Leaky Gut Syndrome

[Guest guest]

I have also been researching Leaky Gut

Here is an interesting article

http://www.healthy.net/library/articles/galland/Leakygut.htm

Also, have been looking into Bovine Colostrum (yes - from cows who have

just given birth!); supposed to help supply immune factors, growth factors

to help heal Leaky Gut. A bit " alternative " but worth checking into, I

believe. My OB/GYN was actually the one who mentioned it to me; but just

as something that could possibly help and is most likely harmless. New

Zealand is reputed to produce a " quality " product.

I don't have any links at my fingertips for that one; I will see if I can

get to it, or anyone else interested might do a net search.

-April

[Guest guest]

Below is my take on it as well. My older son has high functioning

autism, and the Leaky Gut theory is a flashpoint in the autism

community... lots of people think it causes autism. I think the

conditions CAN coexist but are not cause-effect. Lots of people have

one but not the other as well.

As per Leaky Gut, I have done a gluten free and casein free diet (GFCF)

myself and found zero relief from my PA or P symptoms. Unfortunately,

for me, it's just NOT that simple.

-Marietta

> [Editor's Note: There are plenty of people without PA who also have

IBS and other gustatory problems so I think that it is sophistry to

conclude that leaky gut CAUSES PA. Some people with PA have leaky gut,

some don't. Some people with leaky gut have PA, some don't. It seems

pretty far-fetched, therefore, to conclude a causal relationship. For

many of our list members, their IBS and stomach problems were side

effects from medication. Many of us did not have stomach problems

prior to showing signs of PA. To me, this is a bit like saying that

acne causes PA because some people with PA have acne. The overwhelming

body of medical research shows that this disease is caused by faulty

immune systems - not by leaky gut. Someone is looking to make money

selling a book if you ask me. Kathy F.]

>

[Guest guest]

Hi Mariette,

Sorry to hear that changing your diet didn't help you. My roommate

is studying autism at school and she said some theories have

included too much mercury in the blood - like from eating tuna,

etc. Have you hear of that too? It breaks my heart to hear her

stories of these kids!

I asked my question because I wanted to open the forum to an active

and dynamic discussion on WHY we are sick. Instead of just focusing

on fixing or masking the symptoms.

BTW - The book I suggested is not someone trying to make a few quick

bucks. She too has RA and was incapacitated at a young age and

fought it for EIGHT YEARS. She used to live here and when to my

unversity until recently. Through her own experimentation and

research, she has found multiple food allergies and intolerances and

after changing her diet, she is virtually pain-free and totally

medication-free.

But that isn't my point. The reason I bring this up is that I don't

think it is a causal link for some people. Yes, PsA is caused by a

faulty immune system, but what caused the faulty immune system??

Besides my PsA, I am very healthy and active (when I am not in the

middle of a flare

As we all know, arthritis is complicated and caused/triggered by

many issues. But to dismiss having a digestive track that is

permeable thus letting toxins invade our blood stream and then

setting off our immune systems into overdrive is too quick to

judge. I mean, we are all suffering from an autoimmune disorder!

What caused our immune systems to suddenly start attacking our

joints - and in other cases the skin and eyes?

And I agree, IBS does not go hand in hand with leaky gut theory.

That was just an example of a manifestation of a side effect. IBS

could be a side effect of leaky gut, just like PsA could be a

side effect as well.

Just like acne is a symptom of eating badly. But it can also just

be a hormonal or genetic glitch.

Medicine is a fine art and any clue to the " underlying " reason for

our pain, in my opinion, would help find the " cure " .

[Editor's Note: Your first post stated that you believe there IS a causal link

so I think you are backing off from that a bit. There is the real likelihood

that some people have arthritis-like symptoms that aren't caused by arthritis at

all but are the result of eating foods that the individual is allergic to.

Therefore, once those foods are eliminated from the diet, the symptoms go away.

This is far different from providing conclusive evidence that arthritis is

caused by poor nutrition because the reality is that the individual never

suffered from arthritis at all - they merely had similar symptoms. Therefore,

literature that suggests " arthritis cures " based on foods or anything else (as

the book you recommended does) is leading the overwhelming majority of arthritis

sufferers down a path of false hope. The fact is that IF anyone was able to

identify the cure for arthritis, he or she would win the Nobel Prize for

Medicine, rather than be the author of a book that enriches the author but does

nothing to ease the pain and suffering of the millions of people who suffer from

arthritis. It is fine to keep an open mind, but it is not acceptable, in my

view, to tout literature that purports to have cures when, in fact, none exist.

