Re: Six Month Update on Sam - Very Loooooong - Witter Warning!

[Guest guest]

>

the second time he said WEEEeeeeee with perfect

> articulation and intonation and then looked very scared that the

sound had come

> out of him and wouldn’t do it again, just like he did when I got

the very

> first vocal imitation ‘Buh’ out of him in March. He was really

wrapped up in the

> moment then too, almost like the words can come out if he is

relaxed

> enough?

> Thats his first word since 13 months BTW

Wey Hey Hey Mandi, this is absolutely brilliant. Just checking email

after one last NT vote and I will go to bed smiling just to think of

how much that word meant. You are both stars. Here's hoping it

continues. All the best Sue

[Guest guest]

Mandi, thank you so much for this fabulous update. You must be so

very proud of your boy!

Strange, but we have been getting some of the same scrutiny and chin-

touching here since starting chelation.

Okay, I'm " outing " myself on AM: I actually started my son on NCD

this week largely because of your experience. We'll see how things

go...

take care

René

> He is now watching my mouth intently when I sing †" like he is

trying to

> figure out how I make the words come out. He puts on his favourite

track in the

> car and touches my chin if I don’t start singing straight away.

I say a word

> and touch his chin - he contorts his mouth trying to figure out

how to make

> the sound come out - bless!

[Guest guest]

Hello Mandi; wow you did realy try alot of things; I do wish you

that you do even get more resuls in the future! Can you explain to

me what is the russian products? and even my son I hev impression we

can't get him enough CLO; what is your plan for this problem?

all the best

fardi

>

>

> This update is long, but I need to write it all down and loads of

folks from

> all over have asked for it J

> We had a good time at Disney at New Years, Sam wasn’t at all

phased by

> crowds or the noise, sat beautifully on the buses holding the

foot plate for the

> major buggy we took with us (mostly for me to lean on LOL) with

no stimming AT

> ALL †" spooky, just sitting there like a normal boy, looking out

of the

> window and watching people get on and off.

> He queued well (usually about 10-20 mins) however, there is no

way I would

> want to do Disney without the special pass and that’s without

taking the

> kids/Sam!! He didn’t like the Stitch ride where we sat

individually and had a

> brace come over our heads †" I didn’t like that either. On the

Dino-land ride in

> Animal Kingdom he instinctively buried his head in my shoulder at

the scary

> bit †" you know, like a normal boy J

> However, he did start butting my shoulder with his head, which

hurts after a

> while, so I took to offering him my hand †" palm side and he

butted that. I

> thought maybe bacteria at the time but maybe that was low B's and

low

> minerals.

> We had experimented with both oral and TD EDTA during December.

Both made

> him stimmy, gave him yeast flare (?moving metals - there isn't

any sulphur in

> EDTA) and my gut feeling was that it was actively pulling

minerals. We did

> frequent dosing rounds with loads of minerals during and after

but I think it

> was all too much. My plan was to go back to DMSA/ALA in the new

year.

> When we got back I went back to the Liquid B’s from Metabolics

(using multi

> while we were away) and the butting stopped in 24 hours. Phew!

We restarted

> DMSA/ALA and saw some yeast which I expected after the break, as

in †" moving

> metals causes yeast and he had time to build up more than usual

to pull with

> the break. We started seeing small but definite stuff with every

round †" BOUT

> TIME TOO after all these years!!

> After phone consult with Dr H at the end of Feb we started TD-

LDN. I couldn’

> t afford both the LDN and the MB12 so we dropped the MB12 (6

months) having

> seen good stuff initially and then seemingly fade away, no

negatives to speak

> of apart from requiring adjustment to his other B-vits

particularly B2 †" if

> he got red rash around his mouth extra B2 would make it disappear

in 24

> hours. I figured this might be MB12 spinning the cycle and

therefore using up more

> of the other B’s in the process.

> We went in on full dose of 3mg LDN given at around 1.00am with

good effect

> and no negatives. I had done 3 weeks of oral LDN last year and

felt he did

> well but the dosing 3mg out of a 50mg tab and not knowing how

much was stuck to

> the side of the cup made dosing tricky so decided to wait for the

TD. He

> seemed to look better, healthy and more sociable - seeking out

his brothers to

> play on the trampoline and just ‘hanging’ with them †"

ahhhhhhhhh J

> At the end of March we went to see ‘The Brushing Man’ who

examines for

> retained and immature reflexes and individualises a programme of

brushing

> designed to stimulate the mid brain †" I think its something

akin to the stuff they

> do for kids with CP per the Peto Institute. Well it all sounded

like hocus

> pocus voodoo to me but a friends son has done very well on the

regime and I

> figured it couldn’t do any harm J

> Sam was not particularly compliant with the examination but they

did manage

> to get the basics done. Sam has a retained reflex in his spine

which should

> have been lost in the womb and still has the newborn hand grasp

reflex †"

> perhaps that explains why he always preferred to hold my little

finger than my

> hand when out and about. When he first started pulling us to

stuff he wanted

> when he was 4, it was always one finger only, like his hand

wasn’t comfortable

> being in the cupped position or maybe just being that much in

contact †" though

> he was much improved with his tactile aversions by then.

> Within 3 weeks he went from looking mechanical on a 3 wheeled

scooter and

> stopping to physically lift the scooter into a different

direction †" to looking

> smooth (if a little poor on steering) on a 2 wheeled micro-

scooter and being

> very pleased with himself J He also started having what I

described as ‘

> normal’ kid type accidents, tripping up and stuff †" the

brushing man explained

> all this but you'd need to watch my hands to understand. It’s a

good thing

> and shows some changes happening as his body gets used to knowing

where it is

> in relation to other things.

> RBC minerals in April showed low minerals across the board †"

something we

> have never seen in 4 years worth of DMSA/ALA including a 9 month

stint on TD

> DMPS. We stopped Chelation and piled the minerals in †"

Metabolics Ionics,

> Citramins II and BCN, retesting early next month.

> I totally forgot that I could have been doing ALA alone and not

worrying

> about the minerals being depleted †" DUH. Anyways, after

dismissing NCD because

> of MLM earlier in the year, I revisited and chatted with folks

actually using

> the stuff. We are not able to sign up as distributors and get the

discount

> from the UK so another US mum sorted me out with supplies †"

thanks A!

> We started at the end of April, with 1 drop x 3 and raising the

dose by 3

> drops each day. I started the same time. Day 3 we both had yeasty

wee+++++. Sam

> does not have stool changes or many yeast behaviours these days

so smells

> and bedwetting with Candex are really the only clues. Upped

probio’s and that

> cleared up over 72 hours. (I will write about my experiences in

another

> mail).

> Then we had a spooky rash, looked like stinging nettle stings,

mid trunk and

> then †" poof it was gone. He didn’t seem bothered by it.

> Receptive language took a leap, he is extra happy, seems very

confident.

> Within a week he was balancing on the scooter, posing like his

brothers,

> turning corners with ease †" and at speed (arghhhhhhhhhhhhh) and

when we went to

> the park and he scooted off with Tom and Joe †" well, I was

watching a normal

> set of siblings go off into the distance †" that was spooky,

scary and

> exciting all rolled in to one †" don’t get me wrong, Sam is

waaaaay from being a

> normal boy, but its awesome to watch him looking like one J

> This is far too long already and I am tired so I am gonna list

some of the

> stuff we have been seeing since the NCD late April and the

Russian Choice GI

> at the end of May. We have done one round of regular Chelation in

this period

> with oral DMSA and TD-RLA.

> ‘Asking’ for brushing by putting his arm around me and taking

me to our

> bedroom and dive bombing on the bed and waiting for me to start J

> He was swimming with SLP qualified respite worker, with her

pulling him by

> his fingertips and saying Weeeeeeeeeee while he giggled, he loved

it, she

> pulled without saying weeee, the second time he said WEEEeeeeee

with perfect

> articulation and intonation and then looked very scared that the

sound had come

> out of him and wouldn’t do it again, just like he did when I

got the very

> first vocal imitation ‘Buh’ out of him in March. He was

really wrapped up in the

> moment then too, almost like the words can come out if he is

relaxed

> enough?

> Thats his first word since 13 months BTW

> He also moved up the side of pool to the deep end holding on to

the side

> whilst Nicky swam out to the middle †" she could tell he wanted

her to come over

> but she pretended not to understand - he was having trouble

signing and

> hanging on LOL, she told him to come to her †" and he did †"

swam right out with no

> problems, he has never done that without armbands or jacket

although I

> suspected he might be able to.

> He can now ‘blow’ on command now, only learnt to blow in an

accidental

> fashin in January - new years party streamer he found int he bin

at Disney LOL

> He is now watching my mouth intently when I sing †" like he is

trying to

> figure out how I make the words come out. He puts on his

favourite track in the

> car and touches my chin if I don’t start singing straight away.

I say a word

> and touch his chin - he contorts his mouth trying to figure out

how to make

> the sound come out - bless!

> He saw me winding up the power lead on the vacuum and went and

opened the

> door to the cupboard for me, I didn’t even know he registered

where we even

> keep it!

> When we are out in the car and come up to a junction, he looks

left and

> right, leaning forward like I do to check for traffic J

> The early morning wakening is a thing of the past †" no more

5.00-6.00am †"

> now he sleeps through till 7.00am

> He is very calm and relaxed †" he used to ping about the place,

busy rather

> than hyper †" the other day I thought I had lost him †" NO

VERBAL STIMS †"

> excuse me? I found him relaxing on the sofa with his legs crossed

watching the DVD

> and using the remote control †" wow!

> No longer holds on to my finger †" prefers to hold hands

properly or link

> arms as they do at school.

