Re: Digest Number 368

[Guest guest]

> From: Cntryhrt68@...

> Subject: SYMPTOMS/POST/DESCENT??

>

> Would some of you please be kind enough to post your very first symptoms

of

> PA and also how many of you have the PA with the P. It's just that I have

> been Dx'd with so many off the wall things that I am not even sure if this

is

> what I really have. Here are my basic beginnings:

>

Hi,

I have had P since as far back as I can remember. My mom says I had excema

as a kid, wonder now if this was P? I first had PA when I thought I'd

sprained my ankle, although couldn't remember doing anything. Went to have

x-rays, showed arthritis and within 3 months had gone evrywhere. That was 6

years ago, BUT. My mom and I both remember as a kid, me having alot of aches

and pains. Doctor always said it was growing pains. What a crock!! We wonder

now if it was JA?

[Guest guest]

I am firmly convinced that much respiratory distress is caused by mold.

Yesterday, pursuant to my work, I was in a condominium in Naples, Florida at

the request of a person who was having much trouble with sinus and

respiratory illnesses.

The only indication that something may be wrong which suggested the

possibility of mold was the presence of water stains on the ceiling and one

wall.

Within 15 minutes, my sinuses started to burn and felt like they were

swelling closed. At the end of our meeting, I had a serious headach, sinus

irritation and a stopped up nose.

I believe that I could not live in that condo for more than a few minutes.

Examination of his heating and air conditioning system revealed major design

and installation flaws which resulted in the attic becoming depressurized

whenever the heating/ air conditioning system was operating, which would have

the effect of causing serious increases in roof leaks. Additionally, such

hvac system operation would have pulled mold debris and spores from out of

the attic and interstitial wall space and blown them directly into the

breathing zone.

Additionally, I suspect that the hvac system is " mining " radon from the soil.

Next week, radon and mold screening tests will be completed.

I suspect that many asthma sufferers experience problems resulting from

mycotoxins being cultivated and distributed by faulty heating and air

conditioning systems.

This is often called a sick building condition.

However, I am absolutely floored by the immediate rejection of such a theory

by every single asthma sufferer that I have spoken to.

It is so easy to troubleshoot for mold presence using simple screening

processes.

It is well documented that molds and mold debris are very powerful toxics

(mycotoxins) and psychogenic compounds. (such as LSD)

It appears that sensitivities to molds and resulting illnesses increase over

time with continuing exposure.

It is well documented that molds do not do well if indoor humidity is

maintained between 40-55%, and if water leaks or condensation are not

permitted to keep mold food sources moist for more than 24 hours, maximum.

I wish that asthma sufferers would consider the possibility that their

suffering is based in molds growing in their homes, many of which molds

cannot even be seen.

Wayne Dean

Phoenix Radon Solutions, Inc.

[Guest guest]

Dear Pat,

The cost for checking out a mold condition by way of a quick screening is so

very reasonable.

1. I encourage you to acquire a thermohygrometer from Radio Shack for about

$20-25. Use it to monitor the relative humidity in the area of your home

that you spend the most time or where you may notice worsening of your

conditions. Keep a record of the readings over time on a three or four time

daily basis for several months.

I suggest that 40-55% relative humidity is a range that prevents most molds

from thriving, Above 40% will greatly reduce the release of mold spores by

dormant or nearly dormant mold.

I understand that relative humidity below 40% may result in showers of mold

spores that may cause sudden symptoms, especially in fall and very early

winter. (the possible cause of " sudden colds " )

2. Examine your home for any evidence of water leaks or wet spots. Paint

discoloration on ceilings or walls. Humidifier operation should be

terminated for reason of increases in relative humidity and splashing

adjacent to the device as well as bacterial cultures. Beneath sinks, on

outside walls high in corners and at and below window sills. Condensate

leaks in air conditioner systems. " Blooms " of mold in air conditioner

ductwork just downstream of the evaporation coils.

3. If you see any of this evidence be very suspicious and try to eliminate

the source of the moisture. But take personal protective measures if you

disturb any mold. In most cases, the leaks can be identified and fixed.

High humidity during cooling (A/C) periods may be more difficult to identify,

but are usually very easily fixable and at reasonable cost. This is not a

" black art " but it has received very attention that I know of except within

the community of building science experts.

We recently worked on a home in Florida in which a fellow had lived for about

20 years. He got married, and his wife moved in with him and shortly

thereafter she got all sorts of allergic and respiratory health problems.

