Death

[Guest guest]

On Tue, 24 Aug 1999 15:21:57 EDT, DaniGran@... wrote:

>From: DaniGran@...

>

>Steve -

>

>I didn't know RA could cause death. Please explain...

>Thanks!

>

>le

le, RA is a systemic disease, it can affect internal organs as

well as joints. For instance, I believe it can cause swelling in the

lining around the heart, or other such things. I'm not sure if this is

true of PA, there seems to be less information available about it.

Annette just posted an excellent link about MTX reducing the mortality

rate of people with RA. I'll repeat it incase anyone missed it:

><A HREF= " http://pslgroup.com/dg/c0b6a.htm " >ACR MEETING: Common Arthritis

>Drug Cuts Premature Death Rate In Half</A>

Thanks Annette!

Steve

http://www.zoomnet.net/~steve

[Guest guest]

Just so there is no misunderstanding, there are over 100 types of arthritis,

one being systemic, it can effect the organs, some or all, every person is

different in the way they are effected by the form of arthritis that they are

infected by.

RA is not systemic in every case, only a % get systemic. I know many people

with RA, JRA, PA, and all other types of arthritis related diseases. RA

should not have the misunderstanding of a life threatening disease. Many of

my friends live very productive lives with the many diseases that arthritis

can show up as.

[Guest guest]

Hang in there. I know it's easier said than done. Yes, stress is definitely a factor in everything. It's that wicked circle where stress causes us to suffer with the disease more and suffering with the disease causes stress.

My former girlfriend suffered from late stage cirrhosis (alcoholic) and made several trips to the hospital. Sometimes the liver stopped filtering out toxins to the point she had to go in and they did their magic with iv's etc. trying to get levels back to normal. She and I both quit drinking, she needed a liver transplant and they would not consider her until she was sober for one year. Before her year was up she had improved to the point her doctor was reconsidering whether she needed a transplant. Unfortunatly she went back to drinking and made a sad end to that story. The positive point I wanted to make is that the resiliency (sp?) of the liver/body is remarkable. -dz-john flowers <heenry49_99@...> wrote:

My daughter is bcak in the hospital. The doctors arenot telling use anything. Her brother my son pastedaway christmas day. She is having a hard time dealingwith this. I am afaird that the stress has caused hermore problems.--- Terry Long <pawpawto3@...> wrote:

[Guest guest]

> She is 33. We was told today that her galbadder is

> bad.

*****************************

Hi ,

I've been reading some of the posts regarding this, I can't seem to

find your original post, but that's not really of any consequene. I

can't imagine how difficult this is for you. Sympathy doesn't seem to

be adequate at a time like this, but you most certainly have mine.

It's people like you who remind me of how lucky I am to have hep c

and not my son. I'm sure you have inspired many of this group to

count our blessings, for that I am truely grateful.

I hope the gall bladder operation goes well, I'm sure it will. As a

matter of fact I would like to share my story of my galbladder

removal with you. I hope this will cheer you up, if even momentarily.

Let yourself smile for a few minutes it will do both your daughter

and yourself good, I promise. And, feel free to share this with

her. 'Cause, sweetie, if I made it through that operation, anyone can!

So here goes - I swear this is all absolutely true - I was told I

needed my galbladder removed, at about the same age as your girl. I

couldn't go on with the pain so I knew it was totally necessary for

me.

The Dr my family Doc recommended was out, so I agreed to use the

surgen that was covering for him, Dr Duckles. Back then no one wanted

to do anything on Hep patients, it was hard to find any medical staff

that was comfortable around me. I felt I didn't have much choice.

I called him, didn't need to see him, since all was predetermined.

So we just picked a date & time. Well, I thought it was odd that the

Dr gave me his home phone#, and told me to call him the night before

the op. He said he wanted to double check on how I felt....hmmm okay,

I bought it. I was actually impressed he gave out his home phone.

So I call him the night before, and I swore he sounded drunk! But

there was a lot of family member type noise in the background and

figured it might just be my hearing. We did the 2 min. usual how are

you thing,etc. And that was that. My rat hubby said I was nuts to

think the guy was drunk after telling me to call him at home, so I

kind of shrugged it off as my fear of the next day.

Next morning I go to hosp and see the anesthesiologist (yep, I

looked that up to spell it), and we did the usual how are you thing,

they used an opium based anesthetic due to the high enzyme count, bla

bla bla. But no Dr showed up to say " Hi " .

