Re: 3 year old ASD son, now 12 month old dd lost all words, so worried

[Guest guest]

Sorry, I dont have the answers to your questions, I just read your post as I am

battling with ASD 2yoson as well.

I just wanted to say, bless you, I will pray for you and your family

Deana

Leigh Anne Carson <neilcarson@...> wrote:

Hello listmates,

I am the mother of a 3 year old ASD son and 12 month old daughter.

We are working with my son on cleaning up his gut before starting

chelation. His situation is stable. We are seeing gradual gains

with supplementation. This post is about my daughter...

She is non-vax, is still breastfed, and our whole family is strictly

GF/CF and more. At 10 months old she had 4 words (Mama, Papa, uh-oh,

and kitty). She pointed and shook her head for " no " . We were elated

to see these positive signs. Now they are gone. Her words and

gestures have faded away over the past 2 months. I am in a panic.

She does still babble a little and still waves good-bye. She also

has some sensory issues...she will put literally anything in her

mouth - in fact she seems to prefer dirt to food - and she has

unusually high pain tolerance. She is very hyperactive. I have to

swaddle her to help her fall asleep. Also, her growth has dropped

off from the 50th percentile to the 10th percentile during these last

two months.

Possible scenarios...

-my mouthful of old amalgam fillings could be affecting her through

breastmilk.

-She has zinc spots on her nails. My extended family definitely fits

the profile for pyrrole disorder. I figured this out last night. We

increased her CLO a month ago on advice of our DAN doc. Omega 3's

are bad for people with pyrrole disorder.

-She is in the midst of a candida flare up. We have had lots of

candida troubles in our family.

So, here is my question...

Has anyone done chelation with such a small child? She is only 18

lbs.

Can I afford to wait a couple of months while I increase her zinc,

B6, reduce her omega 3's...etc...to see if the possible pyrrole

disorder is a factor?

Sorry for the long post.

Best,

Leigh Anne

[Guest guest]

Have you had your teth cleaned lately? That stirs up the mercury which can pass

into the breastmilk. Reduce th CLO and consider doing a DDI hair elements test

for her and applying the counting rules.

S S

<p>Hello listmates,<br>

I am the mother of a 3 year old ASD son and 12 month old daughter. <br>

We are working with my son on cleaning up his gut before starting <br>

chelation. His situation is stable. We are seeing gradual gains <br>

with supplementation. This post is about my daughter...<br>

<br>

She is non-vax, is still breastfed, and our whole family is strictly <br>

GF/CF and more. At 10 months old she had 4 words (Mama, Papa, uh-oh, <br>

and kitty). She pointed and shook her head for " no " . We were elated <br>

to see these positive signs. Now they are gone. Her words and <br>

gestures have faded away over the past 2 months. I am in a panic. <br>

She does still babble a little and still waves good-bye. She also <br>

has some sensory issues...she will put literally anything in her <br>

mouth - in fact she seems to prefer dirt to food - and she has <br>

unusually high pain tolerance. She is very hyperactive. I have to <br>

swaddle her to help her fall asleep. Also, her growth has dropped <br>

off from the 50th percentile to the 10th percentile during these last <br>

two months. <br>

<br>

Possible scenarios...<br>

-my mouthful of old amalgam fillings could be affecting her through <br>

breastmilk. <br>

-She has zinc spots on her nails. My extended family definitely fits <br>

the profile for pyrrole disorder. I figured this out last night. We <br>

increased her CLO a month ago on advice of our DAN doc. Omega 3's <br>

are bad for people with pyrrole disorder. <br>

-She is in the midst of a candida flare up. We have had lots of <br>

candida troubles in our family. <br>

<br>

So, here is my question...<br>

Has anyone done chelation with such a small child? She is only 18 <br>

lbs.<br>

<br>

Can I afford to wait a couple of months while I increase her zinc, <br>

B6, reduce her omega 3's...etc...<wbr>to see if the possible pyrrole <br>

disorder is a factor?<br>

<br>

Sorry for the long post. <br>

Best,<br>

Leigh Anne <br>

_______________________________________________

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[Guest guest]

> Possible scenarios...

> -my mouthful of old amalgam fillings could be affecting her through

> breastmilk.

> -She has zinc spots on her nails. My extended family definitely fits

> the profile for pyrrole disorder. I figured this out last night. We

> increased her CLO a month ago on advice of our DAN doc. Omega 3's

> are bad for people with pyrrole disorder.

> -She is in the midst of a candida flare up. We have had lots of

> candida troubles in our family.

Hi Leigh Anne, have you done a DDI hair test on your kids?

http://home.earthlink.net/~moriam/HOW_TO_hair_test.html

What about exposure to lead? Mercury and lead have a synergistic poisoning

effect. Have

you done any remodeling/renovating or do you live in an older home?

in Illinois

[Guest guest]

>>she will put literally anything in her

> mouth

For many kids, this means zinc deficiency. For my #3, it meant food

intolerance or yeast overgrowth.

