Re: new member (long)

[Guest guest]

There are many opinions on this testosterone topic. I can only tell you what I

have learned from my son's experience:

To answer your question: " Does knowing testosterone level effect treatment

choices? "

In my son's case -- yes. Treatments that work for other ASD kids were not

effective on my son. Treatments like MB12 and chelation just did not work.

I suggest you at least find out if your child has high testosterone (known as

precocious puberty). You can try other treatments -- chelation, MB12, valtrex

etc. If they work, awesome. If not, you at least know about Lupron therapy.

Please keep in mind that time is also a factor here. The earlier treatment

begins, the more likely to recover.

Brennan- <energy_n_light@...> wrote:

>

> So much to tell --

>

> MTHFR is mutated for my son as is for most mercury toxic kids.

>

> Have you tested your child for high testosterone? Please listen

to the Geiers & Dr. Buttar:

>

> http://www.autismmedia.org/media4.html

>

>

>

I suspect that testosterone plays a role, because my son has autism

but might daughter doesn't. They are both mercury toxic (according to

2 out of the 3 'counting rules') and have about the same level of

lead. Does knowing the testosterone level affect treatment choices?

Thanks for your input,

---------------------------------

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[Guest guest]

>

> Dear Dana,

> Thank you for pointing me to your website, it was very helpful. I'm

> thinking of buying your book; can tell me if it summarizes the

> treatment and the cause of " autism " in a nutshell?

This page gives a good description of what is in the book

http://www.danasview.net/sitebook.htm

I would not say it " summarizes " in a nutshell.

> I noticed that many on this site use ALA; after reading some of A.

> Cutler's posts, I wonder if I'm getting the right treatment for my

> kids. Sounds much faster to use the DMSA/ALA combo around the clock

> for a few days on/few days off, done in 5-6 weeks.

Done in 5-6 weeks? It took 2-1/4 years for my kids, chelating with

ALA almost every weekend. Many people here have used both DMSA/ALA,

and it took more than a year. Where have you read only 5-6 weeks?

We do have lead

> issues, so I can see that DMSA should not be paired with ALA

> initially. But I wonder why some DAN docs advocate the 3 days on/11

> days off treatment (usually TD), and others advocate oral DMSA every 3

> hours.

That sounds like the same protocol. Give the chelator every 3 hours,

and give it for 3 days " on " and then give 11 days " off " to allow the

body to rest. Or are you just referencing that some doctors recommend

TD and others oral?

> Anyway, I loved your site, particularly the " success stories " section.

It is always good to read about children [and adults] who have

improved lives!

Dana

[Guest guest]

THanks for your reply. You addressed my questions so I'll just comment

about this part of your message:

> Done in 5-6 weeks? It took 2-1/4 years for my kids, chelating with

> ALA almost every weekend. Many people here have used both DMSA/ALA,

> and it took more than a year. Where have you read only 5-6 weeks?

>

>

I saw in some of the posts on the Moria site that, for children under

8, just 5-6 rounds of chelation should get most of the toxins, as long

as ALA is added to the DMPS/DMSA. The every 3 hours I guess is for

oral dosages, twice a day for cream; but I've noticed that A. Cutler's

protocol appears to allow for fewer days off between dosings, not the

11 that my Doc recommended.

Sounds too optimistic to you? I'm just trying to find the best way to

go. I don't want to take 2-3 years horsing around with the wrong

method, only to find out later that it could have been more successful

had I chosen a different path. In the meantime, all my son's

linguistic/social gains are probably attributed to his B12 shots, not

the chelation.

Take care,

> That sounds like the same protocol. Give the chelator every 3

hours,

> and give it for 3 days " on " and then give 11 days " off " to allow the

> body to rest. Or are you just referencing that some doctors

recommend

> TD and others oral?

>

>

> > Anyway, I loved your site, particularly the " success stories "

section.

>

>

> It is always good to read about children [and adults] who have

> improved lives!

>

> Dana

>

[Guest guest]

Dear Dana,

Here's a quote from the link (http://f3.grp.fs.

com/v1/EPCrRA9Y7ADy3nI5PTT-AcRR-fFiagBn83WBy-B-e6tlpqisgdPKyzVRm0uBPfT

ahEDx85I68itF8W0Q51LTUWwldrRojV-gNs9b/Andy_protocol):

Diagnosis

Since this detox protocol is only effective for specific metals a good

diagnosis is required. This may

be done according to the checklist method in Amalgam Illness:

Diagnosis and Treatment. Hair element

analysis is especially helpful. For mercury, use the procedure at

http://hometown.aol.com/noamalgam/countingrules to interpret the

results.

Since autism appears to be the final common pathway of several

different underlying conditions

differential diagnosis against all other causes must be performed. A

high index of suspicion for some

other cause should arise if the patient does not show marked

improvement within 3 cycles if under 8

years, or 10 cycles if over age 8.