After a time, her doctor suggested that she move out, she did and started to

have her health improve. Her husband was desperate to have her return. He

was unable to find a " mold expert " and called us since he thought he had a

radon problem too.

We have been developing a radon mitigation technique that would not increase

relative humidity in hot, humid climates, and as a result, we had made

substantial inquiry into mold problems. We were very interested .

His relative humidity in summer was about 67% with the A/C operating, and it

would not go lower. The original A/C had been replaced with an oversize unit

several years before, which was not a good idea. Shadows of mold returned

and remained on interior walls despite being cleaned regularly with bleach

solutions. Some small mushrooms had grown from fissures in the drywall. The

carpet had been removed, but the suggestion was that it never seemed to be

fully dry.

We performed blower door tests and found the home to be fairly tight. Duct

blaster tests showed the ducts to be fairly tight, however they were routed

through the attic where the circulating air was subjected to attic heat

through the duct walls. Dryer and bath exhausts were vented to outside.

The house needed downspouts to keep much water away from the foundation, and

the grade in the front yard caused water to flow toward the home. But there

was no indication of surface or groundwater getting into the home.

We performed a 16 channel data acquisition test for air pressure

differentials, humidity and temperature at various locations within the

interstitial wall space for a period of about three weeks. Temperature and

humidity in the interstitial wall spaces was not much different from that in

the home. Air pressure differentials were unremarkable.

The humidity just would not come down.

After lengthy discussions, the home owner said that he had modified the air

conditioner compressor cycle by the addition of a delay timer. In the rural

Florida area where the home was located, the power frequently failed, and

when it did so for a short period, the compressor would come back on

immediately and apparently try to start at lower than sufficient voltage,

fail to do so and then trip the circuit breaker. The homeowner had installed

a delay timer preventing the compressor from coming on for 6 minutes after

the thermostat called for cooling, but the air handler started immediately,

circulating uncooled air through the attic ductwork and through the

evaporator, drying it out and returning the moisture to the air. We disabled

the timer, causing the compressor to start immediately when the thermostat

called for cooling. The relative humidity came down substantially, into the

range of 42-49%. The husband did a very thorough cleaning and rehabilitation

of the home for several months. After about three months the wife moved back

in and she now states that she is feeling much better, and that she thinks

she can remain in the home. If you would like, I could give you her name and

phone number.

4. Acquire a screening test kit for molds from a laboratory which caters to

homeowners who seek help. If such screening tests show positive, further

investigation is warranted. I believe that there are some laboratories that

will do a good and valid screening test including an identification of

dangerous molds which may be present at costs of $100-250 mailorder. Of

course, this testing should not be considered a final determination of risk

to habitants but may well raise the red flag if certain species appear to be

present. I think you can check with the Tennessee Mold Lab, I believe that

they have a mold screening kit that may be a reasonable starting point for

homeowners who would like to make a good inquiry. jolly@...

5. Unless the cause of the mold is eliminated or corrected, the mold will

always return no matter what fungicides and cleaning methods are employed.

The easiest and most reasonable way to prevent the mold from returning is to

eliminate or to control the moisture that allows it to thrive.

I encourage you to make an inquiry of your own initially, and if the results

suggest mold, you can seek qualified technical help. Or you can move to a

new home.

There is substantial evidence that continued exposure yields increased

sensitivity and reaction. I think I have been sensitized while living in

homes that may have had mold. The last time was a real nightmare that

remained for about 4 years after I left the apartment that I think made me

sick. I was so sick that I did not care if I lived or died. I was just

barely able to function.

but I am fine now, about 9 years later.

I hope that you will choose to make inquiry in your home and to take action,

and I hope that you will tell me of your findings.

Wayne Dean

Phoenix Radon Solutions, Inc

Naples, FL

561 201-8155

[Guest guest]

I believe! But how do I get testing done? California regulatory agencies

have been absolutely no help at all! They have just been " an irritant "

(excuse the pun) to our employer, a local government agency. Our employer

has found several legal loopholes to get around clean up suggestions by

CalOSHA (the workplace safety regulatory agency in CA). Several of us have

now been diagnosed with asthma and allergies, where there was none prior to

working in this building. Many of us have been hospitalized and/or missed

several days of work related to our newly formed asthma/allergies. Our

employer has now made this a performance issue directly related to our work

capabilities. I for one have been hospitalized 5 times in about an 18 month

period with about 10 ER visits. I have been feeling better since April or

so...no severe asthma attacks, however I'm starting to feel very weak nearly

everyday and am wheezing and coughing nearly every day again. This is how

the whole " cycle " started; my concern has obviously heighten of late and I

don't know what to do!

