Re: Advice on LDN or Avonex

[Guest guest]

VICK - i will never understand why the doctors continue to give out scripts for meds that they KNOW don't do a thing for their patients!! then, don't WANT to try something that has proven helpful, but not on the APPROVED LIST, YET!! if the patient is willing, their doctors should be too - even if they have to sign a release from responsibility for the doctor!!

marshiris@...

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[Guest guest]

Marshiris I couldn't agree with you more. If you go to clinicaltrials.com and type in MS I forget how many trials are undergoing....this makes no sense one of the trials is using VIAGRA what the _____. When I first started talking Avonex my dr. told me "Now we don't know if this works for sure" and I'm thinking to myself then why are you prescribing this for me. At first we do what our dr's tell us then after years of suffering we get smart. I love the message board when I advocate here in Calif. I send people to the board all the time. The majority of us have had MS for a number of years, I know I sure don't want other people to go thru that pain I went through with my MS. LDN works beautifully when pain is an issue. Dr's have to have proof in the pudding, I think that's how you say it, before they will ever prescribe anything not pushed by sales reps. A number of dr's here in Calif. have seen what LDN has done and have called me and I've sent them

info. and am keeping them informed about anything I see or find. Anyway I think everyone on the board is truly a gift and what a good feeling at night when we go to bed knowing we are making a difference in a persons life!!! Take care Vickmarshiris@... wrote: VICK - i will never understand why the doctors continue to give out scripts for meds that they KNOW don't do a thing for their patients!!

then, don't WANT to try something that has proven helpful, but not on the APPROVED LIST, YET!! if the patient is willing, their doctors should be too - even if they have to sign a release from responsibility for the doctor!! marshirisaol Check out AOL Money Finance's list of the hottest products and top money wasters of 2007.

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[Guest guest]

This subject really infuriates me! The FDA is SUPPOSED to be protecting us but they continue to play patty cake with Big Pharma. We shouldn't have to worry about what are doctor is going to prescribe to us (or to our loved one) when we are sick - but the reality is - we MUST to be very careful because in MANY cases what our Dr.are telling us to take will hurt us rather than help us, because they are playing patty cake also!!. Shouldn't be this way, but it is. But THANK G-D FOR DOCTORS LIKE DR. BIHARI !!!!!

In a message dated 11/29/2007 6:10:01 A.M. Eastern Standard Time, mardea346@... writes:

Just to put my two cents in----- Almost 5 years ago I was prescribed Copaxone by a doctor in a Boston MS clinic It was first time that she had ever seen me. She brought out a shopping bag full of information and video's so that I could decide which crab drug that i wanted to take. It sounded like Copaxone was the best as far as user friendly. So I decided on Copaxone. I started having shooting pains in my ears and head plus I was loosing my upper body strength. So after a short time, I went to see my own Neurologist that I had seen for years. He told me that Copaxone would not give my those side effects and to stay on it. So after 4 months I got off without telling either doctor. My upper body strength came back and my shooting pains were gone. So, to no surprise to me, I guess that it was the Copaxone that was giving me these side effects. I then got on LDN and have been very happy with LDN.

This year I ended up in the ER cause I had shingles in my head. The ER said that they would feel better if they could make an appointment for me at one of their Neurologists so that he could check me out. We went over my history. He was very surprised that i had ever been put on Copaxone. He said that it should never had been prescribed for me. He said that it probably did permanent damage to my nerves.

The moral to this story------take care of your own health. Just because your doctor says that you need a drug, investigate before getting on it. I suspect that the doctor in the clinic just gave all the crab drugs to all MS patients. She was probably well respected by the pharmacutical companies.

Marie

Re: [low dose naltrexone] Advice on LDN or Avonex

Marshiris

I couldn't agree with you more. If you go to clinicaltrials.com and type in MS I forget how many trials are undergoing....this makes no sense one of the trials is using VIAGRA what the _____. When I first started talking Avonex my dr. told me "Now we don't know if this works for sure" and I'm thinking to myself then why are you prescribing this for me. At first we do what our dr's tell us then after years of suffering we get smart. I love the message board when I advocate here in Calif. I send people to the board all the time. The majority of us have had MS for a number of years, I know I sure don't want other people to go thru that pain I went through with my MS. LDN works beautifully when pain is an issue. Dr's have to have proof in the pudding, I think that's how you say it, before they will ever prescribe anything not pushed by sales reps. A number of dr's here in Calif. have seen what LDN has done and have called me and I've sent them info. and am keeping them informed about anything I see or find.

Anyway I think everyone on the board is truly a gift and what a good feeling at night when we go to bed knowing we are making a difference in a persons life!!!