> When we go out to the freezer for an orange juice lolly he is

closing the

> drawer with his foot like anybody would do (it’s the bottom

drawer) †" he used

> to bend down and struggle to push it with his hands

> We are seeing some head nodding and shaking for yes and no †"

finally after 6

> years of trying to get him to do it!!! This comes more easily

when he isn’t

> thinking too hard about it †" its spontaneous and it seems to

surprise him but

> not cause worry like the word/attempts did

> Made his first ever spontaneous comment with PECS at school last

week and

> then went off to take supermarket vouchers to the office as

requested - by

> himself, did his job and returned to classroom J

> He can now hold up the right number of fingers for 1-5, he

concentrates hard

> on number 3 getting his little finger and thumb to point inwards

and in last

> few weeks no longer needs to use his other hand to help get the

position

> right. We use this mostly for action songs at home.

> Nicky came to take him out a few weeks ago and set him up †" she

wrapped up a

> Percy Pig sweet and placed it in the car so he could see it when

he got in

> but couldn’t reach it. He made all sorts of signs and gestures

but she said

> you have to ASK for it Sam it’s a Percy Pig, he got mad and

spat out a ‘Puh-Puh

> ’ for her eventually and she made a big fuss and he looked very

pleased with

> himself. BTW If I try this he would walk away from me rather than

make

> sound. She can push him further than me.

> He is keeping him pants on!!!!! (always preferred to be naked at

home) He

> has a white bum instead of an all over tan for the very first

time and he is

> putting them on first thing without even being reminded! (and

changing them if

> he gets a skiddy!)

> Tidying up his room when prompted (he doesn’t make a much of a

mess anywhere

> else)

> He often gets Marmite round his face when eating toast †" I have

started

> taking him to the mirror, giving him a wipe and telling him he

has a dirty face,

> his reaction the first time was to wipe the rash in the mirror

but he knows

> that wasn't right and is concentrating hard and managing to wipe

the right

> place †" this is a kid that would NEVER look in a mirror after

he regressed

> Receptive up +++ or is it desire to listen? saw him holding

new DVD

> the other day and said †" oh what have you got †" Sam went over

and passed it to

> DH and waited for a response †" show and share eh? Love it!

> He is asking (gestures) his brother for a go on his new (adult

sized) bike †"

> and letting Joe put the cycle helmet on him (OMG †" this is kid

who will NOT

> EVER wear hats) Joe said Sam was trying to do the gears like he

has seen him

> do †" held on to Joe’s shoulder with one arm and was made up

when he pushed

> him a round on it J

> A week ago we had the chicken pox type rash for 3 days. This week

we have

> what looks like a measles type rash on the back of his thighs.

Its different to

> what we normally see eczema type wise with gut bug flare or die

off. He has

> been pinching today †" I think it may be bacteria flare/die off

†" we have

> been doing Biocidin for 2 weeks now. Will see how he goes and

might go in with

> the CS if things don’t look up. I will post a link to photo of

latest rash

> later.

> We have not seen this many positives in such a short time since

we came off

> the diet with HNI 4 years ago. Whilst this might seem like small

stuff to

> many of you †" its highly significant here and I am very excited

J Even not so

> observant DH is noticing stuff.

> Sam is learning from his environment and imitation now for the

first time

> and that as you know is HUGE!

> In summary, it feels like he fits in his own skin now †" does

that make

> sense?

> We have altered the NCD dose several times, backing off if it

seemed too

> much and worked up to 15 drops per day, x 3 in the morning and

x12 in a litre of

> juice/water mix which he gets throughout the day at school. I

don't plan do

> to any more traditional chelation until we have updated RBC

results.

> We have worked up slowly on the Russian Choice stuff since

beginning of June

> and I am holding at 2 x 2 caps per day for now.

> Looking forward to at last getting some proper testing done in

August now we

> have some funding from Caudwell, his EFA’s are all up the creek

for sure,

> probably amino’s too, trying to figure out a way to fund Yasko

testing. We’ll

> be doing Megsons protocol then too, if I can ever get enough CLO

into him

> Mandi in UK

> Mum to Sam 14.1.97, Dx 47XYY, Autism, Heavy Metal Toxicity,

Possible Seizure

> Disorder and Severe Cute-ness

>

>

>

[Guest guest]

Mandi, this is such encouraging news. You are indeed an inspiration to

us all.

Few questions:

What is MLM?

Who is the " Brushing Man " ?

What is CS?

Do you use ATEC to gauge improvement?

Grandfather of Luke

>

>

> This update is long, but I need to write it all down and loads of

folks from

> all over have asked for it

.........................snip.................................

[Guest guest]

Hi Mandi Its been worth the wait for such a positive update - go Sam!! Loads of significant things sound to be happening, add them all up .....VERY EXCITING. Hope the good things continue. TinaMum231ASD@... wrote: This update is long, but I need to write it all down and loads of folks from all over have

asked for it J We had a good time at Disney at New Years, Sam wasn’t at all phased by crowds or the noise, sat beautifully on the buses holding the foot plate for the major buggy we took with us (mostly for me to lean on LOL) with no stimming AT ALL – spooky, just sitting there like a normal boy, looking out of the window and watching people get on and off. He queued well (usually about 10-20 mins) however, there is no way I would want to do Disney without the special pass and that’s without taking the kids/Sam!! He didn’t like the Stitch ride where we sat individually and had a brace come over our heads – I didn’t like that either. On the Dino-land ride in Animal Kingdom he instinctively buried his head in my shoulder at the scary bit – you know, like a normal boy J However, he did start butting my shoulder with his head, which hurts after a while, so I took to offering him my hand – palm side and he butted

that. I thought maybe bacteria at the time but maybe that was low B's and low minerals. We had experimented with both oral and TD EDTA during December. Both made him stimmy, gave him yeast flare (?moving metals - there isn't any sulphur in EDTA) and my gut feeling was that it was actively pulling minerals. We did frequent dosing rounds with loads of minerals during and after but I think it was all too much. My plan was to go back to DMSA/ALA in the new year. When we got back I went back to the Liquid B’s from

Metabolics (using multi while we were away) and the butting stopped in 24 hours. Phew! We restarted DMSA/ALA and saw some yeast which I expected after the break, as in – moving metals causes yeast and he had time to build up more than usual to pull with the break. We started seeing small but definite stuff with every round – BOUT TIME TOO after all these years!! After phone consult with Dr H at the end of Feb we started TD-LDN. I couldn’t afford both the LDN and the MB12 so we dropped the MB12 (6 months) having seen good stuff initially and then seemingly fade away, no negatives to speak of apart from requiring adjustment to his other B-vits particularly B2 – if he got red rash around his mouth extra B2 would make it

disappear in 24 hours. I figured this might be MB12 spinning the cycle and therefore using up more of the other B’s in the process. We went in on full dose of 3mg LDN given at around 1.00am with good effect and no negatives. I had done 3 weeks of oral LDN last year and felt he did well but the dosing 3mg out of a 50mg tab and not knowing how much was stuck to the side of the cup made dosing tricky so decided to wait for the TD. He seemed to look better, healthy and more sociable - seeking out his brothers to play on the trampoline and just ‘hanging’ with them – ahhhhhhhhh J At the end of March we went to see ‘The Brushing Man’ who examines for retained and immature reflexes and individualises a programme of brushing designed to stimulate the mid brain – I think its something akin to the stuff they do for kids with CP per the Peto Institute. Well it all sounded like hocus pocus voodoo to me but a friends son has done very well on the regime and I figured it couldn’t do any harm J Sam was not particularly compliant with the

examination but they did manage to get the basics done. Sam has a retained reflex in his spine which should have been lost in the womb and still has the newborn hand grasp reflex – perhaps that explains why he always preferred to hold my little finger than my hand when out and about. When he first started pulling us to stuff he wanted when he was 4, it was always one finger only, like his hand wasn’t comfortable being in the cupped position or maybe just being that much in contact – though he was much improved with his tactile aversions by then. Within 3 weeks he went from looking mechanical on a 3 wheeled scooter and stopping to physically lift the scooter into a different direction – to looking smooth (if a little poor on steering) on

a 2 wheeled micro-scooter and being very pleased with himself J He also started having what I described as ‘normal’ kid type accidents, tripping up and stuff – the brushing man explained all this but you'd need to watch my hands to understand. It’s a good thing and shows some changes happening as his body gets used to knowing where it is in relation to other things. RBC minerals in April showed low minerals across the board – something we have never seen in 4 years worth of DMSA/ALA including a 9 month stint on TD DMPS. We stopped Chelation and piled the minerals in – Metabolics Ionics, Citramins II and BCN, retesting

early next month. I totally forgot that I could have been doing ALA alone and not worrying about the minerals being depleted – DUH. Anyways, after dismissing NCD because of MLM earlier in the year, I revisited and chatted with folks actually using the stuff. We are not able to sign up as distributors and get the discount from the UK so another US mum sorted me out with supplies – thanks A! We started at the end of April, with 1 drop x 3 and raising the dose

by 3 drops each day. I started the same time. Day 3 we both had yeasty wee+++++. Sam does not have stool changes or many yeast behaviours these days so smells and bedwetting with Candex are really the only clues. Upped probio’s and that cleared up over 72 hours. (I will write about my experiences in another mail). Then we had a spooky rash, looked like stinging nettle stings, mid trunk and then – poof it was gone. He didn’t seem bothered by it. Receptive language took a leap, he is extra happy, seems very