>From: Radonwin@...

>Reply-onelist

>onelist

>Subject: Re: [] Digest Number 368

>Date: Sat, 1 Jan 2000 15:15:46 EST

>

>From: Radonwin@...

>

>I am firmly convinced that much respiratory distress is caused by mold.

>

>Yesterday, pursuant to my work, I was in a condominium in Naples, Florida

>at

>the request of a person who was having much trouble with sinus and

>respiratory illnesses.

>

>The only indication that something may be wrong which suggested the

>possibility of mold was the presence of water stains on the ceiling and one

>wall.

>

>Within 15 minutes, my sinuses started to burn and felt like they were

>swelling closed. At the end of our meeting, I had a serious headach, sinus

>irritation and a stopped up nose.

>

>I believe that I could not live in that condo for more than a few minutes.

>

>Examination of his heating and air conditioning system revealed major

>design

>and installation flaws which resulted in the attic becoming depressurized

>whenever the heating/ air conditioning system was operating, which would

>have

>the effect of causing serious increases in roof leaks. Additionally, such

>hvac system operation would have pulled mold debris and spores from out of

>the attic and interstitial wall space and blown them directly into the

>breathing zone.

>

>Additionally, I suspect that the hvac system is " mining " radon from the

>soil.

>

>Next week, radon and mold screening tests will be completed.

>

>I suspect that many asthma sufferers experience problems resulting from

>mycotoxins being cultivated and distributed by faulty heating and air

>conditioning systems.

>

>This is often called a sick building condition.

>

>However, I am absolutely floored by the immediate rejection of such a

>theory

>by every single asthma sufferer that I have spoken to.

>

>It is so easy to troubleshoot for mold presence using simple screening

>processes.

>

>It is well documented that molds and mold debris are very powerful toxics

>(mycotoxins) and psychogenic compounds. (such as LSD)

>

>It appears that sensitivities to molds and resulting illnesses increase

>over

>time with continuing exposure.

>

>It is well documented that molds do not do well if indoor humidity is

>maintained between 40-55%, and if water leaks or condensation are not

>permitted to keep mold food sources moist for more than 24 hours, maximum.

>

>I wish that asthma sufferers would consider the possibility that their

>suffering is based in molds growing in their homes, many of which molds

>cannot even be seen.

>

>Wayne Dean

>Phoenix Radon Solutions, Inc.

>

>

[Guest guest]

Hi, ...

I am so glad that I joined this group ... I am learning more and more each

day. , you brought something to mind. Over the past year or so, I have

been getting a little disoriented like you described ... kind of a dizzy

feeling, a little bit out of whack, if you will. It didn't occur to me that

it might be CMT related. Anyone else besides me and experiencing this?

Also, I have another question. I had all the usual problems with falling,

balance, etc., through the years, but no pain. The pain started in my feet

about four years ago on an intermittent basis. The pain would usually go away

after a good night's rest, but about a year ago they started to cramp and

hurt in earnest. I was diagnosed about two months ago after I couldn't stand

the pain anymore. Here is the question: How quickly have the rest of you

progressed? I mean, if you are in braces or using canes, how long did it

take to get there? I am 62 years young now, I have cramping and pain in the

feet all the time, starting to get drop foot, hands are starting to cramp on

an intermittent basis ... Can anyone tell me what to expect in the future

based upon your experience? Thanks in advance for your replies ...

[Guest guest]

Hi Gang

Well I have tried the pot and it works pretty good for me regarding the

pain but then again like Gretchen said if you have breathing problems

like I have its not so good.guess your damned if you do and damned if

you don't. Got a question....Do any of you get dizzy while sitting at a

railroad crossing and watching the train go by? I know its a wierd

question but I have to sit for a few seconds and get my eyes back in

focus either that or not watch the train......my head just wants to go

around in circles......hmmmmm could be something other than CMT too.

This also happens at the fair if I watch the rides or in a parking lot

watching cars go by I just get off center so to speak....anyone else?

[Guest guest]

& ,

Hmmmm I just started with the dizziness. Going to go to the doctor tomorrow

for check up on other things and was going to ask her about it. It has

happened to me intermittently. Just sitting at the computer or laying on the

couch. Never put it with the CMT and not thinking it is related.

