Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 Does anyone have any experience with hyperlexia? My son was diagnosed in March with PDD-NOS, " borderline Asperger's " (they wouldn't diagnose him with AS because he is " too young " - he just turned 5 on Sunday). Anyway, he just had his second visit with a psychologist and she suggested that I do some reading on hyperlexia, as he seems to be exhibiting some symptoms (echolalia in particular). And it seems as if a lot of the hyperlexia symptoms are similar to AS symptoms, mayb of which he does have, of course. After doing some surfing last night to research it a little, I don't think is hyperlexic in spite of having some of the symptoms but wanted to ask if there's anyone out there whose child is hyperlexic who could give me a little more info. It seems from what I am reading that the biggest indicator is the ability to read at a very young age, way ahead of their peers. is starting to read now, but he is nowhere near being a good reader or anything. If anyone has any comments/experience they can share, I'd appreciate it. Thanks! Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 >Hi I have a son who is ten and he was dx as hyperlexia/asperger syndrome. I have never found anyone who even knows what it is little less someone with a son with it. started reading the bible at two and has been reading every since. I was glad to finally run across someone else who has a child with this. Mom of 12 with AS Mom of 10 with AS/Hyperlexia Wife of husband with AS > > Our son was never officially dx'ed ...but we all know he is Hyperlexic .. > he > started reading at the age of 3 .. and by 4 was reading without any > instruction > or tutoring . He is now 17 - he has pragmatic issues but overall has become > a delightful young man . > > We believe his issues stem from a adverse reaction to a vaccine reaction > ..he > was part of the hot lot DPT in 1989 . He spent a week in the hospital at the > age > of 3mos and then the next 18mos on a apnea machine at home . He would simply > stop breathing in his sleep - with no other symptoms. > > Terri > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 ----- Original Message ----- From: laura bruening ===>Hyperlexia is early reading without comprehension, so not thinking so. Comprehension problems at any age is not uncommon, but would not be hyperlexia. is it possible to have hyperlexia and not have learned to read at an early age? laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 > > is it possible to have hyperlexia and not have learned to read at an early age? Based on my experience with my son, yes. He could read books at a time when his language was very minimal. He had little comprehension, but he could read. He was also fascinated with letters and numbers. However, he was much older than the age when a child would receive a dx of hyperlexia. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 --- Dana, This really has my mind very boggled. my so who is a HFA has difficulty when givin oral instructions at home and at school. Most everythig has to have a visual in order for him to undertand. He was a late diagnosis (last year and he is 7). He is a very strong reader, can write. He is an amazing speller....but his comprrehension is low. He takes books on a reg. occasion and writes them into whatever notebook he can get his hands on. He does this word for word, and on a very rare occasion draws the pictures to match. He will also write them in to my computer ( this part happens everyday. I think that he does it in order to understand the book. I have just recently tried writing directions on a index card to help and he has so many visual aids at school and at home. When I read this message on hyperlexia, it made bells go off in my head. The only thing is that he did not start to read until kindergarden, but early on had to sort things by color, shape ex.. Dana, what do you think? laura In , " danasview " <danasview@...> wrote: > > > > > > is it possible to have hyperlexia and not have learned to read at an > early age? > > > Based on my experience with my son, yes. He could read books at a > time when his language was very minimal. He had little comprehension, > but he could read. He was also fascinated with letters and numbers. > However, he was much older than the age when a child would receive a > dx of hyperlexia. > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 ----- Original Message ----- From: brueninglaura This really has my mind very boggled. my so who is a HFA has difficulty when givin oral instructions at home and at school. Most everythig has to have a visual in order for him to undertand. ===>This is not uncommon for HFA, it is an auditory processing issue. Hyperlexia, by it's definition involves early reading. One place I read did say it could be early reading and/or fascination with numbers or words, by which your son would qualify. But the main issue is that his auditory processing is struggling. Try " The Listening Program " . Ours was very much like this, although she read