Kathy F.]

>

> Below is my take on it as well. My older son has high functioning

> autism, and the Leaky Gut theory is a flashpoint in the autism

> community... lots of people think it causes autism. I think the

> conditions CAN coexist but are not cause-effect. Lots of people

have

> one but not the other as well.

>

> As per Leaky Gut, I have done a gluten free and casein free diet

(GFCF)

> myself and found zero relief from my PA or P symptoms.

Unfortunately,

> for me, it's just NOT that simple.

>

> -Marietta

>

>

> > [Editor's Note: There are plenty of people without PA who also

have

> IBS and other gustatory problems so I think that it is sophistry

to

> conclude that leaky gut CAUSES PA. Some people with PA have leaky

gut,

> some don't. Some people with leaky gut have PA, some don't. It

seems

> pretty far-fetched, therefore, to conclude a causal relationship.

For

> many of our list members, their IBS and stomach problems were side

> effects from medication. Many of us did not have stomach problems

> prior to showing signs of PA. To me, this is a bit like saying

that

> acne causes PA because some people with PA have acne. The

overwhelming

> body of medical research shows that this disease is caused by

faulty

> immune systems - not by leaky gut. Someone is looking to make

money

> selling a book if you ask me. Kathy F.]

> >

>

[Guest guest]

I don't know what causes PA but I really believe that the bad reaction

I had to Crestor, the cholesteral med, set off my PA. I had never had

PA before, no aches or pains. Perhaps the PA lay dormant until being

set off last January.

I now read there are multiple lawsuits against Crestor for leaving

people crippled.

Hollie

[Editor's Note: Hollie, I'm sorry to hear this. Many people can point to a

specific event that seemed to trigger PA - in some cases, it is the birth of a

child, in others it is a major stress producer (e.g. death of a loved one). At

this point, the national arthritis foundations of the UK, Canada and the US do

not know what causes arthritis (although some authors claim to know), but the

answer may be that there are several things that can trigger an auto immune

system to suddenly go awry. One theory is that there is a genetic component and

that life-events (including medications), cause such severe chemical shock to

our systems that they may trigger naturally weak immune systems to suddenly go

amok. I do not dismiss the possibility that for some people, leaky gut syndrome

may flood the body with toxic intake and that those toxins may produce severe

arthritis or arthritic symptoms. I am merely of the view that it would be wrong

to assert that this is THE cause for all people given there is no evidence to

suggest that is universally the case. Your PA may well have been triggered by a

severe reaction to Crestor. Kathy F.]

> I asked my question because I wanted to open the forum to an active

> and dynamic discussion on WHY we are sick. Instead of just focusing

> on fixing or masking the symptoms.

>

[Guest guest]

>

> Below is my take on it as well. My older son has high functioning

> autism, and the Leaky Gut theory is a flashpoint in the autism

> community... lots of people think it causes autism.

I also have IBS as well as other autoimmune disorders. I really don't

think the IBS causes the PA. I just think that when you have one

autoimmune disorder that there are many other ones you are prone to .

for example there are many of us here with.

Hashimoto's, fibromyalgia, allergies, IBS, psoriasis, PA, Chrohns,

I have also spoke to people a while ago (women) with ovarian cysts. It

seems to also be a part of this.

Janet

[Editor's Note: Since science has not isolated the cause of ANY autoimmune

disorder and no positive link has been established between IBS, leaky gut or

diet (although they shouldn't be ruled out, either), instead of assuming that

leaky gut causes PA, we can equally assume that PA causes leaky gut. Ergo,

anyone claiming to have the answers, doesn't. It appears, however, that genetics

may play a prominent role. Kathy F.]

[Guest guest]

Hi Betsy, I hope you are feeling much better after your

hopitalization!