>>She is very hyperactive.

Can be a lot of things. Phenol intolerance is common, so is yeast

overgrowth

http://www.danasview.net/phenol.htm

http://www.danasview.net/yeast.htm

> Has anyone done chelation with such a small child? She is only 18

> lbs.

I chelated my #4 at age 2-1/2. If I saw those symptoms and she was 12

months, I would have done it at 12 months. I used ALA for my kids. I

would have started at 5mg [or even lower] per dose for a 12mo child.

> Can I afford to wait a couple of months while I increase her zinc,

> B6, reduce her omega 3's...etc...to see if the possible pyrrole

> disorder is a factor?

That would be a good thing to consider.

Dana

[Guest guest]

I don't want to minimize your concern or prevent you from being

proactive, but another possibility for the language is that she's just

working through something developmentally. I have a 10 yo son with

asperger's and a two and a half yo daughter and I was very worried

about her language around 18 months because she stalled out and indeed

lost a few words, nothing dramatic, but still. She has since caught

up although she is still behind where my son was at this age--he was a

little ahead and she's a little behind. I feel as if I have no

bearings since my son who turned out to be dx on the spectrum at age 8

was ahead developmentally when he was younger. Anyway, we did several

biomedical things with her including probiotics (kefir) omegas and a

multi vitamin that I think were helpful. It's hard to find the right

balance but I regret worrying so much with her that I didn't enjoy her

as much as I should have. Of course you have some other concerns as

well so it might be different. Good luck.

[Guest guest]

>

> Possible scenarios...

> -my mouthful of old amalgam fillings could be affecting her through

> breastmilk.

Absolutely. Consider discontinuing the breastfeeding. After 12

months of it, your daughter has certainly gotten the " immunity

benefit " that most people strive for when breastfeeding.

>

> So, here is my question...

> Has anyone done chelation with such a small child? She is only 18

> lbs.

>

I was concerned about my 12 month old son, so our DAN! ran some tests

on him which confirmed my fears and started us treating him. I

believe we tested for stool for yeast, hair for heavy metals and urine

for peptide reaction to gluten and casein. He had all the earmarks of

an ASD gut. Since your daughter is losing weight, yet her head

circumference is increasing, you might want to consider testing her

for malabsorption. An amino acid absorption test would do it.

I started chelating my son when he was 15 months old after we kicked

his yeast problem. He is now 2 1/2 and can string 4 words together to

make a sentence. He doesn't have any cognitive deficits and he's come

a long way; we've by-passed classic autism. My older son (3 1/2) is

not so lucky.

I hope that this is a fluke and your daughter is fine. I would

suggest running tests on your daughter before chelating.

Janice

>

[Guest guest]

Thank you for thoughts . It's easy to get caught up in

worrying. I wouldn't be so concerned about losing the words if she

gestured more. She does wave bye bye, and shake her head for " no "

once in awhile, but she has lost her pointing. She doesn't " show " me

anything during play. She is very independent and content to play by

herself. Because my first born has ASD (and atypical ASD at that), I

have no sense of normal social/language development. She is just

starting to be able to look at books. Previously, all she wanted to

do was chew them. She is so hyper that it is hard to do much with

her (like reading or singing songs or finger play...). She is always

dashing off to check out something else.

I have always had her on probiotics and EFA's. I started giving her

B6 and zinc recently. My next step is to introduce selenium to help

neutralize any mercury and magnesium because she is so restless.

On another note, I have a sense that my kids may be viral kids, but

treatment for that is a long way off. First clean up the gut, then

chelate, then viral, right? At one point, I gave my son olive leaf

extract in a misguided effort to combat yeast. He had an extreme

reaction with high fevers, mouth blisters, rashes... However, the

yeast flare got so bad (no access to diflucan or nizoral) that we had

to stop the protocol. I saw some tiny mouth blisters on my dd after

rubbing diluted oil of oregano on her feet. Sorry, I'm rambling...

Best,

Leigh Anne

>

> I don't want to minimize your concern or prevent you from being

> proactive, but another possibility for the language is that she's

just

> working through something developmentally. I have a 10 yo son with

> asperger's and a two and a half yo daughter and I was very worried

> about her language around 18 months because she stalled out and

indeed

> lost a few words, nothing dramatic, but still. She has since

caught

> up although she is still behind where my son was at this age--he

was a

> little ahead and she's a little behind. I feel as if I have no

> bearings since my son who turned out to be dx on the spectrum at

age 8

> was ahead developmentally when he was younger. Anyway, we did

several

> biomedical things with her including probiotics (kefir) omegas and

a

> multi vitamin that I think were helpful. It's hard to find the

right

> balance but I regret worrying so much with her that I didn't enjoy

her

> as much as I should have. Of course you have some other concerns

as

> well so it might be different. Good luck.

