Re: Calling all long-term chelation experts

[Guest guest]

In a message dated 23/06/2006 14:39:20 GMT Daylight Time,

Ladyshrink111@... writes:

Has anyone noticed that the reaction you get to the chelators changes over

time? For instance, has anyone been chelating a child and over time noticed

that they went from being better " on " the chelators to no difference or even

being worse when " on " a round?

>>>Yes, and then back again - as in every time you just think you have

sussed it out, everything changes again.......................

Mandi x

[Guest guest]

Yes, we went from being not great on a round, to being better on round than off,

to being variable depending on the round. I think it depends on what you're

pulling at the time.

Barb

[ ] Calling all long-term chelation experts

Has anyone noticed that the reaction you get to the chelators changes over

time? For instance, has anyone been chelating a child and over time noticed that

they went from being better " on " the chelators to no difference or even being

worse when " on " a round?

I do know that each chelation round is a little different, but would like to

hear either way if your child changed from being better either way to being

better or not different the other way.

Thanks, in advance,

[Guest guest]

>

> Has anyone noticed that the reaction you get to the chelators changes

over time? For instance, has anyone been chelating a child and over

time noticed that they went from being better " on " the chelators to no

difference or even being worse when " on " a round?

n has always been better " on " . When he has had a few rounds in a

row of not getting that lift, I raised the dosage and the lift came

back. Being worse on-round has always meant yeast for him.

Nell

[Guest guest]

> >

> > Has anyone noticed that the reaction you get to the chelators

changes

> over time? For instance, has anyone been chelating a child and

over

> time noticed that they went from being better " on " the chelators

to no

> difference or even being worse when " on " a round?

>

> n has always been better " on " . When he has had a few rounds

in a

> row of not getting that lift, I raised the dosage and the lift

came

> back. Being worse on-round has always meant yeast for him.

>

> Nell

>

[Guest guest]

We seem to be having that happen here, though I have not figured out

what it means exactly.

Anne

>

> Has anyone noticed that the reaction you get to the chelators

changes over time? For instance, has anyone been chelating a child

and over time noticed that they went from being better " on " the

chelators to no difference or even being worse when " on " a round?

>

> I do know that each chelation round is a little different, but

would like to hear either way if your child changed from being better

either way to being better or not different the other way.

>

> Thanks, in advance,

>

>

>

>

[Guest guest]

In a message dated 23/06/2006 22:08:46 GMT Daylight Time,

Ladyshrink111@... writes:

And Mandi, is my brain completely gone or do I remember several posts from

you saying Sam always improves when you take a break from chelation? I really

have to start writing things down :-(

>>Yes thats right and I have noticed it in other posts over the years too.

When I mean stop I mean more than 3 weeks, past the time when we would

normally have done another round and then some more.

But in the past 3-4 months we are now seeing gains each round which we have

never done before in 100+ rounds and we are still chelating but not so many

rounds since we started NCD because we had low minerals after messing with

EDTA, in fact only 2 rounds since we started NCD and the last of those he was

waaay more emotional on round but that might have been too higher dose of LA -

we were trialling the OTC TD-RLA - its strong stuff! (we did it with oral DMSA)

Mandi x

[Guest guest]

In a message dated 23/06/2006 23:38:01 GMT Daylight Time, lanellici@...

writes:

> we were trialling the OTC TD-RLA - its strong stuff! (we did it with

oral DMSA)

What's TD-RLA?

>>>Transdermal R-Lipoic Acid - the Health Pro Labs OTC comes with some added

Milk Thistle NAC and Selenomethionine. It is targetted at Diabetics not ASD.

I spoke to the developer (during Autism One) at length regarding frequent

dosing -he was very recently aware of it - mentioned by somebody else?, I

guess it wasn't you then LOL This is the same chap I asked to go and make a TD

Bentofiamine (?sp)

They told me it was 20 x stronger than ALA for same amount of mgs, although

the web site says 2 x.

2oz pot contains 48 doses of 50mg which is 5 pumps.

I told them I was using 50mg oral ALA and the chap said 2.5 pumps - I am

hopeless at Math and never tried to work this out but it looks all wrong to me.

I did 2.5 pumps per dose but would do 1x pump per dose next time round. I

need to find out exactly how much NAC is in there. We had yeast but we hadn't

done DMSA in 5 weeks so I expected that anyways.

He has had a great week until today when he was head butting at school and

being mr grumpy but that all disappeared at lunchtime and he was fine in the

afternoon, seems a tad impulsive to me this evening although happy and alert -

maybe bacteria, time will tell.