confident. Within a week he was balancing on the scooter, posing like his brothers, turning corners with ease – and at speed (arghhhhhhhhhhhhh) and when we went to the park and he scooted off with Tom and Joe – well, I was watching a normal set of siblings go off into the distance – that was spooky, scary and exciting all rolled in to one – don’t get me wrong, Sam is waaaaay from being a normal boy, but its awesome to watch him looking like one J This is far too long already and I am tired so I am gonna list some of the stuff we have been seeing since the NCD late April and the Russian Choice GI at the end of May. We have done one round of regular Chelation in this period with oral DMSA and TD-RLA. ‘Asking’ for brushing by putting his arm around me and taking me to our bedroom and dive bombing on the bed and waiting for me to start J He was swimming with SLP qualified respite worker, with her pulling him by his fingertips and saying Weeeeeeeeeee while he giggled, he loved it, she pulled without saying weeee, the second time he said WEEEeeeeee with perfect articulation and intonation and then looked very scared that the sound had come out of him and wouldn’t do it again, just like he did when I got the very first vocal imitation ‘Buh’ out of him in March. He was really wrapped up in the moment then too, almost like the words can come out if he is relaxed enough? Thats his first word since 13 months BTW He also moved up the side of pool to the deep end holding on to the side whilst Nicky swam out to the middle – she could tell he wanted her to come over but she pretended not to understand - he was having trouble signing and hanging on LOL, she told him to come to her – and he did – swam right out with no problems, he has never done that without armbands or jacket although I suspected he might be able to. He can now ‘blow’ on command now, only learnt to blow in an accidental fashin in January - new years party streamer he found int he bin at Disney LOL He is now watching my mouth intently when I sing – like he is trying to figure out how I make the words come out. He puts on his favourite track in the car and touches my chin if I don’t start singing straight away. I say a word and touch his chin - he contorts his mouth trying to figure out how to make the sound come out - bless! He saw me winding up the power lead on the vacuum and went and opened the door to the cupboard for me, I didn’t even know he registered where we even keep it! When we are out in the car and come up to a junction, he looks left and right, leaning forward like I do to check for traffic J The early morning wakening is a thing of the past – no more 5.00-6.00am – now he sleeps through till 7.00am He is very calm and relaxed – he used to ping about the place, busy rather than hyper – the other day I thought I had lost him – NO VERBAL STIMS – excuse me? I found him relaxing on the sofa with his legs crossed watching the DVD and using the remote control – wow! No longer holds on to my finger – prefers to hold hands properly or link arms as they do at school. When we go out to the freezer for an orange juice lolly he is closing the drawer with his foot like anybody would do (it’s the bottom

drawer) – he used to bend down and struggle to push it with his hands We are seeing some head nodding and shaking for yes and no – finally after 6 years of trying to get him to do it!!! This comes more easily when he isn’t thinking too hard about it – its spontaneous and it seems to surprise him but not cause worry like the word/attempts did Made his first ever spontaneous comment with PECS at school last week and then went off to take supermarket vouchers to the office as requested - by

himself, did his job and returned to classroom J He can now hold up the right number of fingers for 1-5, he concentrates hard on number 3 getting his little finger and thumb to point inwards and in last few weeks no longer needs to use his other hand to help get the position right. We use this mostly for action songs at home. Nicky came to take him out a few weeks ago and set him up – she wrapped up a Percy Pig sweet and

placed it in the car so he could see it when he got in but couldn’t reach it. He made all sorts of signs and gestures but she said you have to ASK for it Sam it’s a Percy Pig, he got mad and spat out a ‘Puh-Puh’ for her eventually and she made a big fuss and he looked very pleased with himself. BTW If I try this he would walk away from me rather than make sound. She can push him further than me. He is keeping him pants on!!!!! (always preferred to be naked at home) He has a white bum instead of an all over tan for the very first time and he is putting them on first thing without even being reminded! (and changing them if he gets a skiddy!) Tidying up his room when prompted (he doesn’t make a much of a mess anywhere else) He often gets Marmite round his face when eating toast – I have started taking him to the mirror, giving him a wipe and telling him he has a dirty face, his reaction the first time was to wipe the rash in the mirror but he knows that wasn't right and is concentrating hard and managing to wipe the right place – this is a kid that would NEVER look in a mirror after he regressed Receptive up +++ or is it desire to listen? saw him holding new DVD the other day and said – oh what have you got – Sam went over and passed it to DH and waited for a response – show and share eh? Love it! He is asking (gestures) his brother for a go on his new (adult sized) bike – and letting Joe put the cycle helmet on him (OMG – this is kid who will NOT EVER wear hats) Joe said Sam was trying to do the gears like he has seen him do – held on to Joe’s shoulder with one arm and was made up when he pushed him a round on it J A week ago we had the chicken pox type rash for 3 days. This week we have what looks like a measles type rash on the back of his thighs. Its different to what we normally see eczema type wise with gut bug flare or die off. He has been pinching today – I think it may be bacteria flare/die off – we have been doing Biocidin for 2 weeks now. Will see how he goes and might go in with the CS if things don’t look up. I will post a link to photo of latest rash later. We have not seen this many positives in

such a short time since we came off the diet with HNI 4 years ago. Whilst this might seem like small stuff to many of you – its highly significant here and I am very excited J Even not so observant DH is noticing stuff. Sam is learning from his environment and imitation now for the first time and that as you know is HUGE! In summary, it feels like he fits in his own skin now – does that make

sense? We have altered the NCD dose several times, backing off if it seemed too much and worked up to 15 drops per day, x 3 in the morning and x12 in a litre of juice/water mix which he gets throughout the day at school. I don't plan do to any more traditional chelation until we have updated RBC results. We have worked up slowly on the Russian Choice stuff since beginning of June and I am holding at 2 x 2 caps per day for now. Looking forward to at last getting some proper testing done in August now we have some funding from Caudwell, his EFA’s are all up the creek for sure, probably amino’s too, trying to figure out a way to fund Yasko testing. We’ll be doing Megsons protocol then too, if I can ever get enough CLO into him Mandi in UK Mum to Sam 14.1.97, Dx 47XYY, Autism, Heavy Metal Toxicity, Possible Seizure Disorder and Severe Cute-ness

[Guest guest]

Whilst this might seem like small stuff to many of you â€" its

highly significant here .. Sam is learning from his environment and

imitation now for the first time and that as you know is HUGE!

In summary, it feels like he fits in his own skin now â€" does that make sense?

Makes absolut sense!

And does not sound like small stuff at all Mandi, also if think about

him suddenly being aware of things he wasn't before, there could be so

much confusion going on (and shyness?), remember a program about a

blind guy who underwent an operation and suddenly could see for the

first time, it took him long, long time to get adjust to space and

perspective and actually had to have his eyes closed for lots of the

time in order to get around... so there could be more there going on

for Sam than he is letting out for those simple 'psychological

adjustment' reasons.

Delighted for you all.

Natasa

[Guest guest]

>

> He is now watching my mouth intently when I sing †" like he is

trying to

> figure out how I make the words come out. He puts on his favourite

track in the

> car and touches my chin if I don’t start singing straight away. I

say a word

> and touch his chin - he contorts his mouth trying to figure out how

to make

> the sound come out - bless!

Brilliant, brilliant, every bit of it -- I think that part is my

favorite.

Here comes Sam!

Nell

[Guest guest]

Hi Mandi I'm so pleased for you - this is really exciting progress.

You do so much to help everyone else and work so hard for Sam you

really deserve this. I know what you mean about Stitch at Disney -

it was the only ride Charlie was scared of and so was I!

It's interesting what you said about the eczema - Charlie has

suddenly got it on the back of his knees. I thought it might be

because of the glutathione cream but maybe not.

Fingers crossed Sam keeps getting better

Peta

-- In Autism Treatment , Mum231ASD@... wrote:

>

>

> This update is long, but I need to write it all down and loads of

folks from

> all over have asked for it J

> We had a good time at Disney at New Years, Sam wasn’t at all

phased by

> crowds or the noise, sat beautifully on the buses holding the

foot plate for the

> major buggy we took with us (mostly for me to lean on LOL) with

no stimming AT

> ALL †" spooky, just sitting there like a normal boy, looking out

of the

> window and watching people get on and off.

> He queued well (usually about 10-20 mins) however, there is no

way I would

> want to do Disney without the special pass and that’s without

taking the

> kids/Sam!! He didn’t like the Stitch ride where we sat

individually and had a

> brace come over our heads †" I didn’t like that either. On the

Dino-land ride in

> Animal Kingdom he instinctively buried his head in my shoulder at

the scary

> bit †" you know, like a normal boy J

> However, he did start butting my shoulder with his head, which

hurts after a

> while, so I took to offering him my hand †" palm side and he

butted that. I

> thought maybe bacteria at the time but maybe that was low B's and

low

> minerals.

> We had experimented with both oral and TD EDTA during December.

Both made

> him stimmy, gave him yeast flare (?moving metals - there isn't

any sulphur in

> EDTA) and my gut feeling was that it was actively pulling

minerals. We did

> frequent dosing rounds with loads of minerals during and after

but I think it

> was all too much. My plan was to go back to DMSA/ALA in the new

year.

> When we got back I went back to the Liquid B’s from Metabolics

(using multi

> while we were away) and the butting stopped in 24 hours. Phew!

We restarted

> DMSA/ALA and saw some yeast which I expected after the break, as

in †" moving

> metals causes yeast and he had time to build up more than usual

to pull with

> the break. We started seeing small but definite stuff with every

round †" BOUT

> TIME TOO after all these years!!

> After phone consult with Dr H at the end of Feb we started TD-

LDN. I couldn’

> t afford both the LDN and the MB12 so we dropped the MB12 (6

months) having

> seen good stuff initially and then seemingly fade away, no

negatives to speak

> of apart from requiring adjustment to his other B-vits

particularly B2 †" if

> he got red rash around his mouth extra B2 would make it disappear

in 24

> hours. I figured this might be MB12 spinning the cycle and

therefore using up more

> of the other B’s in the process.