I go to op room, annoying IV and all, still no sign of the Dr.

Well, I'm thinking he's so busy, this is going to be so routine, no

problem.

I wake up in recovery room. Groggy, crabby, sore, etc. Still no

damn Dr. Anesthesiologist showed since the use of drug was so

uncommon then, fake heroin of sorts.

Go back to my room, and then 2 hours later the guy looks in my

doorway says " How's it going? " . I say " fine " . And he's gone. And

that's it. Now I'm a little insulted. That was all I got, no report

of how the surgery went? Nothing? He didn't even step into the room.

I wait a day, then called his office to set up check up for one

week later and there's busy signal, call back all day and busy, all

day! This went on for two days. You see they never told when I could

take off the surgical bandage, and I'm itching like a dog with fleas.

Plua I'm 'playing' with bandaging constantly. Just like we tell our

kids to never do

Now, I swear I'm not just itching but I think my midsection is

growing outwards. My husband at that time tells me I'm crazy, and I

believe him, the rat, I should have known not to listen to him.

I called hospital on fourth day after surgery, since I was still

getting busy signal from Dr office, and ask them how I can reach this

Duckles guy. And, they treat me very suspiciously, like I'm doing

something wrong. Then I tell them I was just there, etc, etc. Then I

get call transfered to the dreaded ADMINISTRATION. By now I'm

thinking oh geez my insurance is going to be a problem. They tell me

that I am welcome to come back in for check up there, at my

convenience. They were really super duper nice and wanted to know how

I was feeling, how was treated by their staff, yeah yeah yeah.....

Now I knew something was wrong. I tell them fine, fine, fine. Then

it struck me OMG he was no Dr. at all. And that's just what I

screamed onto the phone, along with expletives and other desciptive

things, threats, I'm hysterical at this point. Wrong, he was a real

DR, problem was he disappeared. Walked out of hosp and just vanished.

I was embarassed to say the least. They must of wondered for years

where exactly I had picked up those words and phrases.

I go immediately to family DR for check up, etc. And low and

behold, I had no stiches. The guy taped me shut! No wonder I was

itching like crazy. Plus I was protruding! Couldn't wait to tell rat

hubby that, it almost cheered me up.

Then my doc makes a few phone calls, comes back and tells me he

will call me as soon as he hears. So another two days do by, before

he calls. Seems right after my opration the surgen left Milwaukee.

Had a change of heart about the whole world of medicine! Left the

hosp took his most valued possesions, we can only guess what they

were, and went to live in the wilds of northen MI. Became a

survivalist. He contacted his wife, told her everything was hers,

including all their money, everything! She was so shocked she took a

few days to contact the hosp. And, he had never said a word to anyone

before hand. The whole Hosp staff was completely dumbstruck. My

family Doc was on the staff there, so I got the inside dish. He was

an excellent surgen, no problems with co-workers, no complaints,

nadda. The only thing he did different that day was to clean out his

locker completely, which no one knew at the time.

I guess my insides must have scared him right out of the field LOL.

What happened that he made such a drastic decision right after

operating on me? Forget the itching now it's real paranoia setting

in. Talk about creating your own nightmares, I came up with all sorts

of scenarios.

After awhile I started to relax about the whole thing. Really I

think the guy just lost it, went crazy, and just happened to coincide

with my surgery. My luck, ->seriously, that's so typical for me. I

will always get the mad med staffer.

Anyway, other than the huge nasty scar and a protrusion from not

being stitched properly, I was really great. No infections,

complications, nothing at all but relief. But I have to say I was

pretty nervous about what the deal was with that Dr. I even insisted

on x-rays to make sure he did't leave any momentos in me. So if I

could survive being operated on by a nutcase, who obviously had his

mind elsewhere, she will fine. Just be sure she tells them she wants

to be stitched shut and no one named Duckles should be present. <G>

whew, long story. But I thought you might find it amusing. The worst

part of the whole experience was my own imagination. Keep that in

mind.

Best Wishes and Blessings,

Kay

[Guest guest]

That is a very interesting story Kay! Thanks d for sharing.

When I had my gall bladder out it hurt when I woke up in the recovery room for a minute and at night I was eating chips, home the next day Wed and back to work on Monday. Things sure have changed. a few marks on my body.