>

[Guest guest]

I am arranging for a hair test on her tomorrow, and I will look into

an amino acid absorption test.

Janice, how did you treat yeast with your baby? I was on antibiotics

daily for 7 years as a teenager so my immune system is shot. We have

lots of yeast troubles.

Also, where do I find a list of metals sources in the home. I know

aluminum pots and tap water are bad, but what else do I need to watch

for?

Thank you again,

Leigh Anne

>

>

> >

> > Possible scenarios...

> > -my mouthful of old amalgam fillings could be affecting her

through

> > breastmilk.

>

> Absolutely. Consider discontinuing the breastfeeding. After 12

> months of it, your daughter has certainly gotten the " immunity

> benefit " that most people strive for when breastfeeding.

> >

> > So, here is my question...

> > Has anyone done chelation with such a small child? She is only

18

> > lbs.

> >

> I was concerned about my 12 month old son, so our DAN! ran some

tests

> on him which confirmed my fears and started us treating him. I

> believe we tested for stool for yeast, hair for heavy metals and

urine

> for peptide reaction to gluten and casein. He had all the earmarks

of

> an ASD gut. Since your daughter is losing weight, yet her head

> circumference is increasing, you might want to consider testing her

> for malabsorption. An amino acid absorption test would do it.

>

> I started chelating my son when he was 15 months old after we

kicked

> his yeast problem. He is now 2 1/2 and can string 4 words together

to

> make a sentence. He doesn't have any cognitive deficits and he's

come

> a long way; we've by-passed classic autism. My older son (3 1/2) is

> not so lucky.

>

> I hope that this is a fluke and your daughter is fine. I would

> suggest running tests on your daughter before chelating.

>

> Janice

> >

>

[Guest guest]

Our daughter also regressed between 12 and 15 months (after her MMR)

and qualified for early intervention...my ASD son was 3 SO we went

straight into " recovery " mode so who knows how things might have

turned out-- this was 7 years ago -- she is more than typical today.

Please don't spend too much time worrying just use that energy to get

your child back on track -- and with info here you should do well.

Blessings! The Other

PS Helpful addition to the biomedics:

Applied Behavior Analysis (I actually use the " basics " of ABA in all

the listed interventions)

Applied Verbal Behavior

Method

Relationship Development Intervention

Rapid Prompting Method

Sign Language

SonRise

People will have one thing or another to say about these BUT day in

day out committment to one or more can help greatly. I enjoy

learning so I'm a self study but have consultants to aid me. I do

the therapies with my child. That saves in costs. Best of luck.

[Guest guest]

www.danasview.net/metal has a comprehensive list of sources of exposure to toxic

metals. Aluminum is in baking powder unless specifically labelled as

aluminum-free, so all baked goods are suspect unless specifically-labelled as

aluminum-free.

S S

<p>I am arranging for a hair test on her tomorrow, and I will look

into <br>

an amino acid absorption test.<br>

Janice, how did you treat yeast with your baby? I was on antibiotics <br>

daily for 7 years as a teenager so my immune system is shot. We have <br>

lots of yeast troubles.<br>

<br>

Also, where do I find a list of metals sources in the home. I know <br>

aluminum pots and tap water are bad, but what else do I need to watch <br>

for? <br>

<br>

Thank you again,<br>

Leigh Anne <br>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

>

>

> www.danasview.net/metal has a comprehensive list of sources of

exposure to toxic metals. Aluminum is in baking powder unless

specifically labelled as aluminum-free, so all baked goods are suspect

unless specifically-labelled as aluminum-free.

My page

http://www.danasview.net/metals.htm

Dana

[Guest guest]

My son was given lactobacillus acidopholous (I'm sure I butchered the

spelling on that). This didn't work after 2 months, so I switched my

sons (the other had been trying to kick yeast for 5 months w/ the same

probiotic) to the care of a clinical nutritionist in NYC whose main

business is yeast elimination. It cost me a fortune. He put the boys

on his own preparations - CandiScrub, CandiLoosener, DiaMin, etc. It

was quite a daily task, but he quicked the yeast in a month. It took

my other son another 6 months with a far more extensive program.

We got yeast flare-ups once we started chelation, and I have found

that the Specific Carbohydrate Diet helps tremendously with keeping

yeast at bay.

I see that others have answered your questions about metal sources

around the house.

Good luck.

Janice

> >

> >

> > >

> > > Possible scenarios...

> > > -my mouthful of old amalgam fillings could be affecting her

> through

> > > breastmilk.

> >

> > Absolutely. Consider discontinuing the breastfeeding. After 12

> > months of it, your daughter has certainly gotten the " immunity

> > benefit " that most people strive for when breastfeeding.

