Re: neurosciences neurotransmitter testing and products

May 7, 2006

Hi ,

Your son's test results are similar to my 7 year old son's. I had the same

recommendations for products.

Does your son have behaviors associated with seizures? Have you tried any

anti-seizure medications? Should we be concerned that these seizures are

causing damage? What amino acids test results are you waiting for prior to

SAMe?

Thanks for the great information! It is great to know that I am not the

only one dealing with this.

In a message dated 5/7/2006 9:23:05 A.M. Central Daylight Time,

writes:

Message 8

From: " ferdeson " ferdeson@...

Date: Sat May 6, 2006 10:11pm(PDT)

Subject: Re: neuroscience neurotransmitter testing and products

, your story sounds familiar...

My almost 5 yo son has absence seizures (hundred per day probably)

and his neurotransmitter test has kind of the same pattern:

low epi: 5.4

very high norepi: 143

low dopamine: 63

suboptiaml serotonin: 142

high GABA: 11

elevated PEA: 752

high histamine: 35

Neuroscience suggested CalmPRT, TravaCor and EndoTrex.

I've just started TravaCor a few days ago. It does not seem to help.

I read that vit C, vit A can help to convert norepinephrine to

epinephrine. I also found some diagram pathways involving SAMe in the

methylation of norepinephrine to epinephrine. Almost at the bottom of

this page:

http://www.rpi.edu/dept/bcbp/molbiochem/MBWeb/mb2/part1/aacarbon.htm

The funny thing is that SAMe is also an antimony chelator and my

son's last hair test showed elevated antimony. I might try some SAMe.

I am waiting for amino acids results to go ahead with this.

I also tried l-theanine (one from the health food store, not from

Neuroscience) and it seems to help. But it gave stomach ache to my

son so I cannot use it much.

The first day of chelation (oral ALA, Andy's protocol) his seizures

are more frequent, then the frequency goes back to " normal " .

Please let me know if you find something that works, especially to

bring back the Norepi/Epi ratio back to normal.

Thanks,

>

> Has anyone here done the testing and used the products? My son did

> the testing but has not done the products yet. His results showed:

> epinephrine is low, norepinephprine is high, dopamine is

suboptimal,

> seratonin is suboptimal, GABA is elevated, PEA is normal, histamine

> is normal.

>

> His EEG is abnormal with excessive delta and theta waves and a

> clinical diagnosis of epilepsy. He experienced close to 3 months

of

> daily (2-3 per day) absence seizures beginning during HBOT and

> continuing thereafter. We stopped chelation for 6 months because

of

> the seizure issues. A month ago, we started chelation again. He

> cannot tolerate chelation now. Prior to HBOT, he never had any

> difficulties with chelation. Now, he has extreme aggression with

> chelation, even though we are dosing the same as prior to HBOT. He

> has completed over 70 rounds. He is 7. I am thinking that his

> current intolerance to chelation is related to seizure issues that

> chelation is bringing on.

>

> I really don't want to put my son on an anti-seizure medication.

We

> trialed Depakote. That was a disaster behaviorally. Our DAN! dr.

> said that if Depakote caused behavior problems, that is indicative

> that other anti-seizure meds will as well. So, therefore, I am

> thinking about the Neuroscience Neurotransmitter products and

> wondering if they could fix my son's issues.

> Thanks

>

May 7, 2006

Well this thread has got me nervous. I was going to start chelating

my son with ALA only starting next Friday but his EEG done several

years ago (he just turened 13)showed abnormal spiking not seziures

per se but the doc did put him on Depakote which of course made his

behavoir worse. Is there any documention that say not to chelate or

hBOT, etc. if abnormal brain patterns are present?

> >

> > Has anyone here done the testing and used the products? My son

did

> > the testing but has not done the products yet. His results

showed:

> > epinephrine is low, norepinephprine is high, dopamine is

> suboptimal,

> > seratonin is suboptimal, GABA is elevated, PEA is normal,

histamine

> > is normal.