> We went in on full dose of 3mg LDN given at around 1.00am with

good effect

> and no negatives. I had done 3 weeks of oral LDN last year and

felt he did

> well but the dosing 3mg out of a 50mg tab and not knowing how

much was stuck to

> the side of the cup made dosing tricky so decided to wait for the

TD. He

> seemed to look better, healthy and more sociable - seeking out

his brothers to

> play on the trampoline and just ‘hanging’ with them †"

ahhhhhhhhh J

> At the end of March we went to see ‘The Brushing Man’ who

examines for

> retained and immature reflexes and individualises a programme of

brushing

> designed to stimulate the mid brain †" I think its something

akin to the stuff they

> do for kids with CP per the Peto Institute. Well it all sounded

like hocus

> pocus voodoo to me but a friends son has done very well on the

regime and I

> figured it couldn’t do any harm J

> Sam was not particularly compliant with the examination but they

did manage

> to get the basics done. Sam has a retained reflex in his spine

which should

> have been lost in the womb and still has the newborn hand grasp

reflex †"

> perhaps that explains why he always preferred to hold my little

finger than my

> hand when out and about. When he first started pulling us to

stuff he wanted

> when he was 4, it was always one finger only, like his hand

wasn’t comfortable

> being in the cupped position or maybe just being that much in

contact †" though

> he was much improved with his tactile aversions by then.

> Within 3 weeks he went from looking mechanical on a 3 wheeled

scooter and

> stopping to physically lift the scooter into a different

direction †" to looking

> smooth (if a little poor on steering) on a 2 wheeled micro-

scooter and being

> very pleased with himself J He also started having what I

described as ‘

> normal’ kid type accidents, tripping up and stuff †" the

brushing man explained

> all this but you'd need to watch my hands to understand. It’s a

good thing

> and shows some changes happening as his body gets used to knowing

where it is

> in relation to other things.

> RBC minerals in April showed low minerals across the board †"

something we

> have never seen in 4 years worth of DMSA/ALA including a 9 month

stint on TD

> DMPS. We stopped Chelation and piled the minerals in †"

Metabolics Ionics,

> Citramins II and BCN, retesting early next month.

> I totally forgot that I could have been doing ALA alone and not

worrying

> about the minerals being depleted †" DUH. Anyways, after

dismissing NCD because

> of MLM earlier in the year, I revisited and chatted with folks

actually using

> the stuff. We are not able to sign up as distributors and get the

discount

> from the UK so another US mum sorted me out with supplies †"

thanks A!

> We started at the end of April, with 1 drop x 3 and raising the

dose by 3

> drops each day. I started the same time. Day 3 we both had yeasty

wee+++++. Sam

> does not have stool changes or many yeast behaviours these days

so smells

> and bedwetting with Candex are really the only clues. Upped

probio’s and that

> cleared up over 72 hours. (I will write about my experiences in

another

> mail).

> Then we had a spooky rash, looked like stinging nettle stings,

mid trunk and

> then †" poof it was gone. He didn’t seem bothered by it.

> Receptive language took a leap, he is extra happy, seems very

confident.

> Within a week he was balancing on the scooter, posing like his

brothers,

> turning corners with ease †" and at speed (arghhhhhhhhhhhhh) and

when we went to

> the park and he scooted off with Tom and Joe †" well, I was

watching a normal

> set of siblings go off into the distance †" that was spooky,

scary and

> exciting all rolled in to one †" don’t get me wrong, Sam is

waaaaay from being a

> normal boy, but its awesome to watch him looking like one J

> This is far too long already and I am tired so I am gonna list

some of the

> stuff we have been seeing since the NCD late April and the

Russian Choice GI

> at the end of May. We have done one round of regular Chelation in

this period

> with oral DMSA and TD-RLA.

> ‘Asking’ for brushing by putting his arm around me and taking

me to our

> bedroom and dive bombing on the bed and waiting for me to start J

> He was swimming with SLP qualified respite worker, with her

pulling him by

> his fingertips and saying Weeeeeeeeeee while he giggled, he loved

it, she

> pulled without saying weeee, the second time he said WEEEeeeeee

with perfect

> articulation and intonation and then looked very scared that the

sound had come

> out of him and wouldn’t do it again, just like he did when I

got the very

> first vocal imitation ‘Buh’ out of him in March. He was

really wrapped up in the

> moment then too, almost like the words can come out if he is

relaxed

> enough?

> Thats his first word since 13 months BTW

> He also moved up the side of pool to the deep end holding on to

the side

> whilst Nicky swam out to the middle †" she could tell he wanted

her to come over

> but she pretended not to understand - he was having trouble

signing and

> hanging on LOL, she told him to come to her †" and he did †"

swam right out with no

> problems, he has never done that without armbands or jacket

although I

> suspected he might be able to.

> He can now ‘blow’ on command now, only learnt to blow in an

accidental

> fashin in January - new years party streamer he found int he bin

at Disney LOL

> He is now watching my mouth intently when I sing †" like he is

trying to

> figure out how I make the words come out. He puts on his

favourite track in the

> car and touches my chin if I don’t start singing straight away.

I say a word

> and touch his chin - he contorts his mouth trying to figure out

how to make

> the sound come out - bless!

> He saw me winding up the power lead on the vacuum and went and

opened the

> door to the cupboard for me, I didn’t even know he registered

where we even

> keep it!

> When we are out in the car and come up to a junction, he looks

left and

> right, leaning forward like I do to check for traffic J

> The early morning wakening is a thing of the past †" no more

5.00-6.00am †"

> now he sleeps through till 7.00am

> He is very calm and relaxed †" he used to ping about the place,

busy rather

> than hyper †" the other day I thought I had lost him †" NO

VERBAL STIMS †"

> excuse me? I found him relaxing on the sofa with his legs crossed

watching the DVD

> and using the remote control †" wow!

> No longer holds on to my finger †" prefers to hold hands

properly or link

> arms as they do at school.

> When we go out to the freezer for an orange juice lolly he is

closing the

> drawer with his foot like anybody would do (it’s the bottom

drawer) †" he used

> to bend down and struggle to push it with his hands

> We are seeing some head nodding and shaking for yes and no †"

finally after 6

> years of trying to get him to do it!!! This comes more easily

when he isn’t

> thinking too hard about it †" its spontaneous and it seems to

surprise him but

> not cause worry like the word/attempts did

> Made his first ever spontaneous comment with PECS at school last

week and

> then went off to take supermarket vouchers to the office as

requested - by

> himself, did his job and returned to classroom J

> He can now hold up the right number of fingers for 1-5, he

concentrates hard

> on number 3 getting his little finger and thumb to point inwards

and in last

> few weeks no longer needs to use his other hand to help get the

position

> right. We use this mostly for action songs at home.

> Nicky came to take him out a few weeks ago and set him up †" she

wrapped up a

> Percy Pig sweet and placed it in the car so he could see it when

he got in

> but couldn’t reach it. He made all sorts of signs and gestures

but she said

> you have to ASK for it Sam it’s a Percy Pig, he got mad and

spat out a ‘Puh-Puh

> ’ for her eventually and she made a big fuss and he looked very

pleased with

> himself. BTW If I try this he would walk away from me rather than

make

> sound. She can push him further than me.

> He is keeping him pants on!!!!! (always preferred to be naked at

home) He

> has a white bum instead of an all over tan for the very first

time and he is

> putting them on first thing without even being reminded! (and

changing them if

> he gets a skiddy!)

> Tidying up his room when prompted (he doesn’t make a much of a

mess anywhere

> else)

> He often gets Marmite round his face when eating toast †" I have

started

> taking him to the mirror, giving him a wipe and telling him he

has a dirty face,

> his reaction the first time was to wipe the rash in the mirror

but he knows

> that wasn't right and is concentrating hard and managing to wipe

the right

> place †" this is a kid that would NEVER look in a mirror after

he regressed

> Receptive up +++ or is it desire to listen? saw him holding

new DVD

> the other day and said †" oh what have you got †" Sam went over

and passed it to

> DH and waited for a response †" show and share eh? Love it!

> He is asking (gestures) his brother for a go on his new (adult

sized) bike †"

> and letting Joe put the cycle helmet on him (OMG †" this is kid

who will NOT

> EVER wear hats) Joe said Sam was trying to do the gears like he

has seen him

> do †" held on to Joe’s shoulder with one arm and was made up

when he pushed

> him a round on it J

> A week ago we had the chicken pox type rash for 3 days. This week

we have

> what looks like a measles type rash on the back of his thighs.

Its different to

> what we normally see eczema type wise with gut bug flare or die

off. He has

> been pinching today †" I think it may be bacteria flare/die off

†" we have

> been doing Biocidin for 2 weeks now. Will see how he goes and

might go in with

> the CS if things don’t look up. I will post a link to photo of

latest rash

> later.

> We have not seen this many positives in such a short time since

we came off

> the diet with HNI 4 years ago. Whilst this might seem like small

stuff to

> many of you †" its highly significant here and I am very excited

J Even not so

> observant DH is noticing stuff.

> Sam is learning from his environment and imitation now for the

first time

> and that as you know is HUGE!

> In summary, it feels like he fits in his own skin now †" does

that make

> sense?

> We have altered the NCD dose several times, backing off if it

seemed too

> much and worked up to 15 drops per day, x 3 in the morning and

x12 in a litre of

> juice/water mix which he gets throughout the day at school. I

don't plan do

> to any more traditional chelation until we have updated RBC

results.

> We have worked up slowly on the Russian Choice stuff since

beginning of June

> and I am holding at 2 x 2 caps per day for now.