....remember CMT varies from person to person but is a slow progression.

I am 53 and was diagnosed 25 years ago. I had had some symptoms all of my

life. I was put into one leg brace at that time. The other leg brace did not

come until 8 years ago. 25 years ago, the thumb muscles had deteriorated to

where my finger crossed over my thumb to help it compensate. My hands are

drawing up into the claw like stage but still performing. I feel very

strongly that surgeries sped up my progress. Confirmed by doctors. My sister

too has CMT but not as badly as I do. She does not wear braces of any kind.

So you see, it is slow progression and so individualized.

from Indiana

[Guest guest]

...

Thanks for the input ...

[Guest guest]

In a message dated 8/18/00 4:40:02 AM Pacific Daylight Time,

egroups writes:

<< Andy

I am on a ketogenic diet list for epilepsy and had a thought. Of course I

am talking about mercury as some times the cause for this mess. Was

wondering if bringing up ketones in the body chelates mercury or if the diet

seems to chelate mercury? (high fats)

KAthy >>

Kathy,

I've wondered the same thing, as has another of my online buddies. I'd love

to hear.

[Guest guest]

This article was in our newpaper this morning. The implications are huge for

us all. The ruling seems ridiculous to me. Another example of a district

harrassing parents for exercising their rights.

M.

Special-education case is seen as pivatol.

http://seattletimes.nwsource.com/cgi-bin/WebObjects/SeattleTimes.woa/wa/gotoAr

ticle?zsection_id=268448413 & text_only=0 & slug=speced08 & document_id=134272969

[Guest guest]

In a message dated 3/8/01 9:41:12 PM Central Standard Time, muracat@...

writes:

>

> http://seattletimes.nwsource.com/cgi-bin/WebObjects/SeattleTimes.woa/wa/gotoAr

>

> ticle?zsection_id=268448413 & text_only=0 & slug=speced08 & document_id=134272969

>

> Notice that in this story a parent says she never questioned the

> school, just accepted what was said about her child. Oh yes, there are

> still those parents out there.

[Guest guest]

' ' wrote:

====

-

- _

-

-

[Guest guest]

Welcome Tammy!

I hope you like it here! I'm Sherrie, 33 year old mom of 2 in SC. Sue gave

you some great tips on getting started. I use the foodmover and exercise

with , Sansone, & Kathy . Hubby and I may be joining the

Family Y in August. Take baby steps in the beginning, be patient, love

yourself, and remember that you're not alone in this.

K. --

Woohoo on still having the cookies! I love pecan sandies and kept them away

for fear I'd go nuts on them. WTG!

Tricia --

Hi! Mochas...YUM! Love them! Try making them with decaf, skim milk, & just

a touch of chocolate syrup (or mix cocoa powder in with the coffee grounds).

Don't be shy. :-)

Question -- has anyone here heard of or tried Walden Farms products? I see

the ads in WW magazine and would like input before I grab any of them.

Calorie and fat free sounds great, but only if they don't taste like glue.

Later ladies.

Sherrie

<A

HREF= " http://members.ebay.com/aboutme/sc_wahm/ " >http://members.ebay.com/aboutme/\

sc_wahm/</A>

<A

HREF= " http://members.ebay.com/aboutme/jillryangifts/ " >http://members.ebay.com/ab\

outme/jillryangifts/</A>

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HREF= " http://auctions.shopping./booth/jillryangifts " >http://auctions.sh\

opping./booth/jillryangifts</A>

http://www.bidbay.com/index.php?page=aboutme & user=964312859

==========

<A

HREF= " auctionspam " >a\

uctionspam</A>

[Guest guest]

In a message dated 05/08/2003 9:30:16 PM Eastern Daylight Time,

writes:

<< hat are the top 10 things you think people should know about cochear

implants in general >>

here's my top ten!

1. keep your expectations low and your hopes high

2. just about everyone gets SOME benefit from a cochlear implant

3. you can't just get hooked up and expect to hear right off the bat; it

takes practice

4. keep practicing even after you've hit a plateau; the big gains might

diminish, but

you'll still see small ones

5. stay off the york forum!

