Re: New Here ... Hello

[Guest guest]

Hi , just wanted to say welcome. Where are you from? and are you

accessing services via your local mental health center? Pam

[Guest guest]

Most states have something like a Department of Developmental Disabilities.

Please do some research to find out what services are available.

( ) New Here ... Hello

Hello Everyone,

My name is and I have an eight year old son with AS. I am up in the

middle of the

night becuase I cannot sleep after todays events. I'm looking for some much

needed

support and found your group doing a search. The past two and a half weeks of my

life

have been extreamly chalenging and stressful. The major stressors are the

holidaies, a trip

14 hour drive (one way) home for a week long trip and a major plumbing disaster

in my

home. Then today I recieved a letter from my son's psychologist saying that we

were

loosing our standing appt due to missing the last three appts. I was so mad.

Last week we

were on a trip that had been planned for months and the office was told that we

would be

out of town weeks ago. The week proior to that I was told The Dr would be out of

town

herself so we did not go. I did miss the week before that becuase my son was

sent home

sick from school. I called the office that day, but it was not 24 hours in

advance so I have

to pay a $50.00 fee. $50.00 x 3 weeks is so much money!!! Money I do not have

and do

not feel I should have to pay. At least not the last two weeks.

Here the real problem. My son really needs these sessions. He has been talking

about

hurting himself and hateing school and life. We have just taken him out of the

horrible

public school he was in to start homeschool him. That has helped alot in the

short term

but in the long term I am scared about his self hate. He never talked like that

until he had

been at the mercy of those awful kids and crappy school!! I don't know what I am

looking

for. Just someone who understands where I am comming from. It took me so long to

find a

therapist to work with and then months to get in and more months to get a

standing apt.

Now that we have lost that I'm not sure what to do next. I'm so sad, and I feel

all alone in

this. My husband not much help. It's like he expects me to deal with everything

having to

do with our kids and our home no matter what. All he feels he needs to do is

earn money

and put out the trash.

My 2 year old is also high need and has a 12 month developemental delay in

speech (ST),

9 month cog delay, Sensory processing problems (OT) and 12 month gross motor

delay

(PT). He has therapy 3 times a week, my 8 year old has OT once a week and had

behavioral

therapy once a week as well until now.

I'm tired, sad, lonely, and most of all burnt out. I tried to see a councelor

for myself and

had to bring my 2 year old as I have no real support system. The therapist was

fine with

his comming at first but then one session about 6 weeks ago said " I think it

would be best

if you got a sitter for our sessions from now on. "

I wanted to say something like " Well Duh!!! No really? Do you think I would

willingly bring

my 2 year old with me if I had a freakn choice?!?!? " But I didn't. I just

cancled my next few

appt's and have been looking for help, and a new councelor ever since.

Thank you for reading/listening.

Sincerely,

[Guest guest]

,

Welcome aboard. You will get much help here and a great support system.

byebyecow <byebyecow@...> wrote:

Hello Everyone,

My name is and I have an eight year old son with AS. I am up in the

middle of the

night becuase I cannot sleep after todays events. I'm looking for some much

needed

support and found your group doing a search. The past two and a half weeks of my

life

have been extreamly chalenging and stressful. The major stressors are the

holidaies, a trip

14 hour drive (one way) home for a week long trip and a major plumbing disaster

in my

home. Then today I recieved a letter from my son's psychologist saying that we

were

loosing our standing appt due to missing the last three appts. I was so mad.

Last week we

were on a trip that had been planned for months and the office was told that we

would be

out of town weeks ago. The week proior to that I was told The Dr would be out of

town

herself so we did not go. I did miss the week before that becuase my son was

sent home

sick from school. I called the office that day, but it was not 24 hours in

advance so I have

to pay a $50.00 fee. $50.00 x 3 weeks is so much money!!! Money I do not have

and do

not feel I should have to pay. At least not the last two weeks.

Here the real problem. My son really needs these sessions. He has been talking

about

hurting himself and hateing school and life. We have just taken him out of the

horrible

public school he was in to start homeschool him. That has helped alot in the

short term

but in the long term I am scared about his self hate. He never talked like that

until he had

been at the mercy of those awful kids and crappy school!! I don't know what I am

looking

for. Just someone who understands where I am comming from. It took me so long to

find a

therapist to work with and then months to get in and more months to get a

standing apt.