Mandi x

[Guest guest]

Thanks, Barb, Nell, Ruth, Anne and Mandi. I am noticing what Ruth and Anne talk

about, she has consistently been better " on " than off. In the beginning you

could tell 8 hours later for sure that the chelators had kicked in.

We had some rounds where there was no discernible difference, but now there is a

slight decline while " on " round. She is slightly quieter, more subdued (not a

bad thing for her most of the time) and slightly more " dreamy " , I guess, just a

little harder to get her attention which has been great. Reminds me of the way

she was on just Ala, but not nearly as bad and she retains her great social

skills. Then two days later she is returned to her previous bubbly self. I, too

would love to know why.

And Mandi, is my brain completely gone or do I remember several posts from you

saying Sam always improves when you take a break from chelation? I really have

to start writing things down :-(

[ ] Re: Calling all long-term chelation experts

> >

> > Has anyone noticed that the reaction you get to the chelators

changes

> over time? For instance, has anyone been chelating a child and

over

> time noticed that they went from being better " on " the chelators

to no

> difference or even being worse when " on " a round?

>

> n has always been better " on " . When he has had a few rounds

in a

> row of not getting that lift, I raised the dosage and the lift

came

> back. Being worse on-round has always meant yeast for him.

>

> Nell

>

[Guest guest]

I have always assumed it was tied to the sulfur issue, but heck, I

don't know which end is up any more. He is changing too fast...

Anne

> > >

> > > Has anyone noticed that the reaction you get to the chelators

> changes

> > over time? For instance, has anyone been chelating a child and

> over

> > time noticed that they went from being better " on " the

chelators

> to no

> > difference or even being worse when " on " a round?

> >

> > n has always been better " on " . When he has had a few

rounds

> in a

> > row of not getting that lift, I raised the dosage and the lift

> came

> > back. Being worse on-round has always meant yeast for him.

> >

> > Nell

> >

>

>

>

>

>

>

[Guest guest]

In a message dated 24/06/2006 02:42:54 GMT Daylight Time,

Ladyshrink111@... writes:

Do you still have to dose it every 3 hours?

>>>I did - wouldn't want to be messing with frequency, its still LA

Mandi x

[Guest guest]

> she has consistently been better " on " than off. In the beginning you

could tell 8 hours later for sure that the chelators had kicked in.

With n I could tell from the first dose, either DMSA or ALA. Since

that was true even from the very first round when the amount of metals

pulled would've been miniscule, there must be some other action going

on. I don't think it's the sulfur because nothing else has the same

effect. I have no idea what to make of any of it.

Nell

[Guest guest]

>

> we were trialling the OTC TD-RLA - its strong stuff! (we did it with

oral DMSA)

What's TD-RLA?

Nell

[Guest guest]

Same here, that effect from the first round, third day, Ala doesn't do it, only

dmsa and dmsa reduces sulfur, I think. Td-dmps, also, almost immediately, hmmm.

[ ] Re: Calling all long-term chelation experts

> she has consistently been better " on " than off. In the beginning you

could tell 8 hours later for sure that the chelators had kicked in.

With n I could tell from the first dose, either DMSA or ALA. Since

that was true even from the very first round when the amount of metals

pulled would've been miniscule, there must be some other action going

on. I don't think it's the sulfur because nothing else has the same

effect. I have no idea what to make of any of it.

Nell

[Guest guest]

Reduced form of Ala, or R-Ala, instead of S-Ala. Lots of drs, scientists

reporting that only R-Ala can chelate, lots of them.

[ ] Re: Calling all long-term chelation experts

>

> we were trialling the OTC TD-RLA - its strong stuff! (we did it with

oral DMSA)

What's TD-RLA?

Nell

[Guest guest]

I really don't know what stopping and getting better means, either, but that

would confuse me even more than I am now, which is considerable. How long does

it keep getting better?

Re: [ ] Re: Calling all long-term chelation experts

In a message dated 23/06/2006 22:08:46 GMT Daylight Time,

Ladyshrink111@... writes:

And Mandi, is my brain completely gone or do I remember several posts from

you saying Sam always improves when you take a break from chelation? I really

have to start writing things down :-(

>>Yes thats right and I have noticed it in other posts over the years too.

When I mean stop I mean more than 3 weeks, past the time when we would

normally have done another round and then some more.

But in the past 3-4 months we are now seeing gains each round which we have

never done before in 100+ rounds and we are still chelating but not so many

rounds since we started NCD because we had low minerals after messing with

EDTA, in fact only 2 rounds since we started NCD and the last of those he was

waaay more emotional on round but that might have been too higher dose of LA -

we were trialling the OTC TD-RLA - its strong stuff! (we did it with oral

DMSA)

Mandi x

[Guest guest]

> I spoke to the developer (during Autism One) at length regarding

frequent

> dosing -he was very recently aware of it - mentioned by somebody

else?, I

> guess it wasn't you then LOL This is the same chap I asked to go

and make a TD

> Bentofiamine (?sp)

Oh right, gotcha. LOL he was one guy I didn't get to .