Norma

-- [ ] Re: Death

> She is 33. We was told today that her galbadder is> bad.***************************** Hi ,I've been reading some of the posts regarding this, I can't seem to find your original post, but that's not really of any consequene. I can't imagine how difficult this is for you. Sympathy doesn't seem to be adequate at a time like this, but you most certainly have mine.It's people like you who remind me of how lucky I am to have hep c and not my son. I'm sure you have inspired many of this group to count our blessings, for that I am truely grateful. I hope the gall bladder operation goes well, I'm sure it will. As a matter of fact I would like to share my story of my galbladder removal with you. I hope this will cheer you up, if even momentarily. Let yourself smile for a few minutes it will do both your daughter and yourself good, I promise. And, feel free to share this with her. 'Cause, sweetie, if I made it through that operation, anyone can! So here goes - I swear this is all absolutely true - I was told I needed my galbladder removed, at about the same age as your girl. I couldn't go on with the pain so I knew it was totally necessary for me. The Dr my family Doc recommended was out, so I agreed to use the surgen that was covering for him, Dr Duckles. Back then no one wanted to do anything on Hep patients, it was hard to find any medical staff that was comfortable around me. I felt I didn't have much choice. I called him, didn't need to see him, since all was predetermined. So we just picked a date & time. Well, I thought it was odd that the Dr gave me his home phone#, and told me to call him the night before the op. He said he wanted to double check on how I felt....hmmm okay, I bought it. I was actually impressed he gave out his home phone. So I call him the night before, and I swore he sounded drunk! But there was a lot of family member type noise in the background and figured it might just be my hearing. We did the 2 min. usual how are you thing,etc. And that was that. My rat hubby said I was nuts to think the guy was drunk after telling me to call him at home, so I kind of shrugged it off as my fear of the next day. Next morning I go to hosp and see the anesthesiologist (yep, I looked that up to spell it), and we did the usual how are you thing, they used an opium based anesthetic due to the high enzyme count, bla bla bla. But no Dr showed up to say "Hi". I go to op room, annoying IV and all, still no sign of the Dr. Well, I'm thinking he's so busy, this is going to be so routine, no problem. I wake up in recovery room. Groggy, crabby, sore, etc. Still no damn Dr. Anesthesiologist showed since the use of drug was so uncommon then, fake heroin of sorts. Go back to my room, and then 2 hours later the guy looks in my doorway says "How's it going?". I say "fine". And he's gone. And that's it. Now I'm a little insulted. That was all I got, no report of how the surgery went? Nothing? He didn't even step into the room. I wait a day, then called his office to set up check up for one week later and there's busy signal, call back all day and busy, all day! This went on for two days. You see they never told when I could take off the surgical bandage, and I'm itching like a dog with fleas. Plua I'm 'playing' with bandaging constantly. Just like we tell our kids to never do Now, I swear I'm not just itching but I think my midsection is growing outwards. My husband at that time tells me I'm crazy, and I believe him, the rat, I should have known not to listen to him. I called hospital on fourth day after surgery, since I was still getting busy signal from Dr office, and ask them how I can reach this Duckles guy. And, they treat me very suspiciously, like I'm doing something wrong. Then I tell them I was just there, etc, etc. Then I get call transfered to the dreaded ADMINISTRATION. By now I'm thinking oh geez my insurance is going to be a problem. They tell me that I am welcome to come back in for check up there, at my convenience. They were really super duper nice and wanted to know how I was feeling, how was treated by their staff, yeah yeah yeah.....Now I knew something was wrong. I tell them fine, fine, fine. Then it struck me OMG he was no Dr. at all. And that's just what I screamed onto the phone, along with expletives and other desciptive things, threats, I'm hysterical at this point. Wrong, he was a real DR, problem was he disappeared. Walked out of hosp and just vanished. I was embarassed to say the least. They must of wondered for years where exactly I had picked up those words and phrases. I go immediately to family DR for check up, etc. And low and behold, I had no stiches. The guy taped me shut! No wonder I was itching like crazy. Plus I was protruding! Couldn't wait to tell rat hubby that, it almost cheered me up. Then my doc makes a few phone calls, comes back and tells me he will call me as soon as he hears. So another two days do by, before he calls. Seems right after my opration the surgen left Milwaukee. Had a change of heart about the whole world of medicine! Left the hosp took his most valued possesions, we can only guess what they were, and went to live in the wilds of northen MI. Became a survivalist. He contacted his wife, told her everything was hers, including all their money, everything! She was so shocked she took a few days to contact the hosp. And, he had never said a word to anyone before hand. The whole Hosp staff was completely dumbstruck. My family Doc was on the staff there, so I got the inside dish. He was an excellent surgen, no problems with co-workers, no complaints, nadda. The only thing he did different that day was to clean out his locker completely, which no one knew at the time. I guess my insides must have scared him right out of the field LOL. What happened that he made such a drastic decision right after operating on me? Forget the itching now it's real paranoia setting in. Talk about creating your own nightmares, I came up with all sorts of scenarios. After awhile I started to relax about the whole thing. Really I think the guy just lost it, went crazy, and just happened to coincide with my surgery. My luck, ->seriously, that's so typical for me. I will always get the mad med staffer. Anyway, other than the huge nasty scar and a protrusion from not being stitched properly, I was really great. No infections, complications, nothing at all but relief. But I have to say I was pretty nervous about what the deal was with that Dr. I even insisted on x-rays to make sure he did't leave any momentos in me. So if I could survive being operated on by a nutcase, who obviously had his mind elsewhere, she will fine. Just be sure she tells them she wants to be stitched shut and no one named Duckles should be present. <G>whew, long story. But I thought you might find it amusing. The worst part of the whole experience was my own imagination. Keep that in mind.Best Wishes and Blessings,Kay