at 2 with comprehension, so not hyperlexic, but her auditory processing was very compromised. Chelation cured this, we never used the program, but I've heard it was very helpful. He was a late diagnosis (last year and he is 7). He is a very strong reader, can write. He is an amazing speller....but his comprrehension is low. He takes books on a reg. occasion and writes them into whatever notebook he can get his hands on. He does this word for word, and on a very rare occasion draws the pictures to match. He will also write them in to my computer ( this part happens everyday. I think that he does it in order to understand the book. I have just recently tried writing directions on a index card to help and he has so many visual aids at school and at home. When I read this message on hyperlexia, it made bells go off in my head. The only thing is that he did not start to read until kindergarden, but early on had to sort things by color, shape ex.. Dana, what do you think? laura In , " danasview " <danasview@...> wrote: > > > > > > is it possible to have hyperlexia and not have learned to read at an > early age? > > > Based on my experience with my son, yes. He could read books at a > time when his language was very minimal. He had little comprehension, > but he could read. He was also fascinated with letters and numbers. > However, he was much older than the age when a child would receive a > dx of hyperlexia. > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 I've been following this thread with interest. In 1989 my son was informally diagnosed with hyperlexia by a teacher. He had started recognizing letters and numbers at about 18 mos. Read his first word possibly before this (he read the label off a pack of gum in the store at 12 mos. We thought perhaps he just recognized the brand from the commercial) and was reading fluently by age 3, but couldn't answer the question " What's your name? "  My son wasn't formally diagnosed as being on the spectrum until he was 12. I had no clue hyperlexia had a social/autism component until I began doing research for my other autistic son, about a year ago. This son is now 4 and also shows signs of hyperlexia.  What made me take notice, in this thread, was the poster saying that hyperlexia is an auditory processing disorder. I've noticed APD symptoms in both of my sons.  So, what is the recommended protocol to help the APD problem. Also, if you know, does the APD cause the hyperlexia (this doesn't make sense to me)? Or is APD just a co-morbid thing with hyperlexia?  Kim > > > > > > is it possible to have hyperlexia and not have learned to read at an > early age? > > > Based on my experience with my son, yes. He could read books at a > time when his language was very minimal. He had little comprehension, > but he could read. He was also fascinated with letters and numbers. > However, he was much older than the age when a child would receive a > dx of hyperlexia. > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Interesting thread. my son is six now. He was able to identify letters and was fascinated with them around 12 months. Could say them all by 20 months. Didn't speak words, but sure could point out those letters, numbers EVERYWHERE. At this time, he could also recognize more shapes than an average high schooler. parallelogram, trapezoid, octogon... He counted backwards from 100 when he was 3 after only hearing it done once. Actually, I don't even think I finished...he took over partway through. Also at 3, he rearranged the alphabet magnets in keyboard order. At first, I freaked out thinking he was forgetting the alphabet. My husband recognized the pattern. He could identify many words by the time he was 3 and was reading by the time he started Kindergarten. However, has to have the meaning of every single word defined. things you'd think a kid would just pick up on from his environment. Recently, his teachers reported that didn't seem to be able to read silently. they made it a goal for him by Oct. 2009. That day, I asked him what " silent " meant. He said it means " doing nothing " . That's what he interpreted from watching his peers read silently. we taught him and he was able to do it by the next day. His teacher was most impressed. So, is this related to heavy metals??? What about auditory hypersensitivity? We've done The Listening Program once, but still have the CDs... maybe we should revisit it. Kari -- In , Kim <delicateflower_kk@...