Re: Re: LDN in the morning

[Guest guest]

it is to be taken between 9pm and 3am due to our

bodies production of endorphins. read up on it at the

ldn site, you got the incorrect instructions dear. has

nothing to do with side effects.

Donna

[Guest guest]

Hi Art:

Yes, I know but my dr insisted the 1st dose should be

taken in the monrning to see if there are any side

effects. Are these normal side effects? I have MS not

sure what stage of the illness I believe I am in the

Relapsing Remitting stage although these days feels

like Progressive as I am always symptomatic. I hope I

am not going to continue to feel this way all day.

thankd for your help.

--- Art Hansen <rtee54@...> wrote:

> First, you're supposed to take LDN in the evening

> between the hours

> of 9:00PM and 3:00AM, not in the morning. I take

> mine at 10:00PM

> every night.

>

> Also, how much are you taking? I take 4.5mgs.

>

> What disease/illness are you trying to control?

>

> Seeing your system is apparently so sensitive maybe

> you should try

> starting out slowly; first month 1.5mgs, second

> month 3.0mgs, third

> month 4.5mgs or stay at 3.0mgs if that is better for

> you.

>

> Keep us posted on your progress.

>

> Art

> --

>

> > Hello Everyone:

> >

> > Okay, I just took my first dose of Naltrexone,

> very

> > strange reaction, I feel like I am intoxicated.

> 1st

> > started with my heart beating very fast and then

> some

> > dizziness, then a complete calmness, feeling very

> > relaxed right now, I see why this is supposed to

> be

> > taken at night, my doctor wanted me taking it for

> the

> > first time in the morning to see what the side

> effects

> > would be. I just hope I am more alert and settled

> by

> > the time I need to leave work this afternoon, I

> would

> > appreciate hearing from anyone who has had this

> > experience.as well as any suggestions?

> > Thanks,

> >

> >

> > __________________________________________________

> >

[Guest guest]

Hi:

Sorry forgot top write 4.5mg is the dosage I am

taking.

thanks,

--- Art Hansen <rtee54@...> wrote:

> First, you're supposed to take LDN in the evening

> between the hours

> of 9:00PM and 3:00AM, not in the morning. I take

> mine at 10:00PM

> every night.

>

> Also, how much are you taking? I take 4.5mgs.

>

> What disease/illness are you trying to control?

>

> Seeing your system is apparently so sensitive maybe

> you should try

> starting out slowly; first month 1.5mgs, second

> month 3.0mgs, third

> month 4.5mgs or stay at 3.0mgs if that is better for

> you.

>

> Keep us posted on your progress.

>

> Art

> --

>

> > Hello Everyone:

> >

> > Okay, I just took my first dose of Naltrexone,

> very

> > strange reaction, I feel like I am intoxicated.

> 1st

> > started with my heart beating very fast and then

> some

> > dizziness, then a complete calmness, feeling very

> > relaxed right now, I see why this is supposed to

> be

> > taken at night, my doctor wanted me taking it for

> the

> > first time in the morning to see what the side

> effects

> > would be. I just hope I am more alert and settled

> by

> > the time I need to leave work this afternoon, I

> would

> > appreciate hearing from anyone who has had this

> > experience.as well as any suggestions?

> > Thanks,

> >

> >

> > __________________________________________________

> >

[Guest guest]

Hi ,

I would suggest you take your LDN as recommended by Dr. Bihari, namely, between

9 pm and 3 am.

Taking LDN in the morning may be of some limited benefit, as suggested by the

German clinical trial of LDN for MS summarized here:

http://tinyurl.com/2vlwnk

Taking LDN at night is best, however.

Sincerely,

Dudley Delany

dudley_delany

[low dose naltrexone] Re: LDN in the morning

Hello Everyone:

Okay, I just took my first dose of Naltrexone, very

strange reaction, I feel like I am intoxicated. 1st

started with my heart beating very fast and then some

dizziness, then a complete calmness, feeling very

relaxed right now, I see why this is supposed to be

taken at night, my doctor wanted me taking it for the

first time in the morning to see what the side effects

would be. I just hope I am more alert and settled by

the time I need to leave work this afternoon, I would

appreciate hearing from anyone who has had this

experience.as well as any suggestions?