> >

> > His EEG is abnormal with excessive delta and theta waves and a

> > clinical diagnosis of epilepsy. He experienced close to 3

months

> of

> > daily (2-3 per day) absence seizures beginning during HBOT and

> > continuing thereafter. We stopped chelation for 6 months

because

> of

> > the seizure issues. A month ago, we started chelation again.

He

> > cannot tolerate chelation now. Prior to HBOT, he never had any

> > difficulties with chelation. Now, he has extreme aggression

with

> > chelation, even though we are dosing the same as prior to

HBOT. He

> > has completed over 70 rounds. He is 7. I am thinking that his

> > current intolerance to chelation is related to seizure issues

that

> > chelation is bringing on.

> >

> > I really don't want to put my son on an anti-seizure

medication.

> We

> > trialed Depakote. That was a disaster behaviorally. Our DAN!

dr.

> > said that if Depakote caused behavior problems, that is

indicative

> > that other anti-seizure meds will as well. So, therefore, I am

> > thinking about the Neuroscience Neurotransmitter products and

> > wondering if they could fix my son's issues.

> > Thanks

> >

>

May 7, 2006

The HBOT community claims that HBOT helps end seizures and that HBOT

is a treatment for epilepsy. The HBOT center that we used said that

my son's regression into absence seizures and related behaviors was

due to my poor parenting. With an abnormal EEG, I would definitely

think twice before doing HBOT. As for chelation, I think your

chances are much better. My son completed almost 70 rounds of

DMPS/ALA chelation prior to HBOT with huge gains and no problems.

Although he had an abnormal EEG prior to HBOT, he had never had an

absence seizure that I know of. HBOT started the absence seizures.

Post-HBOT, chelation appears to bring on seizure-like activity - lots

of aggression episodes, complaints of brain pain, etc.

> > >

> > > Has anyone here done the testing and used the products? My

son

> did

> > > the testing but has not done the products yet. His results

> showed:

> > > epinephrine is low, norepinephprine is high, dopamine is

> > suboptimal,

> > > seratonin is suboptimal, GABA is elevated, PEA is normal,

> histamine

> > > is normal.

> > >

> > > His EEG is abnormal with excessive delta and theta waves and a

> > > clinical diagnosis of epilepsy. He experienced close to 3

> months

> > of

> > > daily (2-3 per day) absence seizures beginning during HBOT and

> > > continuing thereafter. We stopped chelation for 6 months

> because

> > of

> > > the seizure issues. A month ago, we started chelation again.

> He

> > > cannot tolerate chelation now. Prior to HBOT, he never had

any

> > > difficulties with chelation. Now, he has extreme aggression

> with

> > > chelation, even though we are dosing the same as prior to

> HBOT. He

> > > has completed over 70 rounds. He is 7. I am thinking that

his

> > > current intolerance to chelation is related to seizure issues

> that

> > > chelation is bringing on.

> > >

> > > I really don't want to put my son on an anti-seizure

> medication.

> > We

> > > trialed Depakote. That was a disaster behaviorally. Our DAN!

> dr.

> > > said that if Depakote caused behavior problems, that is

> indicative

> > > that other anti-seizure meds will as well. So, therefore, I

am

> > > thinking about the Neuroscience Neurotransmitter products and

> > > wondering if they could fix my son's issues.

> > > Thanks

> > >

> >

May 7, 2006

No, never heard that, plenty of people have chelated kids with seizures and

found the seizures stopped or lessened!

However, thinking HBOT is another story, that seizures might be a

contraindication for HBOT. I do know there is a recommendation that you not do

HBOT until you have chelated for awhile, but followed that one with 70

rounds.

That is the reason I never did HBOT, I could never get anyone to tell me when

HBOT should NOT be used, and that is an important piece of any treatment.

If anyone has ever heard someone responsible say when HBOT should NOT be used, I

would appreciate hearing from them.

[ ] Re: neurosciences neurotransmitter testing and

products

Well this thread has got me nervous. I was going to start chelating

my son with ALA only starting next Friday but his EEG done several

years ago (he just turened 13)showed abnormal spiking not seziures

per se but the doc did put him on Depakote which of course made his

behavoir worse. Is there any documention that say not to chelate or

hBOT, etc. if abnormal brain patterns are present?