I have read articles on Leaky Gut Syndrome too. From my

understanding Leaky Gut Syndrome is your gut/intestine doesn't

absorb properly nurtrients and also allows toxins from our diet to

go directly into the blood system and that then causes many

problems, most likely also causes autoimmune issues since our body

turns to overdrive to attack the toxins in our blood.

It is also in a book I have read called " Conquering Arthritis " by

Barbara . She doesn't sell a cure or promise anything but she

has found that she is living a pretty pain free life after fasting

and finding out what foods she is sensitive to. In her cause it is

corn and wheat, I believe. She delves into the Leaky Gut Syndrome

in her book - and she went to Washington University (a top 3

Research and Medical School in the US) as a graduate student in

Microbiology (I think that was her speciality). So she took all her

expertise and access to research to help her fight her own battle

with Arthritis. If anything, her story is inspiring and nice to

hear that at least someone was able to control her arthritis

naturally.

On to my long story...So I chicken out of fasting...I mean, how many

people have the time, resources, and gumption to follow through

something like that expecially since there is no gurantee it will

work for you?

So I went to the best GI DR in St Louis, Dr Leonard Weinstock, and

asked him about Leaky Gut Syndrome. I was shocked to find out he

not only think it is real, he is part of a nascent research team who

is trying a new treatment to help people cure IBS by treating Leaky

Gut Syndrome caused by over abundance in bacteria in their gut

(small intestinal tract).

Since I also have IBS and the GI Dr felt that I should explore this

route before taking such harsh drugs like Enbrel, he felt he could

help. Because he now has seen enough evidence that Leaky Gut

Syndrome very well can cause Arthritis.

In fact, I think there are two types of Arthritis specifically

caused by probs of the guy: Reactive and another form of PA caused

by Crohins.

So I did the test, out of 30 people doing the test that day, I and

one other girl tested positive for an over abundance of bacteria

which makes me a prime candidate for LEaky Gut SYndrome. I was

given a prescription of Antibiotics, re-florfication of Intesting

medicine and something else.

Because this is so new, and I got what I asked for (you know that

saying ), I was too scared to follow up and actually do the

treatment.

I often think about doing it again...it has been almost a year since

i went to see the Dr. Maybe if I knew someone else who did it, then

I might do it too...

Kat

>

> Please bear with me on this message as I am not all that sure

> exactly what I am trying to say! HA! Several years ago, I read a

> very interesting article in either Newsweek or Time Magazine

> about something called Leaky Gut Syndrome. The article commented

> that it was now being thought to have a bearing on many diseases,

> including many auto-immune diseases. That article has stuck in

> my brain for some reason.

>

> Anyway, met a retired nurse who now does Rolfing and she said

> that she would recommend anyone with " toxic " arthritis (meaning

> PA) follow a strict diet for leaky gut syndrome and that was

> probably the root of the disease. I took it half

> heartedly....but once again remembered the article I had year in

> the news magazine.

>

> Now today the latest posting on our PA site, about the medicine

> tauted by Coburn and the bowel cleansing has caused me to

> take heed. One of the things I remember about this leaky gut

> syndrome is cleaning out the bowel.

>

> My question, is have any of you ever heard of, or tried,

> treatment for leaky gut syndrome? I gather that it is more of an

> alternative treatment than the main stream docs acceptance since

> antibiotics, prednisone and NSAIDS are thought to be the big

> culprits.

>

> I have never in my whole life considered alternative

> therapy....but have to say that there is something definately

> tweaking my mind and curiousity right now about all this......

>

> Love to hear any all all ideas here....

>

>

> Poulsbo, WA.

>

[Guest guest]

It looks like there are many kids on the spectrum with Leaky Gut. I'm

wondering what the symptoms are and if there is a medical test that

will diagnose this?

Thanks,

Liz

Houston

[Guest guest]

Some symptoms are diarrhea, constipation, underweight, excessive gas,

obsession with foods with gluten or casein, picky eater, and

looking 'high' after eating these foods (spinning in circles, rolling

on the floor, rubbing on textures, playing with light toys, etc).

There are others but I would look it up. There are tests to confirm:

IGG blood test or comprehensive stool test. But they are expensive.

I think it is easier to do an elimination diet and document the

results. Many children show a huge change in the first couple of

weeks. Also most children's behavior escalates when gluten and casein

is removed because they are going through withdrawl. It is pretty

obvious. My daughter licked my arm once when I was wearing a lotion

with oats in it.