> wrote: > > I've been following this thread with interest. In 1989 my son was informally diagnosed with hyperlexia by a teacher. He had started recognizing letters and numbers at about 18 mos. Read his first word possibly before this (he read the label off a pack of gum in the store at 12 mos. We thought perhaps he just recognized the brand from the commercial) and was reading fluently by age 3, but couldn't answer the question " What's your name? " >  > My son wasn't formally diagnosed as being on the spectrum until he was 12. I had no clue hyperlexia had a social/autism component until I began doing research for my other autistic son, about a year ago. This son is now 4 and also shows signs of hyperlexia. >  > What made me take notice, in this thread, was the poster saying that hyperlexia is an auditory processing disorder. I've noticed APD symptoms in both of my sons. >  > So, what is the recommended protocol to help the APD problem. Also, if you know, does the APD cause the hyperlexia (this doesn't make sense to me)? Or is APD just a co-morbid thing with hyperlexia? >  > Kim > > > > > > > > > > > > is it possible to have hyperlexia and not have learned to read at an > > early age? > > > > > > Based on my experience with my son, yes. He could read books at a > > time when his language was very minimal. He had little comprehension, > > but he could read. He was also fascinated with letters and numbers. > > However, he was much older than the age when a child would receive a > > dx of hyperlexia. > > > > Dana > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 -- In , Kim <delicateflower_kk@...> wrote: > > > What made me take notice, in this thread, was the poster saying that hyperlexia is an auditory processing disorder. I've noticed APD symptoms in both of my sons. > > So, what is the recommended protocol to help the APD problem. ===>Our ultimate cure for the APD was chelation, Cutler protocol. For temporary help, The Listening Program is often recommended. Also, if you know, does the APD cause the hyperlexia (this doesn't make sense to me)? ===No or yes, maybe indirectly. Or is APD just a co-morbid thing with hyperlexia? ===>I think the hyperlexia develops because of the APD, is an alternate way to communicate or make sense of things when you are having trouble making sense of what you hear or what people are saying. It could also be that our kids are highly visually gifted. > > Kim > > > > > > > > > > > > is it possible to have hyperlexia and not have learned to read at an > > early age? > > > > > > Based on my experience with my son, yes. He could read books at a > > time when his language was very minimal. He had little comprehension, > > but he could read. He was also fascinated with letters and numbers. > > However, he was much older than the age when a child would receive a > > dx of hyperlexia. > > > > Dana > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 ----- Original Message ----- From: karicreehan . He said it means " doing nothing " . That's what he interpreted from watching his peers read silently. we taught him and he was able to do it by the next day. His teacher was most impressed. So, is this related to heavy metals??? ===>Yes. The APD disappeared with chelation but she is still a great reader. In second grade and reads at high school level, with excellent comprehension. What about auditory hypersensitivity? ===>I would say yes, but we also noticed this would appear and disappear with yeast. We've done The Listening Program once, but still have the CDs... maybe we should revisit it. ===>Yes, that would be helpful and consider chelation, low/frequent Cutler protocol, for a permanent solution. Kari -- In , Kim <delicateflower_kk@...> wrote: > > I've been following this thread with interest. In 1989 my son was informally diagnosed with hyperlexia by a teacher. He had started recognizing letters and numbers at about 18 mos. Read his first word possibly before this (he read the label off a pack of gum in the store at 12 mos. We thought perhaps he just recognized the brand from the commercial) and was reading fluently by age 3, but couldn't answer the question " What's your name? " > > My son wasn't formally diagnosed as being on the spectrum until he was 12. I had no clue hyperlexia had a social/autism component until I began doing research for my other autistic son, about a year ago. This son is now 4 and also shows signs of hyperlexia. > > What made me take notice, in this thread, was the poster saying that hyperlexia is an auditory processing disorder. I've noticed APD symptoms in both of my sons. > > So, what is the recommended protocol to help the APD problem. Also, if you know, does the APD cause the hyperlexia (this doesn't make sense to me)? Or is APD just a co-morbid thing with hyperlexia? > > Kim > > > > > > > > > > > > is it possible to have hyperlexia and not have learned to read at an > > early age? > > > > > > Based on my experience with my son, yes. He could read books at a > > time when his language was very minimal. He had little comprehension, > > but he could read. He was also fascinated with letters and numbers. > > However, he was much older than the age when a child would receive a > > dx of hyperlexia. > > > > Dana > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 I feel strongly my guy has/had hyperlexia. But " professionals " won't diagnose that because he wasn't reading chapter books at age 5. But he memorized his world and learned things I never taught him. He could read on TV like PBS Kids, HGTV, TLC, loved master card/visa, store names, any symbols and books more the better. We couldn't walk through a parking lot without discussing