Now that we have lost that I'm not sure what to do next. I'm so sad, and I feel

all alone in

this. My husband not much help. It's like he expects me to deal with everything

having to

do with our kids and our home no matter what. All he feels he needs to do is

earn money

and put out the trash.

My 2 year old is also high need and has a 12 month developemental delay in

speech (ST),

9 month cog delay, Sensory processing problems (OT) and 12 month gross motor

delay

(PT). He has therapy 3 times a week, my 8 year old has OT once a week and had

behavioral

therapy once a week as well until now.

I'm tired, sad, lonely, and most of all burnt out. I tried to see a councelor

for myself and

had to bring my 2 year old as I have no real support system. The therapist was

fine with

his comming at first but then one session about 6 weeks ago said " I think it

would be best

if you got a sitter for our sessions from now on. "

I wanted to say something like " Well Duh!!! No really? Do you think I would

willingly bring

my 2 year old with me if I had a freakn choice?!?!? " But I didn't. I just

cancled my next few

appt's and have been looking for help, and a new councelor ever since.

Thank you for reading/listening.

Sincerely,

[Guest guest]

Oh ! I think we are living the same life! My AS son is 7 & his little

brother is 3 with speech delays ( & I believe will have a Aperger's DX too).

Your husband sounds like mine too. But mine grumbles about taking out the

trash!

Liz

Essenfeld <lessen@...> wrote:

,

Welcome aboard. You will get much help here and a great support system.

byebyecow <byebyecow@...> wrote:

Hello Everyone,

My name is and I have an eight year old son with AS. I am up in the

middle of the

night becuase I cannot sleep after todays events. I'm looking for some much

needed

support and found your group doing a search. The past two and a half weeks of my

life

have been extreamly chalenging and stressful. The major stressors are the

holidaies, a trip

14 hour drive (one way) home for a week long trip and a major plumbing disaster

in my

home. Then today I recieved a letter from my son's psychologist saying that we

were

loosing our standing appt due to missing the last three appts. I was so mad.

Last week we

were on a trip that had been planned for months and the office was told that we

would be

out of town weeks ago. The week proior to that I was told The Dr would be out of

town

herself so we did not go. I did miss the week before that becuase my son was

sent home

sick from school. I called the office that day, but it was not 24 hours in

advance so I have

to pay a $50.00 fee. $50.00 x 3 weeks is so much money!!! Money I do not have

and do

not feel I should have to pay. At least not the last two weeks.

Here the real problem. My son really needs these sessions. He has been talking

about

hurting himself and hateing school and life. We have just taken him out of the

horrible

public school he was in to start homeschool him. That has helped alot in the

short term

but in the long term I am scared about his self hate. He never talked like that

until he had

been at the mercy of those awful kids and crappy school!! I don't know what I am

looking

for. Just someone who understands where I am comming from. It took me so long to

find a

therapist to work with and then months to get in and more months to get a

standing apt.

Now that we have lost that I'm not sure what to do next. I'm so sad, and I feel

all alone in

this. My husband not much help. It's like he expects me to deal with everything

having to

do with our kids and our home no matter what. All he feels he needs to do is

earn money

and put out the trash.

My 2 year old is also high need and has a 12 month developemental delay in

speech (ST),

9 month cog delay, Sensory processing problems (OT) and 12 month gross motor

delay

(PT). He has therapy 3 times a week, my 8 year old has OT once a week and had

behavioral

therapy once a week as well until now.

I'm tired, sad, lonely, and most of all burnt out. I tried to see a councelor

for myself and

had to bring my 2 year old as I have no real support system. The therapist was

fine with

his comming at first but then one session about 6 weeks ago said " I think it

would be best

if you got a sitter for our sessions from now on. "

I wanted to say something like " Well Duh!!! No really? Do you think I would

willingly bring

my 2 year old with me if I had a freakn choice?!?!? " But I didn't. I just

cancled my next few

appt's and have been looking for help, and a new councelor ever since.

Thank you for reading/listening.

Sincerely,

[Guest guest]

I wouldn't be too happy to have to pay for appointments I didn't have either.