[Guest guest]

I don't know how to start this. Most of you know I have an aspie, age

11. My oldest son was killed in an accident over the weekend. His

funeral is today. He was Jake's hero, his best friend, and his

comfort. Jake has been doing surprisingly well since this happened. He

has been able to cry alot, which I was worried about him being able to

express his grief. My problem now is, do I bring him to the funeral.

He thinks he wants to go and say goodbye, but is a little unsure. I am

a wreck myself and will not be able to provide much support for him

during the services, but my brother will be with him. Have any of you

had any kind of experience with this at all? Read anything about

aspies dealing with death? I need some input asap, this was my first

chance to log on. Thank you for any advice you may have.

Theresa

[Guest guest]

Thank You. It's so hard. I'm a Baptist . My faith has kept me sane. When i was

younger I never thought twice about what the outcome might be from all the harm

I was doing to myself or future generations. But i gave up the wild life. My

husband didn't. You play with fire you get burned. Thank You for your message.

connie

Sara Funk <sabbastunangel@...> wrote:

cferris1960 <cferris1960@...> wrote: My husband took his life 2 weeks ago.

He found he had given me, a mom

and grandmother Hcv. I've already started treatment. He said in his

suicide notes to his two children and myself that he couldn't go

through the torture he has seen me and his brother go through. Shots

5x's a week and devastating fatigue. I get tired of hearing how their

are cures. In reality there aren't. More research needs to be done. My

daughter has seen alot of children with Hcv in the hospital she works

at. It'snot going away. Maybe now he's at peace with himself.

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I have Hepatitis C type 6 and I know how hard it must have been for you and your

family to lose a loved one, but have faith that they will have a cure for you

and the family. Faith has a lot to do with rather or not you will recover.,___

---------------------------------

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[Guest guest]

> >

> > My husband took his life 2 weeks ago. He found he had given

me, a

> mom

> > and grandmother Hcv. I've already started treatment. He said in

his

> > suicide notes to his two children and myself that he couldn't go

> > through the torture he has seen me and his brother go through.

Shots

> > 5x's a week and devastating fatigue. I get tired of hearing how

their

> > are cures. In reality there aren't. More research needs to be

done.

> My

> > daughter has seen alot of children with Hcv in the hospital she

works

> > at. It'snot going away. Maybe now he's at peace with himself.

> >

> I am so sorry to hear of your loss, my heart goes out to you. God

> bless..pat

>DEAR PAT, I AM SO SORRY FOR YOUR LOSE, PLEASE HANG IN THERE !!!! I

JUST PUT MY FIRST LOVE IN THE GROUND. 1 YEAR AGO YESTERDAY. I JUST

FINISHED MY TREATMENTS 1 MONTH AGO!!!!!! IT IS A NIGHTMARE FROM

HELL !!!!! YOUR IN MY THOUGHT " S SHAMMIE !!!!!!