truck, car, ford, Chevy, color, this is like age 2. And I could not carry a conversation on with this guy. You could not tell him to get his shoes. Was amazing. He was 2.9 getting evaluated. If you asked him for a red M & M, no problem. Green, no problem. A red and green M & M, he was struck. One command only. Yes, audio processing disorder, poor fine/gross motor skills. Was amazing in reading, remembering, loves people, social, neat little guy. But it he didn't get it. I remember so frustrated, telling him to pick up his toys. I was yelling, showing him, I couldn't not get in that thick head, bad mommy moment. He was almost 4. My nt 10 month old son got it and he was picking up toys as my 4 year old looked at me with a blank look. Sooooooo frustrating! In early childhood, he was 3 1/2, he new everyone's name in writing. By 2 1/2 he had number, letter, colors, shapes down and reading a ton of words. My kindergartner is doing that. My guy is 9 today. Doesn't fit any one mold. Was medically evaluated by large teams twice and we got their diagnoses of PPD-NOS. He honestly looks Asbergers with personality with ADD tendencies. Anyway.....whatever. Amazing. Don't get hung up on the diagnoses. I've heard some parents say not autistic PPD with no language. I don't take much stock in any title but enjoy his gifts and hope some day he'll find his nitch in the world and enjoy a career. Tammy [ ] Hyperlexia? is it possible to have hyperlexia and not have learned to read at an early age? laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Hyperlexia really just means your kid is smarter than the teacher or doctor diagnosing it. This isn't surprising, since the most readily identifiable genetic risk factor for autism and mercury poisoning is high intelligence. Basically the government sponsored medical religion is conducting a genocide against smart people and then creating a diagnosis for the ones they don't make stupid enough through brain damage. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Thanks, . I am definitely considering Chelation. Just joined this group a few weeks ago and am really starting to think that they heavy metals are the root cause of all of our problems. Every time I think I have a lead...glutamate, testosterone, etc. it always leads back to the heavy metals. Thanks, Kari > > > > > > > > is it possible to have hyperlexia and not have learned to read at an > > > early age? > > > > > > > > > Based on my experience with my son, yes. He could read books at a > > > time when his language was very minimal. He had little comprehension, > > > but he could read. He was also fascinated with letters and numbers. > > > However, he was much older than the age when a child would receive a > > > dx of hyperlexia. > > > > > > Dana > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 My son has been labeled " mild hyperlexia " by our DAN!. He is not reading medical textbooks, as some hyperlexic kids are, but he taught himself to read much too early. He was always fascinated by letters, words and number from early infancy 9-18 months olds. He started reading at age 2 1/2 (on his own with no help from us) and now at age 3 years 2 months old he is probably reading at a high 1st grade level (or even above).  He was recently evaluated by a child psychologist because I was concerned about Asperger's Syndrome. But he did not fit the criteria for any known disorder at this time (Asperger's or PDD-NOS). He is 7% for OT, 9% for PT so he gets PT two times weekly and OT one time weekly and yet he scored in the 97% for cognitive skills. ...So he is a bright little guy. He can decode words and reads silently to himself often. He even started reading some in Spanish, as we had some early children's books written in Spanish at the house. He does not comprehend everything he reads but I would say he understands about 60 -70 % from a comprehension stand-point.  He gets into obsessive areas of interest.  A few months ago it was Spanish. The last month or so, it's been animals- where they live, what they eat, etc.  I know it is not NT... but what does it mean? I feel like one side of his brain is being " hyper-stimulated " (reading/cognitive) and one side is being " under-stimulated " (motor).  Interesting that it could be auditory processing related as he had chronic ear infections between age 1 1/2 and 2 1/2. He has started asking me what words mean which I find interesting. Today he asked me what " at " meant.. And yesterday he asked me what " by " means. They are words that he should know what they mean! And yet he read me a sentence from one of his books today about " Kudu living in Africa... " . ??? He is a fascinating little guy, for sure. Our goal is to foster his " gift of reading " in case his gross and fine motor continue to be delayed. Because if they do, he will need an area of strength to help maintain his self-esteem. And we are keeping a keen eye on his overall social development. From: Tammy Kuhn <tkuhn1@...