6. go to a reputable implant center

7. love your surgeon, but love your audiologist more

8. don't get discouraged if things are taking longer than you'd like or

expect;

everyone performs at a different pace....stay patient

9. you will definitely be more relaxed and calmer because you won't have to

work so

hard to hear and understand like you did when before your implant

10. now that you can hear so well, when you look back, you can't believe you

mangaged to get by in your hearing aid days! thank god for your miracle

and never take it for granted!

[Guest guest]

> From: Smokie1952 <smokie1952@...>

> Subject: Re: shooting pain down left leg with cramping in calf of left leg

>

> I had discectomy (L5-S1)in 2003. I am getting cramps

> and numbness down my right leg all the way to my foot.

> I was told it was siatic nerve damage and there is

> nothing that can be done. it may or may not go away .

I had a fusion, and had similar symptoms, But mine turned out to be the

disc above failing. They put me on topamax, HIGH doses. Boy has that

helped. I have much less pain and numbness and tingling. I swear by it.

Teri

[Guest guest]

> From: Smokie1952 <smokie1952@...>

> Subject: Re: shooting pain down left leg with cramping in calf of left leg

>

> I had discectomy (L5-S1)in 2003. I am getting cramps

> and numbness down my right leg all the way to my foot.

> I was told it was siatic nerve damage and there is

> nothing that can be done. it may or may not go away .

I had a fusion, and had similar symptoms, But mine turned out to be the

disc above failing. They put me on topamax, HIGH doses. Boy has that

helped. I have much less pain and numbness and tingling. I swear by it.

Teri

[Guest guest]

> From: Smokie1952 <smokie1952@...>

> Subject: Re: shooting pain down left leg with cramping in calf of left leg

>

> I had discectomy (L5-S1)in 2003. I am getting cramps

> and numbness down my right leg all the way to my foot.

> I was told it was siatic nerve damage and there is

> nothing that can be done. it may or may not go away .

I had a fusion, and had similar symptoms, But mine turned out to be the

disc above failing. They put me on topamax, HIGH doses. Boy has that

helped. I have much less pain and numbness and tingling. I swear by it.

Teri

[Guest guest]

!!!!!!!!!!! GONGRATS!!! Doing the dance for you hot momma!

[Guest guest]

Thanks !! How are you doing?? I am trying to catch up on posts today!

M.

3/1/05

280/198.5/160

http://www.tracyslapband.com

From: [mailto: ] On Behalf Of D. PifferrerSent: Saturday, September 17, 2005 4:34 PM Subject: RE: Digest Number 368

!!!!!!!!!!! GONGRATS!!! Doing the dance for you hot momma!

[Guest guest]

Hey fellow bandsters. I have not posted for a while. In fact I quit reading these for a while...too many other subjects being discussed that had nothing to do with bandsters. Don't get me wrong I love cats and have 7 of them myself, but this is not the place. Tracie, I think I am about a week behind you in this. I was banded June 30th and had my first fill August 17th. I too am having the hurting if I eat too much or too fast. I am now just getting to where I can eat a little something in the mornings. The later in the day the less restriction I have. By evening I can eat just about anything as long as it is very small bites, chewed very well and a small amount. I think I am eating 3/4 to 1 cup of food.

I, too, have been around the 30 lb mark, up and down about two pounds either way. Maybe I am not drinking enough fluids, cannot seem to get in enough exercise either. Started riding my stationary bike this morning, maybe that will help, you are doing awsome. Congratulations!!

I am going to Kentucky next week to visit my daughter and her family. Hopefully those grandsons will get me loosing again. Something has to get me loosing again:-)

Update on Rosemary: She is down 34 lbs and is 12 days post fill. Also having trouble eating at this time. But doing great.

Marie

250/230--2 1/2 months post banding

wrote:

[Guest guest]

Marie,

So good to hear from you, thanks for the post and the update, I am so glad I am not alone in what I have been experiencing. Except I am sorry others are going through it, but like I said before I guess I am just not following the rules correctly, ie eat to fast, to big of a bite etc... I will slow it down.. Thanks for the post, take care, and keep us updated.

Tracie B.

[Guest guest]

Glad you're back,...I have been reading and watching since the board open but didn't post much. Then I started having some of my own band issues and there was nowhere else to go. Noby knows much about this. My family dr just kinda shake his head and smiles at me...sends me on my merry when, without actually saying, lady I have no idea what you're talking about. So I came back and started to quickly realize that we are healing each other here...we have a common ground that only we, as the obese can relate. For that reason I want to say, Glad you're back, nice to meet you, and hello and thank you to all my fellow bandsters out there!!

Marie