> >

> > Has anyone here done the testing and used the products? My son

did

> > the testing but has not done the products yet. His results

showed:

> > epinephrine is low, norepinephprine is high, dopamine is

> suboptimal,

> > seratonin is suboptimal, GABA is elevated, PEA is normal,

histamine

> > is normal.

> >

> > His EEG is abnormal with excessive delta and theta waves and a

> > clinical diagnosis of epilepsy. He experienced close to 3

months

> of

> > daily (2-3 per day) absence seizures beginning during HBOT and

> > continuing thereafter. We stopped chelation for 6 months

because

> of

> > the seizure issues. A month ago, we started chelation again.

He

> > cannot tolerate chelation now. Prior to HBOT, he never had any

> > difficulties with chelation. Now, he has extreme aggression

with

> > chelation, even though we are dosing the same as prior to

HBOT. He

> > has completed over 70 rounds. He is 7. I am thinking that his

> > current intolerance to chelation is related to seizure issues

that

> > chelation is bringing on.

> >

> > I really don't want to put my son on an anti-seizure

medication.

> We

> > trialed Depakote. That was a disaster behaviorally. Our DAN!

dr.

> > said that if Depakote caused behavior problems, that is

indicative

> > that other anti-seizure meds will as well. So, therefore, I am

> > thinking about the Neuroscience Neurotransmitter products and

> > wondering if they could fix my son's issues.

> > Thanks

> >

>

May 7, 2006

Below is all I found regarding ALA chelation and seizures but I

didn't do a extensive search. This is from Danasview..

Potential dangers

Because metals are moving into and out of body organs, there is

danger that these organs may become over-stressed, which is why

testing is recommended, especially for kidney and liver function. If

the protocol is longer than every 3-4 hours between doses of

chelator, there is evidence of metals coming out, then returning

into, then coming out, then returning into, and so on, which can

affect the body organs also. For children prone to seizures, it is

possible that ALA removing metals from the brain can provoke

seizures. If your child experiences an increase of yeast symptoms,

consider a yeast treatment, even as a maintenance item during

rounds.

> > >

> > > Has anyone here done the testing and used the products? My

son

> did

> > > the testing but has not done the products yet. His results

> showed:

> > > epinephrine is low, norepinephprine is high, dopamine is

> > suboptimal,

> > > seratonin is suboptimal, GABA is elevated, PEA is normal,

> histamine

> > > is normal.

> > >

> > > His EEG is abnormal with excessive delta and theta waves

and a

> > > clinical diagnosis of epilepsy. He experienced close to 3

> months

> > of

> > > daily (2-3 per day) absence seizures beginning during HBOT

and

> > > continuing thereafter. We stopped chelation for 6 months

> because

> > of

> > > the seizure issues. A month ago, we started chelation

again.

> He

> > > cannot tolerate chelation now. Prior to HBOT, he never had

any

> > > difficulties with chelation. Now, he has extreme

aggression

> with

> > > chelation, even though we are dosing the same as prior to

> HBOT. He

> > > has completed over 70 rounds. He is 7. I am thinking that

his

> > > current intolerance to chelation is related to seizure

issues

> that

> > > chelation is bringing on.

> > >

> > > I really don't want to put my son on an anti-seizure

> medication.

> > We

> > > trialed Depakote. That was a disaster behaviorally. Our

DAN!

> dr.

> > > said that if Depakote caused behavior problems, that is

> indicative

> > > that other anti-seizure meds will as well. So, therefore,

I am

> > > thinking about the Neuroscience Neurotransmitter products

and

> > > wondering if they could fix my son's issues.

> > > Thanks

> > >

> >

May 7, 2006

Mark, try www.onibasu.com A very good place to research any topic, and you are

right, I do remember reading a post from a woman who said her son started having

seizures on the chelators.

I think I remember Andy telling her to increase the magnesium, add taurine and

even Gaba.

This may be troubling to you, and I can understand it, but there will be many

posts from people who report that their child's seizures stopped or were reduced

from chelation.

Good luck,