Thanks,

__________________________________________________

[Guest guest]

sounds like you're afraid you're taking cyanide and you're spooking yourself.

That's JMHO, OC, I could be wrong

9PM Standard Time through 3AM is when it should be taken.

[low dose naltrexone] Re: LDN in the morning

Hello Everyone:Okay, I just took my first dose of Naltrexone, verystrange reaction, I feel like I am intoxicated. 1ststarted with my heart beating very fast and then somedizziness, then a complete calmness, feeling veryrelaxed right now, I see why this is supposed to betaken at night, my doctor wanted me taking it for thefirst time in the morning to see what the side effectswould be. I just hope I am more alert and settled bythe time I need to leave work this afternoon, I wouldappreciate hearing from anyone who has had thisexperience.as well as any suggestions?Thanks,__________________________________________________

[Guest guest]

Hi all: Susie indicated she took the first dose according to her doc's instructions because of side effects. If her doc prescribed the LDN, she should listen to his instructions for the first and only dose in the morning. I had to comment because it seems everyone missed it was her doc's instructions. LDN/MSdonna chopyak <colorsntrees@...> wrote: it is to be taken between 9pm and 3am due to ourbodies production of endorphins. read

up on it at theldn site, you got the incorrect instructions dear. hasnothing to do with side effects. Donna __________________________________________________

[Guest guest]

Sorry , but in my opinion your doctor sounds like he is experimenting with you. Why don't you take it the way most are taking it, that have great results?

Call Skips Pharmacy in Boca Raton Florida to get the best advice.

I have heard of doctors prescribing ldn because the patient insists, and will go somewhere else if they don't. They don't know as much as the patient on how to prescribe. I was told to start at 1.5 mg for one month then go to 3.0 mg. I am staying with that dosage because of my muscle stiffness.

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Suzzie BSent: Friday, October 19, 2007 12:56 PMlow dose naltrexone Subject: [low dose naltrexone] Re: LDN in the morning

Hello Everyone:Okay, I just took my first dose of Naltrexone, verystrange reaction, I feel like I am intoxicated. 1ststarted with my heart beating very fast and then somedizziness, then a complete calmness, feeling veryrelaxed right now, I see why this is supposed to betaken at night, my doctor wanted me taking it for thefirst time in the morning to see what the side effectswould be. I just hope I am more alert and settled bythe time I need to leave work this afternoon, I wouldappreciate hearing from anyone who has had thisexperience.as well as any suggestions?Thanks,__________________________________________________

[Guest guest]

Reread her post and you will see that it was for the "FIRST" dose to check for side effects. Or, have we all become doctors and are self-prescribing LDN and other meds for ourselves. I always consult with my doctors and pharmacists because they are the ones who write the scripts. I am not going to get into an arguement and this is my last comment regarding this. finchcage1 <finchcage1@...> wrote: Apparently her doctor doesn't know what he's talking about. Just because the doctor says it doesn't mean he's right. It's a license to PRACTICE medicine. > it is to be taken between 9pm and 3am due to our> bodies production of endorphins. read up on it at the> ldn site, you got the incorrect instructions dear. has> nothing to do with side effects. > Donna> > > > > __________________________________________________>

[Guest guest]

with ldn not being toxic and i said before i take 4.5 at night 1.5 in the morning1hr before breakfast and i get more energy, why i don,t know,but the MS monster does. it helps my ppms

low dose naltrexone From: wendy.hawthorne@...Date: Fri, 19 Oct 2007 11:02:11 -0700Subject: Re: [low dose naltrexone] Re: LDN in the morning

Reread her post and you will see that it was for the "FIRST" dose to check for side effects. Or, have we all become doctors and are self-prescribing LDN and other meds for ourselves. I always consult with my doctors and pharmacists because they are the ones who write the scripts.

I am not going to get into an arguement and this is my last comment regarding this.

finchcage1 <finchcage1 > wrote:

Apparently her doctor doesn't know what he's talking about. Just because the doctor says it doesn't mean he's right. It's a license to PRACTICE medicine.