> Subject: Re: [ ] Hyperlexia? Date: Wednesday, February 11, 2009, 11:37 PM I feel strongly my guy has/had hyperlexia. But " professionals " won't diagnose that because he wasn't reading chapter books at age 5. But he memorized his world and learned things I never taught him. He could read on TV like PBS Kids, HGTV, TLC, loved master card/visa, store names, any symbols and books more the better. We couldn't walk through a parking lot without discussing truck, car, ford, Chevy, color, this is like age 2. And I could not carry a conversation on with this guy. You could not tell him to get his shoes. Was amazing. He was 2.9 getting evaluated. If you asked him for a red M & M, no problem. Green, no problem. A red and green M & M, he was struck. One command only. Yes, audio processing disorder, poor fine/gross motor skills. Was amazing in reading, remembering, loves people, social, neat little guy. But it he didn't get it. I remember so frustrated, telling him to pick up his toys. I was yelling, showing him, I couldn't not get in that thick head, bad mommy moment. He was almost 4. My nt 10 month old son got it and he was picking up toys as my 4 year old looked at me with a blank look. Sooooooo frustrating! In early childhood, he was 3 1/2, he new everyone's name in writing. By 2 1/2 he had number, letter, colors, shapes down and reading a ton of words. My kindergartner is doing that. My guy is 9 today. Doesn't fit any one mold. Was medically evaluated by large teams twice and we got their diagnoses of PPD-NOS. He honestly looks Asbergers with personality with ADD tendencies. Anyway.....whatever . Amazing. Don't get hung up on the diagnoses. I've heard some parents say not autistic PPD with no language. I don't take much stock in any title but enjoy his gifts and hope some day he'll find his nitch in the world and enjoy a career. Tammy [ ] Hyperlexia? is it possible to have hyperlexia and not have learned to read at an early age? laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Hyperlexia has been a blessing and curse for us. I delayed getting help for my oldest (he was born in 1985) because he was so darn smart. Also, although he had an IEP, the school just didn't get the social deficit problem.  The blessing of course, is that I have a brilliant son who loves to read and learn, even at the age of 23.  For all of you parents with school age, hyperlexic children, FIGHT for them to get appropriate services for their social deficits. Don't blind yourself, or allow the school to brush aside your child's needs just because they perform academically.  Otherwise you may end up with my son's results: someone who is an intellectual genius, but socially retarded. Someone who cannot function as a " normal " member of society. Someone who is only capable of doing repetitive tasks (job wise) but is smart enough to be bored out of his mind by this. From: Tammy Kuhn <tkuhn1charter (DOT) net> Subject: Re: [ ] Hyperlexia? Date: Wednesday, February 11, 2009, 11:37 PM I feel strongly my guy has/had hyperlexia. But " professionals " won't diagnose that because he wasn't reading chapter books at age 5. But he memorized his world and learned things I never taught him. He could read on TV like PBS Kids, HGTV, TLC, loved master card/visa, store names, any symbols and books more the better. We couldn't walk through a parking lot without discussing truck, car, ford, Chevy, color, this is like age 2. And I could not carry a conversation on with this guy. You could not tell him to get his shoes. Was amazing. He was 2.9 getting evaluated. If you asked him for a red M & M, no problem. Green, no problem. A red and green M & M, he was struck. One command only. Yes, audio processing disorder, poor fine/gross motor skills. Was amazing in reading, remembering, loves people, social, neat little guy. But it he didn't get it. I remember so frustrated, telling him to pick up his toys. I was yelling, showing him, I couldn't not get in that thick head, bad mommy moment. He was almost 4. My nt 10 month old son got it and he was picking up toys as my 4 year old looked at me with a blank look. Sooooooo frustrating! In early childhood, he was 3 1/2, he new everyone's name in writing. By 2 1/2 he had number, letter, colors, shapes down and reading a ton of words. My kindergartner is doing that. My guy is 9 today. Doesn't fit any one mold. Was medically evaluated by large teams twice and we got their diagnoses of PPD-NOS. He honestly looks Asbergers with personality with ADD tendencies. Anyway.....whatever . Amazing. Don't get hung up on the diagnoses. I've heard some parents say not autistic PPD with no language. I don't take much stock in any title but enjoy his gifts and hope some day he'll find his nitch in the world and enjoy a career. Tammy [ ] Hyperlexia? is it possible to have hyperlexia and not have learned to read at an early age? laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 My guy is off with cognitive but at age 9 he keeps getting better with age. He still asks me what things mean all the time, things you'd think he'd just get in everyday conversation. Strange. But mine too was obsessed