[Guest guest]

Dear Connie,

So many of us who have Hep C did nothing overt to get it. In my

case, I had a transfusion in 1969. Many people have no idea where

it came from.

One way of dealing with tragedy which I learned from a Buddhist nun

is to say to onself " This is happening to others. I am not alone. "

It helps us to have compassion for ourselves and to see it in

context.

With love and light,

Beck

My husband took his life 2

weeks ago. He found he had given me, a mom

> and grandmother Hcv. I've already started treatment. He said in

his

> suicide notes to his two children and myself that he couldn't go

> through the torture he has seen me and his brother go through.

Shots

> 5x's a week and devastating fatigue. I get tired of hearing how

their

> are cures. In reality there aren't. More research needs to be

done. My

> daughter has seen alot of children with Hcv in the hospital she

works

> at. It'snot going away. Maybe now he's at peace with himself.

>

> Messages in this topic (1) Reply (via web post) | Start a new

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>

>

> Change settings via the Web ( ID required)

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> Recent Activity

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> 14

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> Visit Your Group

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> Get it Free!

> easy 1-click access

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>

> Start a group

> in 3 easy steps.

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>

> .

>

> I have Hepatitis C type 6 and I know how hard it must have been

for you and your family to lose a loved one, but have faith that

they will have a cure for you and the family. Faith has a lot to do

with rather or not you will recover.,___

>

> ---------------------------------

> Sponsored Link

>

> Mortgage rates near 39yr lows. $310,000 Mortgage for $999/mo -

Calculate new house payment

>

>

[Guest guest]

Oh my gosh, Connie. I can feel your pain and pray that it will ease.

Whenever I'm hit with a personal crisis, I remind myself that it's all for a

reason..God has a purpose. As a simple human, I do not question His purpose

just believe in Him.

I will keep you and your family in my prayers.

_____

From: Hepatitis C

[mailto:Hepatitis C ] On Behalf Of connie ferris

Sent: Friday, November 17, 2006 2:11 PM

Hepatitis C

Subject: Re: Death

Thank You. It's so hard. I'm a Baptist . My faith has kept me sane. When i

was younger I never thought twice about what the outcome might be from all

the harm I was doing to myself or future generations. But i gave up the wild

life. My husband didn't. You play with fire you get burned. Thank You for

your message. connie

Sara Funk <sabbastunangel@ <mailto:sabbastunangel%40> >

wrote:

cferris1960 <cferris1960@ <mailto:cferris1960%40> > wrote:

My husband took his life 2 weeks ago. He found he had given me, a mom

and grandmother Hcv. I've already started treatment. He said in his

suicide notes to his two children and myself that he couldn't go

through the torture he has seen me and his brother go through. Shots

5x's a week and devastating fatigue. I get tired of hearing how their

are cures. In reality there aren't. More research needs to be done. My

daughter has seen alot of children with Hcv in the hospital she works

at. It'snot going away. Maybe now he's at peace with himself.

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easy 1-click access

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Connect with others.

..

I have Hepatitis C type 6 and I know how hard it must have been for you and

your family to lose a loved one, but have faith that they will have a cure

for you and the family. Faith has a lot to do with rather or not you will

recover.,___

---------------------------------

Sponsored Link

Mortgage rates near 39yr lows. $310,000 Mortgage for $999/mo - Calculate new

house payment

[Guest guest]

>

> My husband took his life 2 weeks ago. He found he had given me, a

mom

> and grandmother Hcv. I've already started treatment. He said in his

> suicide notes to his two children and myself that he couldn't go

> through the torture he has seen me and his brother go through. Shots

> 5x's a week and devastating fatigue. I get tired of hearing how

their

> are cures. In reality there aren't. More research needs to be done.

My

> daughter has seen alot of children with Hcv in the hospital she

works

> at. It'snot going away. Maybe now he's at peace with himself.

>

I am so sorry for you'r loss. my husband gave my hcv to!! but i am

cured for 3yrs and going on strong and healthy!!!and i have fealt

every thing from anger to depression, fatigue,confussed...and sick

from the begining to the end of treatment!! it helped me to have god

in my life!! i would talk to him every day and it would give me

strenght to take each treatment.. and my support group where i live

helped a hole lot too.... I will keep you in my prays