> it is to be taken between 9pm and 3am due to our> bodies production of endorphins. read up on it at the> ldn site, you got the incorrect instructions dear. has> nothing to do with side effects. > Donna> > > > > __________________________________________________>

[Guest guest]

Hello Again:

Thanks to all that replied, I just feel very lethargic

and I am not sure if it is the dosage that is too high

or just that it really should be taken at night. 4.5

is my dosage. Has anyone had this experience using the

drug in the morning. I will resume taking the drug

tomorrow at night.

thanks,

--- donna chopyak <colorsntrees@...> wrote:

> it is to be taken between 9pm and 3am due to our

> bodies production of endorphins. read up on it at

> the

> ldn site, you got the incorrect instructions dear.

> has

> nothing to do with side effects.

> Donna

>

__________________________________________________

[Guest guest]

Hi,I am a registered nurse, and I have never heard of a doctor telling a patient to take a medication at the WRONG time to see what the side effects are. In my opinion, that is very poor medical practice. If you want to know what the side effects are, you take it at the RIGHT time.Regards,Dudley Delany

dudley_delanyFrom: finchcage1

Sent: Friday, October 19, 2007 1:59 PM

low dose naltrexone

Subject: [low dose naltrexone] Re: LDN in the morning

Apparently her doctor doesn't know what he's talking about. Just because the doctor says it doesn't mean he's right. It's a license to PRACTICE medicine.

> it is to be taken between 9pm and 3am due to our> bodies production of endorphins. read up on it at the> ldn site, you got the incorrect instructions dear. has> nothing to do with side effects. > Donna> > > > > __________________________________________________>

[Guest guest]

Thanks everyone, it was important for me to read your

comments, I did however call the Doctors office to

find out what might of been the problem and the MS

specialist's secretary told me, well you see you

insisted on taking this drug, and the doctor wanted

you to wait until you wee accessed and seen, and so

her suggestion was to stop until my appointment Oct

31/07. Thinking maybe that is not a bad idea, or to

maybe call the pharmacy as see about lowering the

dosage. Any suggestions?

--- Art Hansen <rtee54@...> wrote:

> ,

> The adverse side-effects from LDN, such as slight

> sleep disturbance

> and vivid dreaming, are extremely mild and should

> subside after a few

> days, or a week or two. You may not even experience

> these things. I

> hope you continue with LDN and start realizing the

> wonderful benefits

> it provides. Halting/slowing your MS from

> progressing is of the

> utmost importance so as not to sustain any permanent

> physical damage

> to your nervous system. And please read and study

> all the fine LDN

> websites that are out there. , Crystal, Sammy

> Jo, Dudley,

> Maureen and others know what they're talking about.

> LDN alone cannot

> do the entire job. You must take an active role

> recovering your

> health. We are here to help you the best we can.

>

> Art

> --

>

> > Hi Art:

> >

> > Yes, I know but my dr insisted the 1st dose should

> be

> > taken in the monrning to see if there are any side

> > effects. Are these normal side effects? I have MS

> not

> > sure what stage of the illness I believe I am in

> the

> > Relapsing Remitting stage although these days

> feels

> > like Progressive as I am always symptomatic. I

> hope I

> > am not going to continue to feel this way all day.

> >

> > thankd for your help.

> >

> >

> >

> > --- Art Hansen <rtee54@...> wrote:

> >

> > > First, you're supposed to take LDN in the

> evening

> > > between the hours

> > > of 9:00PM and 3:00AM, not in the morning. I take

> > > mine at 10:00PM

> > > every night.

> > >

> > > Also, how much are you taking? I take 4.5mgs.

> > >

> > > What disease/illness are you trying to control?

> > >

> > > Seeing your system is apparently so sensitive

> maybe

> > > you should try

> > > starting out slowly; first month 1.5mgs, second

> > > month 3.0mgs, third

> > > month 4.5mgs or stay at 3.0mgs if that is better

> for

> > > you.

> > >

> > > Keep us posted on your progress.

> > >

> > > Art

> > > --

> > >

> > > > Hello Everyone:

> > > >

> > > > Okay, I just took my first dose of Naltrexone,

> > > very

> > > > strange reaction, I feel like I am

> intoxicated.