>

> They told me it was 20 x stronger than ALA for same amount of mgs,

although

> the web site says 2 x.

>

> 2oz pot contains 48 doses of 50mg which is 5 pumps.

>

> I told them I was using 50mg oral ALA and the chap said 2.5 pumps -

I am

> hopeless at Math and never tried to work this out but it looks all

wrong to me.

Do you mean 50 mgs is 5 pumps? If the website's right then 2.5 pumps

= 50 mgs of old ALA, but way off if it's 20x stronger

> He has had a great week

Anything in particular different?

until today when he was head butting at school and

> being mr grumpy but that all disappeared at lunchtime and he was

fine in the

> afternoon

Love when that happens! This is all very exciting!

Nell

[Guest guest]

Do you still have to dose it every 3 hours?

[ ] Re: Calling all long-term chelation experts

> I spoke to the developer (during Autism One) at length regarding

frequent

> dosing -he was very recently aware of it - mentioned by somebody

else?, I

> guess it wasn't you then LOL This is the same chap I asked to go

and make a TD

> Bentofiamine (?sp)

Oh right, gotcha. LOL he was one guy I didn't get to .

>

> They told me it was 20 x stronger than ALA for same amount of mgs,

although

> the web site says 2 x.

>

> 2oz pot contains 48 doses of 50mg which is 5 pumps.

>

> I told them I was using 50mg oral ALA and the chap said 2.5 pumps -

I am

> hopeless at Math and never tried to work this out but it looks all

wrong to me.

Do you mean 50 mgs is 5 pumps? If the website's right then 2.5 pumps

= 50 mgs of old ALA, but way off if it's 20x stronger

> He has had a great week

Anything in particular different?

until today when he was head butting at school and

> being mr grumpy but that all disappeared at lunchtime and he was

fine in the

> afternoon

Love when that happens! This is all very exciting!

Nell

[Guest guest]

Hi Mandi and ,

Do either of you have a link for the TD r-la? I'm using DMSA. I have

some ALA capsules, but have been hesitant to use it. The talk about

heartburn-like symptoms have me a bit concerned. I'm still dealing

with canker sores from DMSA.

Thanks,

Orelindel

>

>

> In a message dated 24/06/2006 02:42:54 GMT Daylight Time,

> Ladyshrink111@... writes:

>

> Do you still have to dose it every 3 hours?

>

>

>

> >>>I did - wouldn't want to be messing with frequency, its still

LA

>

> Mandi x

>

>

>

[Guest guest]

> They said if I was using 50mg ALA then I would need 10mg of RLA which

is the

> one pump I will do next time. Maybe I was jetlagged - plannign to

ring them

> for a chat next week when my brain is in gear and will report back.

Ask him how it's stronger -- does it mean that the bond is tighter and

there's less picking up and dropping? Or that somehow more metals are

picked up? Or what? I was lying in bed last night waiting for the 4 am

alarm to ring thinking about this, lol.

Nell

[Guest guest]

In a message dated 24/06/2006 10:57:14 GMT Daylight Time,

whatmattersmost@... writes:

Do either of you have a link for the TD r-la? I'm using DMSA. I have

some ALA capsules, but have been hesitant to use it. The talk about

heartburn-like symptoms have me a bit concerned.

>>>I havent; actually read much about folks having these problems, although

I am aware of the warning.

We use Kirkman flavoured caps, which taste nice and works well here- Sam

takes it out a cap with or without food without issue. I would try that first.

TD's are for folks who really have no other way to get the stuff in.

I used it on Sam because he can handle the change after 4 years of chelation

and I don't want anybody going in with a'full' dose of this TD stuff - we

can't get TD ALA Rx here in UK and I plan to sell it in my on-line store with

some idea of what a 'dose' does

Good luck

Mandi in UK

[Guest guest]

In a message dated 24/06/2006 12:51:34 GMT Daylight Time, lanellici@...

writes:

> one pump I will do next time. Maybe I was jetlagged - plannign to

ring them

> for a chat next week when my brain is in gear and will report back.

Ask him how it's stronger -- does it mean that the bond is tighter and

there's less picking up and dropping? Or that somehow more metals are

picked up? Or what? I was lying in bed last night waiting for the 4 am

alarm to ring thinking about this, lol.

>>>OK will do - I want to know exactly how much of the other stuff is in

there, will report back

Mandi x

[Guest guest]

>

> Has anyone noticed that the reaction you get to the chelators

changes over time? For instance, has anyone been chelating a child

and over time noticed that they went from being better " on " the

chelators to no difference or even being worse when " on " a round?