> > >

> > > So, here is my question...

> > > Has anyone done chelation with such a small child? She is only

> 18

> > > lbs.

> > >

> > I was concerned about my 12 month old son, so our DAN! ran some

> tests

> > on him which confirmed my fears and started us treating him. I

> > believe we tested for stool for yeast, hair for heavy metals and

> urine

> > for peptide reaction to gluten and casein. He had all the earmarks

> of

> > an ASD gut. Since your daughter is losing weight, yet her head

> > circumference is increasing, you might want to consider testing her

> > for malabsorption. An amino acid absorption test would do it.

> >

> > I started chelating my son when he was 15 months old after we

> kicked

> > his yeast problem. He is now 2 1/2 and can string 4 words together

> to

> > make a sentence. He doesn't have any cognitive deficits and he's

> come

> > a long way; we've by-passed classic autism. My older son (3 1/2) is

> > not so lucky.

> >

> > I hope that this is a fluke and your daughter is fine. I would

> > suggest running tests on your daughter before chelating.

> >

> > Janice

> > >

> >

>

[Guest guest]

Same story for us. My younger son also regressed losing all words b/n 12 and

15 mos. after MMR shot. we put him on the diet and had him manding, doing

some ABA type things while my older 3 yr old son was just diagnosed. We

stopped immunizing both kids of course, got the younger one speech therapy

and he is very typical now at 2 yrs old. Don't worry too much, just take

precautions.

[ ] Re: 3 year old ASD son, now 12 month old dd lost

all words, so worried

> Our daughter also regressed between 12 and 15 months (after her MMR)

> and qualified for early intervention...my ASD son was 3 SO we went

> straight into " recovery " mode so who knows how things might have

> turned out-- this was 7 years ago -- she is more than typical today.

> Please don't spend too much time worrying just use that energy to get

> your child back on track -- and with info here you should do well.

> Blessings! The Other

>

> PS Helpful addition to the biomedics:

>

> Applied Behavior Analysis (I actually use the " basics " of ABA in all

> the listed interventions)

> Applied Verbal Behavior

> Method

> Relationship Development Intervention

> Rapid Prompting Method

> Sign Language

> SonRise

>

> People will have one thing or another to say about these BUT day in

> day out committment to one or more can help greatly. I enjoy

> learning so I'm a self study but have consultants to aid me. I do

> the therapies with my child. That saves in costs. Best of luck.

>

>

>

>

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

If you do the first baby hair sample, keep this in mind... A

neurotypical child will most likely have way more toxins present in

the hair sample than a child on the spectrum. This is a result of

the fact that ASD children do not excrete very well; therefore, the

hair results are often very low which is not indicative of the

actual levels of heavy metals within the body tissues/brain.

We recently had our NT child tested and freaked out when we got the

results. He was off the chart for most all heavy metals. Later we

found out this is common with NT children as they are able to

excrete metals. Our autistic child is, ofcourse, a non-excretor and

his hair results look great.

In my opinion, you have to do a chelation challenge to find out

more. Even then, Mercury is one of the last elements to excrete so

it could take some time before you see mercury excreted. I don't

think I would chelate at such a young age.

Your daughter is fine so don't stress. Say a prayer and give it a

couple of weeks. I certainly will be praying for her.

> > >

> > >

> > > >

> > > > Possible scenarios...

> > > > -my mouthful of old amalgam fillings could be affecting her

> > through

> > > > breastmilk.

> > >

> > > Absolutely. Consider discontinuing the breastfeeding. After

12

> > > months of it, your daughter has certainly gotten the " immunity

> > > benefit " that most people strive for when breastfeeding.

> > > >

> > > > So, here is my question...

> > > > Has anyone done chelation with such a small child? She is

only

> > 18

> > > > lbs.

> > > >

> > > I was concerned about my 12 month old son, so our DAN! ran

some

> > tests

> > > on him which confirmed my fears and started us treating him. I

> > > believe we tested for stool for yeast, hair for heavy metals

and

> > urine

> > > for peptide reaction to gluten and casein. He had all the

earmarks

> > of

> > > an ASD gut. Since your daughter is losing weight, yet her head

> > > circumference is increasing, you might want to consider

testing her

> > > for malabsorption. An amino acid absorption test would do

it.

> > >

> > > I started chelating my son when he was 15 months old after we

> > kicked

> > > his yeast problem. He is now 2 1/2 and can string 4 words

together

> > to

> > > make a sentence. He doesn't have any cognitive deficits and

he's

> > come

> > > a long way; we've by-passed classic autism. My older son (3

1/2) is

> > > not so lucky.

> > >

> > > I hope that this is a fluke and your daughter is fine. I would

> > > suggest running tests on your daughter before chelating.

> > >

> > > Janice

> > > >

> > >

> >

>