> > > 1st

> > > > started with my heart beating very fast and

> then

> > > some

> > > > dizziness, then a complete calmness, feeling

> very

> > > > relaxed right now, I see why this is supposed

> to

> > > be

> > > > taken at night, my doctor wanted me taking it

> for

> > > the

> > > > first time in the morning to see what the side

> > > effects

> > > > would be. I just hope I am more alert and

> settled

> > > by

> > > > the time I need to leave work this afternoon,

> I

> > > would

> > > > appreciate hearing from anyone who has had

> this

> > > > experience.as well as any suggestions?

> > > > Thanks,

> > > >

> > > >

> > > >

> __________________________________________________

> > > >

[Guest guest]

Suzzie B wrote:

>...Any suggestions?

Yes, Suzzie, take the 2nd and subsequent doses at night

between 9 pm and 3 am, as your doctor directed and as

is usual, and see how you fare.

If after trying LDN at night you are uncomfortable in any

way you probably can make a weaker LDN solution with

distilled water and titrate up over a few weeks or more,

at whatever pace you, or you and your doctor, think best.

Because LDN, even at 4.5 mg/night, is still a teensy dose

and very safe. It is less than 1/10th the FDA approved

dosage for getting off heroine.

And to my knowledge, no one EVER has been harmed

by LDN.

Dr. Bihari has patients on LDN close to 20 years now.

If you haven't read his interview on www.gazorpa.com,

please do; I think you will find it reassuring.

Best health,

Jo

Suzzie B wrote:

Thanks everyone, it was important for me to read your

comments, I did however call the Doctors office to

find out what might of been the problem and the MS

specialist's secretary told me, well you see you

insisted on taking this drug, and the doctor wanted

you to wait until you wee accessed and seen, and so

her suggestion was to stop until my appointment Oct

31/07. Thinking maybe that is not a bad idea, or to

maybe call the pharmacy as see about lowering the

dosage. Any suggestions?

..

[Guest guest]

You can print this out and take this to your doctor. There are thousands of patients that take LDN> It is never recommended  they start at 4.5. We recommend people start at 1.5 for a month take 3.0 for a month then up it to 4.5. Doctors that  prescribe LDN on a regular basis use  this protocol. I in fact , tell people to get  a prescription for 1.5 and that way they can tit-rate  the dose up as they can tolerate it. and you can ask if the doctor wrote off label for neurontin wouldn't he give a correct dose?and tell the secretary she doesn't have a medical license and shouldn't even be discussing this with you.cyndion the morning of the LDN conference at VanderbiltOn Oct 19, 2007, at 7:09 PM, Art Hansen wrote:I don't think you'll be able to lower the dosage via your pharmacy without a doctors prescription. You could try dissolving a 4.5mg LDN capsule in 4.5 ml of distilled water, then using a graduated dropper draw up 3.0mgs, or whatever amount you feel comfortable with, and administer. Keep the unused solution refrigerated. My opinion is if you tell the doctor you're having a bad reaction to LDN he may not write you another prescription for it, then what will you do? Riding out any minor reaction to LDN is better than having MS.I'm just thinking out loud. Do what you think is best for you.Art-->> Thanks everyone, it was important for me to read your> comments, I did however call the Doctors office to> find out what might of been the problem and the MS> specialist's secretary told me, well you see you> insisted on taking this drug, and the doctor wanted> you to wait until you wee accessed and seen, and so> her suggestion was to stop until my appointment Oct> 31/07. Thinking maybe that is not a bad idea, or to> maybe call the pharmacy as see about lowering the> dosage. Any suggestions?> >

[Guest guest]