with things. Garbage truck, trains, taught himself NASCAR, loves maps, cars. Today he remember dates like you wouldn't believe, when people were born. He loves art history and music history. For sure his vision is acute and listening. Makes up for his weaknesses. Nothing standard here, interesting child. Tammy [ ] Hyperlexia? is it possible to have hyperlexia and not have learned to read at an early age? laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 ----- Original Message ----- From: karicreehan Thanks, . I am definitely considering Chelation. Just joined this group a few weeks ago and am really starting to think that they heavy metals are the root cause of all of our problems. Every time I think I have a lead...glutamate, testosterone, etc. it always leads back to the heavy metals. ===>Kari, You are light years ahead of any dan! as it is hard not to get sidetracked with all the protocols which really do not address the underlying condition. Not hard to see where *your* boy gets his intellect. Good luck and let us know if we can help. Thanks, Kari > > > > > > > > is it possible to have hyperlexia and not have learned to read at an > > > early age? > > > > > > > > > Based on my experience with my son, yes. He could read books at a > > > time when his language was very minimal. He had little comprehension, > > > but he could read. He was also fascinated with letters and numbers. > > > However, he was much older than the age when a child would receive a > > > dx of hyperlexia. > > > > > > Dana > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 [ ] Hyperlexia? is it possible to have hyperlexia and not have learned to read at an early age? laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 ----- Original Message ----- From: andrewhallcutler This isn't surprising, since the most readily identifiable genetic risk factor for autism and mercury poisoning is high intelligence. ===>Which is how most dans! and other drs escape Autism. Sorry, not that I was ever in any danger either. Basically the government sponsored medical religion is conducting a genocide against smart people and then creating a diagnosis for the ones they don't make stupid enough through brain damage. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Oh wow...thanks, . Honestly, that's why we've switched gears away from the DANs. It was never something I intentionally did...I just lost my confidence in them over time as I continued to explore and they were still stuck on the gf/cf diet/opiate theory. Don't get me wrong...I think that dietary changes have done great things for us. I just don't think that the leaky gut thing is the " why " behind it working in our case. It means that I fight an uphill battle with my husband, though. because I convinced him that DANs were the solution 18 months ago, only to later realize that they were missing some key points. I'm really thankful for all the wisdom I've gathered here in just a few weeks. I'm gearing up for being the " coordinator " of 's recovery. and for convincing my husband that chelation might be a necessary part of taking to the next level. and I guess I've never done a formal introduction of our family. just mentioned and his autism diagnosis/symptoms. But, I'm fighting something as well. I have neurological reactions to foods, mostly dizziness/brain fog. have terrible GI symptoms. all seemed to improve upon removal of gluten, but it didn't totally solve anything. I have my current theories and I'm looking for the solution Thanks for all the help! It's much appreciated. I'll get in gear soon and get that hair test ordered. Kari > > > > > > > > > > is it possible to have hyperlexia and not have learned to > read at an > > > > early age? > > > > > > > > > > > > Based on my experience with my son, yes. He could read books at a > > > > time when his language was very minimal. He had little > comprehension, > > > > but he could read. He was also fascinated with letters and > numbers. > > > > However, he was much older than the age when a child would > receive a > > > > dx of hyperlexia. > > > > > > > > Dana > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Kim, That is exactly where we are at right now with my son.  I have a school district that can not connect the dots when it comes to Autism and My son is Super High Functioning....which this is very new to us considering he needed hand over hand assistance when he was 2, 3, 4, 5....it was pretty bad.   I am i a strange position right now because is eaither pretty darn near recovered or we have a child with Hyperlexia or Auditory processing...I suspected the Auditiory processing, but school tests 2 years ago showed no. Until I saw the post on hyperlexia, I was pretty baffled as to how it was that my son has the deficits he does, but know one was able to figure these things out but me. You are right about the social deficit thing though. I just recently had to write a letter that cc in the director of special eduation for the state of new mexico, I wrote a letter, that had the best wording, and I attached may documents and copies of my sons restraints.... to it. The district responded to me in 1.5 days!...I am now awaiting a answer to this situation. I know that it is pretty bad, because the teacher is afraid to meet with me for parent teacher confrences. So fighting for my son...I am way out there. Finding the diagnosis that fits with autism totally important for him and my sanity. Thank you for all the input...I will take anything else you guys have to offer. laura ________________________________ From: Kim <delicateflower_kk@...