> Looking forward to at last getting some proper testing done in

August now we

> have some funding from Caudwell, his EFA’s are all up the creek

for sure,

> probably amino’s too, trying to figure out a way to fund Yasko

testing. We’ll

> be doing Megsons protocol then too, if I can ever get enough CLO

into him

> Mandi in UK

> Mum to Sam 14.1.97, Dx 47XYY, Autism, Heavy Metal Toxicity,

Possible Seizure

> Disorder and Severe Cute-ness

>

[Guest guest]

Ditto –

I don’t know how you manage to have time for us – we are very

grateful though. Sara x

Re: Six Month Update on Sam - Very Loooooong -

Witter Warning!

Hi Mandi I'm so

pleased for you - this is really exciting progress.

You do so much to help everyone else and work so hard for Sam you

really deserve this. I know what you mean about Stitch at Disney -

it was the only ride Charlie was scared of and so was I!

It's interesting what you said about the eczema - Charlie has

suddenly got it on the back of his knees. I thought it might be

because of the glutathione cream but maybe not.

Fingers crossed Sam keeps getting better

Peta

-- In Autism Treatment ,

Mum231ASD@... wrote:

>

>

> This update is long, but I need to write it all down and loads of

folks from

> all over have asked for it J

> We had a good time at Disney at New Years, Sam wasn’t at all

phased by

> crowds or the noise, sat beautifully on the buses holding the

foot plate for the

> major buggy we took with us (mostly for me to lean on LOL) with

no stimming AT

> ALL †" spooky, just sitting there like a normal boy, looking

out

of the

> window and watching people get on and off.

> He queued well (usually about 10-20 mins) however, there is no

way I would

> want to do Disney without the special pass and that’s

without

taking the

> kids/Sam!! He didn’t like the Stitch ride where we sat

individually and had a

> brace come over our heads †" I didn’t like that

either. On the

Dino-land ride in

> Animal Kingdom he instinctively buried his head in my shoulder at

the scary

> bit †" you know, like a normal boy J

> However, he did start butting my shoulder with his head, which

hurts after a

> while, so I took to offering him my hand †" palm side and he

butted that. I

> thought maybe bacteria at the time but maybe that was low B's and

low

> minerals.

> We had experimented with both oral and TD EDTA during December.

Both made

> him stimmy, gave him yeast flare (?moving metals - there isn't

any sulphur in

> EDTA) and my gut feeling was that it was actively pulling

minerals. We did

> frequent dosing rounds with loads of minerals during and after

but I think it

> was all too much. My plan was to go back to DMSA/ALA in the new

year.

> When we got back I went back to the Liquid B’s from

Metabolics

(using multi

> while we were away) and the butting stopped in 24 hours. Phew!

We restarted

> DMSA/ALA and saw some yeast which I expected after the break, as

in †" moving

> metals causes yeast and he had time to build up more than usual

to pull with

> the break. We started seeing small but definite stuff with every

round †" BOUT

> TIME TOO after all these years!!

> After phone consult with Dr H at the end of Feb we started TD-

LDN. I couldn’

> t afford both the LDN and the MB12 so we dropped the MB12 (6

months) having

> seen good stuff initially and then seemingly fade away, no

negatives to speak

> of apart from requiring adjustment to his other B-vits

particularly B2 †" if

> he got red rash around his mouth extra B2 would make it disappear

in 24

> hours. I figured this might be MB12 spinning the cycle and

therefore using up more

> of the other B’s in the process.

> We went in on full dose of 3mg LDN given at around 1.00am with

good effect

> and no negatives. I had done 3 weeks of oral LDN last year and

felt he did

> well but the dosing 3mg out of a 50mg tab and not knowing how

much was stuck to

> the side of the cup made dosing tricky so decided to wait for the

TD. He

> seemed to look better, healthy and more sociable - seeking out

his brothers to

> play on the trampoline and just ‘hanging’ with

them †"

ahhhhhhhhh J

> At the end of March we went to see ‘The Brushing

Man’ who

examines for

> retained and immature reflexes and individualises a programme of

brushing

> designed to stimulate the mid brain †" I think its something

akin to the stuff they

> do for kids with CP per the Peto Institute. Well it all sounded

like hocus

> pocus voodoo to me but a friends son has done very well on the

regime and I

> figured it couldn’t do any harm J

> Sam was not particularly compliant with the examination but they

did manage

> to get the basics done. Sam has a retained reflex in his spine

which should

> have been lost in the womb and still has the newborn hand grasp

reflex †"

> perhaps that explains why he always preferred to hold my little

finger than my

> hand when out and about. When he first started pulling us to

stuff he wanted

> when he was 4, it was always one finger only, like his hand

wasn’t comfortable

> being in the cupped position or maybe just being that much in

contact †" though

> he was much improved with his tactile aversions by then.

> Within 3 weeks he went from looking mechanical on a 3 wheeled

scooter and

> stopping to physically lift the scooter into a different

direction †" to looking

> smooth (if a little poor on steering) on a 2 wheeled micro-

scooter and being

> very pleased with himself J He also started having what I

described as ‘

> normal’ kid type accidents, tripping up and stuff

†" the

brushing man explained

> all this but you'd need to watch my hands to understand.

It’s a

good thing

> and shows some changes happening as his body gets used to knowing

where it is

> in relation to other things.

> RBC minerals in April showed low minerals across the board †"

something we

> have never seen in 4 years worth of DMSA/ALA including a 9 month

stint on TD

> DMPS. We stopped Chelation and piled the minerals in †"

Metabolics Ionics,

> Citramins II and BCN, retesting early next month.

> I totally forgot that I could have been doing ALA alone and not

worrying

> about the minerals being depleted †" DUH. Anyways, after

dismissing NCD because

> of MLM earlier in the year, I revisited and chatted with folks

actually using

> the stuff. We are not able to sign up as distributors and get the

discount

> from the UK so another US mum sorted me out with supplies †"

thanks A!

> We started at the end of April, with 1 drop x 3 and raising the

dose by 3

> drops each day. I started the same time. Day 3 we both had yeasty

wee+++++. Sam

> does not have stool changes or many yeast behaviours these days

so smells

> and bedwetting with Candex are really the only clues. Upped

probio’s and that

> cleared up over 72 hours. (I will write about my experiences in

another

> mail).

> Then we had a spooky rash, looked like stinging nettle stings,

mid trunk and

> then †" poof it was gone. He didn’t seem

bothered by it.

> Receptive language took a leap, he is extra happy, seems very

confident.

> Within a week he was balancing on the scooter, posing like his

brothers,

> turning corners with ease †" and at speed (arghhhhhhhhhhhhh)

and

when we went to

> the park and he scooted off with Tom and Joe †" well, I was

watching a normal

> set of siblings go off into the distance †" that was spooky,

scary and

> exciting all rolled in to one †" don’t get me

wrong, Sam is

waaaaay from being a

> normal boy, but its awesome to watch him looking like one J

> This is far too long already and I am tired so I am gonna list

some of the

> stuff we have been seeing since the NCD late April and the

Russian Choice GI

> at the end of May. We have done one round of regular Chelation in

this period

> with oral DMSA and TD-RLA.

> ‘Asking’ for brushing by putting his arm around

me and taking

me to our

> bedroom and dive bombing on the bed and waiting for me to start J

> He was swimming with SLP qualified respite worker, with her

pulling him by

> his fingertips and saying Weeeeeeeeeee while he giggled, he loved

it, she

> pulled without saying weeee, the second time he said WEEEeeeeee

with perfect

> articulation and intonation and then looked very scared that the

sound had come

> out of him and wouldn’t do it again, just like he did when I

got the very

> first vocal imitation ‘Buh’ out of him in

March. He was

really wrapped up in the

> moment then too, almost like the words can come out if he is

relaxed

> enough?

> Thats his first word since 13 months BTW

> He also moved up the side of pool to the deep end holding on to

the side

> whilst Nicky swam out to the middle †" she could tell he

wanted

her to come over

> but she pretended not to understand - he was having trouble

signing and

> hanging on LOL, she told him to come to her †" and he did

†"

swam right out with no

> problems, he has never done that without armbands or jacket

although I

> suspected he might be able to.

> He can now ‘blow’ on command now, only learnt

to blow in an

accidental

> fashin in January - new years party streamer he found int he bin

at Disney LOL

> He is now watching my mouth intently when I sing †" like he is

trying to

> figure out how I make the words come out. He puts on his

favourite track in the

> car and touches my chin if I don’t start singing straight

away.

I say a word

> and touch his chin - he contorts his mouth trying to figure out

how to make

> the sound come out - bless!

> He saw me winding up the power lead on the vacuum and went and

opened the

> door to the cupboard for me, I didn’t even know he

registered

where we even

> keep it!

> When we are out in the car and come up to a junction, he looks

left and

> right, leaning forward like I do to check for traffic J

> The early morning wakening is a thing of the past †" no more

5.00-6.00am †"

> now he sleeps through till 7.00am

> He is very calm and relaxed †" he used to ping about the

place,

busy rather

> than hyper †" the other day I thought I had lost him

†" NO

VERBAL STIMS †"

> excuse me? I found him relaxing on the sofa with his legs crossed

watching the DVD

> and using the remote control †" wow!

> No longer holds on to my finger †" prefers to hold hands

properly or link

> arms as they do at school.

> When we go out to the freezer for an orange juice lolly he is

closing the

> drawer with his foot like anybody would do (it’s the bottom

drawer) †" he used

> to bend down and struggle to push it with his hands

> We are seeing some head nodding and shaking for yes and no †"

finally after 6

> years of trying to get him to do it!!! This comes more easily

when he isn’t

> thinking too hard about it †" its spontaneous and it seems to

surprise him but

> not cause worry like the word/attempts did

> Made his first ever spontaneous comment with PECS at school last

week and

> then went off to take supermarket vouchers to the office as

requested - by

> himself, did his job and returned to classroom J

> He can now hold up the right number of fingers for 1-5, he

concentrates hard

> on number 3 getting his little finger and thumb to point inwards

and in last

> few weeks no longer needs to use his other hand to help get the

position

> right. We use this mostly for action songs at home.

