there have been no improvements in his autistic

> > symptoms. I

> > > > figure I would have seen some improvement by now if we were

> > going to

> > > > see any. He tolerates the ALA well and seem a little

mellower

> > while

> > > on

> > > > but that's it. I am considering the 6th round his last. Is

it

> > too

> > > > soon to throw in the towel?

>

> Yes.

>

> Try 3 months at this point.

>

> What was his hair test like?

>

> Andy

>

[Guest guest]

Yes.

Barb

[ ] 6th round of ALA chelation, no improvment, throw in

the towel?

We just finished our 6th round of ALA chelation on my 13 yo non-verbal

son and there have been no improvements in his autistic symptoms. I

figure I would have seen some improvement by now if we were going to

see any. He tolerates the ALA well and seem a little mellower while on

but that's it. I am considering the 6th round his last. Is it too

soon to throw in the towel?

[Guest guest]

Not yet - pls have hope and try ABA. In Nigeria here my Uncle with a 13 yr Non

verbal son who did not know much about ABA was introduced to the best endevour

ABA we have here and started speaking a few words ie. hello, my name after two

weeks. So Sugest you get ABA for him immeduiately.

Rgds,

Chidi (Port Harcourt Nigeria)

[ ] 6th round of ALA chelation, no improvment, throw in

the towel?

We just finished our 6th round of ALA chelation on my 13 yo non-verbal

son and there have been no improvements in his autistic symptoms. I

figure I would have seen some improvement by now if we were going to

see any. He tolerates the ALA well and seem a little mellower while on

but that's it. I am considering the 6th round his last. Is it too

soon to throw in the towel?

[Guest guest]

> Well since he really hasn't ever uttered a word some speech would be

> nice.

What my son required for language is here

http://www.danasview.net/issues.htm

>>Reduction in stimming would be a step in the right direction

> as well. He would love to just walk around all day and dangle a

> rope or cord or a tie

This sounds like either a visual stim or an OCD issue. See my link

above for what my son needed for visuals. For my son, visuals and

language are inversely related. When one is high, the other is low.

OCD was related to viruses for my son.

> I also noticed over the weekend his thumb nails are getting ridges

> in them. I looked this up (I think it was link Dana provided on

> here) and this could mean malabsorption of nutrients, hypothyroid,

> low minerals.

Here are the links I have for that issue

http://www.skinatlas.com/nails.htm

http://dermnetnz.org/hair-nails-sweat/nails.html

http://www.pathlights.com/nr_encyclopedia/03extr02.htm

Dana