> @... Sent: Wednesday, February 11, 2009 6:13:24 PM Subject: Re: [ ] Hyperlexia? Hyperlexia has been a blessing and curse for us. I delayed getting help for my oldest (he was born in 1985) because he was so darn smart. Also, although he had an IEP, the school just didn't get the social deficit problem.  The blessing of course, is that I have a brilliant son who loves to read and learn, even at the age of 23.  For all of you parents with school age, hyperlexic children, FIGHT for them to get appropriate services for their social deficits. Don't blind yourself, or allow the school to brush aside your child's needs just because they perform academically.  Otherwise you may end up with my son's results: someone who is an intellectual genius, but socially retarded.. Someone who cannot function as a " normal " member of society. Someone who is only capable of doing repetitive tasks (job wise) but is smart enough to be bored out of his mind by this. From: Tammy Kuhn <tkuhn1charter (DOT) net> Subject: Re: [ ] Hyperlexia? Date: Wednesday, February 11, 2009, 11:37 PM I feel strongly my guy has/had hyperlexia. But " professionals " won't diagnose that because he wasn't reading chapter books at age 5. But he memorized his world and learned things I never taught him. He could read on TV like PBS Kids, HGTV, TLC, loved master card/visa, store names, any symbols and books more the better. We couldn't walk through a parking lot without discussing truck, car, ford, Chevy, color, this is like age 2. And I could not carry a conversation on with this guy. You could not tell him to get his shoes. Was amazing. He was 2.9 getting evaluated. If you asked him for a red M & M, no problem. Green, no problem. A red and green M & M, he was struck.. One command only. Yes, audio processing disorder, poor fine/gross motor skills. Was amazing in reading, remembering, loves people, social, neat little guy. But it he didn't get it. I remember so frustrated, telling him to pick up his toys. I was yelling, showing him, I couldn't not get in that thick head, bad mommy moment. He was almost 4. My nt 10 month old son got it and he was picking up toys as my 4 year old looked at me with a blank look. Sooooooo frustrating! In early childhood, he was 3 1/2, he new everyone's name in writing. By 2 1/2 he had number, letter, colors, shapes down and reading a ton of words. My kindergartner is doing that. My guy is 9 today. Doesn't fit any one mold. Was medically evaluated by large teams twice and we got their diagnoses of PPD-NOS. He honestly looks Asbergers with personality with ADD tendencies. Anyway.....whatever . Amazing. Don't get hung up on the diagnoses. I've heard some parents say not autistic PPD with no language. I don't take much stock in any title but enjoy his gifts and hope some day he'll find his nitch in the world and enjoy a career. Tammy [ ] Hyperlexia? is it possible to have hyperlexia and not have learned to read at an early age? laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 I think getting a medical team, outside of the school community to diagnose your child may help? Is the school dist giving him a label or an IEP? My guy gets social skills class, ot and a small group session to work on math. He's main stream and thankfully because of his great memory and reading skills, great speller too. My guy is truly loved at school and has a great team behind him. Honestly working as a team it has been a wonderful experience. I work in a public school system, different from where my kids school, and my co-worker pulled her child because his needs weren't being meant. Always the option to move to another district with better services. Wishing you the best. Tammy [ ] Hyperlexia? is it possible to have hyperlexia and not have learned to read at an early age? laura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 I think chelation is probably the answer for us as well. I was just telling my husband about this post, and he agrees.  Although my sons are similar, the oldest was vaccinated, his younger brother wasn't. But, I have upmteen dental amalgams, some of which date back to the 1970s. I'm sure this is where the problem lies.  We've also used the diet and supplements. The supplements do help, and I notice a difference when we take a break, but I guess we're missing this.  So, would you all agree that the best place to start is ordering Andy's book?  Kim From: karicreehan <karicreehan@...