Take care

Vickmarshirisaol wrote:

VICK - i will never understand why the doctors continue to give out scripts for meds that they KNOW don't do a thing for their patients!! then, don't WANT to try something that has proven helpful, but not on the APPROVED LIST, YET!! if the patient is willing, their doctors should be too - even if they have to sign a release from responsibility for the doctor

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[Guest guest]

Just to put my two cents in----- Almost 5 years ago I was prescribed Copaxone by a doctor in a Boston MS clinic It was first time that she had ever seen me. She brought out a shopping bag full of information and video's so that I could decide which crab drug that i wanted to take. It sounded like Copaxone was the best as far as user friendly. So I decided on Copaxone. I started having shooting pains in my ears and head plus I was loosing my upper body strength. So after a short time, I went to see my own Neurologist that I had seen for years. He told me that Copaxone would not give my those side effects and to stay on it. So after 4 months I got off without telling either doctor. My upper body strength came back and my shooting pains were gone. So, to no surprise to me, I guess that it was the Copaxone that was giving me these side effects. I then got on LDN and have been very happy with LDN.

This year I ended up in the ER cause I had shingles in my head. The ER said that they would feel better if they could make an appointment for me at one of their Neurologists so that he could check me out. We went over my history. He was very surprised that i had ever been put on Copaxone. He said that it should never had been prescribed for me. He said that it probably did permanent damage to my nerves.

The moral to this story------take care of your own health. Just because your doctor says that you need a drug, investigate before getting on it. I suspect that the doctor in the clinic just gave all the crab drugs to all MS patients. She was probably well respected by the pharmacutical companies.

Marie

Re: [low dose naltrexone] Advice on LDN or Avonex

Marshiris

I couldn't agree with you more. If you go to clinicaltrials.com and type in MS I forget how many trials are undergoing....this makes no sense one of the trials is using VIAGRA what the _____. When I first started talking Avonex my dr. told me "Now we don't know if this works for sure" and I'm thinking to myself then why are you prescribing this for me. At first we do what our dr's tell us then after years of suffering we get smart. I love the message board when I advocate here in Calif. I send people to the board all the time. The majority of us have had MS for a number of years, I know I sure don't want other people to go thru that pain I went through with my MS. LDN works beautifully when pain is an issue. Dr's have to have proof in the pudding, I think that's how you say it, before they will ever prescribe anything not pushed by sales reps. A number of dr's here in Calif. have seen what LDN has done and have called me and I've sent them info. and am keeping them informed about anything I see or find.

Anyway I think everyone on the board is truly a gift and what a good feeling at night when we go to bed knowing we are making a difference in a persons life!!!

Take care

Vickmarshirisaol wrote:

VICK - i will never understand why the doctors continue to give out scripts for meds that they KNOW don't do a thing for their patients!! then, don't WANT to try something that has proven helpful, but not on the APPROVED LIST, YET!! if the patient is willing, their doctors should be too - even if they have to sign a release from responsibility for the doctor!!

marshirisaol

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[Guest guest]

Hi Marie

I found your story very interesting, thanks for sharing.Like you my neurologist put me on Avonex three years ago, when I was first diagnosed, I think everyone that had ms were put on it.I ended up having a colonostomy because I became severly constipated.I immediatley came off the drug.I have done nothing for three years. I just refused every drug offered to me.I then heard about ldn three months ago and have been on it since. T.G for ldn.

Clare (Cork City, Ireland).

Re: [low dose naltrexone] Advice on LDN or Avonex

Marshiris

I couldn't agree with you more. If you go to clinicaltrials.com and type in MS I forget how many trials are undergoing....this makes no sense one of the trials is using VIAGRA what the _____. When I first started talking Avonex my dr. told me "Now we don't know if this works for sure" and I'm thinking to myself then why are you prescribing this for me. At first we do what our dr's tell us then after years of suffering we get smart. I love the message board when I advocate here in Calif. I send people to the board all the time. The majority of us have had MS for a number of years, I know I sure don't want other people to go thru that pain I went through with my MS. LDN works beautifully when pain is an issue. Dr's have to have proof in the pudding, I think that's how you say it, before they will ever prescribe anything not pushed by sales reps. A number of dr's here in Calif. have seen what LDN has done and have called me and I've sent them info. and am keeping them informed about anything I see or find.

Anyway I think everyone on the board is truly a gift and what a good feeling at night when we go to bed knowing we are making a difference in a persons life!!!

Take care

Vickmarshirisaol wrote:

VICK - i will never understand why the doctors continue to give out scripts for meds that they KNOW don't do a thing for their patients!! then, don't WANT to try something that has proven helpful, but not on the APPROVED LIST, YET!! if the patient is willing, their doctors should be too - even if they have to sign a release from responsibility for the doctor!!

marshirisaol

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[Guest guest]

I agree---Dr Bihari is the best.