This was my son because of mineral toxicity. While mineral toxic, he

was better " on " round. Once the mineral problem was resolved, he was

worse " on " round because minerals were pulled.

Dana

[Guest guest]

Dana..when figuring out mineral toxic..did you figure this out via RBC

MInerals or other route of evaluation...I see improvements on

chelating days with my son and worse on off days but his RBC minerals

are showing he is fine...although saying that maybe it's time to redo

test..;-) I have 2 kids one recovered and been doing DAN for gee 8+

yrs now...would love to know more from you about this..thanks

Sandy

> >

> > Has anyone noticed that the reaction you get to the chelators

> changes over time? For instance, has anyone been chelating a child

> and over time noticed that they went from being better " on " the

> chelators to no difference or even being worse when " on " a round?

>

>

> This was my son because of mineral toxicity. While mineral toxic, he

> was better " on " round. Once the mineral problem was resolved, he was

> worse " on " round because minerals were pulled.

>

> Dana

>

[Guest guest]

Hello justa litle information I wanted to share in case some of you are not yet

aware,... Very good links at the bottom of this email and the links are in

royal blue,... Good luck to you all and god bless

omputers That Can Read Minds May Help Fight Autism

By Highfield, for the Telegraph.co.uk.

http://tinyurl.com/pd4gn

Visitors to a major science exhibition are to help teach computers how

to read confusion, mirth and other expressions. It is hoped that this will

lead to the development of ways to help people with autism recognise

emotions.

The thousands of visitors to next week's Royal Society summer science

exhibition are being invited to take part in research with " emotionally

aware " computers designed to mind-read by analysing facial expressions.

The developers hope that one day smart adverts based on their

technology will be able to tell when passers-by look glum and try to sell

them something cheering, from an anti-depressant to a holiday.

They are also working with colleagues in America to develop a headset

version of the system to help people who find it difficult to read others'

facial expressions and emotions, as happens with autism and Asperger's

syndrome. The headset would interpret other people's moods and communicate

them to the wearer.

A prototype has been developed at the University of Cambridge and will

be unveiled at the exhibition in London.

, professor of computer technology at the university,

said: " Imagine a computer that could pick the right emotional moment to try

to sell you something, a future in which mobile telephones, cars and

websites could read our minds and react to our moods. "

The computer program takes data from a camera to locate and track 24

facial " feature points " , such as the edge of the nose, the eyebrows and the

corners of the mouth.

So far, 20 key facial movements, such as a nod or shake of the head, a

raise of the eyebrow or pull on the corner of the mouth, have been linked to

underlying emotions, using actors to indicate different facial expressions

to the computer.

The team is refining the system with " real " people's expressions and

hopes that the exhibition will generate valuable new data to improve the

program's ability to read faces.

Prof said: " The system can cope with the variation in

people's facial composition, for example if you have a round or thin face or

if you wear glasses or have a beard.

" However, there are small variations in the way people express the

same emotion. My colleagues working at the Massachusetts Institute of

Technology are fine-tuning the system by testing it with real people's

reactions to everyday life using cameras attached to neck-braces. "

The technology is also being developed for use in cars to improve

driver safety. The team is recording the faces of volunteers in driving

conditions and monitoring facial movements to identify more complex

expressions linked to confusion, boredom or tiredness.

" We are working with a major car company and it is possible that this

technology could feature in cars within five years, " Prof said.

. The exhibition, which is held at the Royal Society, is free and runs

from July 3 to 6.

http://my.waiora.com/home.php?230323

http://www.besttestimonials.com/

orelindel <whatmattersmost@...> wrote: Hi Mandi and ,

Do either of you have a link for the TD r-la? I'm using DMSA. I have

some ALA capsules, but have been hesitant to use it. The talk about

heartburn-like symptoms have me a bit concerned. I'm still dealing

with canker sores from DMSA.

Thanks,

Orelindel

>

>

> In a message dated 24/06/2006 02:42:54 GMT Daylight Time,

> Ladyshrink111@... writes:

>

> Do you still have to dose it every 3 hours?

>

>

>

> >>>I did - wouldn't want to be messing with frequency, its still

LA

>

> Mandi x

>

>

>

[Guest guest]

>

> Dana..when figuring out mineral toxic..did you figure this out via RBC

> MInerals or other route of evaluation...

Every time I tried to give my son minerals, especially calcium or

iron, he would get hyper and regress. Selenium was required. He did

okay with a little zinc. Certain supplements required magnesium.

Otherwise all the other minerals caused problems.

Dana