> Nicky came to take him out a few weeks ago and set him up †"

she

wrapped up a

> Percy Pig sweet and placed it in the car so he could see it when

he got in

> but couldn’t reach it. He made all sorts of signs and

gestures

but she said

> you have to ASK for it Sam it’s a Percy Pig, he got mad and

spat out a ‘Puh-Puh

> ’ for her eventually and she made a big fuss and he looked

very

pleased with

> himself. BTW If I try this he would walk away from me rather than

make

> sound. She can push him further than me.

> He is keeping him pants on!!!!! (always preferred to be naked at

home) He

> has a white bum instead of an all over tan for the very first

time and he is

> putting them on first thing without even being reminded! (and

changing them if

> he gets a skiddy!)

> Tidying up his room when prompted (he doesn’t make a much of

a

mess anywhere

> else)

> He often gets Marmite round his face when eating toast †" I

have

started

> taking him to the mirror, giving him a wipe and telling him he

has a dirty face,

> his reaction the first time was to wipe the rash in the mirror

but he knows

> that wasn't right and is concentrating hard and managing to wipe

the right

> place †" this is a kid that would NEVER look in a mirror after

he regressed

> Receptive up +++ or is it desire to listen? saw him holding

new DVD

> the other day and said †" oh what have you got †"

Sam went over

and passed it to

> DH and waited for a response †" show and share eh? Love it!

> He is asking (gestures) his brother for a go on his new (adult

sized) bike †"

> and letting Joe put the cycle helmet on him (OMG †" this is

kid

who will NOT

> EVER wear hats) Joe said Sam was trying to do the gears like he

has seen him

> do †" held on to Joe’s shoulder with one arm and

was made up

when he pushed

> him a round on it J

> A week ago we had the chicken pox type rash for 3 days. This week

we have

> what looks like a measles type rash on the back of his thighs.

Its different to

> what we normally see eczema type wise with gut bug flare or die

off. He has

> been pinching today †" I think it may be bacteria flare/die

off

†" we have

> been doing Biocidin for 2 weeks now. Will see how he goes and

might go in with

> the CS if things don’t look up. I will post a link to photo

of

latest rash

> later.

> We have not seen this many positives in such a short time since

we came off

> the diet with HNI 4 years ago. Whilst this might seem like small

stuff to

> many of you †" its highly significant here and I am very excited

J Even not so

> observant DH is noticing stuff.

> Sam is learning from his environment and imitation now for the

first time

> and that as you know is HUGE!

> In summary, it feels like he fits in his own skin now †" does

that make

> sense?

> We have altered the NCD dose several times, backing off if it

seemed too

> much and worked up to 15 drops per day, x 3 in the morning and

x12 in a litre of

> juice/water mix which he gets throughout the day at school. I

don't plan do

> to any more traditional chelation until we have updated RBC

results.

> We have worked up slowly on the Russian Choice stuff since

beginning of June

> and I am holding at 2 x 2 caps per day for now.

> Looking forward to at last getting some proper testing done in

August now we

> have some funding from Caudwell, his EFA’s are all up the

creek

for sure,

> probably amino’s too, trying to figure out a way to fund

Yasko

testing. We’ll

> be doing Megsons protocol then too, if I can ever get enough CLO

into him

> Mandi in UK

> Mum to Sam 14.1.97, Dx 47XYY, Autism, Heavy Metal Toxicity,

Possible Seizure

> Disorder and Severe Cute-ness

>

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[Guest guest]

Witter away Mandi! I could read ten of these a day and still want

more :-)

This might be my favourite part:

he is extra happy, seems very confident.

> Within a week he was balancing on the scooter, posing like his

brothers,

> turning corners with ease †" and at speed (arghhhhhhhhhhhhh) and

when we went to

> the park and he scooted off with Tom and Joe †" well, I was

watching a normal

> set of siblings go off into the distance †" that was spooky,

scary and

> exciting all rolled in to one

I love it when they just fit right in and nothing seems difficult at

that moment. Just love it.

Thanks for sharing all this with us :-) You and Sam are champions!

Anita

[Guest guest]

Dear Mandi,

You must be a very proud mum to be seeing so many positives coming

through after so much time. Excellent news! Thank you very much for

taking the time to tell us about them in so much detail.

Impossible question (but I'll ask it anyway), how much of this

improvement do you put down to the NCD? Still very curious about

this product.

Sharon

>

>

> This update is long, but I need to write it all down and loads of

folks from

> all over have asked for it J

> We had a good time at Disney at New Years, Sam wasn’t at all

phased by

> crowds or the noise, sat beautifully on the buses holding the foot

plate for the

> major buggy we took with us (mostly for me to lean on LOL) with no

stimming AT

> ALL †" spooky, just sitting there like a normal boy, looking out

of the

> window and watching people get on and off.

> He queued well (usually about 10-20 mins) however, there is no way

I would

> want to do Disney without the special pass and that’s without

taking the

> kids/Sam!! He didn’t like the Stitch ride where we sat

individually and had a

> brace come over our heads †" I didn’t like that either. On the

Dino-land ride in

> Animal Kingdom he instinctively buried his head in my shoulder at

the scary

> bit †" you know, like a normal boy J

> However, he did start butting my shoulder with his head, which

hurts after a

> while, so I took to offering him my hand †" palm side and he

butted that. I

> thought maybe bacteria at the time but maybe that was low B's and

low

> minerals.

> We had experimented with both oral and TD EDTA during December.

Both made

> him stimmy, gave him yeast flare (?moving metals - there isn't any

sulphur in

> EDTA) and my gut feeling was that it was actively pulling

minerals. We did

> frequent dosing rounds with loads of minerals during and after but

I think it

> was all too much. My plan was to go back to DMSA/ALA in the new

year.

> When we got back I went back to the Liquid B’s from Metabolics

(using multi

> while we were away) and the butting stopped in 24 hours. Phew! We

restarted

> DMSA/ALA and saw some yeast which I expected after the break, as

in †" moving

> metals causes yeast and he had time to build up more than usual to

pull with

> the break. We started seeing small but definite stuff with every

round †" BOUT

> TIME TOO after all these years!!

> After phone consult with Dr H at the end of Feb we started TD-LDN.

I couldn’

> t afford both the LDN and the MB12 so we dropped the MB12 (6

months) having

> seen good stuff initially and then seemingly fade away, no

negatives to speak

> of apart from requiring adjustment to his other B-vits

particularly B2 †" if

> he got red rash around his mouth extra B2 would make it disappear

in 24

> hours. I figured this might be MB12 spinning the cycle and

therefore using up more

> of the other B’s in the process.

> We went in on full dose of 3mg LDN given at around 1.00am with

good effect

> and no negatives. I had done 3 weeks of oral LDN last year and

felt he did

> well but the dosing 3mg out of a 50mg tab and not knowing how much

was stuck to

> the side of the cup made dosing tricky so decided to wait for the

TD. He

> seemed to look better, healthy and more sociable - seeking out his

brothers to

> play on the trampoline and just ‘hanging’ with them †"

ahhhhhhhhh J

> At the end of March we went to see ‘The Brushing Man’ who

examines for

> retained and immature reflexes and individualises a programme of

brushing

> designed to stimulate the mid brain †" I think its something akin

to the stuff they

> do for kids with CP per the Peto Institute. Well it all sounded

like hocus

> pocus voodoo to me but a friends son has done very well on the

regime and I

> figured it couldn’t do any harm J

> Sam was not particularly compliant with the examination but they

did manage

> to get the basics done. Sam has a retained reflex in his spine

which should

> have been lost in the womb and still has the newborn hand grasp

reflex †"

> perhaps that explains why he always preferred to hold my little

finger than my

> hand when out and about. When he first started pulling us to stuff

he wanted

> when he was 4, it was always one finger only, like his hand

wasn’t comfortable

> being in the cupped position or maybe just being that much in

contact †" though

> he was much improved with his tactile aversions by then.

> Within 3 weeks he went from looking mechanical on a 3 wheeled

scooter and

> stopping to physically lift the scooter into a different direction

†" to looking

> smooth (if a little poor on steering) on a 2 wheeled micro-scooter

and being

> very pleased with himself J He also started having what I

described as ‘

> normal’ kid type accidents, tripping up and stuff †" the

brushing man explained

> all this but you'd need to watch my hands to understand. It’s a

good thing

> and shows some changes happening as his body gets used to knowing

where it is

> in relation to other things.

> RBC minerals in April showed low minerals across the board †"

something we

> have never seen in 4 years worth of DMSA/ALA including a 9 month

stint on TD

> DMPS. We stopped Chelation and piled the minerals in †"

Metabolics Ionics,

> Citramins II and BCN, retesting early next month.

> I totally forgot that I could have been doing ALA alone and not

worrying

> about the minerals being depleted †" DUH. Anyways, after

dismissing NCD because

> of MLM earlier in the year, I revisited and chatted with folks

actually using

> the stuff. We are not able to sign up as distributors and get the

discount

> from the UK so another US mum sorted me out with supplies †"

thanks A!

> We started at the end of April, with 1 drop x 3 and raising the

dose by 3

> drops each day. I started the same time. Day 3 we both had yeasty

wee+++++. Sam

> does not have stool changes or many yeast behaviours these days so

smells

> and bedwetting with Candex are really the only clues. Upped

probio’s and that

> cleared up over 72 hours. (I will write about my experiences in

another

> mail).

> Then we had a spooky rash, looked like stinging nettle stings, mid

trunk and

> then †" poof it was gone. He didn’t seem bothered by it.

> Receptive language took a leap, he is extra happy, seems very

confident.