> Subject: [ ] Re: Hyperlexia? Date: Wednesday, February 11, 2009, 8:57 PM Oh wow...thanks, . Honestly, that's why we've switched gears away from the DANs. It was never something I intentionally did...I just lost my confidence in them over time as I continued to explore and they were still stuck on the gf/cf diet/opiate theory. Don't get me wrong...I think that dietary changes have done great things for us. I just don't think that the leaky gut thing is the " why " behind it working in our case. It means that I fight an uphill battle with my husband, though. because I convinced him that DANs were the solution 18 months ago, only to later realize that they were missing some key points. I'm really thankful for all the wisdom I've gathered here in just a few weeks. I'm gearing up for being the " coordinator " of 's recovery. and for convincing my husband that chelation might be a necessary part of taking to the next level. and I guess I've never done a formal introduction of our family. just mentioned and his autism diagnosis/symptoms. But, I'm fighting something as well. I have neurological reactions to foods, mostly dizziness/brain fog. have terrible GI symptoms. all seemed to improve upon removal of gluten, but it didn't totally solve anything. I have my current theories and I'm looking for the solution Thanks for all the help! It's much appreciated. I'll get in gear soon and get that hair test ordered. Kari > > > > > > > > > > is it possible to have hyperlexia and not have learned to > read at an > > > > early age? > > > > > > > > > > > > Based on my experience with my son, yes. He could read books at a > > > > time when his language was very minimal. He had little > comprehension, > > > > but he could read. He was also fascinated with letters and > numbers. > > > > However, he was much older than the age when a child would > receive a > > > > dx of hyperlexia. > > > > > > > > Dana > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 ----- Original Message ----- From: karicreehan and I guess I've never done a formal introduction of our family. just mentioned and his autism diagnosis/symptoms. But, I'm fighting something as well. I have neurological reactions to foods, mostly dizziness/brain fog. have terrible GI symptoms. all seemed to improve upon removal of gluten, but it didn't totally solve anything. I have my current theories and I'm looking for the solution ===>Andy has often said that chelation is a family affair. Consider doing a hair test for yourself, also, Kari. Thanks for all the help! It's much appreciated. I'll get in gear soon and get that hair test ordered. Kari > > > > > > > > > > is it possible to have hyperlexia and not have learned to > read at an > > > > early age? > > > > > > > > > > > > Based on my experience with my son, yes. He could read books at a > > > > time when his language was very minimal. He had little > comprehension, > > > > but he could read. He was also fascinated with letters and > numbers. > > > > However, he was much older than the age when a child would > receive a > > > > dx of hyperlexia. > > > > > > > > Dana > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 [ ] Re: Hyperlexia? Date: Wednesday, February 11, 2009, 8:57 PM Oh wow...thanks, . Honestly, that's why we've switched gears away from the DANs. It was never something I intentionally did...I just lost my confidence in them over time as I continued to explore and they were still stuck on the gf/cf diet/opiate theory. Don't get me wrong...I think that dietary changes have done great things for us. I just don't think that the leaky gut thing is the " why " behind it working in our case. It means that I fight an uphill battle with my husband, though. because I convinced him that DANs were the solution 18 months ago, only to later realize that they were missing some key points. I'm really thankful for all the wisdom I've gathered here in just a few weeks. I'm gearing up for being the " coordinator " of 's recovery. and for convincing my husband that chelation might be a necessary part of taking to the next level. and I guess I've never done a formal introduction of our family. just mentioned and his autism diagnosis/symptoms. But, I'm fighting something as well. I have neurological reactions to foods, mostly dizziness/brain fog. have terrible GI symptoms. all seemed to improve upon removal of gluten, but it didn't totally solve anything. I have my current theories and I'm looking for the solution Thanks for all the help! It's much appreciated. I'll get in gear soon and get that hair test ordered. Kari > > > > > > > > > > is it possible to have hyperlexia and not have learned to > read at an > > > > early age? > > > > > > > > > > > > Based on my experience with my son, yes. He could read books at a > > > > time when his language was very minimal. He had little > comprehension, > > > > but he could read. He was also fascinated with letters and > numbers. > > > > However, he was much older than the age when a child would > receive a > > > > dx of hyperlexia. > > > > > > > > Dana > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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