Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 I am sitting here fuming for you and reliving our 1st ped experience! These arrogant doctors enrage me. I wonder if they would be so ho-hum if it were their child. Does it hurt them to just give a parent a perscription they desire to help their child? I do not htink so. Just write the *%$#@ perscription! It makes me want to scream! Just because we didn't go to medical school does not mean that we do not know what our children. Thank goodness we found our "good ped"! I will pray the same for you. Good luck! Know that you do not rage alone! hammond32 <chrissy.hammond@...> wrote: Unfortunately I can't appeal the denial. The only way it will be approved is if it turns out has craniosynostosis and needs surgery. Can you believe that? And the radiologist today who examined said that plagiocephaly means nothing but "flat head" (duh) and doesn't cause any problems later on, and torticollis will "work itself out". The only potential problem would be if surgery was needed. Can you believe that? I sat there and fumed, wondering how any medical professional could be so uninformed. It only cemented my suspicion that Kaiser Permanente is NOT committed to the well-being of my child. It is open season now, so we are seriously considering changing our insurance. I'm just not sure how that might affect our coverage for 's band. My friend who has our same insurance was just given her first denial of coverage, so I'm certain we'll be denied as well. Then why should they grant our appeal if we're no longer covered by them come January?Chrissy & > > Hi all,> > Based on my own research and the help of this group, I am convinced > that my 8 mo. old has plagio and tort. However, I'm having much > difficulty getting my ped and my HMO to give me an rx for a helmet. > So far my ped has resisted making a diagnosis at all. He was very > helpful in making a referral to a pediatric neurosurgeon; however, > my HMO then denied that referral. They are allowing a CT scan to > rule out fusion of any of his sutures, which we're doing today (wish > me luck!) and tomorrow I have a consultation scheduled with CT to > get measurements and photos of my son. I plan to visit with my ped > again on Monday, armed with CT's recommendation, and bully him into > making the diagnosis. My question for all of you is: do you have > any recommendations for other useful information and/or tactics I > could bombard my ped with to convince him to finally give us the rx > so we can begin treatment? It has been 2 full months since I first > voiced my concerns to my ped, and all we've been able to accomplish > in that time is a denial of the referral to a specialist and a CT > scan, which I'm fairly confident will show nothing. I would fire my > ped, but I know from friends' experience that all the other peds in > my HMO are the same, and none have experience treating plagio (I > believe mostly because my HMO makes treatment all but impossible to > get so the doctors just don't bother).> > Your help is much appreciated! I'm feeling like the clock is > ticking and we're already behind schedule. I don't want to waste > any more time!> > Chrissy & (8 mo., tort & plagio)> > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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