> Within a week he was balancing on the scooter, posing like his

brothers,

> turning corners with ease †" and at speed (arghhhhhhhhhhhhh) and

when we went to

> the park and he scooted off with Tom and Joe †" well, I was

watching a normal

> set of siblings go off into the distance †" that was spooky,

scary and

> exciting all rolled in to one †" don’t get me wrong, Sam is

waaaaay from being a

> normal boy, but its awesome to watch him looking like one J

> This is far too long already and I am tired so I am gonna list

some of the

> stuff we have been seeing since the NCD late April and the Russian

Choice GI

> at the end of May. We have done one round of regular Chelation in

this period

> with oral DMSA and TD-RLA.

> ‘Asking’ for brushing by putting his arm around me and taking

me to our

> bedroom and dive bombing on the bed and waiting for me to start J

> He was swimming with SLP qualified respite worker, with her

pulling him by

> his fingertips and saying Weeeeeeeeeee while he giggled, he loved

it, she

> pulled without saying weeee, the second time he said WEEEeeeeee

with perfect

> articulation and intonation and then looked very scared that the

sound had come

> out of him and wouldn’t do it again, just like he did when I got

the very

> first vocal imitation ‘Buh’ out of him in March. He was really

wrapped up in the

> moment then too, almost like the words can come out if he is

relaxed

> enough?

> Thats his first word since 13 months BTW

> He also moved up the side of pool to the deep end holding on to

the side

> whilst Nicky swam out to the middle †" she could tell he wanted

her to come over

> but she pretended not to understand - he was having trouble

signing and

> hanging on LOL, she told him to come to her †" and he did †"

swam right out with no

> problems, he has never done that without armbands or jacket

although I

> suspected he might be able to.

> He can now ‘blow’ on command now, only learnt to blow in an

accidental

> fashin in January - new years party streamer he found int he bin

at Disney LOL

> He is now watching my mouth intently when I sing †" like he is

trying to

> figure out how I make the words come out. He puts on his favourite

track in the

> car and touches my chin if I don’t start singing straight away.

I say a word

> and touch his chin - he contorts his mouth trying to figure out

how to make

> the sound come out - bless!

> He saw me winding up the power lead on the vacuum and went and

opened the

> door to the cupboard for me, I didn’t even know he registered

where we even

> keep it!

> When we are out in the car and come up to a junction, he looks

left and

> right, leaning forward like I do to check for traffic J

> The early morning wakening is a thing of the past †" no more 5.00-

6.00am †"

> now he sleeps through till 7.00am

> He is very calm and relaxed †" he used to ping about the place,

busy rather

> than hyper †" the other day I thought I had lost him †" NO

VERBAL STIMS †"

> excuse me? I found him relaxing on the sofa with his legs crossed

watching the DVD

> and using the remote control †" wow!

> No longer holds on to my finger †" prefers to hold hands properly

or link

> arms as they do at school.

> When we go out to the freezer for an orange juice lolly he is

closing the

> drawer with his foot like anybody would do (it’s the bottom

drawer) †" he used

> to bend down and struggle to push it with his hands

> We are seeing some head nodding and shaking for yes and no †"

finally after 6

> years of trying to get him to do it!!! This comes more easily when

he isn’t

> thinking too hard about it †" its spontaneous and it seems to

surprise him but

> not cause worry like the word/attempts did

> Made his first ever spontaneous comment with PECS at school last

week and

> then went off to take supermarket vouchers to the office as

requested - by

> himself, did his job and returned to classroom J

> He can now hold up the right number of fingers for 1-5, he

concentrates hard

> on number 3 getting his little finger and thumb to point inwards

and in last

> few weeks no longer needs to use his other hand to help get the

position

> right. We use this mostly for action songs at home.

> Nicky came to take him out a few weeks ago and set him up †" she

wrapped up a

> Percy Pig sweet and placed it in the car so he could see it when

he got in

> but couldn’t reach it. He made all sorts of signs and gestures

but she said

> you have to ASK for it Sam it’s a Percy Pig, he got mad and spat

out a ‘Puh-Puh

> ’ for her eventually and she made a big fuss and he looked very

pleased with

> himself. BTW If I try this he would walk away from me rather than

make

> sound. She can push him further than me.

> He is keeping him pants on!!!!! (always preferred to be naked at

home) He

> has a white bum instead of an all over tan for the very first time

and he is

> putting them on first thing without even being reminded! (and

changing them if

> he gets a skiddy!)

> Tidying up his room when prompted (he doesn’t make a much of a

mess anywhere

> else)

> He often gets Marmite round his face when eating toast †" I have

started

> taking him to the mirror, giving him a wipe and telling him he has

a dirty face,

> his reaction the first time was to wipe the rash in the mirror but

he knows

> that wasn't right and is concentrating hard and managing to wipe

the right

> place †" this is a kid that would NEVER look in a mirror after

he regressed

> Receptive up +++ or is it desire to listen? saw him holding

new DVD

> the other day and said †" oh what have you got †" Sam went over

and passed it to

> DH and waited for a response †" show and share eh? Love it!

> He is asking (gestures) his brother for a go on his new (adult

sized) bike †"

> and letting Joe put the cycle helmet on him (OMG †" this is kid

who will NOT

> EVER wear hats) Joe said Sam was trying to do the gears like he

has seen him

> do †" held on to Joe’s shoulder with one arm and was made up

when he pushed

> him a round on it J

> A week ago we had the chicken pox type rash for 3 days. This week

we have

> what looks like a measles type rash on the back of his thighs. Its

different to

> what we normally see eczema type wise with gut bug flare or die

off. He has

> been pinching today †" I think it may be bacteria flare/die off

†" we have

> been doing Biocidin for 2 weeks now. Will see how he goes and

might go in with

> the CS if things don’t look up. I will post a link to photo of

latest rash

> later.

> We have not seen this many positives in such a short time since we

came off

> the diet with HNI 4 years ago. Whilst this might seem like small

stuff to

> many of you †" its highly significant here and I am very excited

J Even not so

> observant DH is noticing stuff.

> Sam is learning from his environment and imitation now for the

first time

> and that as you know is HUGE!

> In summary, it feels like he fits in his own skin now †" does

that make

> sense?

> We have altered the NCD dose several times, backing off if it

seemed too

> much and worked up to 15 drops per day, x 3 in the morning and x12

in a litre of

> juice/water mix which he gets throughout the day at school. I

don't plan do

> to any more traditional chelation until we have updated RBC

results.

> We have worked up slowly on the Russian Choice stuff since

beginning of June

> and I am holding at 2 x 2 caps per day for now.

> Looking forward to at last getting some proper testing done in

August now we

> have some funding from Caudwell, his EFA’s are all up the creek

for sure,

> probably amino’s too, trying to figure out a way to fund Yasko

testing. We’ll

> be doing Megsons protocol then too, if I can ever get enough CLO

into him

> Mandi in UK

> Mum to Sam 14.1.97, Dx 47XYY, Autism, Heavy Metal Toxicity,

Possible Seizure

> Disorder and Severe Cute-ness

>

[Guest guest]

Dear Mandi,

You must be a very proud mum to be seeing so many positives coming

through after so much time. Excellent news! Thank you very much for

taking the time to tell us about them in so much detail.

Impossible question (but I'll ask it anyway), how much of this

improvement do you put down to the NCD? Still very curious about

this product.

Sharon

>

>

> This update is long, but I need to write it all down and loads of

folks from

> all over have asked for it J

> We had a good time at Disney at New Years, Sam wasn’t at all

phased by

> crowds or the noise, sat beautifully on the buses holding the foot

plate for the

> major buggy we took with us (mostly for me to lean on LOL) with no

stimming AT

> ALL †" spooky, just sitting there like a normal boy, looking out

of the

> window and watching people get on and off.

> He queued well (usually about 10-20 mins) however, there is no way

I would

> want to do Disney without the special pass and that’s without

taking the

> kids/Sam!! He didn’t like the Stitch ride where we sat

individually and had a

> brace come over our heads †" I didn’t like that either. On the

Dino-land ride in

> Animal Kingdom he instinctively buried his head in my shoulder at

the scary

> bit †" you know, like a normal boy J

> However, he did start butting my shoulder with his head, which

hurts after a

> while, so I took to offering him my hand †" palm side and he

butted that. I

> thought maybe bacteria at the time but maybe that was low B's and

low

> minerals.

> We had experimented with both oral and TD EDTA during December.

Both made

> him stimmy, gave him yeast flare (?moving metals - there isn't any

sulphur in

> EDTA) and my gut feeling was that it was actively pulling

minerals. We did

> frequent dosing rounds with loads of minerals during and after but

I think it

> was all too much. My plan was to go back to DMSA/ALA in the new

year.

> When we got back I went back to the Liquid B’s from Metabolics

(using multi

> while we were away) and the butting stopped in 24 hours. Phew! We

restarted

> DMSA/ALA and saw some yeast which I expected after the break, as

in †" moving

> metals causes yeast and he had time to build up more than usual to

pull with

> the break. We started seeing small but definite stuff with every

round †" BOUT

> TIME TOO after all these years!!

> After phone consult with Dr H at the end of Feb we started TD-LDN.

I couldn’

> t afford both the LDN and the MB12 so we dropped the MB12 (6

months) having

> seen good stuff initially and then seemingly fade away, no

negatives to speak

> of apart from requiring adjustment to his other B-vits

particularly B2 †" if

> he got red rash around his mouth extra B2 would make it disappear

in 24

> hours. I figured this might be MB12 spinning the cycle and

therefore using up more

> of the other B’s in the process.