and two more things. take it at nighttime. i think everyone with a new prescription if you get 1.5's you able to manage your self better. one you get settled at a dose then you can get that.cyndiOn Oct 20, 2007, at 6:45 AM, Cyndi Lenz wrote:You can print this out and take this to your doctor. There are thousands of patients that take LDN> It is never recommended  they start at 4.5. We recommend people start at 1.5 for a month take 3.0 for a month then up it to 4.5. Doctors that  prescribe LDN on a regular basis use  this protocol. I in fact , tell people to get  a prescription for 1.5 and that way they can tit-rate  the dose up as they can tolerate it. and you can ask if the doctor wrote off label for neurontin wouldn't he give a correct dose?and tell the secretary she doesn't have a medical license and shouldn't even be discussing this with you.cyndion the morning of the LDN conference at VanderbiltOn Oct 19, 2007, at 7:09 PM, Art Hansen wrote:I don't think you'll be able to lower the dosage via your pharmacy without a doctors prescription. You could try dissolving a 4.5mg LDN capsule in 4.5 ml of distilled water, then using a graduated dropper draw up 3.0mgs, or whatever amount you feel comfortable with, and administer. Keep the unused solution refrigerated. My opinion is if you tell the doctor you're having a bad reaction to LDN he may not write you another prescription for it, then what will you do? Riding out any minor reaction to LDN is better than having MS.I'm just thinking out loud. Do what you think is best for you.Art-->> Thanks everyone, it was important for me to read your> comments, I did however call the Doctors office to> find out what might of been the problem and the MS> specialist's secretary told me, well you see you> insisted on taking this drug, and the doctor wanted> you to wait until you wee accessed and seen, and so> her suggestion was to stop until my appointment Oct> 31/07. Thinking maybe that is not a bad idea, or to> maybe call the pharmacy as see about lowering the> dosage. Any suggestions?> >

[Guest guest]

Cyndi:

Thank-you so much for sharing your insight with LDN

with me. I am surprised then why the MS specialist

told my family doctor to give me that dosage. I will

wait till Monday and then speak to my family Doctor

about lowering the dosage. 12 hours later I was still

feeling the effect of the drug. This is pretty

powerful. You are right I should of started off low

and built it up to the correct dosage. I now have a 3

months supply of the 4.5 dosage, will it still be good

when I am ready to use it? Thank-you, so much for

taking the time to write, as I know you are at the

conference and need to address your attention there.

Enjoy, and I am looking forward to hearing back from

you on how it went.

All the best,

--- Cyndi Lenz <psychrn@...> wrote:

> You can print this out and take this to your doctor.

> There are

> thousands of patients that take LDN> It is never

> recommended they

> start at 4.5. We recommend people start at 1.5 for a

> month take 3.0

> for a month then up it to 4.5. Doctors that

> prescribe LDN on a

> regular basis use this protocol. I in fact , tell

> people to get a

> prescription for 1.5 and that way they can tit-rate

> the dose up as

> they can tolerate it.

>

> and you can ask if the doctor wrote off label for

> neurontin wouldn't

> he give a correct dose?

>

> and tell the secretary she doesn't have a medical

> license and

> shouldn't even be discussing this with you.

>

> cyndi

> on the morning of the LDN conference at Vanderbilt

>

> On Oct 19, 2007, at 7:09 PM, Art Hansen wrote:

>

> > I don't think you'll be able to lower the dosage

> via your pharmacy

> > without a doctors prescription. You could try

> dissolving a 4.5mg LDN

> > capsule in 4.5 ml of distilled water, then using a

> graduated dropper

> > draw up 3.0mgs, or whatever amount you feel

> comfortable with, and

> > administer. Keep the unused solution refrigerated.

> >

> > My opinion is if you tell the doctor you're having

> a bad reaction to

> > LDN he may not write you another prescription for

> it, then what will

> > you do? Riding out any minor reaction to LDN is

> better than having MS.

> >

> > I'm just thinking out loud. Do what you think is

> best for you.

> >

> > Art

> > --

> >

> > >

> > > Thanks everyone, it was important for me to read

> your

> > > comments, I did however call the Doctors office

> to

> > > find out what might of been the problem and the

> MS

> > > specialist's secretary told me, well you see you

> > > insisted on taking this drug, and the doctor

> wanted

> > > you to wait until you wee accessed and seen, and

> so

> > > her suggestion was to stop until my appointment

> Oct

> > > 31/07. Thinking maybe that is not a bad idea, or

> to

> > > maybe call the pharmacy as see about lowering

> the

> > > dosage. Any suggestions?

> > >

> > >

> >

> >

> >

>

>

__________________________________________________

[Guest guest]

>>

>> Okay, I just took my first dose of Naltrexone, very

>> strange reaction, I feel like I am intoxicated.