Marie

Re: [low dose naltrexone] Advice on LDN or Avonex

Marshiris

I couldn't agree with you more. If you go to clinicaltrials.com and type in MS I forget how many trials are undergoing....this makes no sense one of the trials is using VIAGRA what the _____. When I first started talking Avonex my dr. told me "Now we don't know if this works for sure" and I'm thinking to myself then why are you prescribing this for me. At first we do what our dr's tell us then after years of suffering we get smart. I love the message board when I advocate here in Calif. I send people to the board all the time. The majority of us have had MS for a number of years, I know I sure don't want other people to go thru that pain I went through with my MS. LDN works beautifully when pain is an issue. Dr's have to have proof in the pudding, I think that's how you say it, before they will ever prescribe anything not pushed by sales reps. A number of dr's here in Calif. have seen what LDN has done and have called me and I've sent them info. and am keeping them informed about anything I see or find.

Anyway I think everyone on the board is truly a gift and what a good feeling at night when we go to bed knowing we are making a difference in a persons life!!!

Take care

Vickmarshirisaol wrote:

VICK - i will never understand why the doctors continue to give out scripts for meds that they KNOW don't do a thing for their patients!! then, don't WANT to try something that has proven helpful, but not on the APPROVED LIST, YET!! if the patient is willing, their doctors should be too - even if they have to sign a release from responsibility for the doctor

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[Guest guest]

Hi Clare,

How have you been doing on LDN?

Aletha

Re: [low dose naltrexone] Advice on LDN or Avonex

Marshiris

I couldn't agree with you more. If you go to clinicaltrials.com and type in MS I forget how many trials are undergoing....this makes no sense one of the trials is using VIAGRA what the _____. When I first started talking Avonex my dr. told me "Now we don't know if this works for sure" and I'm thinking to myself then why are you prescribing this for me. At first we do what our dr's tell us then after years of suffering we get smart. I love the message board when I advocate here in Calif. I send people to the board all the time. The majority of us have had MS for a number of years, I know I sure don't want other people to go thru that pain I went through with my MS. LDN works beautifully when pain is an issue. Dr's have to have proof in the pudding, I think that's how you say it, before they will ever prescribe anything not pushed by sales reps. A number of dr's here in Calif. have seen what LDN has done and have called me and I've sent them info. and am keeping them informed about anything I see or find.

Anyway I think everyone on the board is truly a gift and what a good feeling at night when we go to bed knowing we are making a difference in a persons life!!!

Take care

Vickmarshirisaol wrote:

VICK - i will never understand why the doctors continue to give out scripts for meds that they KNOW don't do a thing for their patients!! then, don't WANT to try something that has proven helpful, but not on the APPROVED LIST, YET!! if the patient is willing, their doctors should be too - even if they have to sign a release from responsibility for the doctor!!

marshirisaol

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[Guest guest]

Hi Aletha.

Many thanks for email. I'm on ldn now 3 months.I must say my energy and alertness have got much better. I have been getting alot of muscle spasms but none for past three weeks am putting that down to ldn.I have had alot of bizarre night mares but they seem to have stopped.I still have disturbed sleep.There is a friend here living about 5 miles from me, She is on ldn now 3 years and swears by it.I suppose its early days for me yet. It beats having to take injections which I will never take again I hated those weekly injections of Avonex.Three cheers for ldn.

Clare(Cork City, Ireland)

Re: [low dose naltrexone] Advice on LDN or Avonex

Marshiris

I couldn't agree with you more. If you go to clinicaltrials.com and type in MS I forget how many trials are undergoing....this makes no sense one of the trials is using VIAGRA what the _____. When I first started talking Avonex my dr. told me "Now we don't know if this works for sure" and I'm thinking to myself then why are you prescribing this for me. At first we do what our dr's tell us then after years of suffering we get smart. I love the message board when I advocate here in Calif. I send people to the board all the time. The majority of us have had MS for a number of years, I know I sure don't want other people to go thru that pain I went through with my MS. LDN works beautifully when pain is an issue. Dr's have to have proof in the pudding, I think that's how you say it, before they will ever prescribe anything not pushed by sales reps. A number of dr's here in Calif. have seen what LDN has done and have called me and I've sent them info. and am keeping them informed about anything I see or find.

Anyway I think everyone on the board is truly a gift and what a good feeling at night when we go to bed knowing we are making a difference in a persons life!!!

Take care

Vickmarshirisaol wrote:

VICK - i will never understand why the doctors continue to give out scripts for meds that they KNOW don't do a thing for their patients!! then, don't WANT to try something that has proven helpful, but not on the APPROVED LIST, YET!! if the patient is willing, their doctors should be too - even if they have to sign a release from responsibility for the doctor!!

marshirisaol

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No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.16.8/1153 - Release Date: 26/11/2007 21:08

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