> We went in on full dose of 3mg LDN given at around 1.00am with

good effect

> and no negatives. I had done 3 weeks of oral LDN last year and

felt he did

> well but the dosing 3mg out of a 50mg tab and not knowing how much

was stuck to

> the side of the cup made dosing tricky so decided to wait for the

TD. He

> seemed to look better, healthy and more sociable - seeking out his

brothers to

> play on the trampoline and just ‘hanging’ with them †"

ahhhhhhhhh J

> At the end of March we went to see ‘The Brushing Man’ who

examines for

> retained and immature reflexes and individualises a programme of

brushing

> designed to stimulate the mid brain †" I think its something akin

to the stuff they

> do for kids with CP per the Peto Institute. Well it all sounded

like hocus

> pocus voodoo to me but a friends son has done very well on the

regime and I

> figured it couldn’t do any harm J

> Sam was not particularly compliant with the examination but they

did manage

> to get the basics done. Sam has a retained reflex in his spine

which should

> have been lost in the womb and still has the newborn hand grasp

reflex †"

> perhaps that explains why he always preferred to hold my little

finger than my

> hand when out and about. When he first started pulling us to stuff

he wanted

> when he was 4, it was always one finger only, like his hand

wasn’t comfortable

> being in the cupped position or maybe just being that much in

contact †" though

> he was much improved with his tactile aversions by then.

> Within 3 weeks he went from looking mechanical on a 3 wheeled

scooter and

> stopping to physically lift the scooter into a different direction

†" to looking

> smooth (if a little poor on steering) on a 2 wheeled micro-scooter

and being

> very pleased with himself J He also started having what I

described as ‘

> normal’ kid type accidents, tripping up and stuff †" the

brushing man explained

> all this but you'd need to watch my hands to understand. It’s a

good thing

> and shows some changes happening as his body gets used to knowing

where it is

> in relation to other things.

> RBC minerals in April showed low minerals across the board †"

something we

> have never seen in 4 years worth of DMSA/ALA including a 9 month

stint on TD

> DMPS. We stopped Chelation and piled the minerals in †"

Metabolics Ionics,

> Citramins II and BCN, retesting early next month.

> I totally forgot that I could have been doing ALA alone and not

worrying

> about the minerals being depleted †" DUH. Anyways, after

dismissing NCD because

> of MLM earlier in the year, I revisited and chatted with folks

actually using

> the stuff. We are not able to sign up as distributors and get the

discount

> from the UK so another US mum sorted me out with supplies †"

thanks A!

> We started at the end of April, with 1 drop x 3 and raising the

dose by 3

> drops each day. I started the same time. Day 3 we both had yeasty

wee+++++. Sam

> does not have stool changes or many yeast behaviours these days so

smells

> and bedwetting with Candex are really the only clues. Upped

probio’s and that

> cleared up over 72 hours. (I will write about my experiences in

another

> mail).

> Then we had a spooky rash, looked like stinging nettle stings, mid

trunk and

> then †" poof it was gone. He didn’t seem bothered by it.

> Receptive language took a leap, he is extra happy, seems very

confident.

> Within a week he was balancing on the scooter, posing like his

brothers,

> turning corners with ease †" and at speed (arghhhhhhhhhhhhh) and

when we went to

> the park and he scooted off with Tom and Joe †" well, I was

watching a normal

> set of siblings go off into the distance †" that was spooky,

scary and

> exciting all rolled in to one †" don’t get me wrong, Sam is

waaaaay from being a

> normal boy, but its awesome to watch him looking like one J

> This is far too long already and I am tired so I am gonna list

some of the

> stuff we have been seeing since the NCD late April and the Russian

Choice GI

> at the end of May. We have done one round of regular Chelation in

this period

> with oral DMSA and TD-RLA.

> ‘Asking’ for brushing by putting his arm around me and taking

me to our

> bedroom and dive bombing on the bed and waiting for me to start J

> He was swimming with SLP qualified respite worker, with her

pulling him by

> his fingertips and saying Weeeeeeeeeee while he giggled, he loved

it, she

> pulled without saying weeee, the second time he said WEEEeeeeee

with perfect

> articulation and intonation and then looked very scared that the

sound had come

> out of him and wouldn’t do it again, just like he did when I got

the very

> first vocal imitation ‘Buh’ out of him in March. He was really

wrapped up in the

> moment then too, almost like the words can come out if he is

relaxed

> enough?

> Thats his first word since 13 months BTW

> He also moved up the side of pool to the deep end holding on to

the side

> whilst Nicky swam out to the middle †" she could tell he wanted

her to come over

> but she pretended not to understand - he was having trouble

signing and

> hanging on LOL, she told him to come to her †" and he did †"

swam right out with no

> problems, he has never done that without armbands or jacket

although I

> suspected he might be able to.

> He can now ‘blow’ on command now, only learnt to blow in an

accidental

> fashin in January - new years party streamer he found int he bin

at Disney LOL

> He is now watching my mouth intently when I sing †" like he is

trying to

> figure out how I make the words come out. He puts on his favourite

track in the

> car and touches my chin if I don’t start singing straight away.

I say a word

> and touch his chin - he contorts his mouth trying to figure out

how to make

> the sound come out - bless!

> He saw me winding up the power lead on the vacuum and went and

opened the

> door to the cupboard for me, I didn’t even know he registered

where we even

> keep it!

> When we are out in the car and come up to a junction, he looks

left and

> right, leaning forward like I do to check for traffic J

> The early morning wakening is a thing of the past †" no more 5.00-

6.00am †"

> now he sleeps through till 7.00am

> He is very calm and relaxed †" he used to ping about the place,

busy rather

> than hyper †" the other day I thought I had lost him †" NO

VERBAL STIMS †"

> excuse me? I found him relaxing on the sofa with his legs crossed

watching the DVD

> and using the remote control †" wow!

> No longer holds on to my finger †" prefers to hold hands properly

or link

> arms as they do at school.

> When we go out to the freezer for an orange juice lolly he is

closing the

> drawer with his foot like anybody would do (it’s the bottom

drawer) †" he used

> to bend down and struggle to push it with his hands

> We are seeing some head nodding and shaking for yes and no †"

finally after 6

> years of trying to get him to do it!!! This comes more easily when

he isn’t

> thinking too hard about it †" its spontaneous and it seems to

surprise him but

> not cause worry like the word/attempts did

> Made his first ever spontaneous comment with PECS at school last

week and

> then went off to take supermarket vouchers to the office as

requested - by

> himself, did his job and returned to classroom J

> He can now hold up the right number of fingers for 1-5, he

concentrates hard

> on number 3 getting his little finger and thumb to point inwards

and in last

> few weeks no longer needs to use his other hand to help get the

position

> right. We use this mostly for action songs at home.

> Nicky came to take him out a few weeks ago and set him up †" she

wrapped up a

> Percy Pig sweet and placed it in the car so he could see it when

he got in

> but couldn’t reach it. He made all sorts of signs and gestures

but she said

> you have to ASK for it Sam it’s a Percy Pig, he got mad and spat

out a ‘Puh-Puh

> ’ for her eventually and she made a big fuss and he looked very

pleased with

> himself. BTW If I try this he would walk away from me rather than

make

> sound. She can push him further than me.

> He is keeping him pants on!!!!! (always preferred to be naked at

home) He

> has a white bum instead of an all over tan for the very first time

and he is

> putting them on first thing without even being reminded! (and

changing them if

> he gets a skiddy!)

> Tidying up his room when prompted (he doesn’t make a much of a

mess anywhere

> else)

> He often gets Marmite round his face when eating toast †" I have

started

> taking him to the mirror, giving him a wipe and telling him he has

a dirty face,

> his reaction the first time was to wipe the rash in the mirror but

he knows

> that wasn't right and is concentrating hard and managing to wipe

the right

> place †" this is a kid that would NEVER look in a mirror after

he regressed

> Receptive up +++ or is it desire to listen? saw him holding

new DVD

> the other day and said †" oh what have you got †" Sam went over

and passed it to

> DH and waited for a response †" show and share eh? Love it!

> He is asking (gestures) his brother for a go on his new (adult

sized) bike †"

> and letting Joe put the cycle helmet on him (OMG †" this is kid

who will NOT

> EVER wear hats) Joe said Sam was trying to do the gears like he

has seen him

> do †" held on to Joe’s shoulder with one arm and was made up

when he pushed

> him a round on it J

> A week ago we had the chicken pox type rash for 3 days. This week

we have

> what looks like a measles type rash on the back of his thighs. Its

different to

> what we normally see eczema type wise with gut bug flare or die

off. He has

> been pinching today †" I think it may be bacteria flare/die off

†" we have

> been doing Biocidin for 2 weeks now. Will see how he goes and

might go in with

> the CS if things don’t look up. I will post a link to photo of

latest rash

> later.

> We have not seen this many positives in such a short time since we

came off

> the diet with HNI 4 years ago. Whilst this might seem like small

stuff to

> many of you †" its highly significant here and I am very excited

J Even not so

> observant DH is noticing stuff.

> Sam is learning from his environment and imitation now for the

first time

> and that as you know is HUGE!

> In summary, it feels like he fits in his own skin now †" does

that make

> sense?

> We have altered the NCD dose several times, backing off if it

seemed too

> much and worked up to 15 drops per day, x 3 in the morning and x12

in a litre of

> juice/water mix which he gets throughout the day at school. I

don't plan do

> to any more traditional chelation until we have updated RBC

results.

> We have worked up slowly on the Russian Choice stuff since

beginning of June

> and I am holding at 2 x 2 caps per day for now.

> Looking forward to at last getting some proper testing done in

August now we

> have some funding from Caudwell, his EFA’s are all up the creek

for sure,

> probably amino’s too, trying to figure out a way to fund Yasko

testing. We’ll

> be doing Megsons protocol then too, if I can ever get enough CLO

into him

> Mandi in UK

> Mum to Sam 14.1.97, Dx 47XYY, Autism, Heavy Metal Toxicity,

Possible Seizure

> Disorder and Severe Cute-ness

>