Jen

>

> It looks like there are many kids on the spectrum with Leaky Gut.

I'm

> wondering what the symptoms are and if there is a medical test that

> will diagnose this?

> Thanks,

> Liz

> Houston

>

[Guest guest]

My daughter did have a protruding stomach (looked like the starving

children in Africa), was constipated and on Miralax for it. Then

she had diarrhea after 5-7 days of holding it. Her stomach would go

down but she still had excessive gas and stomach cramping. I

mentioned my concern often to the ped. during the 1 1/2 years she

was on Miralax. She was miserable all the time. Then we started

the diet and she was no longer constipated. So we stopped the

Miralax. Months later she started holding BM again for possibly an

infraction with gluten and I started Miralax again. Same symptoms

as before appeared. I mentioned it on a forum for the diet and I

was directed to a site that stated that children with Leaky Gut

should not have Miralax, because too much is absorbed and can become

toxic. I immediately stopped the Miralax and tried mineral oil.

She had no additional symptoms and resumed normal BMs. She has no

excessive gas, bloating, or any digestive issues on the diet.

Jen

> It looks like there are many kids on the spectrum with Leaky Gut.

I'm

> wondering what the symptoms are and if there is a medical test

that

> will diagnose this?

> Thanks,

> Liz

> Houston

>

> ---------------------------------

> Everyone is raving about the all-new beta.

>

>

[Guest guest]

WOW, if these are the foods to advoid, and soy is just as bad. whats left? I

don't know if thats whats going on with my son. but lots relate.

What do you think of meats? steak, fish, chicken, pork?

jennifer_thorson <jennifer_thorson@...> wrote:

casein- milk, cheese, yogurt, butter, ice cream

gluten- wheat, oats (cross-contamination- can buy oats that are

clean online), barley, rye

Obviously this is what most people eat. At first I thought she

could eat almost nothing. But I found bread, cereal, crackers,

cookies, waffles, pizza, and pasta that she would eat online and at

natural food stores. Then she started to eat soy cheese, pudding,

butter and things were easier. Although I do limit soy because it

can have the same effect as casein in many children with leaky gut.

Jen

upport , Rose <beachbodytan2002@...> wrote:

>

> ,

> can you name a few foods that have gluten or casein to give me

an example of what they are?

>

> jennifer_thorson <jennifer_thorson@...> wrote:

> Some symptoms are diarrhea, constipation, underweight,

excessive gas,

> obsession with foods with gluten or casein, picky eater, and

> looking 'high' after eating these foods (spinning in circles,

rolling

> on the floor, rubbing on textures, playing with light toys, etc).

> There are others but I would look it up. There are tests to

confirm:

> IGG blood test or comprehensive stool test. But they are

expensive.

> I think it is easier to do an elimination diet and document the

> results. Many children show a huge change in the first couple of

> weeks. Also most children's behavior escalates when gluten and

casein

> is removed because they are going through withdrawl. It is pretty

> obvious. My daughter licked my arm once when I was wearing a

lotion

> with oats in it.

>

> Jen

>

>

> >

> > It looks like there are many kids on the spectrum with Leaky

Gut.

> I'm

> > wondering what the symptoms are and if there is a medical test

that

> > will diagnose this?

> > Thanks,

> > Liz

> > Houston

> >

>

>

>

>

>

>

> ---------------------------------

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rates.

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>

[Guest guest]

There is rice bread, pasta, tortillas. There is rice cheese but it

does not taste very good. I limit soy so no soy milk but I let her

have one serving of chesse a day. I buy mostly organic foods to

avoid all the additives. Meat is fine except seafood should be

avoided if there might be metal toxicity. There are a lot of snacks

online so it is not as limiting as you think. But it does cost a

little more. If you want the names of the foods that my picky

daughter likes let me know.

Jen

> > >

> > > It looks like there are many kids on the spectrum with Leaky

> Gut.

> > I'm

> > > wondering what the symptoms are and if there is a medical test

> that

> > > will diagnose this?

> > > Thanks,

> > > Liz

> > > Houston

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Cheap Talk? Check out Messenger's low PC-to-Phone call

> rates.

> >

> >