Try to find someone who is much easier to work with (if possible.) We've never

found anyone for our ds's to talk to. Well, our older ds would never have

discussed things with a counselor so that would have been a waste of time and

money. My younger one with HFA, I have never felt it would be helpful to have

counseling for him (maybe about him, but not for him, lol) Anyway, our younger

is 10 yo and he also does the negative self talk. I honestly don't know why he

does it. We are working with meds. I think he really started doing this when

school started becoming really difficult for him (not academically but socially

and the volumne of work as well.) His anxiety level increases and then he melts

down a lot and says he hates himself and wishes I would shoot him in the head.

I honestly don't know an answer to it. I feel like he does not have a good

handle on emotions and how to express them and deal with them. Everything is

HUGE to him, everything is a crisis. He never has a minor problem. So I try to

work with him on " self regulation " where he learns to rate his feelings or aches

and pains or whatever. Not working so far.

We currently are working with meds, trying to find the right med and right

dosage that might lower his level of anxiety so he can learn better (learn

socially better.) But it's not that great so far. Also, I am working to get

the school to provide the accommodations in his IEP. They sometimes have a

problem doing that, as if I wrote those in so they would look nice???? argh.

But the whole idea is to lessen the stress load. We consider homeschooling him

as well because he goes to middle school next year (a total disaster for our

older ds with HFA), he is gifted and obviously bored in regular education

classes (causing more problems in class) and just the problem with constantly

having to deal with people who have no clue. I'm so tired of doing that lately.

Anyway, loved your counselor's suggestion to leave the 2 yo at home. HA! I've

had that happen before as well, as if we have choices. Where we live, we don't

have family around and so there is nobody to rely on or to help us out with the

kids. Hang in there. I know it's not easy. I find it easiest to " pace myself "

- my new mantra for the year. Focus on what needs to be dealt with first and

try not to feel you have to fix everything by the end of the day - it's a long

road we are on, not something you can sprint through. And we are all here if

you want to yell.

Roxanna

( ) New Here ... Hello

Hello Everyone,

My name is and I have an eight year old son with AS. I am up in the

middle of the

night becuase I cannot sleep after todays events. I'm looking for some much

needed

support and found your group doing a search. The past two and a half weeks of

my life

have been extreamly chalenging and stressful. The major stressors are the

holidaies, a trip

14 hour drive (one way) home for a week long trip and a major plumbing

disaster in my

home. Then today I recieved a letter from my son's psychologist saying that we

were

loosing our standing appt due to missing the last three appts. I was so mad.

Last week we

were on a trip that had been planned for months and the office was told that

we would be

out of town weeks ago. The week proior to that I was told The Dr would be out

of town

herself so we did not go. I did miss the week before that becuase my son was

sent home

sick from school. I called the office that day, but it was not 24 hours in

advance so I have

to pay a $50.00 fee. $50.00 x 3 weeks is so much money!!! Money I do not have

and do

not feel I should have to pay. At least not the last two weeks.

Here the real problem. My son really needs these sessions. He has been talking

about

hurting himself and hateing school and life. We have just taken him out of the

horrible

public school he was in to start homeschool him. That has helped alot in the

short term

but in the long term I am scared about his self hate. He never talked like

that until he had

been at the mercy of those awful kids and crappy school!! I don't know what I

am looking

for. Just someone who understands where I am comming from. It took me so long

to find a

therapist to work with and then months to get in and more months to get a

standing apt.

Now that we have lost that I'm not sure what to do next. I'm so sad, and I

feel all alone in

this. My husband not much help. It's like he expects me to deal with

everything having to

do with our kids and our home no matter what. All he feels he needs to do is

earn money

and put out the trash.

My 2 year old is also high need and has a 12 month developemental delay in

speech (ST),

9 month cog delay, Sensory processing problems (OT) and 12 month gross motor

delay

(PT). He has therapy 3 times a week, my 8 year old has OT once a week and had

behavioral

therapy once a week as well until now.

I'm tired, sad, lonely, and most of all burnt out. I tried to see a councelor

for myself and

had to bring my 2 year old as I have no real support system. The therapist was

fine with

his comming at first but then one session about 6 weeks ago said " I think it

would be best

if you got a sitter for our sessions from now on. "

I wanted to say something like " Well Duh!!! No really? Do you think I would

willingly bring

my 2 year old with me if I had a freakn choice?!?!? " But I didn't. I just

cancled my next few

appt's and have been looking for help, and a new councelor ever since.

Thank you for reading/listening.

Sincerely,

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