My first few nights I felt like I was on ecstacy; surging brain, I

sweat, I kept feeling rushes of light kind of blaze past my eyes. I

couldn't sleep at all. I commented to my husband, " I didn't think

this would be so " trippy " ; kind of like the beginning of a pyschadelic

before the hallucinations come on. If you're never done any of these

illegal drugs, sorry about the comparisons, but it was very weird for

me as well. You're not the only one. The second night was less so,

and the third barely. Then I just had nightmares and totally bizarre

dreams for a few weeks. Now I miss all of that, and only feel dizzy

and kind of strange sometimes, and that's just if I wake up in the

night to pee. I would take it at night and give yourself a week or so

to feel weird. And like others suggest, perhaps start at a lower

dosage. I just jumped in at 4.5 mg, but I have Crohn's, so wasn't

worried about spasticity or stiffness.

Debora

[Guest guest]

Hi Deborah:

Thanks for sharing that with me, yes that is exactly

how I felt but all throughout the day, very weird

sensation anyways, I think I am going to take Cyndi's

advice and speak to my Dr. on Monday about lowering

the dose to start then I can work my way up from

there.

I am happy to hear that you have adjusted so well with

the drug, have you noticed any improvements with you

Crohn's? amazing to hear so many people with so many

different illnesses are having success with this one

drug.

Keep well.

--- Debora Wade <dwade@...> wrote:

> >>

> >> Okay, I just took my first dose of Naltrexone,

> very

> >> strange reaction, I feel like I am intoxicated.

>

> My first few nights I felt like I was on ecstacy;

> surging brain, I

> sweat, I kept feeling rushes of light kind of blaze

> past my eyes. I

> couldn't sleep at all. I commented to my husband,

> " I didn't think

> this would be so " trippy " ; kind of like the

> beginning of a pyschadelic

> before the hallucinations come on. If you're never

> done any of these

> illegal drugs, sorry about the comparisons, but it

> was very weird for

> me as well. You're not the only one. The second

> night was less so,

> and the third barely. Then I just had nightmares

> and totally bizarre

> dreams for a few weeks. Now I miss all of that, and

> only feel dizzy

> and kind of strange sometimes, and that's just if I

> wake up in the

> night to pee. I would take it at night and give

> yourself a week or so

> to feel weird. And like others suggest, perhaps

> start at a lower

> dosage. I just jumped in at 4.5 mg, but I have

> Crohn's, so wasn't

> worried about spasticity or stiffness.

>

> Debora

>

>

__________________________________________________

[Guest guest]

Hi Art:

Thanks for your advice, I am going to discuss with my

family doctor on Monday about lowering the dosage to

1.5 or 3.0 and going from there. 12 hours later I was

still affected by the drug, I agree those side effects

are certainly better than dealing with the symptoms of

the MS. I am determined to get well and if I have to

deal with a few of these inconvenient side effects

than so be it.

Thanks again.

--- Art Hansen <rtee54@...> wrote:

> I don't think you'll be able to lower the dosage via

> your pharmacy

> without a doctors prescription. You could try

> dissolving a 4.5mg LDN

> capsule in 4.5 ml of distilled water, then using a

> graduated dropper

> draw up 3.0mgs, or whatever amount you feel

> comfortable with, and

> administer. Keep the unused solution refrigerated.

>

> My opinion is if you tell the doctor you're having a

> bad reaction to

> LDN he may not write you another prescription for

> it, then what will

> you do? Riding out any minor reaction to LDN is

> better than having MS.

>

> I'm just thinking out loud. Do what you think is

> best for you.

>

> Art

> --

>

> >

> > Thanks everyone, it was important for me to read

> your

> > comments, I did however call the Doctors office to

> > find out what might of been the problem and the MS

> > specialist's secretary told me, well you see you

> > insisted on taking this drug, and the doctor

> wanted

> > you to wait until you wee accessed and seen, and

> so

> > her suggestion was to stop until my appointment

> Oct

> > 31/07. Thinking maybe that is not a bad idea, or

> to

> > maybe call the pharmacy as see about lowering the

> > dosage. Any suggestions?