----

I guess one is not done chelating, just " marked improvement " (which

I'll settle for. I like this approach, because as I said I hate the

idea of hanging on through 100 or so cycles (2 years) without any

improvement! -

[Guest guest]

Hi Dana,

Thanks a lot. I posted a reply to you to answer your questions about

speed of chelation, but the post never appeared. I think I'll email

you privately. --

[Guest guest]

Hi

I'm jumping in again...

What this means is that you should have an indication of whether or

not chelation is going to help your child in about 5 rounds or so.

Unfortunately, it doesn't mean that you are finished. Chelation is a

long process, usually a couple of years. If you see absolutely no

gains in a trial of 5 - 10 rounds (though some do go even longer) you

need to consider whether or not your child's issues are metal-

related, or whether your answers are elsewhere. Since your DDI tests

met a counting rule (right?) chelation is likely to help.

In our case, by the first round our son did some new, interactive

things, and by five rounds it was obvious that chelation was helping

in many areas. However, these things come and go until you've done

enough chelation for gains to " stick " . And our son also has many

fairly profound deficits.

We'll be on round #17 this weekend, and we're just getting started.

take care

René

>

> Dear Dana,

> Here's a quote from the link (http://f3.grp.fs.

> com/v1/EPCrRA9Y7ADy3nI5PTT-AcRR-fFiagBn83WBy-B-

e6tlpqisgdPKyzVRm0uBPfT

> ahEDx85I68itF8W0Q51LTUWwldrRojV-gNs9b/Andy_protocol):

>

> Diagnosis

>

> Since this detox protocol is only effective for specific metals a

good

> diagnosis is required. This may

> be done according to the checklist method in Amalgam Illness:

> Diagnosis and Treatment. Hair element

> analysis is especially helpful. For mercury, use the procedure at

> http://hometown.aol.com/noamalgam/countingrules to interpret the

> results.

>

> Since autism appears to be the final common pathway of several

> different underlying conditions

> differential diagnosis against all other causes must be performed.

A

> high index of suspicion for some

> other cause should arise if the patient does not show marked

> improvement within 3 cycles if under 8

> years, or 10 cycles if over age 8.

>

>

> ----

>

> I guess one is not done chelating, just " marked improvement " (which

> I'll settle for. I like this approach, because as I said I hate the

> idea of hanging on through 100 or so cycles (2 years) without any

> improvement! -

>

[Guest guest]

Hi Rene,

THanks so much for jumping in. What you say makes sense--we should see

marked gains, not be completely finished. From what others have told

me (or posted on their websites), the DMSA will just take care of

whatever metals are in the body, and is just a first step. That alone

could take months. Perhaps due to " rebound " we saw little decrease in

lead after the first two rounds of DMSA. We're up to round 4 this

weekend (with an increased dose). When and if this process clears the

lead, then we move on to ALA and/or DMPS. (Whether oral, TD, or

suppositories, I'm not so sure about yet.)

Don't ever apologize for jumping in! I learn so much from you and

everyone else.

Best regards,

> >

> > Dear Dana,

> > Here's a quote from the link (http://f3.grp.fs.

> > com/v1/EPCrRA9Y7ADy3nI5PTT-AcRR-fFiagBn83WBy-B-

> e6tlpqisgdPKyzVRm0uBPfT

> > ahEDx85I68itF8W0Q51LTUWwldrRojV-gNs9b/Andy_protocol):

> >

> > Diagnosis

> >

> > Since this detox protocol is only effective for specific metals a

> good

> > diagnosis is required. This may

> > be done according to the checklist method in Amalgam Illness:

> > Diagnosis and Treatment. Hair element

> > analysis is especially helpful. For mercury, use the procedure at

> > http://hometown.aol.com/noamalgam/countingrules to interpret the

> > results.

> >

> > Since autism appears to be the final common pathway of several

> > different underlying conditions

> > differential diagnosis against all other causes must be performed.

> A

> > high index of suspicion for some

> > other cause should arise if the patient does not show marked

> > improvement within 3 cycles if under 8

> > years, or 10 cycles if over age 8.

> >

> >

> > ----

> >

> > I guess one is not done chelating, just " marked improvement "

(which

> > I'll settle for. I like this approach, because as I said I hate

the

> > idea of hanging on through 100 or so cycles (2 years) without any

> > improvement! -

> >

>

[Guest guest]

> Sounds too optimistic to you?

To fully get all the metals out? Yes.

>>I'm just trying to find the best way to

> go. I don't want to take 2-3 years horsing around with the wrong

> method, only to find out later that it could have been more successful

> had I chosen a different path.

Very true.

If your child has food issues, or vitamin/mineral imbalances [too

much, too little], then he probably has metal issues. But that does

not mean that you have to stop chelating in order to address other issues.

>>In the meantime, all my son's

> linguistic/social gains are probably attributed to his B12 shots, not

> the chelation.

Yes, for my son it was the supplements, not the chelation, that

brought the improvements. However, he did not tolerate the

supplements until after 50 rounds of ALA.

Dana