> >

> >

>

>

__________________________________________________

[Guest guest]

Your very welcome. We've been collecting actual data for years it was that data plus a discussion with some of our neurologists that did order LDN and then we tried it and it worked great so we recommend it. I think it was at the last conference and Dr Skip would have to confirm this but there were so many people who tried ldn and could not tolerate it at the beginning.My last  interview of the day was with Dr Gluck and we spoke about you guys and how LDN is so people powered and how everyone on this board helps people out all the time and what an incredible community it was.cyndiOn Oct 20, 2007, at 9:37 AM, Suzzie B wrote:Cyndi:Thank-you so much for sharing your insight with LDNwith me. I am surprised then why the MS specialisttold my family doctor to give me that dosage. I willwait till Monday and then speak to my family Doctorabout lowering the dosage. 12 hours later I was stillfeeling the effect of the drug. This is prettypowerful. You are right I should of started off lowand built it up to the correct dosage. I now have a 3months supply of the 4.5 dosage, will it still be goodwhen I am ready to use it? Thank-you, so much fortaking the time to write, as I know you are at theconference and need to address your attention there.Enjoy, and I am looking forward to hearing back fromyou on how it went.All the best, --- Cyndi Lenz <psychrngate (DOT) net> wrote:> You can print this out and take this to your doctor.> There are > thousands of patients that take LDN> It is never> recommended they > start at 4.5. We recommend people start at 1.5 for a> month take 3.0 > for a month then up it to 4.5. Doctors that > prescribe LDN on a > regular basis use this protocol. I in fact , tell> people to get a > prescription for 1.5 and that way they can tit-rate > the dose up as > they can tolerate it.> > and you can ask if the doctor wrote off label for> neurontin wouldn't > he give a correct dose?> > and tell the secretary she doesn't have a medical> license and > shouldn't even be discussing this with you.> > cyndi> on the morning of the LDN conference at Vanderbilt> > On Oct 19, 2007, at 7:09 PM, Art Hansen wrote:> > > I don't think you'll be able to lower the dosage> via your pharmacy> > without a doctors prescription. You could try> dissolving a 4.5mg LDN> > capsule in 4.5 ml of distilled water, then using a> graduated dropper> > draw up 3.0mgs, or whatever amount you feel> comfortable with, and> > administer. Keep the unused solution refrigerated.> >> > My opinion is if you tell the doctor you're having> a bad reaction to> > LDN he may not write you another prescription for> it, then what will> > you do? Riding out any minor reaction to LDN is> better than having MS.> >> > I'm just thinking out loud. Do what you think is> best for you.> >> > Art> > --> >> > >> > > Thanks everyone, it was important for me to read> your> > > comments, I did however call the Doctors office> to> > > find out what might of been the problem and the> MS> > > specialist's secretary told me, well you see you> > > insisted on taking this drug, and the doctor> wanted> > > you to wait until you wee accessed and seen, and> so> > > her suggestion was to stop until my appointment> Oct> > > 31/07. Thinking maybe that is not a bad idea, or> to> > > maybe call the pharmacy as see about lowering> the> > > dosage. Any suggestions?> > >> > > > >> >> > > > __________________________________________________

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On Oct 20, 2007, at 7:15 AM, Suzzie B wrote:

> Hi Deborah:

>

> Thanks for sharing that with me, yes that is exactly

> how I felt but all throughout the day, very weird

> sensation anyways, I think I am going to take Cyndi's

> advice and speak to my Dr. on Monday about lowering

> the dose to start then I can work my way up from

> there.

>

> I am happy to hear that you have adjusted so well with

> the drug, have you noticed any improvements with you

> Crohn's? amazing to hear so many people with so many

> different illnesses are having success with this one

> drug.

>

I'll let you know in another month; unfortunately, I haven't been on

LDN for more than a month without something else interfering. First, I

tried it compounded with lactose and got worse; the next month I got

better when I switched to cellulose, but only back to where I had

started before the lactose. Then I started having allergic symptoms to

my other Crohn's drug (sulfasalazine). At the same time I made a major

lactose error in yogurt making and ingested huge amounts of lactose

unknowingly for five weeks and suffered an enormous flare that the LDN

didn't stop. I had to go off of it then to go on Prednisone, which

ended up being useless, and Flagyl which turned me around. Then I had

one nice month on LDN only when things improved, but at the end of the

month, I added Humira, which is a major immunosuppressive, anti

inflammatory. The two together didn't work, and I am still recovering

from the flare, 8 weeks later. The Humira will be in my system for 2

more weeks, but I am finally getting better, but have a long way to go

to get back to where I was before the Humira. So I can't answer your

question until I'm on LDN and only LDN for a few months; then I'll

know!!!!

Debora